Child, illness, parent siblings;Çocuk, hastalik, anne-babalar ve kardeşler

Cocuk Sagligi ve Hastaliklari Dergisi

Volumn 49, Issue 2, 2006, Pages 155-168

  Er, D Melek ^a  

^a Basbakanlik Ozurluler Idaresi Baskanligi Cocuk Sagligi ve Egitimi ^*

Author keywords

Attitudes toward illness; Parents; Pediatric illness; Siblings; Stress

Indexed keywords

ANXIETY; ATTITUDE TO ILLNESS; CHILD PARENT RELATION; CHILDHOOD DISEASE; FAMILY ATTITUDE; FAMILY COPING; HUMAN; PARENTAL ATTITUDE; REVIEW;

EID: 33745779922     PISSN: 00100161     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Review

References (61)

1. Deniz Ü, Aral N. Kronik hastaliǧi olan ve olmayan çocuklarin davraniş problemlerinin yaş ve cinsiyete göre incelenmesi. Çaǧdaş Eǧitim Dergisi 2003; 28: 37-44.
2. Er MD, Maǧden D. Hastaneye ilk kez yatan üçdokuz yaş arasindaki çocuklarda görülen davraniş deǧişiklikleri. Saǧlik Dergisi 1994; 66: 11-18.
3. Orr DP, Weller SC, Satterwhite B, Pless IB. Psychosocial implications of chronic illness in adolescence. J Pediatr 1984; 104: 152-157.
4. Türkiye Özürlüler Araştirmasi 2002. Ankara: Devlet İstatistik Enstitüsu Matbaasi, 2004: 51.
5. Callery P, Smith L. A study of role negotiation between nurses and the parents of hospitalized children. J Adv Nurs 1991; 16: 772-781.
6. Merkens MJ, Perrin EC, Perrin JM, Gerrity PS. The awareness of primary physicians of the psychosocial adjustment of children with a chronic illness. J Dev Behav Pediatr 1989; 10: 1-6.
7. th ed). Boston: H. Mifflin Company College Division, 2002: 492-534.
8. th ed). Philadelphia: Lea and Febiger, 1987: 42.
9. DM Er. Hastanede yatan çocuklar ve ailelerinin kaygi düzeyini etkileyen faktörlerin incelenmesi (Yayimlanmamiş Doktora Tezi), Hacettepe Üniversitesi Saǧlik Bilimleri Enstitüsü, 1998.
10. Vernon DTA. The Psychological Responses of Children to Hospitalization and Illness: A Review of the Literature. Springfield, IL: Charles C Thomas, 1965.
11. DM Er. Çocuklarin hastaneye yatmadan önce tedavileri konusunda bilgilendirilme durumlarinin incelenmesi, (Poster Bildiri). II. Ulusal Özel Eǧitim Kongresi, Ankara, 1995.
12. Rasnake LK, Linscheid TR. Anxiety reduction in children receiving medical care: developmental considerations. J Dev Behav Pediatr 1989; 10: 169-175.
13. Fennell RS, Fennell EB, Carter RL, Mings EL, Klausner AB, Hurst JR. A longitudinal study of the cognitive function of children with renal failure. Pediatr Nephrol 1990; 4: 11-15.
14. Özel Eǧitim Hizmetleri Yönetmeligi, Resmi Gazete Tarihi: 18.1.2000 R.G. Sayisi 23937.
15. Craven JL, Rodin GM, Johnson L, Kennedy SH. The diagnosis of major depression in renal dialysis patients. Psychosom Med 1987; 49: 482-492.
16. Kellerman J, Zeltzer L, Ellenberg L, Dash J, Rigler D. Psychological effects of illness in adolescence. I. Anxiety, self-esteem, and perception of control. J Pediatr 1980; 97: 126-131.
17. Mulhern RK, Wasserman AL, Friedman AG, Fairclough D. Social competence and behavioral adjustment of children who are long-term survivors of cancer. Pediatrics 1989; 83: 18-25.
18. nd ed), Vol 2. Baltimore: Williams and Wilkins, 1975: 2100-2107.
19. Tavormina JB, Kastner LS, Slater PM, Watt SL. Chronically ill children: a psychologically and emotionally deviant population. J Abnorm Child Psychol 1976; 4: 99-110.
20. LeBovidge JS, Lavigne JV, Miller ML. Adjustment to chronic arthritis of childhood: the roles of illness-related stress and attitude toward illness. J Pediatr Psychol 2005; 30: 273-286.
21. Sturms LM, van der Sluis CK, Stewart RE, Groothoff JW, ten Duis HJ, Eisma WH. A prospective study on paediatric traffic injuries: health-related quality of life and post-traumatic stress. Clin Rehabil 2005; 19: 312-322.
22. Melnyk BM. Coping with unplanned childhood hospitalization: effects of informational interventions on mothers and children. Nurs Res 1994; 43: 50-55.
23. Baysal B. Süreǧen hastaliklar ve hastaneye yatiş: çocuk, aile ve tedavi ekibi. Katki Pediatri Dergisi 1996; 17: 912-918.
24. Clubb RL. Chronic sorrow: adaptation patterns of parents with chronically ill children. Pediatr Nurs 1991; 17: 461-466.
25. Santacroce SJ. Parental uncertainty and posttraumatic stress in serious childhood illness. J Nurs Scholarsh 2003; 35: 45-51.
26. Fortier, L, Wanlass R. Family crisis following the diagnosis of a handicapped child. Family Relations 1984; 33: 13-24.
27. Olshansky, S. Chronic sorrow: a response to having a mentally defective child. Social Casework 1962; 43: 190-193.
28. Copley MF, Bodensteiner JB. Chronic sorrow in families of disabled children. J Child Neurol 1987; 2: 67-70.
