Hispanic caregivers of adults with mental retardation: Importance of family functioning

American Journal on Mental Retardation

Volumn 111, Issue 4, 2006, Pages 250-262

  Magaña, Sandra ^a,c   Schwartz, Seth J ^b   Rubert, Mark P ^b   Szapocznik, José ^b  

^a UNIVERSITY OF WISCONSIN MADISON   (United States)

^b UNIVERSITY OF MIAMI   (United States)

^c UNIVERSITY OF WISCONSIN MADISON   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ANXIETY; ARTICLE; CAREGIVER; CAREGIVER BURDEN; DEPRESSION; DIAGNOSTIC AND STATISTICAL MANUAL OF MENTAL DISORDERS; DISTRESS SYNDROME; ETHNIC GROUP; FAMILY RELATION; HISPANIC; HUMAN; MAJOR CLINICAL STUDY; MALADJUSTMENT; MENTAL DEFICIENCY; MODEL; PARENT; PSYCHIATRIC DIAGNOSIS; PSYCHOLOGICAL MODEL; SCORING SYSTEM; SELF REPORT; STRUCTURED INTERVIEW;

ACCULTURATION; ADULT; AGED; AGED, 80 AND OVER; ATTITUDE TO HEALTH; CAREGIVERS; COST OF ILLNESS; CROSS-SECTIONAL STUDIES; DEPRESSION; FAMILY RELATIONS; FEMALE; FLORIDA; HISPANIC AMERICANS; HUMANS; INTERVIEW, PSYCHOLOGICAL; MALE; MENTAL DISORDERS; MENTAL RETARDATION; MIDDLE AGED; MODELS, PSYCHOLOGICAL; PERSONALITY INVENTORY; STATISTICS; STATISTICS AS TOPIC; STRESS, PSYCHOLOGICAL;

EID: 33746378651     PISSN: 08958017     EISSN: None     Source Type: Journal    
DOI: 10.1352/0895-8017(2006)111[250:HCOAWM]2.0.CO;2     Document Type: Article

References (62)

