메뉴 건너뛰기




Volumn 19, Issue 5, 2006, Pages 508-513

Quality of life for people with intellectual disabilities

Author keywords

Assessment; Family health; Intellectual disability; Measurement; Mental health; Quality of life

Indexed keywords

CLINICAL RESEARCH; COPING BEHAVIOR; DEINSTITUTIONALIZATION; EVALUATION; FAMILY ATTITUDE; FAMILY COPING; HUMAN; INTELLECTUAL IMPAIRMENT; LIFE SATISFACTION; LIFESPAN; MEDICAL ASSESSMENT; MEDICAL DECISION MAKING; MENTAL HEALTH CARE; MENTAL PATIENT; PATIENT SATISFACTION; PSYCHOLOGICAL WELL BEING; QUALITY OF LIFE; REVIEW; VALIDATION STUDY; WELLBEING;

EID: 33746730487     PISSN: 09517367     EISSN: None     Source Type: Journal    
DOI: 10.1097/01.yco.0000238479.81528.9f     Document Type: Review
Times cited : (47)

References (34)
  • 1
    • 26044463726 scopus 로고    scopus 로고
    • The application of quality of life
    • Brown RI, Brown I. The application of quality of life. J Intellect Disabil Res 2005; 49:718-727. The article helps the reader to reorganize current knowledge on QoL at the light of four basic strands of application to PWID. The preciseness of the principle of choice is also given.
    • (2005) J Intellect Disabil Res , vol.49 , pp. 718-727
    • Brown, R.I.1    Brown, I.2
  • 3
    • 26044483269 scopus 로고    scopus 로고
    • Moving from the quality of life concept to a theory
    • Cummins RA. Moving from the quality of life concept to a theory. J Intellect Disabil Res 2005; 49:699-706. The paper points out main limits of the current QoL constructs. It also suggests several interesting lines of empirical investigations.
    • (2005) J Intellect Disabil Res , vol.49 , pp. 699-706
    • Cummins, R.A.1
  • 4
    • 33746727810 scopus 로고    scopus 로고
    • Melbourne, Australia: Deakin University
    • International Wellbeing Group. Normative data - international. Melbourne, Australia: Deakin University; 2005. http://acqol.deakin.edu.au/instruments/ instrument.php.
    • (2005) Normative Data - International
  • 5
    • 17044439405 scopus 로고    scopus 로고
    • Correlation between subjective and objective measures of outcome in staffed community housing
    • Perry J, Felce D. Correlation between subjective and objective measures of outcome in staffed community housing. J Intellect Disabil Res 2005; 49:278-287. An interesting but limited empirical exploration of the correlations between some areas of subjective QoL and objective outcome measures.
    • (2005) J Intellect Disabil Res , vol.49 , pp. 278-287
    • Perry, J.1    Felce, D.2
  • 8
    • 21344464671 scopus 로고    scopus 로고
    • A cross-cultural study of core quality of life domains and indicators: An exploratory analysis
    • Schalock R, Verdugo M, Jenaro C, et al. A cross-cultural study of core quality of life domains and indicators: an exploratory analysis. Am J Ment Retard 2005; 110:298-311. The paper summarizes results of a long-lasting investigation on cross-cultural differences in QoL indicators. Factors on importance and use have been grouped into eight core domains.
    • (2005) Am J Ment Retard , vol.110 , pp. 298-311
    • Schalock, R.1    Verdugo, M.2    Jenaro, C.3
  • 9
    • 26044439929 scopus 로고    scopus 로고
    • Cross-cultural study of person-centred quality of life domains and indicators: A replication
    • Jenaro C, Verdugo MA, Caballo C, et al. Cross-cultural study of person-centred quality of life domains and indicators: a replication. J Intellect Disabil Res 2005; 49:734-739. This research expands a previous cross-cultural study by the application of the CCSQoLI to the following four European countries: France, Belgium, Italy and Poland.
    • (2005) J Intellect Disabil Res , vol.49 , pp. 734-739
    • Jenaro, C.1    Verdugo, M.A.2    Caballo, C.3
  • 10
    • 26044468416 scopus 로고    scopus 로고
    • Quality of life and its measurement: Important principles and guidelines
    • Verdugo MA, Schalock RL, Keith KD, Stancliffe RJ. Quality of life and its measurement: important principles and guidelines. J Intellect Disabil Res 2005; 49:707-717. The paper is a well organized discussion of the principles that should guide QoL measurement and data application.
    • (2005) J Intellect Disabil Res , vol.49 , pp. 707-717
    • Verdugo, M.A.1    Schalock, R.L.2    Keith, K.D.3    Stancliffe, R.J.4
  • 11
    • 26044470454 scopus 로고    scopus 로고
    • Variables influencing the ratings of importance and use of quality of life domains and indicators by Polish professionals
