Parent and health professional perspectives in the management of adolescents with diabetes: Development of assessment instruments for international studies

Quality of Life Research

Volumn 15, Issue 6, 2006, Pages 1033-1042

  Hoey, Hilary ^a   McGee, Hannah M ^b   Fitzgerald, Michael ^c   Mortensen, Henrik B ^d   Hougaard, Philip ^e   Lynggaard, Helle ^e   Skovlund, Soren E ^e   Aanstoot, Henk Jan ^f   Chiarelli, Francesco ^g   Daneman, Denis ^h   Danne, Thomas ⁱ   Dorchy, Harry ^j   Garandeau, Patrick ^k   Greene, Stephen ^l   Holl, Reinhard ^m   Kaprio, Eero ⁿ   Kocova, Mirjana ^o   Martul, Pedro ^p   Matsuura, Nobuo ^q   Robertson, Kenneth ^r   Schoenle, Eugen ^s   Sovik, Oddmund ^t   Swift, Peter ^u   Tsou, Rosa Maria ^v   Vanelli, Maurizio ^w   Åman, Jan ^x   more..

^a ADELAIDE AND MEATH HOSPITAL   (Ireland)

^b ROYAL COLLEGE OF SURGEONS IN IRELAND   (Ireland)

^c TRINITY COLLEGE DUBLIN   (Ireland)

^d GLOSTRUP UNIVERSITY HOSPITAL   (Denmark)

^e NOVO NORDISK A S   (Denmark)

^f IJSSELLAND HOSPITAL   (Netherlands)

^g Pediatric University Clinic   (Italy)

^h HOSPITAL FOR SICK CHILDREN   (Canada)

ⁱ HUMBOLDT UNIVERSITY   (Germany)

^j HOP UNIV DES ENFANTS REINE FABIOLA   (Belgium)

^k Institut Saint Pierre   (France)

^l UNIVERSITY OF DUNDEE   (United Kingdom)

^m UNIVERSITY OF ULM   (Germany)

ⁿ PEIJAS HOSPITAL   (Finland)

^o Pediatric Clinic   (Macedonia)

^p HOSPITAL DE CRUCES   (Spain)

^q KITASATO UNIVERSITY   (Japan)

^r ROYAL HOSPITAL FOR SICK CHILDREN   (United Kingdom)

^s UNIVERSITY CHILDREN S HOSPITAL   (Switzerland)

^t HAUKELAND UNIVERSITY HOSPITAL   (Norway)

^u LEICESTER ROYAL INFIRMARY   (United Kingdom)

^v HOSPITAL DE SÃO JOÃO   (Portugal)

^w UNIVERSITY OF PARMA   (Italy)

^x ÖREBRO MEDICAL CENTRE HOSPITAL   (Sweden)

more..

Author keywords

Adolescent; Diabetes; Diabetes Quality of Life Questionnaire; Family burden; Metabolic control; Parent and health professional questionnaire; Quality of life

Indexed keywords

ADOLESCENT; ADOLESCENT DISEASE; ADULT; ARTICLE; CLINICAL TRIAL; CRONBACH ALPHA COEFFICIENT; DIABETES MELLITUS; DIAGNOSTIC ACCURACY; DISCRIMINANT VALIDITY; EUROPE; FEMALE; HAPPI-D QOL PROTOCOL; HEALTH PERSONNEL ATTITUDE; HUMAN; INSULIN DEPENDENT DIABETES MELLITUS; INTERNATIONAL COOPERATION; JAPAN; MAJOR CLINICAL STUDY; MALE; METABOLIC REGULATION; MULTICENTER STUDY; NORTH AMERICA; OUTCOMES RESEARCH; PARENTAL ATTITUDE; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; SCHOOL CHILD; SCORING SYSTEM; STATISTICAL SIGNIFICANCE;

ADOLESCENT; ADOLESCENT PSYCHOLOGY; ATTITUDE OF HEALTH PERSONNEL; CHILD; COST OF ILLNESS; DIABETES MELLITUS; FEASIBILITY STUDIES; FEMALE; HUMANS; INTERNATIONALITY; MALE; PARENTS; PSYCHOMETRICS; QUALITY OF LIFE; QUESTIONNAIRES; SELF ASSESSMENT (PSYCHOLOGY); SICKNESS IMPACT PROFILE;

