Health information: Does quality count for the consumer?: How consumers evaluate the quality of health information materials across a variety of media

Journal of Librarianship and Information Science

Volumn 38, Issue 3, 2006, Pages 141-156

  Marshall, Lyndsay A ^a   Williams, Dorothy ^a  

^a ROBERT GORDON UNIVERSITY   (United Kingdom)

Author keywords

Consumer health information; Evaluation; Focus groups; Information literacy

Indexed keywords

EID: 33747167593     PISSN: 09610006     EISSN: 17416477     Source Type: Journal    
DOI: 10.1177/0961000606066575     Document Type: Article

References (44)

1. Bernhardt, J. M. and Felter, E. M. (2004) 'Online Pediatric Information Seeking among Mothers of Young Children: Results from a Qualitative Study using Focus Groups', Journal of Medical Internet Research, 6 (10). e7 - e7, URL (consulted June 2005). http://www.jmir.org/2004/1/e7/
2. Booth-Clibborn, N., Milne, R. and Oliver, S. (2001) 'Searching for High Quality Evidence to Prepare Patient Information', Health Information and Libraries Journal 18: 75-82.
3. Centre for Health Information Quality (2002) HiQuality, URL (consulted May 2002). http://www.hiquality.org.uk
4. Charnock, D. (1998) The DISCERN Handbook: Quality Criteria for Consumer Health Information on Treatment Choices. Abingdon: Radcliffe Medical Press, URL (consulted June 2005). http://www.discern.org.uk/Discern%20HB&10L.pdf
5. Charnock, D. and Shepperd, S. (2004) 'Learning to DISCERN Online: Applying an Appraisal Tool to Health Websites in a Workshop Setting', Health Education Research 19 (4). 440-446.
6. Charnock, D., Shepperd, S., Needham, G. and Gann, R. (1999) 'An Instrument for Judging the Quality of Written Consumer Health Information on Treatment Choices', Journal of Epidemiology and Community Health 53: 105-111.
7. Childs, S. (2003) Judge: Web Sites for Health. Consumer Guidelines. Newcastle upon Tyne: Northumbria University, URL (consulted June 2005). http://www.judgehealth.org.uk/downloads/cg_printfile.pdf
8. Childs, S. (2004) 'Developing Health Website Quality Assessment Guidelines for the Voluntary Sector: Outcomes from the Judge Project', Health Information and Libraries Journal 21 (Suppl 2). 14-26.
9. Coulter, A. (1999) 'Paternalism or Partnership?' British Medical Journal 319: 719-720.
10. Coulter, A., Entwistle, V. and Gilbert, D. (1999) 'Sharing Decisions with Patients: Is the Information Good Enough?' British Medical Journal 318: 318-322.
11. Department of Health (1997) The New NHS, Modern/Dependable - CM3807. London: The Stationery Office, URL (consulted June 2005). http://www.archive. official-documents.co.uk/document/doh/newnhs/newnhs.htm
12. Department of Health (2003) Toolkit for Producing Patient Information: Version 2. London: The Stationery Office, URL (consulted June 2005). http://www.dh.gov.uk/assetRoot/04/06/84/62/04068462.pdf
13. Department of Health (2005) Creating a Patient-led NHS: Delivering the NHS Improvement Plan. London: The Stationery Office, URL (consulted June 2005). http://www.dh.gov.uk/assetRoot/04/10/65/07/04106507.pdf
14. Entwistle, V. and Watt, I. (1998) 'Disseminating Information about Healthcare Effectiveness: A Survey of Consumer Health Information Services', Quality in Health Care 7: 124-129.
15. Estabrooks, C., Goel, V., Theil, E., Pinfold, P., Sawka, C. and Williams, I. (2001) 'Decision Aids: Are They Worth it? A Systematic Review', Journal of Health Services Research and Policy 6 (3). 170-182.
16. Eysenbach, G. and Köhler, C. (2002) 'How do Consumers Search for and Appraise Health Information on the World Wide Web? Qualitative Study Using Focus Groups, Usability Tests, and In-depth Interviews', British Medical Journal 324: 573-577.
17. Eysenbach, G., Powell, J., Kuss, O. and Sa, E. (2002) 'Empirical Studies Assessing the Quality of Health Information for Consumers on the World Wide Web - A Systematic Review', Journal of the American Medical Association 287 (20). 2691-2700.
18. Fogg, B. J., Soohoo, C., Danielson, D., Marable, L., Stanford, J. and Tauber, E. R. (2002) How do People Evaluate a Web Site's Credibility? Yonkers, NY: Consumer Reports Web Watch, URL (consulted June 2005). http://www. consumerwebwatch.org/dynamic/web-credibility-reports-evaluate-abstract.cfm
19. Fox, S. and Rainie, L. (2001) The Online Health Care Revolution: How the Web Helps Americans Take Care of Themselves. Washington DC: Pew Internet and American Life Project, URL (consulted June 2005). http://www.pewinternet.org/ report_display.asp?r=26
20. Fox, S. and Rainie, L. (2002) Vital Decisions: How Internet Users Decide what Information to Trust When They or Their Loved Ones Are Sick. Washington DC: Pew Internet and American Life Project, URL (consulted June 2005). http://www.pewinternet.org/report_display.asp?r=59
