Health care system factors affecting end-of-life care

Journal of Palliative Medicine

Volumn 8, Issue SUPPL. 1, 2005, Pages

  Morrison, R Sean ^a,b  

^a MOUNT SINAI SCHOOL OF MEDICINE   (United States)

^b Education and Clinical Center   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

CONFERENCE PAPER; COST CONTROL; EVALUATION; EVIDENCE BASED MEDICINE; EXPERIMENTAL DESIGN; FAMILY SERVICE; HEALTH CARE NEED; HEALTH CARE SYSTEM; HOSPITAL COST; HUMAN; NEEDS ASSESSMENT; OUTCOMES RESEARCH; PAIN; PALLIATIVE THERAPY; PUBLIC HEALTH SERVICE; QUALITY OF LIFE; RELIABILITY; SAMPLE SIZE; SYMPTOM; TERMINAL CARE; TERMINALLY ILL PATIENT; UNITED STATES; VALIDITY;

EID: 32044465784     PISSN: 10966218     EISSN: None     Source Type: Journal    
DOI: 10.1089/jpm.2005.8.s-79     Document Type: Conference Paper

References (59)

1. Flanigan J: Radical Surgery Is Needed on the Way America Finances Health Care. Los Angeles Times. November 10, 2002. Available at: http://www.latimes. com/la-fi-flan10nov10001452.column. Accessed November 10, 2002.
2. Hobbs F, Damon B: Sixty-five plus in the U.S. Curr Pop Rep Series Washington, DC: U.S. Census Bureau, 1996.
3. Field MJ, Cassel CK (eds): Approaching Death: Improving Care at the End of Life. Washington, DC: National Academy Press; 1997.
4. A controlled trial to improve care for seriously ill hospitalized patients: The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT). The SUPPORT Principal Investigators. JAMA 1995;274:1591-1598.
5. Ahronheim JC, Morrison RS, Baskin SA, Morris J, Meier DE: Treatment of the dying in the acute care hospital. Advanced dementia and metastatic cancer. Arch Intern Med 1996;156:2094-2100.
6. Morrison RS, Siu AL: Survival in end-stage dementia following acute illness. JAMA 2000;284:47-52.
7. Cleeland CS, Gonin R, Baez L, Loehrer P, Pandya KJ: Pain and treatment of pain in minority patients with cancer. The Eastern Cooperative Oncology Group Minority Outpatient Pain Study. Ann Intern Med 1997;127:813-816.
8. Cleeland CS, Gonin R, Hatfield AK, et al: Pain and its treatment in outpatients with metastatic cancer [see comments]. Comment in: NEJM 1994;331:199; discussion 201. Comment in: NEJM 1994;331:200; discussion 201. Comment in: NEJM 1994 1;331:1528. NEJM 1994;330:592-596.
9. Bernabei R, Gambassi G, Lapane K, et al: Management of pain in elderly patients with cancer. SAGE Study Group. Systematic Assessment of Geriatric Drug Use via Epidemiology [see comments] [published erratum appears in JAMA 1999 13;281:136]. JAMA 1998;279:1877-1882.
10. Breitbart W, Rosenfeld BD, Passik SD, McDonald MV, Thaler H, Portenoy RK: The undertreatment of pain in ambulatory AIDS patients. Pain 1996;65:243-249.
11. Wolfe J, Grier HE, Klar N, et al: Symptoms and suffering at the end of life in children with cancer. NEJM 2000;342:326-333.
12. Levine C: The loneliness of the long term caregiver. NEJM 1999;340:1587-1590.
13. Emanuel EJ, Fairclough DL, Slutsman J, Emanuel LL: Understanding economic and other burdens of terminal illness: the experience of patients and their caregivers. Ann Intern Med 2000;132:451-459.
14. Emanuel EJ, Fairclough DL, Slutsman J, Alpert H, Baldwin D, Emanuel LL: Assistance from family members, friends, paid care givers, and volunteers in the care of terminally ill patients. NEJM 1999;341:956-963.
15. Covinsky K, Goldman L, Cook E, et al: The impact of serious illness on patients' families. JAMA 1994;272:1839-1844.
16. Schulz R, Beach S: Caregiving as a risk factor for mortality: The Caregiver Health Effects Study. JAMA 1999;282:2215-2219.