29. Clements DB, Copeland LG, Loftus M. Critical times for families with a chronically ill child. Pediatr Nurs 1990; 16: 157-161.
30. Hamlett KW, Pellegrini DS, Katz KS. Childhood chronic illness as a family Stressor. J Pediatr Psychol 1992; 17: 33-47.
31. rd ed). Norwalk, CT: Appleton-Century-Crofts, 1983.
32. Riddle II, Hennessey J, Eberly TW, Carter MC, Miles MS. Stressors in the pediatric intensive care unit as perceived by mothers and fathers. MCN Am J Matern Child Nurs 1989; 18: 221-233.
33. Knafl K, Zoeller L. Childhood chronic illness: a comparison of mothers' and fathers' experiences. J Fam Nurs 2000; 6: 287-302.
34. Fraley AM. Chronic sorrow: a parental response. J Pediatr Nurs 1990; 5: 268-273.
35. Baron C, Veilleux P, Lamarre A. The family of the asthmatic child. Can J Psychiatry 1992; 37: 12-16.
36. Damrosch SP, Perry LA. Self-reported adjustment, chronic sorrow, and coping of parents of children with Down syndrome. Nurs Res 1989; 38: 25-30.
37. Kovacs M, Feinberg TL, Paulauskas S, Finkelstein R, Pollock M, Crouse-Novak M. Initial coping responses and psychosocial characteristics of children with insulin-dependent diabetes mellitus. J Pediatr 1985; 106: 827-834.
38. Blotcky AD, Raczynski JM, Gurwitch R, Smith K. Family influences on hopelessness among children early in the cancer experience. J Pediatr Psychol 1985; 10: 479-493.
39. Sabbeth BF, Leventhal JM. Marital adjustment to chronic childhood illness: a critique of the literature. Pediatrics 1984; 73: 762-768.
40. Perrin JM, MacLean WE Jr. Children with chronic illness. The prevention of dysfunction. Pediatr Clin North Am 1988; 35: 1325-1337.
41. Kazak AE. Families of chronically ill children: a system and social-ecological model of adaptation and challenge. J Consult Clin Psychol 1989; 57: 25-30.
42. Zetlin S, Williams GG, Rosenblatt WP. The coping with stress model: a counseling approach for families with handicapped child. J Couns Dev 1987; 65: 443-446.
43. Kristjansdottir G. A study of the needs of parents of hospitalized 2- to 6-year-old children. Issues Compr Pediatr Nurs 1991; 14: 49-64.
44. Thompson VL, Hupcey JE, Clark MB. The development of trust in parents of hospitalized children. J Spec Pediatr Nurs 2003; 8: 137-147.
45. Newton MS. Family-centered care: current realities in parent participation. Pediatr Nurs 2000; 26: 164-168.
46. Knight L. Child health. Negotiating care roles. Nurs Times 1995; 91: 31-33.
47. Daneman S, Macaluso J, Guzzetta CE. Healthcare providers' attitudes toward parent participation in the care of the hospitalized child. J Spec Pediatr Nurs 2003; 8: 90-98.
48. Walker JG, Manion IG, Cloutier PF, Johnson SM. Measuring marital distress in couples with chronically ill children: the Dyadic Adjustment Scale. J Pediatr Psychol 1992; 17: 345-357.
49. Wheeler HJ. The importance of parental support when caring for the acutely ill child. Nurs Crit Care 2005; 10: 56-62.
50. Wilder L. Chronic stress of families of mentally retarded children. Fam Relat 1981; 30: 281-288.
51. Alderfer MA, Labay LE, Kazak AE. Brief report: does posttraumatic stress apply to siblings of childhood cancer survivors? J Pediatr Psychol 2003; 28: 281-286.
52. Murray JS. The lived experience of childhood cancer: one sibling's perspective. Issues Compr Pediatr Nurs 1998; 21: 217-227.
53. Sloper P. Experiences and support needs of siblings of children with cancer. Health Soc Care Community 2000; 8: 298-306.
54. Zeltzer LK, Dolgin MJ, Sahler OJ, et al. Sibling adaptation to childhood cancer collaborative study: health outcomes of siblings of children with cancer. Med Pediatr Oncol 1996; 27: 98-107.
55. Iles P. Children with cancer: Healthy siblings' perception during the illness experience. Cancer Nurs 1979; 2: 371-377.
56. McHale SM, Gamble WC. Sibling relationships of children with disabled and non-disabled brothers and sisters. Dev Psychol 1989; 25: 421-429.
57. Sharpe D, Rossiter L. Siblings of children with a chronic illness: a meta-analysis. J Pediatr Psychol 2002; 27: 699-710.
58. Houtzager BA, Grootenhuis MA, Caron HN, Last BF. Sibling self-report, parental proxies, and quality of life: the importance of multiple informants for siblings of a critically ill child. Pediatr Hematol Oncol 2005; 22: 25-40.
59. Kramer RF. Living with childhood cancer: healthy siblings' perspective. Issues Compr Pediatr Nurs 1981; 5: 155-165.
60. Murray JS. Attachment theory and adjustment difficulties in siblings of children with cancer. Issues Ment Health Nurs 2000; 21: 149-169.
61. Houtzager BA, Grootenhuis MA, Last BF. Supportive groups for siblings of pediatric oncology patients: impact on anxiety. Psychooncology 2001; 10: 315-324.