Why the difference? Advice on breast examination given to carers of women who have learning disability and to women who do not

Journal of Learning Disabilities

Volumn 8, Issue 2, 2004, Pages 175-189

  Gillings Taylor, Samantha ^a,b  

^a Suffolk Mental Hlth Partnerships NH   (United Kingdom)

^b NONE   (United Kingdom)

Author keywords

Breast examination; Cancer; Carers; Learning disability

Indexed keywords

ABUSE; ARTICLE; BREAST CANCER; BREAST EXAMINATION; CANCER SCREENING; CAREGIVER; FEMALE; HEALTH PROGRAM; HUMAN; INFORMED CONSENT; LEARNING DISORDER; MEDICAL ETHICS; NURSE PATIENT RELATIONSHIP; PRACTICE GUIDELINE; PRIORITY JOURNAL; RISK BENEFIT ANALYSIS;

EID: 3242736475     PISSN: 14690047     EISSN: None     Source Type: Journal    
DOI: 10.1177/1469004704042705     Document Type: Article

References (58)

1. ABBOTT, P. & SAPSFORD, R. (1987) Women and Social Class. King's Lynn: Biddles.
2. ALIABADI-WAHLE, S., MALKO EBERSDO, E., UCHOE, D., CRICK, J. & BEECH, T. (2000) 'Training in Clinical Breast Examination as Part of General Surgery Core Curriculum', Journal of Cancer Education 15 (1): 10-13.
3. AMERICAN COUNCIL ON SCIENCE AND HEALTH (2000) 'New Report Dispels Myths about Breast Cancer and Points out the Real Risk Factors'. Online at http://www.acsh.org. Accessed 20 October 2002.
4. APHRODITE WOMEN'S HEALTH (2002) 'For Breast Self-Examination, Once a Month is Enough'. Online at http://www.aphroditewomenshealth.com. Accessed 20 October 2002.
5. AYLOTT, J. (1995) 'Identifying People with Learning Disabilities who have been Sexually Abused', British Journal of Nursing 4 (19).
6. BETTER NUTRITION (2001) 'Is Breast Self-Examination Harmful?' Online at http://www.findarticles.com. Accessed 2 October 2002.
7. BREAST CANCER ORGANIZATION (2001) 'Myths about Breast Cancer'. Online at http://www.breastcancer.org. Accessed 20 October 2002.
8. BURT RUZEK, S., OLSEN, V. & CLARKE, A. (1997) Women's Health Complexities and Differences. Michigan: Ohio State University Press.
9. CANCER RESEARCH CAMPAIGN (2001) Be Breast Aware. London: Department of Health.
10. CANCER SCREENING PROGRAMME (2000) Good Practice in Breast and Cervical Screening for Women with Learning Difficulties. Sheffield: NHSBSP/CSP.
11. CARLISLE, D. (1998) 'The Big Issue', Nursing Times 94 (14): 26-31.
12. CLARKE, V. & SAVAGE, S. (1999) 'Breast Self-Examination Training: A Brief Review', Cancer Nursing 22 (4): 320-6.
13. COOK, R. (2000) 'Promoting Women's Health', Nursing Standard 14 (21).
14. COWIE, M. & FLETCHER, J. (1998) 'Breast Awareness Project for Women with a Learning Disability', British Journal of Nursing 7 (13): 775-8.
15. CRAFT, A. & CRAFT, M. (eds) (1983) Sex Education and Counselling for Mentally Handicapped People. London: Costello.
16. DEPARTMENT OF HEALTH (1995) Health of the Nation: A Strategy for People with Learning Disabilities. London: Department of Health.
17. DEPARTMENT OF HEALTH (1998a) Clinical Examination of the Breast. London: Department of Health.
18. DEPARTMENT OF HEALTH (1998b) A First Class Service: Quality in the New NHS. Leeds: Department of Health.
19. DEPARTMENT OF HEALTH (1999) Making Decisions: The Government's Proposals for Making Decisions on Behalf of Mentally Incapacitated Adults. London: Stationery Office.
20. DEPARTMENT OF HEALTH (2000) The NHS Cancer Plan: A Plan for Investment, A Plan for Reform. London: Department of Health.
21. DEPARTMENT OF HEALTH (2001) Valuing People: A New Strategy for Learning Disabilities for the 21st Century. London: Stationery Office.
22. DISCLOSURE SERVICE (2002) 'Disclosure Document'. Online at http://www.disclosure.gov.uk. Accessed 19 April 2002.
23. FACIONE, N. (1999) 'Breast Cancer Screening in Relation to Access to Health Services', Oncology Nursing Forum 26 (4): 689-96.
24. FENWICK, A. (1994) 'Sexual Abuse in Adults with Learning Disabilities', British Journal of Learning Disabilities 22: 53-5.
25. FERRI, B. A. & GREGG, N. (1998) 'Women with Disabilities: Missing Voices', Women's Studies International Forum 21 (4): 429-39.
26. FLEGG, K. & ROWLING, Y. (2000) 'Clinical Breast Examination', Australian Family Physician 29 (4): 343-6.