17. Lunney JR, Lynn J, Foley DJ, Lipson S, Guralnik JM: Patterns of functional decline at the end of life. JAMA 2003;289:2387-2392.
18. Lynn J: Serving patients who may die soon, and their families: The role of hospice and other services. JAMA 2001;285:925-932.
19. Knaus WA, Harrell FE Jr, Lynn J, et al: The SUPPORT prognostic model. Objective estimates of survival for seriously ill hospitalized adults. Study to understand prognoses and preferences for outcomes and risks of treatments. Ann Intern Med 1995;122:191-203.
20. Arno P, Levine C, Memmott M: The economic value of informal caregiving. Health Affairs 1999;18:182-188.
21. Christakis NA: Timing of referral of terminally ill patients to an outpatient hospice. J Gen Intern Med 1994;9:314-320.
22. Christakis NA, Escarce JJ: Survival of Medicare patients after enrollment in hospice programs [see comments]. NEJM 1996;335:172-178.
23. Center for the Evaluative Clinical Sciences: Dartmouth Atlas of Health Care. Available at: www.dartmouthatlas.org/99US/toc6.php. Accessed December 8, 2004.
24. National Consensus Project for Quality Palliative Care. Clinical Practice Guidelines for Quality Palliative Care. Brooklyn, NY, May, 2004.
25. Campbell ML, Frank RR: Experience with an end-of-life practice at a university hospital. Crit Care Med 1997;25:197-202.
26. Jordhoy MS, Payers P, Saltnes T, Ahlner-Elmqvist M, Jannert M, Kaasa S: A palliative-care intervention and death at home: A cluster randomised trial. Lancet 2000;356:888-893.
27. Higginson I, Finlay I, Goodwin D, Hood K, al e: Is there evidence that palliative care teams alter end-of-life experiences of patients and their caregivers? J Pain Symptom Manage 2003;25:150-168.
28. Smith TJ, Coyne P, Cassel B, Penberthy L, Hopson A, Hager MA: A high-volume specialist palliative care unit and team may reduce in-hospital end-of-life care costs. J Palliat Med 2003;6:699-705.
29. Greer DS, Mor V, Morris JN, Sherwood S, Kidder D, Birnbaum H: An alternative in terminal care: results of the National Hospice Study. J Chronic Dis 1986;39:9-26.
30. Kane R, Wales J, Bernstein L, Leibowitz A, Kaplan S: A randomised controlled trial of hospice care. Lancet 1984;1:890-894.
31. Christakis NA, Iwashyna TJ: The health impact of health care on families: A matched cohort study of hospice use by decedents and mortality outcomes in surviving, widowed spouses. Soc Sci Med 2003;57:465-475.
32. Teno JM, Clarridge BR, Casey V, et al: Family perspectives on end-of-life care at the last place of care. JAMA 2004;291:88-93.
33. Morrison RS, Meier DE: Clinical practice. Palliative care. NEJM 2004;350:2582-2590.
34. Miller SC, Mor V, Teno J: Hospice enrollment and pain assessment and management in nursing homes. J Pain Symptom Manage 2003;26:791-799.
35. Miller SC, Intrator O, Gozalo P, Roy J, Barber J, Mor V: Government expenditures at the end of life for short- and long-stay nursing home residents: Differences by hospice enrollment status. J Am Geriatr Soc 2004;52:1284-1292.
36. Goodwin DM, Higginson IJ, Edwards AG, et al: An evaluation of systematic reviews of palliative care services. J Palliat Care 2002;18:77-83.
37. Finlay IG, Higginson IJ, Goodwin DM, et al: Palliative care in hospital, hospice, at home: results from a systematic review. Ann Oncol 2002;13(Suppl 4):257-264.
38. Higginson IJ, Finlay I, Goodwin DM, et al: Do hospital-based palliative teams improve care for patients or families at the end of life? J Pain Symptom Manage 2002;23:96-106.
39. Ringdal GI, Jordhoy MS, Kaasa S: Family satisfaction with end-of-life care for cancer patients in a cluster randomized trial. J Pain Symptom Manage 2002;24:53-63.
