Concordance of quality-of-life assessments between terminally ill cancer patients and their primary family caregivers in Taiwan

Cancer Nursing

Volumn 29, Issue 1, 2006, Pages 49-57

  Tang, Siew Tzuh ^a,b  

^a CHANG GUNG UNIVERSITY   (Taiwan)

^b NONE   (Taiwan)

Author keywords

Concordance of patientfamily assessments; End of life care; Proxy assessments; Quality of life

Indexed keywords

AGED; ARTICLE; CANCER PATIENT; CAREGIVER; CONTROLLED STUDY; FEMALE; HUMAN; LITERATURE; MAJOR CLINICAL STUDY; MALE; MEDICAL RESEARCH; PRIORITY JOURNAL; PROSPECTIVE STUDY; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; SOCIAL ASPECT; SYMPTOM; TAIWAN; TERMINAL DISEASE; ADULT; ATTITUDE TO HEALTH; COMPARATIVE STUDY; CULTURAL FACTOR; CUSTODY; DAILY LIFE ACTIVITY; EPIDEMIOLOGY; ETHNOLOGY; FAMILY; LANGUAGE; MENTAL HEALTH; MIDDLE AGED; NEOPLASM; NURSING EVALUATION RESEARCH; QUESTIONNAIRE; RELIGION; STANDARD; TERMINALLY ILL PATIENT; VALIDATION STUDY;

ACTIVITIES OF DAILY LIVING; ADULT; AGED; AGED, 80 AND OVER; ATTITUDE TO HEALTH; BIAS (EPIDEMIOLOGY); CAREGIVERS; CROSS-CULTURAL COMPARISON; FAMILY; FEMALE; HUMANS; MALE; MENTAL HEALTH; MIDDLE AGED; NEOPLASMS; NURSING EVALUATION RESEARCH; PROSPECTIVE STUDIES; PROXY; QUALITY OF LIFE; QUESTIONNAIRES; SPIRITUALITY; TAIWAN; TERMINALLY ILL; TRANSLATING;

EID: 33646110515     PISSN: 0162220X     EISSN: None     Source Type: Journal    
DOI: 10.1097/00002820-200601000-00009     Document Type: Article

References (33)

