Why me? Why now? Why multiple sclerosis?: Making meaning and perceived quality of life in a Midwestern sample of patients with multiple sclerosis

Families, Systems and Health

Volumn 24, Issue 1, 2006, Pages 65-81

  Russell, Candyce S ^a,b   White, Mark B ^a   White, Carmel Parker ^b  

^a Family Studies and Human Services   (United States)

^b KANSAS STATE UNIVERSITY   (United States)

Author keywords

Benefit finding; Illness cognitions; Meaning making; Multiple sclerosis; Quality of life

Indexed keywords

ADAPTATION; AUTOIMMUNE DISEASE; BLURRED VISION; COGNITION; CONTENT ANALYSIS; DEMYELINATION; EMPLOYMENT; FAMILY THERAPY; HUMAN; INFORMATION SCIENCE; LITERATURE; MULTIPLE SCLEROSIS; QUALITY OF LIFE; QUESTIONNAIRE; REVIEW; RHEUMATOID ARTHRITIS; STRESS; SYMPTOM;

EID: 33744812162     PISSN: 10917527     EISSN: None     Source Type: Journal    
DOI: 10.1037/1091-7527.24.1.65     Document Type: Review

References (50)

1. Andrews, F. M., & Withey, S. B. (1976). Social indicators of well-being. New York: Plenum Press.
2. Aronson, K. J. (1997). Quality of life among persons with multiple sclerosis and their caregivers. Neurology, 48, 74-80.
3. Becvar, D. S. (2000). Human development as a process of meaning making and reality construction. In W. C. Nichols, M. A. Pace-Nichols, D. S. Becvar & A. Y. Napier (Eds.), Handbook of family development and intervention (pp. 65-82). New York: Wiley.
4. Beeson, P. B. (1994). Age and sex associations of 40 autoimmune diseases. The American Journal of Medicine, 96, 457-462.
5. Buchanan, R. J., Martin, R. A., Zuniga, M., Wang, S., & Kim, M. (2004). Nursing home residents with multiple sclerosis: Comparisons of African American residents to white residents at admission. Multiple Sclerosis, 10, 660-667.
6. Campbell, A. (1981). The sense of well-being in America: Recent patterns and trends. New York: McGraw-Hill.
7. Candib, L. M. (2004). Making sense of my thumbs: Coming to terms with chronic illness. Families, Systems, & Health, 22, 139-151.
8. Chalfant, A. M., Bryant, R. A., & Fulcher, G. (2004). Posttraumatic stress disorder following diagnosis of multiple sclerosis. Journal of Traumatic Stress, 17, 423-428.
9. Charney, D. S. (2004). Psychobiological mechanisms of resilience and vulnerability: Implications for a successful adaptation to extreme stress. American Journal of Psychiatry, 161, 195-216.
10. Cline, R. J. W., & Haynes, K. M. (2001). Consumer health information seeking on the internet: The state of the art. Health Education Research: Theory and Practice, 16, 671-692.
11. Davidson, R. J. (2003). Affective neuroscience and psychophysiology: Toward a synthesis. Psychophysiology, 40, 655-673.
12. Dervin, B. (1998). Sense-making theory and practice: An overview of user interests in knowledge seeking and use. Journal of Knowledge Management, 2, 36-46.
13. DeVellis, B. M., & Blalock, S. J. (1992). Illness attributions and hopelessness depression: The role of hopelessness expectancy. Journal of Abnormal Psychology, 10, 257-264.
14. Diefenbach, M. A., & Leventhal, H. (1996). The common-sense model of illness representations: Theoretical and practical considerations. Journal of Social Distress and the Homeless, 5, 11-38.
15. Eeltink, C., & Duffy, M. (2004). Restorying the illness experience in multiple sclerosis. The Family Journal: Counseling and Therapy for Couples and Families, 12, 282-286.
16. Evers, A. W. M., Kraaimaat, F. W., van Lankveld, W., Jongen, P. J. H., Jacobs, J. W. G., & Bijlsma, J. W. J. (2001). Beyond unfavorable thinking: The illness cognition questionnaire for chronic diseases. Journal of Consulting and Clinical Psychology, 69, 1026-1036.
17. Fiese, B. H., & Wamboldt, F. S. (2003). Coherent accounts of coping with a chronic illness: Convergences and divergences in family measurement using a narrative analysis. Family Process, 42, 453-467.
18. Frank, A. W. (1995). The wounded storyteller: Body, illness, and ethics. London: University of Chicago Press.
19. Friedman, M. E. (2004, September). Shame and illness: A Jewish perspective. The Yale Journal of Humanities and Medicine. Retrieved April 15, 2005 from http://info.med.yale.edu/ intmed/hummed/yjhm/spirit2004/shame/ mfriedman.htm.
20. Griffith, J. L., & Griffith, M. E. (1994). The body speaks: Therapeutic dialogues for mind-body problems. New York: Basic Books.
21. Groopman, J. (2004). The anatomy of hope: How people prevail in the face of illness. New York: Random House.
22. Harrison, T., Stuifbergen, A., Adachi, E., & Becker, H. (2004). Marriage, impairment, and acceptance in persons with multiple sclerosis. Western Journal of Nursing Research, 26, 266-285.