21. Godolphin, W., Towle, A. and McKendry, R. (2001) 'Evaluation of the Quality of Patient Information to Support Informed Shared Decision Making', Health Expectations 4 (4). 235-242.
22. Grampian University Hospitals Trust (2001) So You Want to Write a Patient Information Leaflet? Guidelines for Staff.[Leaflet] Aberdeen: Quality Department GUHT.
23. Grier, V. (2000) 'Health Information for the Millennium and Beyond', Health Libraries Review 17 (1). 32-36.
24. Health Services Research Unit (2002) A Guide to Producing Health Information. Aberdeen: University of Aberdeen, URL (consulted June 2005). http://www.abdn.ac.uk/hsru/guide/guide.hti
25. Hersh, W. R., Gorman, P. N. and Sacherek, L. S. (1998) 'Applicability and Quality of Information for Answering Clinical Questions on the Web', Journal of the American Medical Association 280 (15). 1307-1308.
26. Impicciatore, P., Pandolfini, C., Casella, N. and Bonati, M. (1997) 'Reliability of Health Information for the Public on the World Wide Web: Systematic Survey of Advice on Managing Fever in Children', British Medical Journal 314: 1875-1881.
27. Marshall, L.A. (2003) 'An Examination of the Ways in Which the Public Evaluate the Quality of Consumer Health Information Materials', [MSc thesis], Aberdeen, The Robert Gordon University.
28. Morahan-Martin, J. M. (2004) 'How Internet Users Find, Evaluate, and Use Online Health Information: A Cross-cultural Review', Cyberpsychology and Behavior 7 (5). 497-510.
29. NHS Executive (2001) 'Building the Information Core: Implementing the NHS Plan', URL (consulted June 2005). http://www.dh.gov.uk/assetRoot/04/06/69/46/ 04066946.pdf
30. Pennbridge, J., Moya, R. and Rodrigues, L. (1999) 'Questionnaire Survey of California Consumers' Use and Rating of Sources of Health Care Information Including the Internet', Western Journal of Medicine 171 (5-6). 302-305.
31. Peterson, G., Aslani, P. and Williams, K. A. (2003) 'How Do Consumers Search for and Appraise Information on Medicines on the Internet? A Qualitative Study Using Focus Groups', Journal of Medical Internet Research 5: e33 - e33, URL (consulted June 2005). http://www.jmir.org/2003/4/e33
32. Quintana, Y., Feightner, J. W., Wathen, C. N., Sangster, L. M. and Marshall, J. N. (2001) 'Preventive Health Information on the Internet - Qualitative Study of Consumers' Perspectives', Canadian Family Physician 47: 1759-1765.
33. Roberts, R. (1999) Information for Evidence-Based Care. Abingdon: Radcliffe Medical Press.
34. Scottish Executive (2000) Our National Health: A Plan for Action, a Plan for Change. Edinburgh: The Stationery Office, URL (consulted June 2005). http://www.scotland.gov.uk/library3/health/onh-00.aspb
35. Scottish Executive (2002) Patient Focus and Public Involvement. Edinburgh: The Stationery Office, URL (consulted June 2005). http://www.scotland.gov.uk/library3/health/pfpi.pdf
36. Shaddock, J. (2002) 'Appraising the Quality of Consumer Health Information Leaflets', Health Expectations 5: 84-87.
37. Shepperd, S. and Charnock, D. (2002) 'Against Internet Exceptionalism: There is Nothing Radically Different about Information on the Web', British Medical Journal 324: 556-557.
38. Slaytor, E. K. and Ward, J. E. (1998) 'How Risks of Breast Cancer and Benefits of Screening Are Communicated to Women: Analysis of 58 Pamphlets', British Medical Journal 317: 263-264.
39. Smith, H., Gooding, S., Brown, R. and Frew, A. (1998) 'Evaluation of Readability and Accuracy of Information Leaflets in General Practice for Patients with Asthma', British Medical Journal 317: 264-265.
40. Spadaro, R. (2003) European Union Citizens and Sources of Information about Health: Eurobarometer 58.0. European Union Research Group, URL (consulted June 2005). http://europa.eu.int/comm/health/ph_information/documents/eb_58_en. pdf
41. Thompson, S. (2003) Information Literacy Meeting of Experts, Prague, The Czech Republic, September 20-23, 2003: Conference Report. Sponsored by the US National Commission on Libraries and Information Science and the National Forum on Information Literacy with the support of UNESCO.
42. Welsh, S., Anagnostelis, B. and Cooke, A. (2001) Finding and Using Health and Medical Information on the Internet. London: Aslib.
43. Williams, P., Nicholas, D., Huntington, P. and McClean, F. (2002) 'Surfing for Health: User Evaluation of a Health Information Web Site Part 2: Fieldwork', Health Information and Libraries Journal 19 (4). 214-225.
44. Wyatt, J. (1997) 'Measuring Quality and Impact of the World Wide Web', British Medical Journal 314: 1879-1880.