Adolescents' perception of epilepsy compared with other chronic diseases: "Through a teenager's eyes"

Journal of Child Neurology

Volumn 21, Issue 3, 2006, Pages 214-222

  Cheung, Christina ^a   Wirrell, Elaine ^b,c  

^a QUEEN S UNIVERSITY   (Canada)

^b UNIVERSITY OF CALGARY   (Canada)

^c ALBERTA CHILDREN'S HOSPITAL   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; ARTHRITIS; ARTICLE; ASTHMA; ATTITUDE TO ILLNESS; CHRONIC DISEASE; CONTROLLED STUDY; DEATH; DIABETES MELLITUS; DOWN SYNDROME; EPILEPSY; FEMALE; FIRST AID; HONESTY; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; HUMAN RELATION; INTERVIEW; LEUKEMIA; MAJOR CLINICAL STUDY; MALE; MEDICAL ASSESSMENT; MENTAL DEFICIENCY; MIGRAINE; OUTPATIENT DEPARTMENT; PARENTAL BEHAVIOR; PATIENT EDUCATION; PEDIATRIC HOSPITAL; PHYSICAL CAPACITY; PHYSICAL PERFORMANCE; PRIORITY JOURNAL; SOCIAL ASPECT; SOCIAL BEHAVIOR; SOCIAL PSYCHOLOGY; SPORT; TERTIARY HEALTH CARE;

ADOLESCENT; ADOLESCENT BEHAVIOR; CHRONIC DISEASE; EPILEPSY; FEMALE; HUMANS; INTERVIEWS; MALE; PEER GROUP; PREJUDICE; REFERENCE VALUES; SOCIAL PERCEPTION;

EID: 33745119480     PISSN: 08830738     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (49)

