The feasibility, reliability and validity of the Malay McGill quality of life questionnaire - Cardiff short form (MMQOL-CSF) in Malaysian advanced cancer population

Medical Journal of Malaysia

Volumn 60, Issue 1, 2005, Pages 28-40

  Lua, Pei Lin ^a   Salek, M S ^b   Finlay, I G ^b   Boay, A G I ^c   Rahimah, M S ^c  

^a UNIVERSITI MALAYSIA SABAH   (Malaysia)

^b CARDIFF UNIVERSITY   (United Kingdom)

^c Queen Elizabeth Hospital   (Malaysia)

Author keywords

Advanced cancer; Feasibility; Health related quality of life; MMQOL CSF; Reliability; Validity

Indexed keywords

ADULT; ADVANCED CANCER; AGED; ARTICLE; CANCER PATIENT; CONTROLLED STUDY; CRONBACH ALPHA COEFFICIENT; DEMOGRAPHY; FEASIBILITY STUDY; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALAY MCGILL QUALITY OF LIFE QUESTIONNAIRE CARDIFF SHORT FORM; MALE; QUALITATIVE VALIDITY; QUALITY OF LIFE; QUESTIONNAIRE; RELIABILITY; ADOLESCENT; MALAYSIA; MIDDLE AGED; NEOPLASM; REPRODUCIBILITY;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; FEASIBILITY STUDIES; FEMALE; HUMANS; MALAYSIA; MALE; MIDDLE AGED; NEOPLASMS; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS;

EID: 33644622959     PISSN: 03005283     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (53)