    • Otrebski W. Variables influencing the ratings of importance and use of quality of life domains and indicators by Polish professionals. J Intellect Disabil Res 2005; 49:750-755. The study examines the differences related to a professional's background characteristics in CCSQoLI scores.
    • (2005) J Intellect Disabil Res , vol.49 , pp. 750-755
    • Otrebski, W.1
  • 12
    • 26044477744 scopus 로고    scopus 로고
    • Quality of life for people with intellectual disabilities in China: A cross-culture perspectives study
    • Xu J, Wang M, Xiang Y, Hu X. Quality of life for people with intellectual disabilities in China: a cross-culture perspectives study. J Intellect Disabil Res 2005; 49 (Pt 10):745-749. The study consists in a multicentric application of the CCSQoLI in China. It also summarizes effects of the introduction of the QoL concept in the local education and rehabilitation processes.
    • (2005) J Intellect Disabil Res , vol.49 , Issue.10 PART , pp. 745-749
    • Xu, J.1    Wang, M.2    Xiang, Y.3    Hu, X.4
  • 13
    • 26044461907 scopus 로고    scopus 로고
    • Quality of life from the point of view of Latin American families: A participative research study
    • Aznar AS, Castanon DG. Quality of life from the point of view of Latin American families: a participative research study. J Intellect Disabil Res 2005; 49:784-788. The study shows some limits of the Schalock's eight-domain structure and proposes a new topological tridimensional model for the cross-cultural evaluation.
    • (2005) J Intellect Disabil Res , vol.49 , pp. 784-788
    • Aznar, A.S.1    Castanon, D.G.2
  • 14
    • 26044469889 scopus 로고    scopus 로고
    • The use of quality of life data at the organization and system level
    • Keith KD, Bonham GS. The use of quality of life data at the organization and system level. J Intellect Disabil Res 2005; 49:799-805. The article describes two interesting examples of how QoL data can be usefully applied to sanitary policies and practices.
    • (2005) J Intellect Disabil Res , vol.49 , pp. 799-805
    • Keith, K.D.1    Bonham, G.S.2
  • 15
    • 4444310341 scopus 로고    scopus 로고
    • HRQoL and subjective well being: Noncomplementary forms of outcome measurement
    • Cummins RA, Lau ALD, Stokes M. HRQoL and subjective well being: noncomplementary forms of outcome measurement. Expert Rev Pharmacoecon Outcomes Res 2004; 4:413-420.
    • (2004) Expert Rev Pharmacoecon Outcomes Res , vol.4 , pp. 413-420
    • Cummins, R.A.1    Lau, A.L.D.2    Stokes, M.3
  • 17
    • 26044433081 scopus 로고    scopus 로고
    • The relationship between quality of life and self-determination: An international study
    • Lachapelle Y, Wehmeyer ML, Haelewyck M-C, et al. The relationship between quality of life and self-determination: an international study. J Intellect Disabil Res 2005; 49:740-744. The study refers to the application of two specific instruments to a sample of adults with mild intellectual disability living in community settings.
    • (2005) J Intellect Disabil Res , vol.49 , pp. 740-744
    • Lachapelle, Y.1    Wehmeyer, M.L.2    Haelewyck, M.-C.3
  • 18
    • 13544267763 scopus 로고    scopus 로고
    • Parent and teacher engagement in fostering the self-determination of students with disabilities: A comparison between the US and Taiwan
    • Zhang D, Wehmeyer M, Chen LJ. Parent and teacher engagement in fostering the self-determination of students with disabilities: a comparison between the US and Taiwan. Remedial Special Educ 2005; 26:55-64.
    • (2005) Remedial Special Educ , vol.26 , pp. 55-64
    • Zhang, D.1    Wehmeyer, M.2    Chen, L.J.3
  • 19
    • 0033051553 scopus 로고    scopus 로고
    • The disability paradox: High quality of life against all odds
    • Albrecht GL, Devlieger PJ. The disability paradox: high quality of life against all odds. Soc Sci Med 1999; 48:977-988.
    • (1999) Soc Sci Med , vol.48 , pp. 977-988
    • Albrecht, G.L.1    Devlieger, P.J.2
  • 20
    • 0036055268 scopus 로고    scopus 로고
    • The validity and utility of subjective quality of life: A reply to Hatton & Ager
    • Cummins RA. The validity and utility of subjective quality of life: a reply to Hatton & Ager. J Appl Res Intellect Disabil 2002; 15:261-268.
    • (2002) J Appl Res Intellect Disabil , vol.15 , pp. 261-268
    • Cummins, R.A.1
  • 21
    • 0013429122 scopus 로고    scopus 로고
    • Proxy responding for subjective well being: A review
    • Cummins RA. Proxy responding for subjective well being: a review. Int Rev Res Ment Retard 2002; 25:183-207.
    • (2002) Int Rev Res Ment Retard , vol.25 , pp. 183-207
    • Cummins, R.A.1
  • 22
    • 3042648572 scopus 로고    scopus 로고
