Facilitators and barriers to support group participation for family caregivers of adults with mental illness

Community Mental Health Journal

Volumn 40, Issue 2, 2004, Pages 151-166

  Biegel, David E ^a   Shafran, Robert D ^a   Johnsen, Jeffrey A ^b  

^a CASE WESTERN RESERVE UNIVERSITY   (United States)

^b Cuyahoga Co Comm Mental Hlth Bd   (United States)

Author keywords

Barriers; Facilitators; Family caregivers; Support groups

Indexed keywords

AFRICAN AMERICAN; ARTICLE; CAREGIVER; CAUCASIAN; COST BENEFIT ANALYSIS; FAMILY; HUMAN; HYPOTHESIS; LOWEST INCOME GROUP; MENTAL DISEASE; MULTIVARIATE ANALYSIS; SOCIOECONOMICS; STATISTICAL MODEL; SUPPORT GROUP;

ADULT; AGED; AGED, 80 AND OVER; CAREGIVERS; COMMUNICATION BARRIERS; CONSUMER PARTICIPATION; COST-BENEFIT ANALYSIS; CROSS-SECTIONAL STUDIES; FEMALE; HUMANS; MALE; MENTAL DISORDERS; MIDDLE AGED; QUESTIONNAIRES; SELF-HELP GROUPS; SOCIAL FACILITATION; SOCIOECONOMIC FACTORS;

EID: 3342893085     PISSN: 00103853     EISSN: None     Source Type: Journal    
DOI: 10.1023/B:COMH.0000022734.79135.de     Document Type: Article

References (46)

