Supporting parents of youths with intellectual disabilities and psychopathology

Journal of Intellectual Disability Research

Volumn 50, Issue 8, 2006, Pages 570-581

  Douma, J C H ^a   Dekker, M C ^a   Koot, H M ^b   Verhulst, Frank ^a  

^a SOPHIA CHILDREN S HOSPITAL   (Netherlands)

^b VU UNIVERSITY AMSTERDAM   (Netherlands)

Author keywords

Adolescents; Children; Need for help; Parents; Psychopathology; Support

Indexed keywords

ADULT; ARTICLE; BEHAVIOR DISORDER; CAREGIVER SUPPORT; CHILD BEHAVIOR; CHILD CARE; CHILD PSYCHIATRY; CONTROLLED STUDY; EMOTIONAL DISORDER; HUMAN; INTELLECTUAL IMPAIRMENT; LOGISTIC REGRESSION ANALYSIS; MAJOR CLINICAL STUDY; MENTAL DISEASE; MENTAL HEALTH CARE; NEEDS ASSESSMENT; PARENT; PARENT COUNSELING; PARENTAL ATTITUDE; PARENTAL BEHAVIOR; PSYCHOSOCIAL CARE; RISK ASSESSMENT; SOCIAL STATUS; SUPPORT GROUP;

ADOLESCENT; AFFECTIVE SYMPTOMS; CHILD; CHILD BEHAVIOR DISORDERS; DISABLED CHILDREN; EDUCATION; EDUCATION OF MENTALLY RETARDED; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; LONGITUDINAL STUDIES; MALE; MENTAL HEALTH SERVICES; MENTAL RETARDATION; NETHERLANDS; PARENTS; RESPITE CARE; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL;

EID: 33745827698     PISSN: 09642633     EISSN: 13652788     Source Type: Journal    
DOI: 10.1111/j.1365-2788.2006.00825.x     Document Type: Article

References (41)

