'Nothing fit me': Nationwide consultations with young women with breast cancer

Health Expectations

Volumn 9, Issue 2, 2006, Pages 158-173

  Gould, Judy ^a,c   Grassau, Pamela ^a   Manthorne, Jackie ^b   Gray, Ross E ^a   Fitch, Margaret I ^a  

^a UNIVERSITY OF TORONTO   (Canada)

^b Canadian Breast Cancer Network   (Canada)

^c Ontario Breast Cancer Community Research Initiative   (Canada)

Author keywords

Breast cancer; Canada; Focus groups; Qualitative inquiry; Young women

Indexed keywords

ADULT; AGE; AGED; ARTICLE; BREAST CANCER; BREAST RECONSTRUCTION; CANADA; CANADIAN BREAST CANCER NETWORK; CANCER SURVIVOR; EXPERIENCE; FEMALE; HEALTH CARE DELIVERY; HEALTH CARE NEED; HEALTH CARE ORGANIZATION; HEALTH SERVICE; HUMAN; INFORMATION PROCESSING; LIFE; LYMPHEDEMA; MAJOR CLINICAL STUDY; ONTARIO BREAST CANCER COMMUNITY RESEARCH INITIATIVE; PATIENT CARE; PRIORITY JOURNAL; QUALITATIVE RESEARCH; SEXUALITY; WORKSHOP;

ADULT; BREAST NEOPLASMS; CANADA; FEMALE; FOCUS GROUPS; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; MIDDLE AGED; NATIONAL HEALTH PROGRAMS; PATIENT SATISFACTION; SELF-HELP GROUPS;

EID: 33646706070     PISSN: 13696513     EISSN: 13697625     Source Type: Journal    
DOI: 10.1111/j.1369-7625.2006.00383.x     Document Type: Article

References (41)