1. Cohen SR, Mount BM. Quality of life in terminal illness: defining and measuring subjective well-being in the dying. J Palliat Care. 1992;8(3):40-45.
2. Moinpour CM. Do quality of life assessments make a difference in the evaluation of cancer treatment? Control Clin Trials. 1997;18:311-317.
3. Sprangers MAG, Aaronson NK. The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: a review. J Clin Epidemiol. 1992;45:743-760.
4. Simes RJ, Greatorex V, Gebski VJ. Practical approaches to minimize problems with missing quality of life data. Stat Med. 1998;17:725-737.
5. Nayfield SG, Hailey BJ, McCabe M. Quality of Life Assessment in Cancer Clinical Trials. Report of the Workshop on Quality of Life Research in Cancer Clinical Trials. Bethesda, Md: US Department of Health and Human Services, NCI, NIH; 1990.
6. Tang ST, McCorkle R. Appropriate time frames for data collection in quality of life research among cancer patients at the end of life. Qual Life Res. 2002;11:145-155.
7. Ingleton C, Faulkner A. Quality assurance in palliative care: some of the problems. Eur J Cancer Care. 1995;4:38-44.
8. Rinck GC, van den Bos GAM, Kleijnen J, de Haes HJCJM, Schade E, Veenhof CHN. Methodologic issues in effectiveness research on palliative cancer care: A systematic review. J Clin Oncol. 1997;15:1697-1707.
9. Fowler F, Coppola KM, Teno JM. Methodological challenges for measuring quality of care at the end of life. J Pain Symptom Manage. 1999;17:114-119.
10. Lobchuk MM, Denger LF. Patients with cancer and next-of-kin response comparability on physical and psychological symptom well-being: Trends and measurement issues. Cancer Nurs. 2002;25:358-374.
11. McPherson CJ, Addington-Hall JM. Judging the quality of care at the end of life: Can proxies providing reliable information? Soc Sci Med. 2003;56:95-109.
12. Sneeuw KCA, Sprangers MAG, Aaronson NK. The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease. J Clin Epidemiol. 2002;55:1130-1143.
13. Tang ST, McCorke R. Use of family proxies in quality of life research for cancer patients at the end of life: a literature review. Cancer Invest. 2002;20:1086-1104.
14. Lin CC. Congruity of cancer pain perceptions between Taiwanese patients and family caregivers: relationship to patients' concerns about reporting pain and using analgesics. J Pain Symptom Manage. 2001;21:18-26.
15. Badgett RG. Concordance versus correlation. Ann Emerg Med. 1993;22:269.
16. Bland JM, Altman DG. Statistical methods for assessing agreement between two methods of clinical measurement. Lancet. 1986;8476:307-310.
17. Cohen SR, Mount BM, Tomas JJN, Mount LF. Existential well-being is an important determinant of quality of life. Cancer. 1996;77:576-586.
18. McCorkle R, Young K. Development of a symptom distress scale. Cancer Nurs. 1978;1:373-378.
19. Benoliel JQ, McCorkle R, Young K. Development of a social dependency scale. Res Nurs Health. 1980;3:3-10.
20. Cohen SR, Mount BM, Bruera E, Provost M, Rowe J, Tong K. Validity of the McGill Quality of Life Questionnaire in the palliative care setting: a multi-center Canadian study demonstrating the importance of the existential domain. Palliat Med. 1997;11:3-20.
21. Tang S, Dixon J. Instrument translation and evaluation of equivalence and psychometric properties: the Chinese Sense of Coherence Scale. J Nurs Meas. 2002;10:59-76.
22. McCorkle R, Cooley ME, Shea JA. A User's Manual for the Symptom Distress Scale. New Haven, Conn: Yale University School of Nursing; 1998.
23. Barsevuck A, Pasacreta J, Orsi A. Psychological distress and functional dependency in colorectal cancer patients. Cancer Pract. 1995;3(2):105-110.
24. Landis JR, Koch GG. The measurement of observer agreement for categorical data. Biometrics. 1977;33:159-174.
25. Cohen J. Statistical Power Analysis for the Behavioral Sciences. Hillsdale, NJ: Lawrence Erlbaum Associates; 1988:19.
26. Lobchuk MM, Kristjanson L. Perceptions of symptom distress in lung cancer patients: II. Behavioral assessment by primary family caregivers. J Pain Symptom Manage. 1997;14:147-156.
27. Grassi L, Indelli M, Maltoni M, Falcini F, Fabbri L, Indelli R. Quality of life of homebound patients with advanced cancer: assessments by patients, family members, and oncologists. J Psychosoc Oncol. 1996;14(3):31-45.
28. Sneeuw KCA, Aaronson NK, Sprangers MAG, Detmar SB, Wever LDV, Schornagel JH. Value of caregiver ratings in evaluating the quality of life of patients with cancer. J Clin Oncol. 1997;15:1206-1217.
29. Fielding R, Wong L, Ko L. Strategies of information disclosure to Chinese cancer patients in an Asian community. Psychooncology. 1998;7:240-251.
30. Orona C, Koenig BA, Davis AJ. Cultural aspects of nondisclosure. Camb Q Healthc Ethics. 1994;3:338-346.
31. Blackhall LJ, Murphy ST, Frank G, et al. Ethnicity and attitudes toward patient autonomy. JAMA. 1995;274:820-825.
32. Blackhall LJ, Frank G, Murphy S, et al. Bioethics in a different tongue: the case of truth-telling. J Urban Health. 2001;78:59-57.
33. Miaskowski C, Zimmer EF, Barrett KM, Dibble SL, Wallhagen M. Differences in patients' and family caregivers' perceptions of the pain experience influence patient and caregiver outcomes. Pain. 1997;72:217-226.