    • Initial findings on the involvement of people with an intellectual disability in interviewing their peers about quality of life
    • Peery J, Felce D. Initial findings on the involvement of people with an intellectual disability in interviewing their peers about quality of life. J Intellect Dev Disabil 2004; 29:164-171.
    • (2004) J Intellect Dev Disabil , vol.29 , pp. 164-171
    • Peery, J.1    Felce, D.2
  • 23
    • 26044476162 scopus 로고    scopus 로고
    • The Life Satisfaction Matrix: An instrument and procedure for assessing the subjective well being quality of life of individuals with profound multiple disabilities
    • Lyons G. The Life Satisfaction Matrix: an instrument and procedure for assessing the subjective well being quality of life of individuals with profound multiple disabilities. J Intellect Disabil Res 2005; 49:766-769. The paper empirically supports the possibility to assess QoL in people with profound intellectual disability. It also gives an example of how to do it.
    • (2005) J Intellect Disabil Res , vol.49 , pp. 766-769
    • Lyons, G.1
  • 24
    • 26044454359 scopus 로고    scopus 로고
    • Quality of life is not only for people served - It is also for staff: The multifocal approach
    • Baum N. Quality of life is not only for people served - it is also for staff: the multifocal approach. J Intellect Disabil Res 2005; 49:809-811. The paper highlights the positive impact of a continuative QoL approach to the whole care system.
    • (2005) J Intellect Disabil Res , vol.49 , pp. 809-811
    • Baum, N.1
  • 25
    • 26044480645 scopus 로고    scopus 로고
    • Conceptual principles of quality of life: An empirical exploration
    • Bramston P, Chipuer H, Pretty G. Conceptual principles of quality of life: an empirical exploration. J Intellect Disabil Res 2005; 49:728-733. The paper has the merit to empirically compare the relationship between QoL, stress and social support in people with and without intellectual disabilities.
    • (2005) J Intellect Disabil Res , vol.49 , pp. 728-733
    • Bramston, P.1    Chipuer, H.2    Pretty, G.3
  • 26
    • 11144232844 scopus 로고    scopus 로고
    • Leisure activities, friendship, and quality of life of persons with intellectual disability: Foster homes vs community residential settings
    • Duvdevany I, Arar E. Leisure activities, friendship, and quality of life of persons with intellectual disability: foster homes vs community residential settings. Int J Rehabil Res 2004; 27:289-296.
    • (2004) Int J Rehabil Res , vol.27 , pp. 289-296
    • Duvdevany, I.1    Arar, E.2
  • 27
    • 1842587452 scopus 로고    scopus 로고
    • Community integration or community exposure: A review and discussion in relation to people with an intellectual disability
    • Cummins R, Lau A. Community integration or community exposure: a review and discussion in relation to people with an intellectual disability. J Appl Res Intellect Disabil 2003; 16:145-157.
    • (2003) J Appl Res Intellect Disabil , vol.16 , pp. 145-157
    • Cummins, R.1    Lau, A.2
  • 28
    • 26044436246 scopus 로고    scopus 로고
    • The effect of different types of employment on quality of life
    • Kober R, Eggleton IRC. The effect of different types of employment on quality of life. J Intellect Disabil Res 2005; 49:756-760. The paper empirically investigates the usefulness of QoL as an outcome measure of one of the most important rehabilitative tools.
    • (2005) J Intellect Disabil Res , vol.49 , pp. 756-760
    • Kober, R.1    Eggleton, I.R.C.2
  • 30
    • 26044447159 scopus 로고    scopus 로고
    • Conceptualizing and measuring family quality of life
    • Summers JA, Poston DJ, Turnbull AP, et al. Conceptualizing and measuring family quality of life. J Intellect Disabil Res 2005; 49:777-783. The paper offers an interesting review on the topic. It also introduces an assessment scale and suggests respective implications for research and practice.
    • (2005) J Intellect Disabil Res , vol.49 , pp. 777-783
    • Summers, J.A.1    Poston, D.J.2    Turnbull, A.P.3
  • 34
    • 26044432737 scopus 로고    scopus 로고
    • Family quality of life from the perspective of older parents
    • Jokinen NS, Brown RI. Family quality of life from the perspective of older parents. J Intellect Disabil Res 2005; 49:789-793. The study applies Brown's Family QoL Survey to a small but characteristic sample of older parents of adults with intellectual disabilities.
    • (2005) J Intellect Disabil Res , vol.49 , pp. 789-793
    • Jokinen, N.S.1    Brown, R.I.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.