Neurodevelopmental Disabilities: Beyond the Diagnosis

Seminars in Pediatric Neurology

Volumn 12, Issue 4, 2005, Pages 242-249

  Accardo, Jennifer ^a   Shapiro, Bruce K ^a  

^a JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

Cerebral Palsy; child advocacy; child development disorders; communication disorders; developmental disabilities; mental retardation; pervasive; rehabilitation; special education

Indexed keywords

ANTICONVULSIVE AGENT; BOTULINUM TOXIN; CENTRAL STIMULANT AGENT;

ARTICLE; ATTENTION DEFICIT DISORDER; CEREBRAL PALSY; CHILD CARE; CHILD HEALTH; COMPREHENSION; DISORDERS OF HIGHER CEREBRAL FUNCTION; EDUCATION PROGRAM; EPILEPSY; FAMILY; HUMAN; LIFE; MEDICAID; MEDICAL PRACTICE; MOTIVATION; NUTRITION; OCCUPATIONAL THERAPY; PHYSIOTHERAPY; PROGRAM DEVELOPMENT; RECOGNITION; SPEECH THERAPY; TEAMWORK;

ADOLESCENT; CHILD; CHILD HEALTH SERVICES; DEVELOPMENTAL DISABILITIES; DISABLED CHILDREN; EDUCATION, SPECIAL; EVALUATION STUDIES; FAMILY; HUMANS; MENTAL DISORDERS; PEDIATRICS; SCHOOLS;

EID: 33744943556     PISSN: 10719091     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.spen.2005.12.006     Document Type: Article

References (53)

