Psychometric assessment of the Multidimensional Quality of Life Questionnaire for Persons with HIV/AIDS (MQOL-HIV) in a sample of HIV-infected women

Quality of Life Research

Volumn 13, Issue 5, 2004, Pages 947-957

  Remple, Valencia P ^a   Hilton, B Ann ^b   Ratner, Pamela A ^b   Burdge, David R ^c  

^a BRITISH COLUMBIA CENTRE FOR DISEASE CONTROL   (Canada)

^b UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^c Women's Health Centre of British Columbia   (Canada)

Author keywords

AIDS; HIV; Psychometrics; Quality of life; Women

Indexed keywords

ACQUIRED IMMUNE DEFICIENCY SYNDROME; ADULT; ARTICLE; FEMALE; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; MEASUREMENT; PRIORITY JOURNAL; PSYCHOMETRY; RELIABILITY; SAMPLE; VALIDATION PROCESS; CANADA; COMPARATIVE STUDY; INSTRUMENTATION; MIDDLE AGED; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; QUESTIONNAIRE; SICKNESS IMPACT PROFILE; VALIDATION STUDY; WOMEN'S HEALTH;

ANTI HUMAN IMMUNODEFICIENCY VIRUS AGENT;

ADULT; ANTI-HIV AGENTS; BRITISH COLUMBIA; FEMALE; HIV INFECTIONS; HUMANS; MIDDLE AGED; PSYCHOMETRICS; QUALITY OF LIFE; QUESTIONNAIRES; SICKNESS IMPACT PROFILE; WOMEN'S HEALTH;

EID: 3242714252     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1023/B:QURE.0000025584.77779.e1     Document Type: Article

References (53)