1. Aligulander, C., Dahl, A. A., Austin, C., Morris, P. L., Sogaard, J. A., Fayyad, R., Kutcher, S. P., & Clary, C. M. (2004). Efficiency of sertraline in a 12 week trial for generalized anxiety disorder. American Journal of Psychiatry, 161, 1642-1649.
2. American Psychiatric Association. (1987). Diagnostic and statistical manual of mental disorder-DSM-III-R. Washington, DC: Author.
3. Beirne-Smith, M., Ittenbach, R. F., & Patton, J. R. (2002). Mental retardation (6th ed.). New Jersey: Merrill Prentice Hall.
4. Blacher, J., Lopez, S., Shapiro, J., & Fusco, J. (1997). Contributions to depression in Latina mothers with and without children with retardation: Implications for caregiving. Family Relations, 46, 325-334.
5. Blacher, J., Shapiro, J., Lopez, S., Diaz, L., & Fusco, J. (1997). Depression in Latina mothers of children with mental retardation: A neglected concern. American Journal on Mental Retardation, 101, 483-496.
6. Black, S. A., Goodwin, J. S., & Markides, K. S. (1998). The association between chronic diseases and depressive symptomatology in older Mexican Americans. Journals of Gerontology: Medical Sciences, 53A, M188-M194.
7. Braddock, D. (1999). Aging and developmental disabilities: Demographic and policy issues affecting American families. Mental Retardation, 37, 155-161.
8. Bruce, D. G., Paley, G. A., Nichols, P., Roberts, D., Underwood, P. J., & Schaper, F. (2005). Physical disability contributes to caregiver stress in dementia caregivers. Journals of Gerontology: Medical Sciences, 60A, 345-349.
9. Bruininks, R. H., Hill, B. K., Weatherman, R. F., & Woodcock, R. W. (1986). Inventory for Client and Agency Planning (ICAP). Allen, TX: DLM Teaching Resources.
10. Chandola, T., & Jenkinson, C. (2000). Validating self-rated health in different ethnic groups. Ethnicity and Health, 5, 151-159.
11. Chien, W.-T., & Chan, S. W. C. (2004). One-year follow-up of a multiple-family group intervention for Chinese families of patients with schizophrenia. Psychiatric Services, 55, 1276-1284.
12. Chiriboga, D. A., Black, S. A., Aranda, M., & Markides, K. (2002). Stress and depressive symptoms among Mexican American elders. Journals of Gerontology, Psychological Sciences, 57B, P559-P568.
13. Costigan, C. L., Floyd, F. J., Harter, K. S., & McClintock, J. C. (1997). Family process and adaptation to children with mental retardation: Disruption and resilience in family problem-solving interactions. Journal of Family Psychology, 11, 515-529.
14. Delgado, M., & Tennstedt, S. (1997). Making the case for culturally appropriate community services: Puerto Rican elders and their caregivers. Health & Social Work, 22, 246-255.
15. Edwards, B., & Clarke, V. (2005). The validity of the Family Relationships Index as a screening tool for psychological risk in families of cancer patients. Psycho-Oncology, 14, 546-554.
16. Fillenbaum, G. (1978). Validity and reliability of the Multidimensional Functional Assessment Questionnaire. In Duke University Center for the Study of Aging and Human Development (Ed.), Multidimensional functional assessment: The OARS methodology. Durham, NC: Duke University, Center for the Study of Aging and Human Development.
17. Floyd, F. J., Harter, K. S., & Costigan, C. L. (2004). Family problem-solving with children who have mental retardation. American Journal on Mental Retardation, 109, 507-524.
18. Friedrich, W., Greenberg, M., & Crnic, K. (1983). A short form of the questionnaire on resources and stress. American Journal of Mental Deficiency, 88, 345-351.
19. Fujiura, G. T. (1998). The demography of family households. American Journal on Mental Retardation, 103, 225-235.
20. Glidden, L. M., & Floyd, F. J. (1997). Disaggregating parental depression and family stress in assessing families of children with disabilities: A multisample analysis. American Journal on Mental Retardation, 102, 250-266.
21. Gonzáles, H., Haan, M., & Hinton, L. (2001). Acculturation and the prevalence of depression in older Mexican Americans: Baseline results of the Sacramento area Latino Study on Aging. Journal of the American Geriatric Society, 49, 948-953.
22. Greenberg, J. S., Seltzer, M. M., & Greenley, J. R. (1993). Aging parents of adults with disabilities: The gratifications and frustrations of later-life caregiving. Gerontologist, 33, 542-550.
23. Guarnaccia, P. J., Angel, R., & Worobey, J. L. (1989). The factor structure of the CES-D in the Hispanic Health and Nutrition Examination Survey: The influence of ethnicity, gender and language. Social Science & Medicine, 29, 85-94.
24. Hamilton, M. (1959). The assessment of anxiety states by rating. British Journal of Medical Psychology, 32, 50-55.
25. Hamilton, M. (1960). A rating scale for depression. Journal of Neurology, Neurosurgery and Psychiatry, 23, 56-62.
26. Heller, T., Hsieh, K., & Rowitz, L. (1997). Maternal and paternal caregiving of persons with mental retardation across the lifespan. Family Relations, 46, 407-416.
27. Heller, T., Miller, A., & Factor, A. (1997). Adults with mental retardation as supports to their parents: Effects on parental caregiving appraisal. Mental Retardation, 35, 338-346.
28. Holahan, C. J., & Moos, R. H. (1982). Social support and psychological distress: A longitudinal analysis. Journal of Abnormal Psychology, 90, 365-370.
29. Kiecolt-Glaser, J., & Glaser, R. (2002). Depression and immune function: Central pathways to morbidity and mortality. Journal of Psychosomatic Research, 53, 873-876.
30. Kisaane, D. W., McKenzie, M., McKenzie, D. P., Forbes, A., O'Neill, I., & Bloch, S. (2003). Psychosocial morbidity associated with patterns of family functioning in palliative care: Baseline data from the family focused group therapy controlled trial. Palliative Medicine, 17, 527-537.
31. Kline, R. B. (1998). Principles and practices of structural equation modeling. New York: Guilford.
32. Krauss, M. W., & Seltzer, M. M. (1999). An unanticipated life: The impact of lifelong caregiving. In H. Bersani (Ed.), Responding to the challenge: International trends and current issues in developmental disabilities (pp. 173-188). Brookline, MA: Brookline Books.