23. Hawkins, S. A., & McDonnell, G. V. (1999). Benign multiple sclerosis? Clinical course, long term follow up, and assessment of prognostic factors. Journal of Neurology, Neurosurgery, and Psychiatry, 67, 148-152.
24. Jan, M. M. S., & Girvin, J. P. (2002). The communication of neurological bad news to parents. The Canadian Journal of Neurological Sciences, 29, 78-82.
25. Lee, Y., & McCormick, B. P. (2002). Sense making process in defining health for people with chronic illnesses and disabilities. Therapeutic Recreation Journal, 36, 235-246.
26. Lyddon, W. J., & Aalford, D. J. (1993). Constructivist assessment: A developmental-epistemic perspective. In G. J. Neimeyer (Ed.). Constructivist assessment: A casebook (pp. 31-57). Newbury Park, CA: Sage.
27. Malterud, K. (1992)
28. Malterud, K. (1993). Strategies for empowering women's voices in the medical culture. Health Care for Women International, 14, 365-373.
29. McAdams, D. P. (1993). The stories we live by: Personal myths and the making of the self. New York: Morrow.
30. McCabe, M. P., & McKern, S. (2002). Quality of life and multiple sclerosis: Comparison between people with multiple sclerosis and people from the general population. Journal of Clinical Psychology in Medical Settings, 9, 287-294.
31. McCabe, M. P., McKern, S., & McDonald, E. (2004). Coping and psychological adjustment among people with multiple sclerosis. Journal of Psychosomatic Research, 56, 355-361.
32. McDaniel, S. H., Hepworth, J., & Doherty, W. J. (1999). The shared emotional themes of illness. Journal of Family Psychotherapy, 10, 1-8.
33. McGoldrick, M., Giordano, J., & Pearce, J. K. (Eds.). (1996). Ethnicity and family therapy (2nd ed.). New York: Guilford Press.
34. Miller, C. M. (1997). The lived experience of relapsing multiple sclerosis: A phenomenological study. Journal of Neuroscience Nursing, 29, 294-305.
35. Minden, S. L., & Schiffer, R. B. (1991). Depression and mood disorders in multiple sclerosis. Neuropsychiatry, Neuropsychology, and Behavioral Neurology, 4, 62-77.
36. National Multiple Sclerosis Society. (2004). About MS: Who Gets MS? Retrieved March 1, 2005 from www.nationalmssociety.org? who%20ets%20MS.asp
37. Pozzilli, C., Tomassini, V., Marinelli, F., Paolillo, A., Gasperini, C., & Bastianello, S. (2003). "Gender gap" in multiple sclerosis: Magnetic resonance imaging evidence. European Journal of Neurology, 10, 95-97.
38. Register, C. (1987). The chronic illness experience: Embracing the imperfect life. City Center, MN: Hazelton Press.
39. Rim, Y. (1990). Styles of attribution and coping. Personality and Individual Differences, 11, 973-976.
40. Smith, T. W., Christensen, A. J., Peck, J. R., & Ward, J. R. (1994). Cognitive distortion, helplessness, and depressed mood in rheumatoid arthritis: A four year longitudinal analysis. Health Psychology, 13, 213-217.
41. Stein, J. A., & Nyamathi, A. (1999). Gender differences in relationships among stress, coping, and health risk behaviors impoverished, minority populations. Personality and Individual Differences, 26, 141-157.
42. Stiufberen, A. K. (1995). Health promoting behaviors and quality of life among individuals with multiple sclerosis. Scholarly Inquiry for Nursing Practice, 9, 31-50.
43. Taylor, S. E. (1983). Adjustment to threatening events: A theory of cognitive adaptation. American Psychologist, 38, 1161-1171.
44. Taylor, S. E., Kemeny, M. E., Reed, G. M., Bower, J. E., & Grunewald, T. L. (2000). Psychological resources, positive illusions, and health. American Psychologist, 55, 99-109.
45. Tennen, H., & Affleck, G. (2002). Benefit-finding and benefit-reminding. In C. R. Snyder & S. J. Lopez (Eds.), Handbook of positive psychology (pp. 584-597). New York: Oxford University Press.
46. Thorne, S., Con, A., McGuinness, L., McPherson, G., & Harris, S. R. (2004). Health care communication issues in multiple sclerosis: An interpretive description. Qualitative Health Research, 14, 5-22.
47. Vickrey, B. G. (1995). Multiple Sclerosis Quality of Life (MSQOL)-54 Instrument. Los Angeles: University of California at Los Angeles.
48. Weinman, J., Petrie, K. J., Sharpe, N., & Walker, S. (2000). Causal attributions in patients and spouses following first-time myocardial infarction and subsequent lifestyle changes. British Journal of Health Psychology, 5, 263-273.
49. White, M. (1991, Autumn). Deconstruction and therapy. Dulwich Centre Newsletter, 3, 21-40.
50. Ziebland, S. (2004). The importance of being expert: The quest for cancer information on the Internet. Social Science and Medicine, 59, 1783-1793. o use in a research article probably apply.