1. Achenbach T. M. (1991) Manual for the Child Behavior Checklist/4-18 and 1991 Profiles. Department of Psychiatry, University of Vermont, Burlington, VT.
2. Achenbach T. M. (1997) Manual for the Young Adult Self-Report and Young Adult Behavior Checklist. Department of Psychiatry, University of Vermont, Burlington, VT.
3. Angold A., Messer S. C., Stangl D., Farmer E. M., Costello E. J. & Burns B. J. (1998) Perceived parental burden and service use for child and adolescent psychiatric disorders. American Journal of Public Health 88, 75-80.
4. Bailey D. B., Blasco P. M. & Simeonsson R. J. (1992) Needs expressed by mothers and fathers of young children with disabilities. American Journal on Mental Retardation 97, 1-10.
5. Bailey D. B., Skinner D., Correa V., Arcia E., Reyes Blanes M. E., Rodriguez P., Vazquez Montilla E. & Skinner M. (1999) Needs and supports reported by Latino families of young children with developmental disabilities. American Journal on Mental Retardation 104, 437-51.
6. Baker B. L. & Heller T. L. (1996) Preschool children with externalizing behaviors: Experience of fathers and mothers. Journal of Abnormal Child Psychology 24, 513-32.
7. Berden G. F., Althaus M. & Verhulst F. C. (1990) Major life events and changes in the behavioural functioning of children. Journal of Child Psychology and Psychiatry and Allied Disciplines 31, 949-59.
8. Beresford B. A. (1994) Resources and strategies: How parents cope with the care of a disabled child. Journal of Child Psychology and Psychiatry 35, 171-209.
9. Carr A. & O'Reilly M. (1996) Service needs of carers for people with intellectual disabilities: Profiles of high-need and low-need groups. Irish Journal of Psychology 17, 48-59.
10. Central Bureau of Statistics (1993) Standaard Beroepen Classificatie 1992 [Standard Classification of Professions 1992]. SDU, Den Haag.
11. Chadwick O., Beecham J., Piroth N., Bernard S. & Taylor E. (2002) Respite care for children with severe intellectual disability and their families: Who needs it? Who receives it? Child and Adolescent Mental Health 7, 66-72.
12. Dekker M. C., Koot H. M., Van der Ende J. & Verhulst F. C. (2002) Emotional and behavioral problems in children and adolescents with and without intellectual disability. Journal of Child Psychology and Psychiatry 43, 1087-98.
13. Ellis J. T., Luiselli J. K., Amirault D., Byrne S., O'Malley Cannon B., Taras M., Wolongevicz J. & Sisson R. W. (2002) Families of children with developmental disabilities: Assessment and comparison of self-reported needs in relation to situational variables. Journal of Developmental and Physical Disabilities 14, 191-202.
14. Emerson E. (2003) Prevalence of psychiatric disorders in children and adolescents with and without intellectual disability. Journal of Intellectual Disability Research 47, 51-8.
15. Flisher A. J., Kramer R. A., Grosser R. C., Alegria M., Bird H. R., Bourdon K. H., Goodman S. H., Greenwald S., Horwitz S. M., Moore R. E., Narrow W. E. & Hoven C. W. (1997) Correlates of unmet need for mental health services by children and adolescents. Psychological Medicine 27, 1145-54.
16. Floyd F. J. & Gallagher E. M. (1997) Parental stress, care demands, and use of support services for school-age children with disabilities and behavior problems. Family Relations 46, 359-71.
17. Freedman R. I. & Boyer N. C. (2000) The power to choose: Supports for families caring for individuals with developmental disabilities. Health and Social Work 25, 59-68.
18. Hastings R. P. (2002) Parental stress and behaviour problems of children with developmental disability. Journal of Intellectual and Developmental Disability 27, 149-60.
19. Hastings R. P. & Beck A. (2004) Practitioner review: Stress intervention for parents of children with intellectual disabilities. Journal of Child Psychology and Psychiatry 45, 1338-49.
20. Hayden M. F. & Goldman J. (1996) Families of adults with mental retardation: Stress levels and need for services. Social Work 41, 657-67.
21. Hazell P. L., Tarren-Sweeney M., Vimpani G. V., Keatinge D. & Callan K. (2002) Children with disruptive behaviours II: Clinical and community service needs. Journal of Paediatrics and Child Health 38, 32-40.
22. Horwitz S. M., Gary L. C., Briggs-Gowan M. J. & Carter A. S. (2003) Do needs drive services use in young children? Pediatrics 112, 1373-8.
23. Kaufman A. S., Kaufman J. C., Balgopal R. & McLean J. E. (1996) Comparison of three WISC-III short forms: Weighing psychometric, clinical, and practical factors. Journal of Clinical Child Psychology 25, 97-105.
24. Koot H. M. (1997) Handleiding Bij de Vragenlijst Voor Gezinsproblemen [Manual Questionnaire on Family Problems]. Department of Child and Adolescent Psychiatry, Sophia Children's Hospital. Erasmus University Rotterdam, Rotterdam.
25. Maes B., Broekman T. G., Dosen A. & Nauts J. (2003) Caregiving burden of families looking after persons with intellectual disability and behavioural or psychiatric problems. Journal of Intellectual Disability Research 47, 447-55.
26. Owens P. L., Hoagwood K., Horwitz S. M., Leaf P. J., Poduska J. M., Kellam S. G. & Ialongo N. S. (2002) Barriers to children's mental health services. Journal of the American Academy of Child and Adolescent Psychiatry 41, 731-8.
27. Pavuluri M. N., Luk S. L. & McGee R. (1996) Help-seeking for behavior problems by parents of preschool children: A community study. Journal of the American Academy of Child and Adolescent Psychiatry 35, 215-22.
28. Petr C. G. & Barney D. D. (1993) Reasonable efforts for children with disabilities: The parents' perspective. Social Work 38, 247-54.
29. Poduska J. M. (2000) Parent's perceptions of their first graders' need for mental health and educational services. Journal of the American Academy of Child and Adolescent Psychiatry 39, 584-91.
30. Quinn K., Epstein M. H., Cumblad C. & Holderness D. (1996) Needs assessment of community-based services for children and youth with emotional or behavioral disorders and their families: Part 2. Implementation in a local system of care. Journal of Mental Health Administration 23, 432-46.
31. Sheras P. L., Abidin R. R. & Konold T. R. (1998) Stress Index for Parents of Adolescents: Professional Manual. Psychological Assessment Resources, Odessa, FL.
32. Suarez L. M. & Baker B. L. (1997) Child externalizing behavior and parents' stress: The role of social support. Family Relations 46, 373-81.
33. Treneman M., Corkery A., Dowdney L. & Hammond J. (1997) Respite-care needs -met and unmet: Assessment of needs for children with disability. Developmental Medicine and Child Neurology 39, 548-53.
34. Turnbull A. P. & Ruef M. (1996) Family perspectives on problem behavior. Mental Retardation 34, 280-93.
35. Verhulst F. C. & Van der Ende J. (1997) Factors associated with child mental health service use in the community. Journal of the American Academy of Child and Adolescent Psychiatry 36, 901-9.
36. Wahler H. J. (1968) The Physical Symptoms Inventory: Measuring levels of somatic complaining behavior. Journal of Clinical Psychology 24, 207-11.
37. Wallander J. L., Dekker M. C. & Koot H. M. (2003) Psychopathology in children and adolescents with intellectual disability: Measurement, prevalence, course and risk. In: International Review of Research in Mental Retardation, Vol. 26, (ed. L. M. Glidden) pp. 93-134. Academic Press, San Diego, CA.
38. Wechsler D. (1991) Wechsler Intelligence Scale for Children- Revised. The Psychological Corporation, San Antonio, TX.
39. Wiznitzer M. (1993) Het Young Adult Self Report project: De validiteit van een vragenlijst voor de herkenning en de beschrijving van psychopathologie bij jong volwassenen. Rijksuniversiteit Groningen, Groningen.
40. Wu P., Hoven C. W., Bird H. R., Moore R. E., Cohen P., Alegria M., Dulcan M. K., Goodman S. H., Horwitz S. M., Lichtman J. H., Narrow W. E., Rae D. S., Regier D. A. & Roper M. T. (1999) Depressive and disruptive disorders and mental health service utilization in children and adolescents. Journal of the American Academy of Child and Adolescent Psychiatry 38, 1081-190.
41. Zwaanswijk M., Verhaak P. F., Bensing J. M., Van der Ende J. & Verhulst F. C. (2003) Help seeking for emotional and behavioural problems in children and adolescents: A review of recent literature. European Child and Adolescent Psychiatry 12, 153-61.