A comprehensive rehabilitation programme tailored to the needs of adults with muscular dystrophy

Clinical Rehabilitation

Volumn 20, Issue 2, 2006, Pages 132-141

  Ahlström, Gerd ^a   Lindvall, B ^b,c   Wenneberg, S ^a   Gunnarsson, L G ^c  

^a ÖREBRO UNIVERSITY   (Sweden)

^b LINKÖPING UNIVERSITY   (Sweden)

^c ÖREBRO UNIVERSITY HOSPITAL   (Sweden)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ANXIETY; ARTICLE; CLINICAL TRIAL; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; COPING BEHAVIOR; DAILY LIFE ACTIVITY; FATALITY; FEMALE; HEALTH CARE NEED; HEALTH PROGRAM; HELPLESSNESS; HOPELESSNESS; HOSPITAL ANXIETY AND DEPRESSION SCALE; HUMAN; MAJOR CLINICAL STUDY; MALE; MUSCULAR DYSTROPHY; QUALITY OF LIFE; QUASI EXPERIMENTAL STUDY; QUESTIONNAIRE; RATING SCALE; REHABILITATION CARE; SICKNESS IMPACT PROFILE; SOCIAL PSYCHOLOGY; SWEDEN; WELLBEING;

ACTIVITIES OF DAILY LIVING; ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; ANXIETY; DEPRESSION; DISABILITY EVALUATION; FEMALE; HUMANS; MALE; MIDDLE AGED; MUSCULAR DYSTROPHIES; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 33644899662     PISSN: 02692155     EISSN: None     Source Type: Journal    
DOI: 10.1191/0269215506cr898oa     Document Type: Article

References (35)