33. Kurtines, W. M., & Szapocznik, J. (1995). Cultural competence in assessing Hispanic youths and families: Challenges in the assessment of treatment needs and treatment evaluation for Hispanic drug abusing adolescents. In E. Rahdert & D. Czechowicz (Eds.), Adolescent drug abuse: Clinical assessment and therapeutic interventions (NIDA Research Monograph No. 156, NIH Publication No. 95-3908), pp. 172-189). Rockville, MD: National Institute on Drag Abuse.
34. Lawton, M., Kleban, M., Moss, M., Rovine, M., & Glicksman, A. (1989). Measuring caregiving appraisal. Journals of Gerontology: Psychological Sciences, 44, P61-70.
35. Lazarus R., & Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer.
36. MacKinnon, D. P., Lockwood, C. M., Hoffman, J. M., West, S. G., & Sheets, V. (2002). A comparison of methods to test mediation and other intervening variable effects. Psychological Methods, 7, 83-104.
37. Magaña, S. (1999). Puerto Rican families caring for an adult with mental retardation: The role of familism. American Journal on Mental Retardation, 104, 466-482.
38. Magaña, S., Seltzer, M., & Krauss, W. (2004). The cultural context of caregiving: Differences in depression between Puerto Rican and non-Latina White mothers of adults with mental retardation. Mental Retardation, 42, 1-11.
39. Magaña, S., Seltzer, M. Krauss, M., Rubert, M., & Szapocznik, J. (2002). Well-being and family role strain among Cuban American and Puerto Rican mothers of adults with mental retardation. Journal of Human Behavior in the Social Environment 5, 31-55.
40. Marin, G., & Marín, B. (1991). Research with Hispanic populations. Newbury Park, CA: Sage Publications.
41. Michultka, D., Blanchard, E., & Kalous, T. (1998). Responses to civilian war experiences: Predictors of psychological functioning and coping. Journal of Traumatic Stress, 11, 571-577.
42. Miltiades, H., & Pruchno, R., (2002). The effect of religious coping on caregiving appraisals of mothers of adults with developmental disabilities. Gerontologist, 42, 82-91.
43. Moos, R. H., & Moos, B. S. (1986). Family Environment Scale test and manual. Palo Alto, CA: Consulting Psychologists Press.
44. Organista, P. B., Organista, K. C., & Kurasaki, K. (2002). The relationship between acculturation and ethnic minority mental health. In K. M. Chun, P. B. Organista, & G. Marín (Eds.), Acculturation: Advances in theory, measurement, and applied research (pp. 139-162). Washington, DC: American Psychological Association.
45. Orsmond, G. I., Seltzer, M. M., Krauss, M. W., & Hong, J. (2003). Behavior problems in adults with mental retardation and maternal well-being: Examination of the direction of effects. American Journal on Mental Retardation, 108, 257-271.
46. Ortega, A. N., Rosenheck, R., Alegria, M., & Desai, R. A. (2000). Acculturation and the lifetime risk of psychiatric and substance use disorders among Hispanics. Journal of Nervous and Mental Disease, 188, 728-735.
47. Pruchno, R., Patrick, J. H., & Burant, C. J. (1997). African American and White mothers of adults with chronic disabilities: Caregiving burden and satisfaction. Family Relations, 46, 335-346.
48. Quintana, S. M., & Maxwell, S. E. (1999). Implications of recent developments in structural equation modeling for counseling psychology. Counseling Psychologist, 27, 485-527.
49. Radloff, L. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385-401.
50. Rapp, S., Smith, S., & Britt, M. (1990). Identifying comorbid depression in elderly medical patients: Use of the extracted Hamilton Depression Rating Scale. Psychological Assessment, 2, 243-247.
51. Sabogal, F., Marín, G., Otero-Sabogal, R., Marín, B. V., & Perez-Stable, E. J. (1987). Hispanic familism and acculturation: What changes and what doesn't? Hispanic Journal of Behavioral Sciences, 9, 397-412.
52. Sánchez-Ayéndez, M. (1989). Puerto Rican elderly women: The cultural dimension of social support networks. Women and Health, 14, 239-252.
53. Santisteban, D. A., Coatsworth, J. D., Perez-Vidal, A., Kurtines, W. M., Schwartz, S. J., LaPerriere, A., & Szapocznik, J. (2003). Efficacy of brief strategic family therapy in modifying Hispanic adolescent behavior problems and substance use. Journal of Family Psychology, 17, 121-133.
54. Santisteban, D., & Mitrani, V. (2002). The influence of acculturation processes on the family. In K. M. Chun, P. B. Organista, & G. Marín (Eds.), Acculturation: Advances in theory, measurement, and applied research (pp. 121-136). Washington, DC: American Psychological Association.
55. Schwartz, S. J., Pantin, H., Sullivan, S., Prado, G., & Szapocznik, J. (2006). Nativity and years in the receiving culture as markers of acculturation in ethnic enclaves. Journal of Cross-Cultural Psychology. 37, 345-353.
56. Seltzer, M. M., Greenberg, J. S., Floyd, F. J., Pettee, Y., & Hong, J. (2001). Life course impacts of parenting a child with a disability. American Journal on Mental Retardation, 106, 265-286.
57. Seltzer, M. M., & Krauss, M. W. (1989). Aging parents with adult mentally retarded children: Family risk factors and social support. American Journal of Mental Retardation, 94, 303-312.
58. Shapiro, J., & Tittle, K. (1990). Maternal adaptation to child disability in a Hispanic population. Family Relations, 39, 179-185.
59. Shear, K., Vander Bilt, J., Stat, P., Endicott, J., Lydiard, B., Otto, M., Pollack, M., Chandler, L., Williams, J., Ali, A., & Frank, D. (2001). Reliability and validity of a structured interview guide for the Hamilton Anxiety Rating Scale (Sigh-A). Depression and Anxiety, 13, 166-178.
60. Smith, G. (1996). Caregiving outcomes for older mothers of adults with mental retardation: A test of the two-factor model of psychological well-being. Psychology and Aging, 11, 353-361.
61. Szapocznik, J., Scopetta, M. A., Kurtines, W. M., & Aranalde, M. D. (1978). Theory and measurement of acculturation. Interamerican Journal of Psychology, 12, 113-130.
62. Williams, J. (1988). A structured interview guide for the Hamilton Depression Rating Scale. Archives of General Psychiatry, 45, 242-247.