1. Canadian Cancer Society. Canadian Cancer Society Statistics (online), 2005. Available at: http://www.cancer.ca/ccs/internet/standard/0,3182, 3172_14435__langId-en,00.html (last accessed date October 2005).
2. Canadian Breast Cancer Foundation. Breast Cancer Facts (online), 2004. Available at: http://www.cbcf.org/what/breast_cancer_facts.html (last accessed date March 2004).
3. Canadian Cancer Society. Cancer Incidence in Young Adults. Special Topic From Canadian Cancer Statistics (online), 2002. Available at: http://www.ncic.cancer.ca/ncic/internet/standard/0,3621, 84658243_85787780_91035800_langId-en,00.html (last accessed date October 2005).
4. Bloom JR Stewart SL Chang S Banks PJ. Then and now: quality of life of young breast cancer survivors. Psycho-oncology 2004 13 : 147 160.
5. Xiong Q Valero V Kau V et al. Female patients with breast carcinoma age 30 years and younger have a poor prognosis: the M.D. Anderson Cancer Center experience. Cancer 2001 92 : 2523 2528.
6. Gray R Goel V Fitch M et al. Utilization of professional supportive care services by women with breast cancer. Breast Cancer Research and Treatment 2000 64 : 253 258.
7. Pistrang N Barker C. Partners and fellow patients: two sources of emotional support for women with breast cancer. American Journal of Community Psychology 1995 26 : 439 456.
8. Thewes B Butow P Girgus A Pendlebury S. The psychosocial needs of breast cancer survivors: a qualitative study of the shared and unique needs of younger versus older survivors. Psycho-oncology 2004 13 : 177 189.
9. Wong-Kim EC Bloom JR. Depression experienced by young women newly diagnosed with breast cancer. Psycho-oncology 2005 14 : 564 573.
10. Bloom JR Stewart SL Johnston M Banks P. Intrusiveness of illness and quality of life in young women with breast cancer. Psycho-oncology 1998 7 : 89 100.
11. Dunn J Steginga SK. Young women's experience of breast cancer: defining young and identifying concerns. Psycho-oncology 2000 9 : 137 146.
12. Siegel K Gluhoski V Gorey E. Age-related distress among young women with breast cancer. Journal of Psychosocial Oncology 1999 17 : 1 20.
13. Alferi SM Carver CS Antoni MH Weiss S Duran RE. An exploratory study of social support, distress, and life disruption among low-income Hispanic women under treatment for early stage breast cancer. Health Psychology 2001 20 : 41 46.
14. Schnoll RA Knowles JC Harlow L. Correlates of adjustment among cancer survivors. Journal of Psychosocial Oncology 2002 20 : 37 60.
15. Knobf MT. The menopausal symptom experience in young mid-life women with breast cancer. Cancer Nursing 2001 24 : 201 210.
16. Schrover L. Sexuality and body image in younger women with breast cancer. Journal of the National Cancer Institute Monographs 1994 16 : 177 182.
17. Vinokur AD Threatt BA Vinokur-Kaplan D Satariano WA. The process of recovery from breast cancer for younger and older patients. Changes during the first year. Cancer 1990 65 : 1242 1254.
18. Lewis JA Manne SL DuHamel KN et al. Social support, intrusive thoughts, and quality of life in breast cancer survivors. Journal of Behavioral Medicine 2001 24 : 231 245.
19. Northouse LL. Breast cancer in younger women: effects on interpersonal and family relations. Journal of the National Cancer Institute Monographs 1994 16 : 183 190.
20. Dow KH. Having children after breast cancer. Cancer Practice 1994 2 : 407 413.
21. Lewis FM Hammond MA Woods NF. The family's functioning with newly diagnosed breast cancer in the mother: the development of an explanatory model. Journal of Behavioral Medicine 1993 16 : 351 370.
22. Elmberger E Bolund C Lutzen K. Transforming the exhausting to energizing process of being a good parent in the face of cancer. Health Care for Women International 2000 21 : 485 499.
23. Lewis FM Zahlis EH Shands ME Sinsheimer JA Hammond MA. The functioning of single women with breast cancer and their school-aged children. Cancer Practice 1996 4 : 15 24.
24. Rayson D. Adjuvant chemotherapy for women with young children: our patients as parents. Journal of Clinical Oncology 2001 19 : 279 281.
25. Shands ME Lewis FM Zahlis EH. Mother and child interactions about the mother's breast cancer: an interview study. Oncology Nursing Forum 2000 27 : 77 85.
26. Pope C Mays N. Qualitative research: reaching the parts other methods cannot reach: an introduction to qualitative methods in health and health services research. British Medical Journal 1995 311 : 42 45.
27. Mays N Pope C. Qualitative research: rigour and qualitative research. British Medical Journal 1995 311 : 109 112.
28. Morse J. Designing funded qualitative research. In Denzin NK Lincoln YS eds Handbook of Qualitative Research. Thousand Oaks, CA : Sage, 1994 : 220 235.
29. Guba E.G. Lincoln Y.S. Competing paradigms in qualitative research. In Denzin NK Lincoln YS eds Handbook of Qualitative Research. Thousand Oaks, CA : Sage, 1994 : 105 117.
30. Krueger R. Analyzing and Reporting Focus Group Results. Thousand Oaks, CA : Sage, 1998.
31. Patton MQ. Qualitative Evaluation and Research Methods. Newbury Park, CA : Sage, 1990.
32. Bilodeau BA Degner LF. Informational needs, sources of information and decisional roles in women with breast cancer. Oncology Nursing Forum 1996 23 : 691 696.
33. Mills ME Sullivan K. The importance of information giving for patients newly diagnoses with cancer: a review of the literature. Journal of Clinical Nursing 1999 8 : 631 642.
34. Gray R Fitch M Davis C Phillips C. Interviews with men with prostate cancer about their self-help group experience. Journal of Palliative Care 1997 13 : 15 21.
35. Silverman D. Interpreting Qualitative Data: Methods for Analysing Talk, Text and Interaction, 2nd edn. London : Sage, 2001.
36. Shannon C Smith IE. Breast cancer in adolescents and young women. European Journal of Cancer 2003 39 : 2632 2642.
37. Longo CJ Deber R Fitch MI Williams AP. Characteristics of out-of-pocket costs for cancer patients in Ontario, Canada. Proceedings of the American Society of Clinical Oncology, New Orleans, June 5-8, 2004.
38. Longo CJ Deber R Fitch MI Williams AP. Financial and family burden associated with cancer treatment in Ontario. Paper Presented at the Canadian Association of Psycho-social Oncology Meeting, Toronto, May 7, 2004.
39. Kitzinger J. The methodology of focus groups: the importance of interaction between research participants. Sociology of Health & Illness 1994 16 : 103 117.
40. Foxcroft LM Evans EB Porter AJ. The diagnosis of breast cancer in women younger than 40. Breast 2004 13 : 297 306.
41. Murphy MK Black NA Lamping DL et al. Consensus development methods and their use in clinical guideline development. Health Technology Assessment 1998 2 : 1 88.