1. Ahlström G, Gunnarsson LG, Kihlgren A, Arvill A, Sjödén PO. Respiratory function, electrocardiography and quality of life in individuals with muscular dystrophy. Chest 1994; 106: 173-79.
2. Brooke MH. A clinician's view of neuromuscular disease. Williams & Wilkins, 1986.
3. Ahlström G. Consequences of muscular dystrophy: impairment, disability, coping and quality of life. Dissertation. Uppsala University, 1994.
4. Nätterlund B, Gunnarsson LG, Ahlström G. Disability, coping, and quality of life in individuals with muscular dystrophy: a prospective study over five years. Disabil Rehabil 2000; 22: 776-85.
5. Eagle M. Report on muscular dystrophy campaign workshop: Exercise in neuromuscular diseases. Neuromuscul Disord 2002; 12: 975-83.
6. Ansved T. Muscular dystrophies: influence of physical conditioning on the disease evolution. Curr Opin Clin Nutr Metab Care 2003; 6: 435-39.
7. Moon JH, Na YM, Kang SW, Lee HS. The changes in muscle strength and relaxation time after a comprehensive rehabilitation program for patients with myotonic dystrophy. Yonsei Med J 1996; 37: 237-42.
8. Kumar S. Multidisciplinary approach to rehabilitation. Butterworth-Heinemann, 2000.
9. Guzmán J, Esmail R, Karjalainen K, Malmivaara A, Irvin E, Bombardier C. Multidisciplinary rehabilitation for chronic low back pain: systematic review. BMJ 2001; 322: 1511-16.
10. Karjalainen K, Malmivaara A, van Tulder M, Jauhiainen M, Hurri H, Koes B. Multidisciplinary rehabilitation for fibromyalgia and musculoskeletal pain in working age adults. Cochrane Database Syst Rev 2004; 1.
11. Berglund G, Bolund C, Gustavsson UL, Sjödén PO. Starting Again: a comparison study of a group rehabilitation program for cancer patients. Acta Oncol 1993; 32: 15-21.
12. Berglund G, Bolund C, Gustavsson UL, Sjödén PO. A randomized study of a rehabilitation program for cancer patients: the 'Starting Again' group. Psychooncology 1994; 3: 109-20.
13. Carlsson ME, Strang PM. Educational support programme for gynaecological cancer patients and their families. Acta Oncol 1998; 37: 269-77.
14. Bach JR. Introduction to rehabilitation of neuromuscular disorders. Semin Neurol 1995; 15: 1-5.
15. Charash LI, Lovelace RE, Leach CF, Kutscher AH, Goldberg RJ, Price Roye D, eds. Muscular dystrophy and other neuromuscular diseases: psychosocial issues. The Haworth Press, 1991.
16. Edwards RHT. Management of muscular dystrophy in adults. Br Med Bull 1989; 45: 802-18.
17. Kazdin AE. Research design in clinical psychology, fourth edition. Allyn & Bacon, 2003.
18. Ahlström G, Sjödén PO. Assessment of coping with muscular dystrophy: a methodological evaluation. J Adv Nurs 1994; 20: 314-23.
19. Ahlström G, Gunnarsson L-G. Disability and quality of life in individuals with muscular dystrophies. Scand J Rehabil Med 1996; 28: 147-57.
20. Katz S, Ford AB, Moskowitz RW, Jackson BA, Jaffe MW. Studies of illness in the aged: the index of ADL, a standardized measure of biological and psychosocial function. JAMA 1963; 185: 914-19.
21. Katz S, Akpom CA. A measure of primary sociobiological functions. Int J Health Serv 1976; 6: 493-508.
22. Sonn U. Longitudinal studies of dependence in daily activities among elderly persons: methodological development, use of assistive devices and relation to impairment and functional limiatations. Scand J Rehabil Med Suppl 1996; 28: 1-35.
23. Watson M, Greer S, Young J, Inayat Q, Burgess C, Robertson B. Development of a questionnaire measure of adjustment to cancer: the MAC scale. Psychol Med 1988; 18: 203-209.
24. Greer S, Moorey S, Watson M. Patient's adjustment to cancer: the Mental Adjustment to Cancer (MAC) scale vs clinical ratings. J Psychosom Res 1989; 33: 373-77.
25. Ahlström G, Sjödén PO. Coping with muscular dystrophy: manual for analysis and categorizing of coping from interview answers. Örebro College of Health Professions, 1993.
26. Ahlström G, Sjödén PO. Coping with illness-related problems and quality of life in adult individuals with muscular dystrophy. J Psychosom Res 1996; 41: 365-76.
27. Bergner M, Bobbitt RA, Kressel S, Pollard WE, Gilson BS, Morris JR. The Sickness Impact Profile: conceptual formulation and methodology for the development of a health status measure. Int J Health Serv 1976; 6: 393-415.
28. Sullivan M, Ahlmén M, Archenholtz B, Svensson G. Measuring health in rheumatic disorders by means of a Swedish version of the Sickness Impact Profile: results from a population study. Scand J Rheumatol 1986; 15: 193-200.
29. Zigmond AS, Snaith RP. The Hospital Anxiety and Depression Scale. Acta Psychiatr Scand 1983; 67: 361-70.
30. Bjelland I, Dahl AA, Haug TT, Neckelman D. The validity of the Hospital Anxiety and Depression Scale. An updated literature review. J Psychosom Res 2002; 52: 69-77.
31. Kaasa S, Mastekaasa A, Stokke I, Naess S. Validation of a quality of life questionnaire for use in clinical trials for treatment of patients with inoperable lung cancer. Eur J Cancer Clin Oncol 1988; 24: 691-701.
32. Kaasa S, Mastekaasa A, Naess S. Quality of lung cancer patients in a randomized clinical trial evaluated by a psychosocial well-being questionnaire. Acta Oncol 1988; 27: 335-42.
33. Freeman JA, Hobart JC, Thompson AJ. Outcome-based research in neurorehabilitation: the need for multidisciplinary team involvement. Disabil Rehabil 1996; 18: 106-10.
34. Ahlström G, Gunnarsson LG, Leissner P, Sjödén PO. Epidemiology of neuromuscular diseases, including the postpolio sequelae, in a Swedish county. Neuroepidemiology 1993; 12: 262-69.
35. Brorsson B, Hulter Åsberg K. Katz index of independence in ADL: reliability and validity in short-term care. Scand J Rehabil Med 1984; 16: 125-32.