1. Berzon R, Hays RD, Shumaker SA. International use, application and performance of health-related quality of life instruments. Qual Life Res 1993; 2: 367-68.
2. Bowling A. Cancers. In: Bowling A (ed). Measuring Disease. Buckingham: Open University Press, 1995: 20-60.
3. Testa M, Simonson D. Assessment of quality of life outcomes. New Engl J Med 1996; 384(13): 835-40.
4. Cohen SR, Mount BM, Tomas JJN, Mount LF. Existential well-being is an important determinant of quality of life: Evidence from the McGill Quality of Life Questionnaire. Cancer 1996; 77: 576-86.
5. Cohen SR, Mount BM, MacDonald N. Defining quality of life. Eur J Cancer 1996; 32A(5): 753-54.
6. Clinch JJ, Dudgeon D, Schipper H. Quality of life assessment in palliative care. In: Doyle D, Hanks GWC, Macdonald N (eds). Oxford Textbook of Palliative Medicine. Oxford: Oxford University Press, 1998: 83-94.
7. Holland J, Kash KM, Passik S, Gronert MK, Sison A, Lederberg M, et al. A Brief Spiritual Beliefs Inventory for use in quality of life research in life-threatening illness. Psycho-Oncol 1998; 7: 460-69.
8. Hermann C. Spiritual needs of dying patients: A qualitative study. Oncol Nurs Forum 2001; 28(1): 67-72.
9. McCahill L, Ferrell BR, Virani R. Improving cancer care at the end of life. Lancet Oncol 2001; 2: 103-8.
10. Finlay IG, Dunlop R. Quality of life assessment in palliative care. Ann Oncol 1994; 5: 13-18.
11. Johnson T. Cultural considerations. In: Spilker B (ed). Quality of Life and Pharmacoeconomics in Clinical Trials. 2nd ed. Philadelphia: Lippincott-Raven, 1996: 511-15.
12. Skevington S. Advancing cross-cultural research on quality of life: Observations drawn from the WHOQOL development. Qual Life Res 2002; 11(2): 135-44.
13. Alonso J, Prieto L, Anto J. The Spanish version of the Nottingham Health Profile: A review of adaptation and instrument characteristics. Qual Life Res 1994; 3: 385-93.
14. Chwalow A, Lurie A, Bean K, Parent du Chatelet I, Venot A, Dusser D, et al. A French version of the Sickness Impact Profile (SIP): Stages in the cross-cultural validation of a generic quality of life scale. Fund Clin Pharmacol 1992; 6: 319-26.
15. Bonomi A, Cella D, Hahn E, Bjordal K, Sperner-Unterweger B, Gangeri L, et al. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Qual Life Res 1996; 5: 309-20.
16. Cohen SR, Mount BM, Strobel MG, Bui F. The McGill Quality of Life Questionnaire: A measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability. Palliat Med 1995; 9: 207-19.
17. Pratheepawanit N, Salek MS, Finlay IG. The applicability of quality-of-life assessment in palliative care: Comparing two individual quality-of-life measures. Palliat Med 1999; 13: 325-34.
18. Annells M, Koch T. The real stuff: Implications for nursing of assessing and measuring a terminally ill person's quality of life. J Clin Nurs 2001; 10: 806-12.
19. Stromgren A, Groenvold M, Pedersen L, Olsen A, Sjogren P. Symptomatology of cancer patients in palliative care: Content validation of self-assessment questionnaires against medical records. Eur J Cancer 2002; 38(6): 788-94.
20. Secchi G, Strepparava MG. The quality of life in cancer patients: A cognitive approach. Eur J Intern Med 2001; 12: 35-42.
21. Lo R, Woo J, Zhoc K, Li C, Yeo W, Johnson P, et al. Cross-cultural validation of the McGill Quality of Life Questionnaire in Hong Kong Chinese. Palliat Med 2001; 15(5): 387-97.
22. Lim C. Overview of cancer in Malaysia. Jpnese J Clin Oncol 2002; 32(Suppl: S37-42).
23. Suhatno. Palliative care in cervical cancer. Gan To Kagaku Ryoho 2000; 27(Suppl 2): 440-48.
24. Laudico A. Development of cancer pain relief and palliative care in the Phillipines. Ann Acad Med Spore 1994; 23(2): 292-95.
25. Goh C, Tan T, Schipper H. Cross-cultural validation of quality of life assessment tools: Methodologies and results of English, Chinese and Malay translation of the Functional Living Index for Cancer (FLIC) in Singapore. In: Proceedings of the American Society of Clinical Oncologists 1994. Winnipeg, Canada; 1994: 455.
26. Kobayashi K, Takeda F, Teramukai S, Gotoh I, Sakai H, Yoneda S, et al. A cross-validation of the European Organization for Research and Treatment of Cancer QLQ-C30 (EORTC QLQ-C30) for Japanese with lung cancer. Eur J Cancer 1998; 34(6): 810-15.
27. Bernhard J, Hurny CDT, Coates A, Gelber RD. Applying quality of life principles in international cancer clinical trials. In: Spilker B (ed). Quality of Life and Pharmacoeconomics in Clinical Trials. 2nd ed. Philadelphia: Lippincott-Raven, 1996: 693-705.
28. Guillemin F, Bombardier C, Beaton D. Cross-cultural adaptation of health-related quality of life measures: Literature review and proposed guidelines. J Clin Epidemiol 1993; 46(12): 1417-32.