1. Andersen, R. M. (1995). Revisiting the behavioral model and access to medical care: Does it matter? Journal of Health and Social Behavior, 36(1), 1-10.
2. Andersen, R. M., & Newman, J. F. (1973). Societal and individual determinants of medical care utilization in the United States. Milbank Memorial Fund Quarterly, 51(1), 95-124.
3. Bass, D. M., & Noelker, L. S. (1987). The influence of family caregivers on elder's use of in-home services: An expanded conceptual framework. Journal of Health and Social Behavior, 28(2), 184-196.
4. Biegel, D. E., Milligan, E., Putnam, P., & Song, L. (1994). Predictors of burden among lower socioeconomic status caregivers of persons with chronic mental illness. Community Mental Health Journal, 30(5), 473-494.
5. Biegel, D. E., Shafran, R. D., Johnsen, J. A., & Friedman, S. (2001). Facilitators and Barriers to Support Group Participation. Final Report to the Office of Program Evaluation and Research, Ohio Department of Mental Health. Cleveland: Cuyahoga County Community Mental Health Research Institute, Mandel School of Applied Social Sciences, Case Western Reserve University.
6. Biegel, D. E., & Song, L. Y. (1995). Facilitators and barriers to caregiver support group participation. Journal of Case Management, 4(4), 164-171.
7. Biegel, D. E., Song, L. Y., & Chakravarthy, V. (1994). Predictors of caregiver burden among support group members of persons with chronic mental illness. In E. Kahana, D. E. Biegel, & M. Wykle (Eds.), Family caregiving across the lifespan. Newbury Park, CA: Sage.
8. Biegel, D. E., & Yamatani, H. (1987). Self-help groups for families of the mentally ill: Roles and benefits. International Journal of Family Psychiatry, 8(2), 151-173.
9. Bulger, M. W., Wandersman, A., & Goldman, C. R. (1993). Burdens and gratifications of caregiving: Appraisal of parental care of adults with schizophrenia. American Journal of Orthopsychiatry, 63(2), 255-265.
10. Brook, R. H., Ware, J. E., Jr., Davies-Avery, A., Stewart, A. L., Donald, C. A., Rogers, W. H., et al. (1979). Overview of adult health status measures fielded in Rand's Health Insurance Study. Medical Care, 17, 1-119.
11. Burks, V. K., Lund, D. A., & Hill, R. D. (1991). Factors associated with attendance at caregiver support group meetings. Activities, Adaptation and Aging, 15(3), 93-108.
12. Carver, C. S. (1997). You want to measure coping but your protocol's too long: Consider the Brief COPE. International Journal of Behavioral Medicine, 4(1), 92-100.
13. Chou, K. R., Liu, S. Y., Chu, H. (2002). The effects of support groups on caregivers of patients with schizophrenia. International Journal of Nursing Studies, 39(7), 713-722.
14. Citron, M., Solomon, P., & Draine, J. (1999). Self-help groups for families of persons with mental illness: Perceived benefits of helpfulness. Community Mental Health Journal, 35(1), 15-30.
15. Cook, J., Heller, T., & Pickett-Schenk, S. (1999). The effect of support group participation on caregiver burden among parents of adult offspring with severe mental illness. Family Relations, 48(4), 405-410.
16. Cook, J. A., & Knox, J. I. (1993). NAMI outreach strategies to African-American and Hispanic families: Results of a national telephone survey. Innovations and Research, 2(3), 25-32.
17. Cox, C. (1995). Comparing the experiences of Black and White caregivers of dementia patients. Social Work, 40(3), 343-349.
18. Dixon, L., Adams, C., & Lucksted, A. (2000). Update on family psychoeducation for schizophrenia. Schizophrenia Bulletin, 26(1), 5-20.
19. Goldman, C. R., Breen, R. J., Tichenor, M., et al. (1993). Providing respite for families of seriously mentally ill adults and training for mental health professionals: A collaborative model. Innovations & Research in Clinical Services, Community Support and Rehabilitation, 2(4), 19-25.
20. Goodman, C. C. (1991). Perceived social support for caregiving: Measuring the benefit of self-help/ support group participation. Journal of Gerontological Social Work, 16(3-4), 163-175.
21. Goodman, S. (1991). Patterns of participation in support groups for dementia caregivers. Clinical Gerontologist, 10(4), 23-34.
22. Greene, V. L., & Monahan, D. J. (1989). The effect of a support and education program on stress and burden among family caregivers to frail elderly persons. The Gerontologist, 29(4), 472-477.
23. Heller, T., & Factor, A. (1991). Permanency planning for adults with mental retardation living with family caregivers. American Journal on Mental Retardation, 96(2), 163-176.
24. Heller, T., Roccoforte, J. A., & Cook, J. A. (1997). Predictors of support group participation among families of persons with mental illness. Family Relations, 46(4), 437-442.
25. Henderson, J. N., Gutierrez-Mayka, M., Garcia, J., Boyd, S. (1993). A model for Alzheimer's disease support group development in African-American and Hispanic populations. The Gerontologist, 33(3), 409-414.
26. Hollingshead, A. B. (1975). Four-factor index of social status. Unpublished working paper. New Haven, CT: Yale University.
27. Kosloski, K., & Montgomery, (1993). Perceptions of respite services as predictors of utilization. Research on Aging, 15(4), 399-413.
28. Kramer, K. D., & Nash, K. B. (1994). The sickle cell mutual assistance movement. Special Issue: Psychosocial aspects of sickle cell disease: Past, present, and future directions of research. Journal of Health and Social Policy, 5(3-4), 203-214.
29. Lawton, M. P., Kleban, M. H., Moss, M., Rovine, M., & Glicksman, A. (1989). Measuring caregiving appraisal. Journals of Gerontology: Psychological Sciences, 44(3), P61-P71.
30. Lieberman, M. A., & Snowden, L. R. Problems in assessing prevalence and membership characteristics of self-help group participants, in T. J. Powell (Ed.), Understanding the self-help organization: Frameworks and findings. Thousand Oaks, Sage.
31. Mannion, E., Meisel, M., Solomon, P., & Draine, J. (1996). A comparative analysis of families with mentally ill adult relatives: Support group members versus non-members. Psychiatric Rehabilitation Journal, 20(1), 43-50.
32. Marsh, D. T., & Johnson, D. L. (1997). The family experience of mental illness: Implications for intervention. Professional Psychology: Research and Practice, 28(3), 229-237.
33. Molinari, V., Nelson, N., Shekelle, S., & Crothers, M. K. (1994). Family support groups of the Alzheimer's Association: An analysis of attendees and nonattendees. Special Issue: Research translation in gerontology: A behavioral and social perspective. Journal of Applied Gerontology, 13(1), 86-98.
34. Monahan, D. J. (1994). Caregiver support groups: Efficacy issues for educators. Special Issue: Caregiving: A classroom resource. Educational Gerontology, 20(7), 699-714.
35. Monahan, D. J., Greene, V. L., & Coleman, P. D. (1992). Caregiver support groups: Factors affecting use of services. Social Work, 37(3), 254-260.
36. Nash, K. B., & Kramer, K. D. (1993). Self-help for sickle cell disease in African American communities. Special Issue: Advances in understanding with self-help groups. Journal of Applied Behavioral Science, 29(2), 202-215.
37. Noelker, L. S., & Bass, D. M. (1994). Relationships between the frail elderly's informal and formal helpers. In E. Kahana, D. E. Biegel, & M. L. Wykle (Eds.), Family caregiving across the lifespan. Thousand Oaks, CA: Sage.
38. Norton, S., Wandersman, A., & Goldman, C. R. (1993). Perceived costs and benefits of membership in a self-help group: Comparisons of members and nonmembers of the Alliance for the Mentally Ill. Community Mental Health Journal, 29(2), 143-160.
39. Pickett-Schenk, S. A. (2002). Church-based support groups for African American families coping with mental illness: Outreach and outcomes. Psychiatric Rehabilitation Journal, 26(2), 173-180.
40. Radloff, L. S. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385-401.
41. Ramsey, P. W. (1992). Characteristics, processes, and effectiveness of community support groups: A review of the literature. Family and Community Health, 15(3), 38-48.
42. Saunders, J. C. (2003). Families living with severe mental illness: A literature review. Issues in Mental Health Nursing, 24, 175-198.
43. Segall, M., & Wykle, M. (1998). The Black Family's Experience with Dementia. Journal of Applied Social Sciences, 13(1), 170-191.
44. Simoni, J. M., & Perez, L. (1995). Latinos and mutual support groups: A case for considering culture. American Journal of Orthopsychiatry, 65(3), 440-445.
45. Song, L. Y., Biegel, D. E., & Milligan, S. E. (1997). Predictors of depressive symptomatology among lower social class caregivers of persons with chronic mental illness. Community Mental Health Journal, 33(4), 269-286.
46. U. S. Department of Housing and Human Development. (2000). Area median family incomes for Cuyahoga County, Ohio-1998. [Electronic data file: http://www.huduser.org/datasets/il/fmr98/ hud980h.txt]. Washington, DC: U. S. Department of Housing and Urban Development.