27. FORREST REPORT (1986) Breast Cancer Screening. Report of Working Group chaired by Professor Sir Patrick Forrest. London: Department of Health.
28. GENERAL MEDICAL COUNCIL (1999) Seeking Patients' Consent: The Ethical Considerations. London: GMC.
29. GEORGE, S. (2000) 'Barriers to Breast Cancer Screening: An Integrative Review', Health Care for Women International 21: 53-65.
30. GROSS, R. (2000) 'Breast Cancer Risk Factors, Screening and Prevention', Seminars in Oncology Nursing 16 (3): 176-84.
31. HANN, A. (1996) The Politics of Breast Cancer Screening. London: British Library.
32. HEALTH PROMOTION (2001) Breast Screening: The Facts. London: Department of Health.
33. HMG WORLDWIDE (2002) 'Self-Examination Does Not Reduce Breast Cancer Deaths, Says Expert'. Online at http://www.healthypages.net.
34. HOGG, J., MOSS, S. & COOKE, D. (1988) Ageing and Mental Handicap. London: Croom Helm.
35. HOLMBERG, L., EKBOM, A., CALLE, E., MOKDAD, A. & BYERS, T. (1997) 'Breast Cancer Mortality in Relation to Self Reported Use of Breast Self Examination: A Cohort Study of 450,000 Women', Breast Cancer Research and Treatment 43: 137-40.
36. IMAGINIS (2002) 'Special Report: Breast Cancer Myths, Misconceptions and Facts.' Online at http://imaginis.com. Accessed 20 October 2002.
37. JACKSON, N. & JACKSON, E. (1998) 'Choice Making for People with Learning Disabilities', Learning Disability Practice: Cot 1 (3).
38. JANCAR, J. (1990) 'Cancer and Mental Handicap: A Further Study 1976-1985', British Journal of Psychiatry 156: 531-3.
39. LESLIE, N. & ROCHE, B. (1997) 'The Effectiveness of the Breast Self-Examination Facilitation Shield', Oncology Nursing Forum 24 (10): 1759-65.
40. LIUTKUS, J. F. & MONTELLA, K. R. (1994) 'History of Women's Health Care', Rhode Island Medicine 77: 403-5.
41. MAGNUSSON, C., BARON, J., PERSSON, I., WOLK, A., BERGSTROM, R., TRICHOPOULOS, D. & ADAMI, H. O. (1998) 'Body Size in Different Periods of Life and Breast Cancer Risk in Post-Menopausal Women', International Journal of Cancer 76 (1): 29-34.
42. MCCARTHY, M. (1998) 'Whose Body Is It Anyway? Pressure and Control for Women with Learning Disabilities', Disability and Society 13 (4): 557-74.
43. MCCLIMENS, A. (1998) 'Choose Life! Whose Life?', Nursing Times 94 (11): 34-5.
44. NHS BREAST SCREENING PROGRAMME (1998) Consent to Breast Screening. Sheffield: NHSBSR.
45. NHS EXECUTIVE (1998) Signposts for Success in Commissioning and Providing Health Services for People with Learning Disabilities. London: HMSO.
46. NHS EXECUTIVE (1999) Once a Day. Wetherby: Department of Health.
47. NURSING AND MIDWIFERY COUNCIL (2002) Code of Professional Conduct. London: NMC.
48. O'BRIEN, J. & LYLE O'BRIEN, C. (2000) A Little Book about Person Centred Planning. Canada: Inclusion Press.
49. OFFICE OF THE COMMUNITY ADVOCATE (1999) Online at http://www.oca.@ct.gov.au. Accessed 29 April 2002.
50. POLIT, D. F. & HUNGLER, B. P. (1997) Essentials of Nursing Research, Methods, Appraisal and Utilitation, 2nd edn. Philadelphia, PA: Lippincott.
51. RIMMER, J. H., BRADDOCK, D. & FUJIURA, G. (1998) 'Prevalence of Obesity in Adults with Mental Retardation: Implications for Health Promotion and Disease Prevention', Mental Retardation 31 (2): 105-10.
52. ROYAL COLLEGE OF NURSING (1999) Developing Roles: Nurses Working in Breast Care. London: RCN.
53. STERNBERGER, C. (1994) 'Breast Self Examination: How Nurses Can Influence Performance', Medical Surgical Nursing 3 (5): 367-71.
54. TONG, R. (1993) Feminist Thought: A Comprehensive Introduction. Kent: British Library.
55. TURK, V. & BROWN, H. (1992) 'Sexual Abuse and Adults with Learning Disabilities', Mental Handicap 20: 56-8.
56. UNITED KINGDOM CENTRAL COUNCIL (1998) Guidelines for Mental Health and Learning Disabilities Nursing. London: HMSO.
57. WAGLE, A., KOMONTA, N. & LU, Z. J. (1997) 'Social Support and Breast Self-Examination', Cancer Nursing 20 (1): 42-8.
58. WALSH, P. W., HELLER, T., SCHUPF, N. & SCHROJENSTEIN LANTMAN-DE VALK, H. M. J. VAN (2000) Healthy Ageing. Adults with Intellectual Disabilities: Women's Health and Related Issues. Geneva: World Health Organization.