29. Ware JJ, Sherbourne C. The MOS 36-Item Short Form Health Survey (SF-36)- conceptual framework and item selection. Med Care 1992; 30(6): 473-83.
30. Guyatt G, Bombardier C, Tugwell P. Measuring disease-specific quality of life in clinical trials. Can Med Assoc J 1986; 134: 889-95.
31. Sprangers MAG, te Velde A, Aaronson NK. The construction and testing of the EORTC colorectal cancer-specific quality of life questionnaire module (QLQ-CR38). Eur J Cancer 1999; 35(2): 238-47.
32. Schag CAC, Ganz PA, Heinrich RL. Cancer Rehabilitation Evaluation System - Short Form (CARES-SF): A cancer specific rehabilitation and quality of life instrument. Cancer 1991; 68: 1406-13.
33. Gandek B, Ware Jr J, Aaronson N, Apolone G, Bjorner J, Brazier J, et al. Cross-validation of item selection and scoring for the SF-12 Health Survey in nine countries: Results from the IQOLA Project. J Clin Epidemiol 1998; 51(11): 1171-78.
34. Bjordal K, de Graeff A, Fayers PM, Hammerlid E, van Pottelsberghe C, Curran D, et al. A 12 country field study of the EORTC QLQ-C30 (version 3.0) and the head and neck specific module (EORTC QLQ-H&N35) in head and neck patients. Eur J Cancer 2000; 36: 1796-1807.
35. Sharp LK, Knight SJ, Nadler R, Albers M, Moran E, Kuzel T, et al. Quality of life in low-income patients with metastatic prostate cancer: Divergent and convergent validity of three instruments. Qual Life Res 1999; 8: 461-70.
36. Stockler MR, Osoba D, Corey P, Goodwin P, Tannock IF. Convergent, discriminative, and predictive validity of the Prostate Cancer Specific Quality of Life Instrument (PROSQOLI): Assessment and comparison with analogous scales from the EORTC QLQ-C30 and a trial-specific module. J Clin Epidemiol 1999; 52(7): 653-66.
37. Min S, Kim K, Lee C, Jung Y, Suh S, Kim D. Development of the Korean versions of WHO Quality of Life scale and WHOQOL-BREF. Qual Life Res 2002; 11: 593-600.
38. Cella DF, Tulsky DS, Gray G, Sarafian B, Linn E, Bonomi A, et al. The Functional Assessment of Cancer Therapy Scale: Development and validation of the general measure. J Clin Oncol 1993; 11(3): 570-79.
39. Ganz PA, Schag CAC, Lee JJ, Sim MS. The CARES: A generic measure of health-related quality of life for patients with cancer. Qual Life Res 1992; 1: 19-29.
40. Ferrans CE. Development of a quality of life index for patients with cancer. Oncol Nurs Forum 1990; 17(3 Suppl): 15-21.
41. Nunnally J. Psychometric Theory. 2nd ed. New York: McGraw-Hill Book Company; 1978.
42. Sigurdardottir V, Bolund C, Brandberg Y, Sullivan M. The impact of generalized malignant melanoma on quality of life evaluated by the EORTC questionnaire technique. Qual Life Res 1993; 2: 193-203.
43. Thomson J. The place of spiritual well-being in hospice patients' overall quality of life. Hosp J 2000; 15(2): 13-27.
44. Kellehear A. Spirituality and palliative care: A model of needs. Palliat Med 2000; 14: 149-55.
45. Kaasa S, Hjermstad M, Jordhoy M, Wisloff F, Loge J. Compliance in quality of life data: A Norwegian experience. Stat Med 1998; 17: 623-32.
46. Bernhard J, Cella D, Coates A, Fallowfield L, Ganz P, Moinpour C, et al. Missing quality of life data in clinical trials: Serious problems and challenges. Stat Med 1998; 17: 517-32.
47. Fuh J-L, Wang S-J, Lu S-R, Juang K-D, Lee S-J. Psychometric evaluation of a Chinese (Taiwanese) version of the SF-36 health survey amongst middle-aged women from a rural community. Qual Life Res 2000; 9(6): 675-83.
48. Cohen SR, Mount BM, Bruera E, Provost M, Rowe J, Tong K. Validity of the McGill Quality of Life Questionnaire in the palliative care setting: A multi-centre Canadian study demonstrating the importance of the existential domain. Palliat Med 1997; 11: 3-20.
49. Goh C, Lee K, Tan T, Wang T, Tan C, Wong J, et al. Measuring quality of life in different cultures: translation of the Functional Living Index for Cancer (FLIC) into Chinese and Malay in Singapore. Ann Acad Med Spore 1996; 25(3): 323-34.
50. Deyo RA. Measuring functional outcomes in therapeutic trials for chronic disease. Controlled Clin Trials 1984; 5: 223-40.
51. Cella D, Llyod S, Wright B. Cross-cultural instrument equating: Current research and future directions. In: Spilker B (ed). Quality of Life and Pharmacoeconomics in Clinical Trials. 2nd ed. Philadelphia: Lippincott-Raven, 1996: 707-14.
52. Anderson R, McFarlane M, Naughton M, Shumaker S. Conceptual issues and considerations in cross-cultural validation of generic health-related quality of life instruments. In: Spilker B (ed). Quality of Life and Pharmacoeconomics in Clinical Trials. 2nd ed. Philadelphia: Lippincott-Raven, 1996: 605-12.
53. Bullinger M, Power M, Aaronson N, Cella D, Anderson R. Creating and evaluating cross-cultural instruments. In: Spilker B (ed). Quality of Life and Pharmacoeconomics in Clinical Trials. 2nd ed. Philadelphia: Lippincott-Raven, 1996: 659-67.