A stress model for parents of children with duchenne muscular dystrophy

Journal of Nursing

Volumn 53, Issue 3, 2006, Pages 44-51

  Chen, Jih Yuan ^a,d   Jong, Yuh Jyh ^b,c  

^a KAOHSIUNG MEDICAL UNIVERSITY   (Taiwan)

^b Graduate Institude of Medicine

^c KAOHSIUNG MEDICAL UNIVERSITY HOSPITAL   (Taiwan)

^d NONE   (Taiwan)

Author keywords

Duchenne muscular dystrophy; Stress; Stress model

Indexed keywords

ADULT; ARTICLE; CHILD; DUCHENNE MUSCULAR DYSTROPHY; FEMALE; GENETICS; HUMAN; MALE; MENTAL STRESS; PARENT; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL MODEL;

ADULT; CHILD; FEMALE; HUMANS; MALE; MODELS, PSYCHOLOGICAL; MUSCULAR DYSTROPHY, DUCHENNE; PARENTS; STRESS, PSYCHOLOGICAL;

EID: 33745659242     PISSN: 0047262X     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (23)

1. Agar, M., & Hobbs, J. (1985). How to grow schemata out of interviews. In J. W. D. Dougherty (Ed.), Directions in cognitive anthropology (pp. 413-431). Urbana, IL: University of Illinois.
2. Bach, J. R. (1992). Ventilator use by muscular dystrophy association patients. Archieve Physical Medical Rehabilitation, 73(3), 179-183.
3. Beenakker, E. A. C., Fock, J. M., Van tol, M. J., Maurits, N. M., Koopman, H. M., Brouwer, O. F., et al. (2005). Intermittent prednisolone therapy in Duchenne muscular dystrophy. Archieve Neurology, 62(1), 128-132.
4. Burmeister, M., & Lehrach, H. (1986). Long-range restriction map around the Duchenne muscular dystrophy gene. Nature, 324(6097), 582-585.
5. Byrne, E. (1989). Therapeutic implications of the discovery of dystrophin deficiency in Duchenne dystrophy. In B. A. Kakulas & F. L. Mastaglia (Eds.), Input of an academic neurologist pathogenesis and the therapy of Duchenne and Becker muscular dystrophin (pp. 129-141). New York: Raven.
6. Chen, J. Y. (2004). Functioning among Taiwanese families with a child having Duchenne muscular dystrophy. Unpublished doctoral dissertation, University of San Diego, CA.
7. Chen, J. Y., Chen, S. S., Jong, Y. J., Yang, Y. H., & Chang, Y. Y. (2002). A comparison of the stress and coping strategies between the parents of children with Duchenne muscular dystrophy and children with a fever. Journal of Pediatric Nursing, 17(5), 369-379.
8. Chen, J. Y., Chen, S. S., Jong, Y. J., Yang, Y. H., & Lue, Y. J. (2003, April, 10-12). Psychosocial stress and coping strategies of parents with Duchenne muscular dystrophy children during the middle stage. Paper presented at the 36th Annual Communicating Nursing Research Conference & 17th Annual Win Assembly, Scottsdale, AZ, USA.
9. Gagliardi, B. A. (1991). The family's experience of living with a child with Duchenne muscular dystrophy. Applied Nursing Research, 4(4), 159-164.
10. Gussoni, E., Blau, H. M., & Kunkel, L. M. (1997). The fate of individual myoblasts after transplantation into muscles of DMD patients. Nature Medicine, 3(9), 970 -978.
11. Gussoni, E., Pavlath, G. K., Lanctot, A. M., Sharma, K. R., Miller, R. G., Steinman, L., et al. (1992). Normal dystrophin transcripts detected in Duchenne muscular dystrophy patients after myoblast transplantation. Nature, 356(6368), 435-438.
12. Holroyd, J., & Guthrie, D. (1986). Family stress with chronic childhood illness: Cystic fibrosis, neuromuscular disease, and renal disease. Journal Clinical Psychology, 42(4), 552-561.
13. Huang, L. H., & Dai, Y. T. (1998). Psychosocial impact of muscular dystrophy on mothers (Chinese). Journal of Nursing Research (China), 6(2), 137-151.
14. Hymovich, D. P. (1983). The chronically impact and coping instrument: Parent questionnaire. Nursing Research, 12(1), 275-281.
15. Iannaccone, S. T. (1992). Current status of DMD. Pediatric Clinic North American, 39(4), 879-894.
16. Lue, Y. J., Chen, S. S., Jong, Y. J., & Lin, Y. T. (1993). Investigation of activity of daily living performance in patients with Duchenne muscular dystrophy. Kaohsiung Journal Medical Science, 9(6), 351-360.
17. Napierala, D., Kaczmarek, M., & Slomski, R. (2000). Structure, expression, and mutations of DMD gene, the largest human gene. Advances in Cell Biology, 27(Suppl.14), 320.
18. Ryan, G. W., & Russell Bernard, H. (2000). Data management and analysis methods. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (2nd ed., pp. 769-802). Thousand Oaks, CA: Sage.
19. Sandelowski, M. (1986). The problem of rigor in qualitative research. Advance in Nursing Science, 5(1), 27-37.
20. Spradley, J. P. (1979). The ethnographic interview (pp. 199-201). New York: Holt, Rinehart & Winston.
21. Stein, R. E., & Riessman, C. K. (1980). The development of an impact on family scale: Preliminary findings. Medical Care, 18(4), 465-472.
22. Thompson, R. J. J., Zeman, J. L., Fanurik, D., & Sirotkin-Roses, M. (1992). The role of parent stress and coping and family functioning in parent and child adjustment to Duchenne muscular dystrophy. Journal Clinical Psychology, 48(1), 11-19.
23. Wu, C. L., & Chien, Y. Y. (1992). Immunohistochemical study of dystrophin in neuromuscular disorders. Journal Formosan Medical Associate, 91(4), 438-442.