1. Leplege A, Rude N, Ecosse E, et al. Measuring quality of life from the point of view of HIV-positive patients: The HIV-QL31. Qual Life Res 1997; 6: 585-594.
2. Cunningham WE, Shapiro MF, Hays RD, et al. Constitutional symptoms and health-related quality of life in patients with symptomatic HIV disease. Am J Med 1998; 104: 129-136.
3. Franchi D, Wenzel RP. Measuring health-related quality of life among patients infected with human immunodeficiency virus. Clin Infect Dis 1998; 26: 20-26.
4. Blanch J, Rousaud A, Martinez E, et al. Impact of lipodystrophy on the quality of life of HIV-1-infected patients. J Acq Immun Def Synd 2002; 31: 404-407.
5. Saunders DS, Burgoyne RW. Evaluating health-related wellbeing outcomes among outpatient adults with human immunodeficiency virus infection in the HAART era. Int J STD AIDS 2002; 13: 683-690.
6. Aversa S, Kimberlin C, Segal R. The medication attribution scale: Perceived effects of antiretrovirals and quality of life. Qual Life Res 1998; 7: 205-214.
7. UNAIDS. AIDS epidemic update. December 2002.
8. van Servellen G, Sarna L, Jablonski KJ. Women with HIV: Living with symptoms. West J Nurs Res 1998; 20: 448-464.
9. Brazier JE, Harper R, Jones NM, et al. Validating the SF-36 Health Survey Questionnaire: New outcome measure for primary care. BMJ 1992; 305: 160-164.
10. Dibble SL, Padilla GV, Dodd MJ, Miaskowski C. Gender differences in the dimensions of quality of life. Oncol Nurs Forum 1998; 25: 577-583.
11. Hjermstad MJ, Fayers PM, Bjordal K, Kaasa S. Using reference data on quality of life - the importance of adjusting for age and gender, exemplified by the EORTC QLQ-C30 (+3). Eur J Cancer 1998; 34: 1381-1389.
12. Jenkinson C, Coulter A, Wright L. Short Form 36 (SF36) Health Survey Questionnaire: Normative data for adults of working age. BMJ 1993; 306: 1437-1440.
13. Kinney MR, Burfitt SN, Stullenbarger E, et al. Quality of life in cardiac patient research: A meta-analysis. Nurs Res 1996; 45: 173-180.
14. Riedinger MS, Dracup KA, Brecht ML, et al. Quality of life in patients with heart failure: Do gender differences exist? Heart Lung 2001; 30: 105-116.
15. Cederfjall C, Langius-Eklof A, Lidman K, Wredling R. Gender differences in perceived health-related quality of life among patients with HIV infection. AIDS Patient Care STDS 2001; 15: 31-39.
16. Sarna L, van Servellen G, Padilla G, Brecht ML. Quality of life in women with symptomatic HIV/AIDS. J Adv Nurs 1999; 30: 597-605.
17. Sowell RL, Seals BF, Moneyham L, et al. Quality of life in HIV-infected women in the south-eastern United States. AIDS Care 1997; 9: 501-512.
18. de Boer JB, van Dam FS, Sprangers MA. Health-related quality-of-life evaluation in HIV-infected patients. A review of the literature. Pharmacoeconomics 1995; 8: 291-304.
19. Smith KW, Avis NE, Mayer KH, Swislow L. Use of the MQOL-HIV with asymptomatic HIV-positive patients. Qual Life Res 1997; 6: 555-560.
20. Badia X, Podzamczer D, Garcia M, et al. A randomized study comparing instruments for measuring health-related quality of life in HIV-infected patients. Spanish MOS-HIV and MQOL-HIV Validation Group. Medical Outcomes Study HIV Health Survey. AIDS 1999; 13: 1727-1735.
21. Badia X, Podzamczer D, Casado A, et al. Evaluating changes in health status in HIV-infected patients: Medical Outcomes Study-HIV and Multidimensional Quality of Life-HIV quality of life questionnaires. Spanish MOS-HIV and MQOL-HIV Validation Group. AIDS 2000; 14: 1439-1447.
22. Burdge DR, Forbes J. The Oak Tree Centre: Initiatives for HIV-infected women, children, youth and families. Leadersh Health Serv 1994; 3: 9-13.
23. Holzemer WL, Spicer J, Skodol WH, et al. Validation of the quality of life scale: Living with HIV. J Adv Nurs 1998; 28: 622-630.
24. Lynn MR. Determination and quantification of content validity. Nurs Res 1986; 35: 382-385.
25. Wu AW, Rubin HR, Mathews WC, et al. A health status questionnaire using 30 items from the Medical Outcomes Study. Preliminary validation in persons with early HIV infection. Med Care 1991; 29: 786-798.
26. Wu AW, Revicki DA, Jacobson D, Malitz FE. Evidence for reliability, validity and usefulness of the Medical Outcomes Study HIV Health Survey (MOS-HIV). Qual Life Res 1997; 6: 481-493.
27. Multidimensional Quality of Life Questionnaire for Persons with HIV/AIDS (MQOL-HIV) Administration and Scoring Manual. Watertown, MA: New England Research Institute (NERI), 1997.
28. McDonnell KA, Gielen AC, Wu AW, et al. Measuring health related quality of life among women living with HIV. Qual Life Res 2000; 9: 931-940.
29. Revicki DA, Wu A, Brown R. Change in clinical status, health status and health utility outcomes in HIV-infected patients. Med Care 1995; 33: AS173-AS182.
30. Streiner DL, Norman GR. Health Measurement Scales: A Practical Guide to Their Development and Use (2nd ed), New York: Oxford University Press, 1995.
31. Metcalfe KA, Langstaff JE, Evans SJ, et al. Meeting the needs of women living with HIV. Public Health Nurs 1998; 15: 30-34.
32. Nussbaum M, Sen A. The Qualify of Life. Oxford; Clarendon, 1993.
33. Semple SJ, Patterson TL, Temoshok LR, et al. Identification of psychobiological stressors among HIV-positive women. HIV Neurobehavioral Research Center (HNRC) Group. Women Health 1993; 20: 15-36.
34. Songwathana P. Women and AIDS caregiving: Women's work? Health Care Women Int 2001; 22: 263-279.
35. Bunting SM. Sustaining the relationship: Women's caregiving in the context of HIV disease. Health Care Women Int 2001; 22: 131-148.
36. Ferrans CE. Development of a conceptual model of quality of life. Sch Inq Nurs Pract 1996; 10: 293-304.
37. King CR. Overview of quality of life and controversial issues. In: King CR, Hinds PS (eds), Quality of Life From Nursing and Patient Perspectives - Theory, Research, Practice. Toronto: Jones and Bartlett, 1998: 23-34.
38. Schipper H, Clinch J, Powell V. Definitions and conceptual issues. In: Spilker B (ed), Quality of Life Assessments in Clinical Trials. New York: Raven Press, 1990: 11-24.
39. Brady MJ, Peterman AH, Fitchett G, et al. A case for including spirituality in quality of life measurement in oncology. Psychooncology 1999; 8: 417-428.
40. Gioiella ME, Berkman B, Robinson M. Spirituality and quality of life in gynecologic oncology patients. Cancer Pract 1998; 6: 333-338.
41. Tate H, George R. The effect of weight loss on body image in HIV-positive gay men. AIDS Care 2001; 13: 163-169.
42. Wagner GJ, Rabkin JG. Development of the impact of weight loss scale (IWLS): A psychometric study in a sample of men with HIV/AIDS. AIDS Care 1999; 11: 453-457.
43. Berger DS. New facial filling treatment for lipodystrophy. Positive Awareness 2001; 12: 17-20.
44. Berger BE, Ferrans CE, Lashley FR. Measuring stigma in people with HIV: Psychometric assessment of the HIV stigma scale. Res Nurs Health 2001; 24: 518-529.
45. Collins E, Wagner C, Walmsley S. Psychosocial impact of the lipodystrophy syndrome in HIV infection. AIDS Reader 2000; 10: 546-550.
46. Gaskins S, Brown K. Psychosocial response among individuals with human immunodeficiency virus infection. Appl Nurs Res 1992; 4: 111-121.
47. Sowell RL, Lowenstein A, Moneyham L, et al. Resources, stigma, and patterns of disclosure in rural women with HIV infections. Public Health Nurs 1991; 14: 302-312.
48. Moneyham L, Seals B, Demi A, et al. Experiences of disclosure in women infected with HIV. Health-care Women Int 1996; 17: 209-221.
49. Lichtenstein B, Laska MK, Clair JM. Chronic sorrow in the HIV-positive patient: Issues of race, gender, and social support. AIDS Patient Care STDS 2002; 16: 27-38.
50. Gielin AC, Fogarty L, O'Campo P, et al. Women living with HIV: Disclosure, violence, and social support. J Urban Health 2000; 77: 480-491.
51. Gielen AC, O'Campo P, Faden RR, Eke A. Women's disclosure of HIV status: Experiences of mistreatment and violence in an urban setting. Women Health 1997; 25: 19-31.
52. Nieuwkerk PT, Gisolf EH, Colebunders R, et al. Quality of life in asymptomatic and symptomatic HIV infected patients in a trial of ritonavir/saquinavir therapy. The Prometheus Study Group. AIDS 2000; 14: 181-187.
53. Tsasis P. Health-related quality-of-life measurements in HIV/AIDS care. AIDS Patient Care STDS 2000; 14: 427-438.