1. Cowan LD: The epidemiology of the epilepsies in children. Ment Retard Dev Disabil Res Rev 2002;8:171-181.
2. Fong CY, Hung A: Public awareness, attitude, and understanding of epilepsy in Hong Kong Special Administrative Region, China. Epilepsia 2002;43:311-316.
3. Lai CW, Huang XS, Lai YH, et al: Survey of public awareness, understanding, and attitudes toward epilepsy in Henan province, China. Epilepsia 1990;31:182-187.
4. Hsieh LP, Chiou HH: Comparison of epilepsy and asthma perception among preschool teachers in Taiwan. Epilepsia 2001;42:647-650.
5. Mirnics Z, Czikora G, Zavecz T, Halasz P: Changes in public attitudes toward epilepsy in Hungary: Results of surveys conducted in 1994 and 2000. Epilepsia 2001;42:86-93.
6. Radhakrishnan K, Pandian JD, Santhoshkumar T, et al: Prevalence, knowledge, attitude, and practice of epilepsy in Kerala, South India. Epilepsia 2000;41:1027-1035.
7. Cange R, Cornaggia C: Public attitudes toward epilepsy in Italy: Results of a survey and comparison with USA and West German data. Epilepsia 1985;26:221-226.
8. Nyame PK, Biritwura RB: Epilepsy: Knowledge, attitude and practice in literate urban populations, Accra, Ghana. West Afr J Med 1997;16:139-145.
9. Matuja WB, Rwiza HT. Knowledge, attitude and practice (KAP) towards epilepsy in secondary school students in Tanzania. Cent Afr J Med 1994;40:13-18.
10. Peltzer K: Perceptions of epilepsy among black students at a university in South Africa. Curationis 2001;24:62-67.
11. Jensen R, Dam M: Public attitudes toward epilepsy in Denmark. Epilepsia 1992;33:459-463.
12. Santos IC, Guerreiro MM, Mata A, et al: Public awareness and attitudes toward epilepsy in different social segments in Brazil. Arq Neuropsiquiatr 1998;56:32-38.
13. Kobau R, Price P: Knowledge of epilepsy and familiarity with this disorder in the US population: Results from the 2002 Health-styles survey. Epilepsia 2003;44:1449-1454.
14. Cavaness WF, Gallup GH: A survey of public attitudes toward epilepsy in 1979 with an indication of trends over the past 30 years. Epilepsia 1980;21:509-518.
15. Breger E: Attitudinal survey of adolescents towards epileptics of the same age group, Part 2: Social Acceptance. MD State Med J 1976;25:41-46.
16. McEwan JM, Espie CA, Metcalfe J, et al: Quality of life and psychosocial development in adolescents with epilepsy: A qualitative investigation using focus group methods. Seizure 2004;13:15-31.
17. Brook U, Galili A: Knowledge and attitudes of high school pupils toward children with special health care needs: An Israeli exploration. Patient Educ Couns 2000;40:5-10.
18. City of Calgary. Available at: http://www.calgary.ca. Accessed June 2004.
19. Breger E. Attitudinal survey of adolescents towards epileptics of the same age group: Part 1: Awareness and Knowledgeability of the Epileptic Condition. Md State Med J 1976;25:61-67.
20. Austin JK, Shafer PO, Deering JB: Epilepsy familiarity, knowledge, and perceptions of stigma: Report from a survey of adolescents in the general population. Epilepsy Behav 2002;3:368-375.
21. Sillanpaa M: Epilepsy in children: Prevalence disability, and handicap. Epilepsia 1992;33:444-449.
22. Maytal J, Shinnar S, Moshe SL, Alvarez LA. Low morbidity and mortality of status epilepticus in children. Pediatrics 1989;83:323-331.
23. Barnard C, Wirrell E: Does status epilepticus in children cause developmental deterioration and exacerbation of epilepsy? J Child Neurol 1999;14:787-794.
24. Kirsch R, Wirrell E: Do cognitively normal children with epilepsy have a higher rate of injury than their non-epileptic peers? J Child Neurol 2001;16:100-104.
25. Appleton RE, Mersey Region Paediatric Epilepsy Interest Group: Seizure-related injuries in children with newly diagnosed and untreated epilepsy. Epilepsia 2002;43:764-767.
26. Berningstall GN: Mortality in pediatric epilepsy. Pediatr Neurol 2001;25:9-16.
27. Tomson T: Mortality in epilepsy. J Neurol 2000;247:15-21.
28. Lhatoo SD, Sander JW. Sudden unexpected death in epilepsy. Hong Kong Med J 2002;8:354-358.
29. Opeskin K, Berkovic SF: Risk factors for sudden unexpected death in epilepsy: A controlled prospective study based on coroners cases. Seizure 2003;12:456-464.
30. Nilsson L, Farahmand BY, Persson PG, et al: Risk factors for sudden unexpected death in epilepsy: A case-control study. Lancet 1999;353:888-893.
31. Ficker DM, So EL, Shen WK, et al: Population-based study of the incidence of sudden unexplained death in epilepsy. Neurology 1998;51:1270-1274.
32. Camfield CS, Camfield PR, Veugelers PJ: Death in children with epilepsy: A population-based study. Lancet 2002;359:1891-1895.
33. Blisard KS, McFeeley PJ: The spectrum of neuropathologic findings in deaths associated with seizure disorders. J Forensic Sci 1988;33:910-914.
34. Diekema DS, Quan L, Holt VL: Epilepsy as a risk factor for submersion injury in children. Pediatrics 1993;91:612-616.
35. Ryan CA, Dowling G: Drowning deaths in people with epilepsy. Can Med Assoc J 1993;148:781-784.
36. Harvey AS, Nolan T, Carlin JB: Community-based study of mortality in children with epilepsy. Epilepsia 1993;34:597-603.
37. Besag FMC: Childhood epilepsy in relation to mental handicap and behavioral disorders. J Child Psychol Psychiatry 2002;43:103-131.
38. Oostrom KJ, Smeets-Schouten A, Kruitwagen CL, et al, Dutch Study Group of Epilepsy in Childhood: Not only a matter of epilepsy: Early problems of cognition and behavior in children with "epilepsy only" - A prospective, longitudinal, controlled study starting at diagnosis. Pediatrics 2003;112(6 Pt 1):1338-1344.
39. Calam R, Gregg L, Simpson B, et al: Childhood asthma, behavior problems, and family functioning. J Allergy Clin Immunol 2003;112:499-504.
40. McQuaid El, Kopel SJ, Nassau JH: Behavioral adjustment in children with asthma: A meta-analysis. J Dev Behav Pediatr 2001;22:430-439.
41. Weglage J, Grenzebach M, Pietsch M, et al: Behavioural and emotional problems in early-treated adolescents with phenylketonuria in comparison with diabetic patients and healthy controls. Inherit Metab Dis 2000;23:487-496.
42. Lewis M, Vitulano LA: Biopsychosocial issues and risk factors in the family when the child has a chronic illness. Child Adolesc Psychiatr Clin N Am 2003;12:389-399.
43. Noll RB, Kozlowski K, Gerhardt C, et al: Social, emotional, and behavioral functioning of children with juvenile rheumatoid arthritis. Arthritis Rheum 2000;43:1387-1396.
44. Suris JC, Parera N, Puig C: Chronic illness and emotional distress in adolescence. J Adolesc Health 1996;19:153-156.
45. Anttila P, Sourander A, Metsahokala L, et al. Psychiatric symptoms in children with primary headache. J Am Acad Child Adolesc Psychiatry 2004;43:412-419.
46. Lewis JN, Tonge BJ, Mowat DR, et al: Epilepsy and associated psychopathology in young people with intellectual disability. J Paediatr Child Health 2000;36:172-5.
47. Wolman C, Resnick MD, Harris LJ, Blum RW. Emotional well-being among adolescents with and without chronic conditions. J Adolesc Health 1994;15:199-204.
48. Starfield B, Forrest CB, Ryan SA, et al: Health status of well vs. ill adolescents. Arch Pediatr Adolesc Med 1996;150:1249-1256.
49. MacLeod JS, Austin JK: Stigma in the lives of adolescents with epilepsy: A review of the literature. Epilepsy Behav 2003;4: 112-117.