1. Adelson P.D., and Kochanek P.M. Head injury in children. J Child Neurol 13 (1998) 2-15
2. Kahler S.G., and Fahey M.C. Metabolic disorders and mental retardation. Am J Med Genet C Semin Med Genet 117C (2003) 31-41
3. Roizen N.J., and Patterson D. Down's syndrome. Lancet 361 (2003) 1281-1289
4. Accardo J., Kammann H., and Hoon A.H. Neuroimaging in cerebral palsy. J Pediatr 145 suppl (2004) S19-S27
5. McPherson M., Weissman G., Strickland B.B., et al. Implementing community-based systems of services for children and youths with special health care needs. how well are we doing?. Pediatrics 113 suppl (2004) 1538-1544
6. McPherson M., Arango P., Fox H., et al. A new definition of children with special health care needs. Pediatrics 102 (1998) 137-140
7. Data Resource Center for Child and Adolescent Health: from information to action. Children & youth with special health care needs. Available at: http://www.cshcndata.org/DesktopDefault.aspx. Accessed July 22, 2005
8. The Developmental Disabilities Assistance and Bill of Rights Act of 2000 (P.L. 106-402) section 152(d) (42 USC 15062) Developmental Disabilities Assistance and Bill of Rights Act, 42 USC 15001, PL 106-402
9. Battaglia A., and Carey J.C. Diagnostic evaluation of developmental delay/mental retardation. an overview. Am J Med Genet C Semin Med Genet 117C (2003) 3-14
10. Shevell M., Ashwal S., Donley D., et al. Practice parameter: evaluation of the child with global developmental delay: report of the Quality Standards Subcommittee of the American Academy of Neurology and The Practice Committee of the Child Neurology Society. Neurology 60 (2003) 367-380
11. Hasnat M.J., and Graves P. Disclosure of developmental disability. a study of parent satisfaction and the determinants of satisfaction. J Paediatr Child Health 36 (2000) 32-35
12. Ashwal S., Russman B.S., Blasco P.A., et al. Practice Parameter: diagnostic assessment of the child with cerebral palsy: report of the Quality Standards Subcommittee of the American Academy of Neurology and the Practice Committee of the Child Neurology Society. Neurology 62 (2004) 851-863
13. Filipek P.A., Accardo P.J., Ashwal S., et al. Practice parameter: screening and diagnosis of autism: report of the Quality Standards Subcommittee of the American Academy of Neurology and the Child Neurology Society. Neurology 55 (2000) 468-479
14. Curry C.J., Stevenson R.E., Aughton D., et al. Evaluation of mental retardation. recommendations of a consensus conference. Am J Med Genet 72 (1997) 468-477
15. World Health Organization. International Classification of Functioning, Disability and Health (2001), World Health Organization, Geneva
16. International Classification of Function, Disability and Health home page. Available at: http://www3.who.int/icf/icftemplate.cfm. Accessed July 22, 2005
17. AAMR Ad Hoc Committee on Terminology and Classification. Mental Retardation Definition, Classification, and Systems of Support. (ed 10). (2002), American Academy on Mental Retardation, Washington, DC
18. Simeonsson R.J., Leonardi M., Lollar D., et al. Applying the International Classification of Functioning, Disability and Health (ICF) to measure childhood disability. Disabil Rehabil 25 (2003) 602-610
19. Alexander D. The National Institute of Child Health and Human Development and phenylketonuria. Pediatrics 112 (2003) 1514-1515
20. Goldstein H. Communication intervention for children with autism. a review of treatment efficacy. J Autism Dev Disord 32 (2002) 373-396
21. Rehabilitation Act of 1973, Pub L 93-112, as amended by the Rehabilitation Act Amendments of 1974, Pub L 93-516, 29 USC 794
22. Bull M., Agran P., Laraque D., Pollack S.H., Smith G.A., et al., American Academy of Pediatrics, Committee on Injury and Poison Prevention. Transporting children with special health care needs. Pediatrics 104 (1999) 988-992
23. Ottenbacher K.J., Msall M.E., Lyon N., et al. Functional assessment and care of children with neurodevelopmental disabilities. Am J Phys Med Rehabil 79 (2000) 114-123
24. Wu Y.W., Day S.M., Strauss D.J., et al. Prognosis for ambulation in cerebral palsy. a population-based study. Pediatrics 114 (2004) 1264-1271
25. Romski M., and Sevcik R.A. Augmentative communication and early intervention myths and realities. Infants Young Child 18 (2005) 174-185
26. American Academy of Pediatrics Committee on Children with Disabilities. Counseling families who choose complementary and alternative medicine for their child with chronic illness or disability. Pediatrics 67 (2001) 598-601
27. Palmer F.B., Shapiro B.K., Wachtel R.C., et al. The effects of physical therapy on cerebral palsy. a controlled trial in infants with spastic diplegia. N Engl J Med 318 (1988) 803-808
28. Butler C., and Darrah J. Effects of neurodevelopmental treatment (NDT) for cerebral palsy. an AACPDM evidence report. Dev Med Child Neurol 43 (2001) 778-790
29. David B. Epileptic (2005), Pantheon Books, New York, NY
30. Robards M.F. Running a Team for Disabled Children and Their Families. Clinics in Developmental Medicine 130 (1994), Mackeith Press, London 38-53
31. Rosen C., Miller A.C., Cate I.M., Bicchieri S., Gordon R.M., and Daniele R. Team approaches to treating children with disabilities. a comparison. Arch Phys Med Rehabil 79 (1998) 430-434
32. Mac K.R. The restoration of parents as the keystone of the therapeutic arch. Dev Med Child Neurol 18 (1976) 285-286
33. American Academy of Pediatrics, Johnson C.P., Kastner T.A., and Committee/Section on Children with Disabilities. Helping families raise children with special health care needs at home. Pediatrics 115 (2005) 507-511
34. CHADD: Children and adults with attention-deficit/hyperactivity. Available at: http://www.chadd.org. Accessed July 22, 2005.
35. Tourette Syndrome Association, Inc. website. Available at: http://www.tsa-usa.org. Accessed July 22, 2005
36. The Arc website. Available at: http://www.thearc.org. Accessed July 22, 2005
37. Coffin-Lowry Syndrome Foundation. Available at: http://clsf.info. Accessed July 19, 2005
38. Technical Assistance ALLIANCE for Parent Centers. Parent training and information centers and community parent resource centers. Available at: http://www.taalliance.org/centers/index.htm. Accessed July 22, 2005
39. Individuals with Disabilities Education Improvement Act of 2004, PL 108-446, 118 Stat 2647
40. Committee on Children with Disabilities. Role of the pediatrician in family-centered early intervention service. Pediatrics 107 (2001) 1155-1157
41. US Department of Education. IDEA 2004 resources. Available at: http://www.ed.gov/policy/speced/guid/idea/idea2004.html. Accessed July 22, 2005
42. Social Security Administration. What you should know before you apply for SSI benefits for a child. Available at: http://www.ssa.gov/disability/ChildStarterKit.pdf. Accessed July 22, 2005
43. American Academy of Pediatrics & Social Security Administration Office of Disability. Understanding SSI Disability for Children. SSA Pub No 64-082, 2002
44. Centers for Medicare and Medicaid Services. Welcome to Medicaid. Available at: http://www.cms.hhs.gov/medicaid. Accessed July 22, 2005
45. American Academy of Pediatrics Committee on Child Health Financing. Implementation policies and strategies for the State Children's Health Insurance Program. Pediatrics 107 (2001) 1214-1220
46. Centers for Medicare and Medicaid Services: State Children's Health Insurance Program (SCHIP) portal. Available at: http://www.cms.hhs.gov/schip Accessed July 22, 2005
47. Maryland Medical Programs. Waiver programs. Medicaid home and community-based services waiver for children with autism spectrum disorder fact sheet. Available at: http://dhmh.state.md.us/mma/waiverprograms/html/Autism%20Waiver%20Fact%20Sheet.htm. Accessed July 22, 2005
48. Wrightslaw website. Available at: http://www.wrightslaw.com. Accessed July 22, 2005
49. Bergen D.C., and Silberberg D. Nervous system disorders. a global epidemic. Arch Neurol 59 (2002) 1194-1196
50. Kaplan B.J., Dewey D.M., Crawford S.G., et al. The term comorbidity is of questionable value in reference to developmental disorders. data and theory. J Learn Disabil 34 (2001) 555-565
51. Capute A.J., and Accardo P.J. A neurodevelopmental perspective on the continuum of developmental disabilities. In: Capute A.J., and Accardo P.J. (Eds). Developmental Disabilities in Infancy and Childhood. (ed 2). (1996), Paul H. Brookes Publishing Co, Baltimore, MD 1-22
52. Goldberg M.J. Measuring outcomes in cerebral palsy. J Pediatr Orthop 11 (1991) 682-685
53. Keogh B.K., Bernheimer L.P., and Guthrie D. Children with developmental delays twenty years later. where are they? How are they?. Am J Ment Retard 109 (2004) 219-230