Reclaiming wellness - Living with bodily problems, as narrated by men with advanced prostate cancer

Cancer Nursing

Volumn 29, Issue 4, 2006, Pages 327-337

  Lindqvist, Olav ^a,b   Widmark, Anders ^a   Rasmussen, Birgit H ^a  

^a UMEÅ UNIVERSITY   (Sweden)

^b Skelleftea Hospital   (Sweden)

Author keywords

Bodily problems; Lived body; Nursing; Palliative care; Prostatic neoplasm; Qualitative research

Indexed keywords

ADULT; AGED; ARTICLE; BONE METASTASIS; CLINICAL ARTICLE; DEATH; DYING; FATIGUE; HUMAN; INTERVIEW; MALE; NURSING; PAIN; PRIORITY JOURNAL; PROSTATE CANCER; SYMPTOM; WELLBEING;

ADAPTATION, PSYCHOLOGICAL; AGED; FATIGUE; HUMANS; MALE; MIDDLE AGED; NARRATION; PAIN; PALLIATIVE CARE; PROSTATIC NEOPLASMS; QUALITY OF LIFE; SWEDEN;

EID: 33746788985     PISSN: 0162220X     EISSN: None     Source Type: Journal    
DOI: 10.1097/00002820-200607000-00012     Document Type: Article

References (61)