EID: 33747095448     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-006-0042-8     Document Type: Article

References (21)

1. C Bradley DS Gamsu 1994 Guidelines for encouraging psychological well-being: Report of a working group of the World Health Organization Regional Office for Europe and International Diabetes Federation European Region St Vincent Declaration Action Programme for Diabetes Diabetic Med 11 510 516
2. Diabetes Control and Complications Trial Research Group (DCCT) 1993 The effect of intensive treatment of diabetes on the development and progression of long-term complications in insulin-dependent diabetes mellitus N Engl J Med 329 977 986
3. Diabetes Control and Complications Trial Research Group 1994 Effect of intensive diabetes treatment on the development and progression of long-term complications in adolescents with insulin-dependent diabetes mellitus J Pediatr 125 177 188
4. GM Ingersoll DG Marrero 1991 A modified quality of life measure for youths: Psychometric properties Diabetes Educ 17 114 118
5. MP Golden 1998 Incorporation of quality of life consideration into intensive diabetes management protocols in adolescents (Editorial) Diabetes Care 21 885 886
6. I Guttman-Bauman BP Flaherty M Strugger RC [tmp] McEvoy 1998 Metabolic control and quality-of life self-assessment in adolescents with IDDM Diabetes Care 21 915 918
7. P Fonagy GS Moran MKM Lindsay AB Kurtz R Brown 1987 Psychological adjustment and diabetic control Arch Dis Child 62 1009 1013
8. M Grey EA Boland C Yu S Sullivan-Bolyai WV Tamborlane 1998 Personal and family factors associated with quality of life in adolescents with diabetes Diabetes Care 21 909 914
9. JL Vandagriff DG Marrero GM Ingersoll NS Fineberg 1992 Parents of children with diabetes: What are they worried about? Diabetes Educ 18 299 302
10. H Dorchy S Olinger 1997 Assessment of well-being in a population of 100 diabetic adolescents and young adults in relationship to their metabolic control Presse Med 26 1420 1424
11. H Hoey H Aanstoot F Chiarelli D Daneman T Danne H Dorchy 2001 for the Hvidøre Study Group on Childhood Diabetes. Good metabolic control is associated with better quality of life in 2,101 adolescents with Type 1 Diabetes Diabetes Care 24 1923 1928
12. HM [tmp] McGee 1994 Quality of life: Assessment issues for children with chronic illness and their families M Christie A West Assessment of Quality of Life in Childhood Asthma Carden Chichester 83 97
13. MAG Sprangers NK Aaronson 1992 The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: A review J Clin Epidemiol 45 743 760
14. E Spieth CV Harris 1996 Assessment of health related quality of life in children and adolescents: An integrative review J Ped Psychol 21 175 193
15. JWS Varni M Seid CA Rode 1999 The pedsQL: Measurement model for the Pediatric Quality of Life Inventory Med Care 37 126 139
16. M Seid J Varni CA Rode ER Katz 1999 The Pediatric Cancer Quality of Life Inventory: A modular approach to measuring health-related quality of life in children with cancer Internat J Cancer 12 71 76
17. AL Quittner S Sweeny M Watrous P Munzenberger K Bearss A Gibson-Nitza 2000 Translation and linguistic validation of a disease-specific quality of life measure for cystic fibrosis J Ped Psychol 25 403 414
18. Cella DF. Quality of life outcomes: Measurement and validation. Oncology 1996; (suppl): 233-246.
19. The DCCT Research Group 1988 Reliability and validity of a Diabetes Quality of Life Measure for the Diabetes Control and Complication Trial (DCCT) Diabetes Care 11 725 732
20. P Armitage T. Colton 1998 Encyclopedia of Biostatistics Vol. 2 John Wiley and Sons Chichester
21. Skinner C, Hoey H, McGee H, Slovlund S for the Hvidore Study Group on Childhood Diabetes. The Diabetes Quality of Life for Youth - Short Form (DQOLY-SF). Exploratory and Confirmatory Analysis in a Sample of 2077 Young People with Type 1 Diabetes Mellitus. Diabetologia (in press) (May 2006).