40. Jordhoy MS, Payers P, Loge JH, Ahlner-Elmqvist M, Kaasa S: Quality of life in palliative cancer care: results from a cluster randomized trial. J Clin Oncol 2001;19:3884-3894.
41. Zimmer JG, Groth-Junker A, McCusker JA: A randomized controlled study of a home health care team. Am J Public Health 1985;75:134-141.
42. McCorkle RG, Benoliel JQ, Donaldson G, Georgiadou F, Moinpour C, Goodeil B: A randomized clinical trial of home nursing care for lung cancer patients. Cancer 1989;64:1375-1382.
43. Hughes SL, Cummings J, Weaver F, Manheim L, Braun B, Conrad K: A randomized trial of the cost effectiveness of VA hospital-based home care for the terminally ill. Health Serv Res 1992;26:801-817.
44. Stuck AE, Siu AL, Wieland GD, Adams J, Rubenstein LZ: Comprehensive geriatric assessment: a meta-analysis of controlled trials. Lancet 1993;342:1032-1036.
45. Cohen HJ, Feussner JR, Weinberger M, et al: A controlled trial of inpatient and outpatient geriatric evaluation and management. NEJM 2002;346:905-912.
46. Landefeld CS, Palmer RM, Kresevic DM, Fortinsky RH, Kowal J: A randomized trial of care in a hospital medical unit especially designed to improve the functional outcomes of acutely ill older patients. NEJM 1995;332:1338-1344.
47. Inouye SK, Bogardus ST Jr, Charpentier PA, et al: A multicomponent intervention to prevent delirium in hospitalized older patients [see comments]. NEJM 1999;340:669-676.
48. Riegel B, Carlson B, Kopp Z, LePetri B, Glaser D, Unger A: Effect of a standardized nurse case-management telephone intervention on resource use in patients with chronic heart failure. Arch Intern Med 2002;162:705-712.
49. West JA, Miller NH, Parker KM, et al: A comprehensive management system for heart failure improves clinical outcomes and reduces medical resource utilization. Am J Cardiol 1997;79:58-63.
50. Wasson J, Gaudette C, Whaley F, Sauvigne A, Baribeau P, Welch HG: Telephone care as a substitute for routine clinic follow-up. JAMA 1992;267:1788-1793.
51. Infante-Rivard C, Krieger M, Petitclerc M, Baumgarten M: A telephone support service to reduce medical care use among the elderly. J Am Geriatr Soc 1988;36:306-311.
52. Elkan R, Kendrick D, Dewey M, et al: Effectiveness of home based support for older people: systematic review and meta-analysis. BMJ 2001;323:719-725.
53. Hughes SL, Ulasevich A, Weaver FM, et al: Impact of home care on hospital days: A meta analysis. Health Serv Res 1997;32:415-432.
54. Siu AL: The effect of home care on hospital days: what is the take home message? Health Serv Res 1997;32:385-389.
55. Mukamel DB, Bajorska A, Temkin-Greener H: Health care services utilization at the end of life in a managed care program integrating acute and long-term care. Med Care 2002;40:1136-1148.
56. Eng C, Pedulla J, Eleazer GP, McCann R, Fox N: Program of All-inclusive Care for the Elderly (PACE): an innovative model of integrated geriatric care and financing. J Am Geriatr Soc 1997;45:223-232.
57. Wieland D, Lamb VL, Sutton SR, et al: Hospitalization in the Program of All-inclusive Care for the Elderly (PACE): Rates, concomitants, and predictors. J Am Geriatr Soc 2000;48:1373-1380.
58. Hughes SL, Weaver FM, Giobbie-Hurder A, et al: Effectiveness of team-managed home-based primary care: a randomized multicenter trial. JAMA 2000;284:2877-2885.
59. Elsayem A, Swint K, Fisch MJ, et al: Palliative care inpatient service in a comprehensive cancer center: clinical and financial outcomes. J Clin Oncol 2004;22:2008-2014.