1. Bury M. Chronic illness as biographical disruption. Sociol Health Illn. 1982;4(2):167-182.
2. Frank AW. Bringing bodies back in: a decade review. Theory Cult Soc. 1990;7:131-162.
3. Leder D. The Absent Body. Chicago, Ill: University of Chicago Press; 1990.
4. Lawler J. Knowing the body and embodiment - methodologies, discourses and nursing. In: Lawler J, ed. The Body in Nursing. South Melbourne, Australia: Churchill Livingstone; 1997:31-51.
5. Ream E, Richardson A. The role of information in patients' adaptation to chemotherapy and radiotherapy: a review of the literature. Eur J Cancer Care (Engl). 1996;5(3):132-138.
6. Armstrong TS. Symptoms experience: a concept analysis. Oncol Nurs Forum. 2003;30(4):601-606.
7. McClement SE, Woodgate RL, Degner L. Symptom distress in adult patients with cancer. Cancer Nurs. 1997;20(4):236-243.
8. McCorkle R, Young K. Development of a symptom distress scale. Cancer Nurs. 1978;1(5):373-378.
9. Rhodes VA, Watson PM. Symptom distress - the concept: past and present. Semin Oncol Nurs. 1987;3(4):242-247.
10. McDaniel RW, Rhodes VA. Symptom experience. Semin Oncol Nurs. 1995;11(4):232-234.
11. Corner J, Dunlop R. New approaches to care. In: Clark D, Hockley J, Ahmedzai S, eds. New Themes in Palliative Care. Buckingham, UK: Open University Press; 1997:288-302.
12. Corner J, Bailey C. The management of cancer-related problems. In: Corner J, Bailey C, eds. Cancer Nursing: Care in Context. Oxford, UK: Blackwell Science; 2001:335-337.
13. Cancer Incidence in Sweden 2003. Centre for Epidemiology. National Board of Health and Welfare. Official statistics of Sweden. Health and diseases 2004:10. Available at: www.sos.se/sos/statisti.htm. Accessed January 17, 2005.
14. Crawford ED. Epidemiology of prostate cancer. Urology. 2003;62(6 suppl 1):3-12.
15. Auclerc G, Antoine EC, Cajfinger F, Brunet-Pommeyrol A, Agazia C, Khayat D. Management of advanced prostate cancer. Oncologist. 2000;5(1):36-44.
16. Clark JA, Wray N, Brody B, Ashton C, Giesler B, Watkins H. Dimensions of quality of life expressed by men treated for metastatic prostate cancer. Soc Sci Med. 1997;45(8):1299-1309.
17. Goodin S, Rao KV, DiPaola RS. State-of-the-art treatment of metastatic hormone-refractory prostate cancer. Oncologist. 2002;7(4):360-370.
18. Sommers SD, Ramsey SD. A review of quality-of-life evaluations in prostate cancer. Pharmacoeconomics. 1999;16(2):127-140.
19. Heidenreich A, von Knobloch R, Hofmann R. Current status of cytotoxic chemotherapy in hormone refractory prostate cancer. Eur Urol. 2001;39(2):121-130.
20. Esper P, Redman BG. Supportive care, pain management, and quality of life in advanced prostate cancer. Urol Clin North Am. 1999;26(2):375-389.
21. Lavery JF, Clarke VA. Prostate cancer: patients' and spouses' coping and marital adjustment. Psychol Health Med. 1999;4(3):289-302.
22. Boehmer U, Clark JA. Communication about prostate cancer between men and their wives. J Fam Pract. 2001;50(3):226-231.
23. Boehmer U, Clark JA. Married couples' perspectives on prostate cancer diagnosis and treatment decision-making. Psychooncology. 2001;10(2):147-155.
24. Harden J, Schafenacker A, Northouse L, et al. Couples' experiences with prostate cancer: focus group research. Oncol Nurs Forum. 2002;29(4):701-709.
25. Navon L, Morag A. Advanced prostate cancer patients' relationships with their spouses following hormonal therapy. Eur J Oncol Nurs. 2003;7(2):73-80.
26. O'Rourke ME, Germino BB. Prostate cancer treatment decisions: a focus group exploration. Oncol Nurs Forum. 1998;25(1):97-104.
27. Clark JA, Wray NP, Ashton CM. Living with treatment decisions: regrets and quality of life among men treated for metastatic prostate cancer. J Clin Oncol. 2001;19(1):72-80.
28. Jakobsson L, Hallberg IR, Loven L. Met and unmet nursing care needs in men with prostate cancer. An explorative study. Part II. Eur J Cancer Care (Engl). 1997;6(2):117-123.
29. Heyman EN, Rosner TT. Prostate cancer: an intimate view from patients and wives. Urol Nurs. 1996;16(2):37-44.
30. Navon L, Morag A. Advanced prostate cancer patients' ways of coping with the hormonal therapy's effect on body, sexuality, and spousal ties. Qual Health Res. 2003;13(10):1378-1392.
31. Navon L, Morag A. Liminality as biographical disruption: unclassifiability following hormonal therapy for advanced prostate cancer. Soc Sci Med. 2004;58(11):2337-2347.
32. Jakobsson L, Hallberg IR, Loven L. Experiences of daily life and life quality in men with prostate cancer. An explorative study. Part I. Eur J Cancer Care (Engl). 1997;6(2):108-116.
33. Jakobsson L, Hallberg IR, Loven L. Experiences of micturition problems, indwelling catheter treatment and sexual life consequences in men with prostate cancer. J Adv Nurs. 2000;31(1):59-67.
34. Chapple A, Ziebland S. Prostate cancer: embodied experience and perceptions of masculinity. Sociol Health Illn. 2002;24(6):820-841.
35. Kvale S. Interviews: An Introduction to Qualitative Research Interviewing. London, UK: Sage Publications Inc; 1996.
36. Lindseth A, Norberg A. A phenomenological hermeneutical method for researching lived experience. Scand J Caring Sci. 2004;18(2):145-153.
37. Sandelowski M. Sample size in qualitative research. Res Nurs Health. 1995;18(2):179-183.
38. Oh WK, Kantoff PW. Management of hormone refractory prostate cancer: current standards and future prospects. J Urol. 1998;160(4):1220-1229.
39. Esper P, Mo F, Chodak G, Sinner M, Cella D, Pienta KJ. Measuring quality of life in men with prostate cancer using the functional assessment of cancer therapy-prostate instrument. Urology. 1997;50(6):920-928.
40. Ricoeur P. Interpretation Theory: Discourse and the Surplus of Meaning. Fort Worth, Tex: Texas Christian University Press; 1976.
41. Lindqvist O, Widmark A, Rasmussen BH. Meanings of the phenomenon of fatigue as narrated by 4 patients with cancer in palliative care. Cancer Nurs. 2004;27(3):237-243.
42. Nordstedts fackordböcker. Medicine, Engelsk-svensk-engelsk (Medicine, English-Swedish-English) (Swedish). Stockholm, Sweden: Norstedts Ordbok AB; 1998.
43. Gee JP. A linguistic approach to narrative. J Narrat Life Hist. 1991;1(1):15-39.
44. Ohlen J. Evocation of meaning through poetic condensation of narratives in empirical phenomenological inquiry into human suffering. Qual Health Res. 2003;13(4):557-566.
45. Thorne S, Paterson B. Shifting images of chronic illness. J Nurs Scholarsh. 1998;30(2):173-178.
46. Paterson BL. The shifting perspectives model of chronic illness. J Nurs Scholarsh. 2001;33(1):21-26.
47. Paterson BL. The koala has claws: applications of the shifting perspectives model in research of chronic illness. Qual Health Res. 2003;13(7):987-994.
48. Salander P, Windahl G. Does 'denial' really cover our everyday experiences in clinical oncology? A critical view from a psychoanalytic perspective on the use of 'denial'. Br J Med Psychol. 1999;72:267-279.
49. Coward DD, Wilkie DJ. Metastatic bone pain. Meanings associated with self-report and self-management decision making. Cancer Nurs. 2000;23(2):101-108.
50. Ferrell BR, Dean G. The meaning of cancer pain. Semin Oncol Nurs. 1995;11(1):17-22.
51. Potter J. Fatigue experience in advanced cancer: a phenomenological approach. Int J Palliat Nurs. 2004;10(1):15-23.
52. Lindgren T. Hash. Woodstock, NY: Overlook Duckworth; 2004.
53. Morse JM. Toward a praxis theory of suffering. ANS Adv Nurs Sci. 2001;24(1):47-59.
54. Corner J, Plant H, A'Hern R, Bailey C. Non-pharmacological intervention for breathlessness in lung cancer. Palliat Med. 1996;10(4):299-305.
55. Bredin M, Corner J, Krishnasamy M, Plant H, Bailey C, A'Hern R. Multicentre randomised controlled trial of nursing intervention for breathlessness in patients with lung cancer. BMJ. 1999;318(7188):901-904.
56. Kleinman A. The Illness Narratives: Suffering, Healing, and the Human Condition. New York, NY: Basic Books; 1988.
57. Frank AW. The Wounded Storyteller: Body, Illness, and Ethics. Chicago, Ill: The University of Chicago Press; 1997.
58. Carlick A, Biley FC. Thoughts on the therapeutic use of narrative in the promotion of coping in cancer care. Eur J Cancer Care (Engl). 2004;13(4):308-317.
59. van Manen M. Modalities of body experience in illness and health. Qual Health Res. 1998;8(1):7-24.
60. Zubrod CG, Schneiderman M, Frei E, et al. Appraisal or methods for the study of chemotherapy of cancer in man: comparative therapeutic trial of nitrogen mustard and triethylene thiophosphoramide. J Chronic Dis. 1960;11:7-33.
61. Bowling A. Measuring disease: a review of disease-specific quality of life measurement scales. 2nd ed. Buckingham, UK: Open University Press; 2001.