Parents' experiences of sharing neonatal information and decisions: Consent, cost and risk

Social Science and Medicine

Volumn 62, Issue 6, 2006, Pages 1319-1329

  Alderson, Priscilla ^a   Hawthorne, Joanna ^b   Killen, Margaret ^a  

^a UNIVERSITY OF LONDON   (United Kingdom)

^b UNIVERSITY OF CAMBRIDGE   (United Kingdom)

Author keywords

Babies; England; Informed consent; Intensive care ethics; Neonatal decision making

Indexed keywords

HEALTH CARE; INFORMATION; MATERNAL CARE; WOMENS HEALTH;

ARTICLE; DECISION MAKING; ETHNOGRAPHIC RESEARCH; EXPERIENCE; HOSPITAL COST; HUMAN; HUMAN EXPERIMENT; INFORMED CONSENT; INTERVIEW; MEDICAL STAFF; MEDICOLEGAL ASPECT; NEUROLOGIC DISEASE; NEWBORN CARE; NEWBORN INTENSIVE CARE; PARENTAL ATTITUDE; RISK FACTOR;

ANTHROPOLOGY, CULTURAL; ATTITUDE OF HEALTH PERSONNEL; CONSUMER PARTICIPATION; DECISION MAKING; HUMANS; INFANT, NEWBORN; INTENSIVE CARE UNITS, NEONATAL; NERVOUS SYSTEM MALFORMATIONS; PARENTAL CONSENT; PARENTS; QUALITATIVE RESEARCH;

ENGLAND; EURASIA; EUROPE; UNITED KINGDOM; WESTERN EUROPE;

EID: 32044452708     PISSN: 02779536     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.socscimed.2005.07.035     Document Type: Article

References (25)

1. P. Alderson Choosing for children: Parents' consent to surgery 1990 Oxford University Press Oxford
2. P. Alderson, and C. Goodey Theories of consent British Medical Journal 317 1998 1313 1315
3. P. Alderson, J. Hawthorne, and M. Killen Foretelling futures: Dilemmas in neonatal neurology. End of project report to Welcome Trust 2004 Institute of Education London
4. G. Anderson Kangaroo care of the premature infant E. Goldson Developmental interventions in the neonatal intensive care nursery 1999 Oxford University Press New York 111 130
5. BAPM - British Association of Perinatal Medicine Fetuses and newborn infants at the threshold of viability: A framework for practice 2000 BAPM London
6. BMA - British Medical Association Consent, rights and choices in health care for children and young people 2001 BMA London
7. BMA - British Medical Association Withholding and withdrawing life prolonging medical treatment 2001 BMA London
8. DH - Department of Health Reference guide to consent for examinations or treatment 2001 DH London
9. DH - Department of Health Seeking consent: Working with children 2001 DH London
10. GMC - General Medical Council Seeking patients' consent: The ethical considerations 1998 GMC London
11. E. Goldson Developmental interventions in the neonatal intensive care nursery 1999 Oxford University Press New York
12. Helsinki Declaration of Helsinki 19642000 World Medical Association Fernay Voltaire
13. I. Kennedy Learning from Bristol. Report of the public inquiry into children's heart surgery, 1984-1995. Cm5207 2001 Stationery Office London
14. S. Mason C. Megone European neonatal research: Consent, ethics committees and law 2001 Ashgate Aldershot
15. H. McHaffie Crucial decisions at the beginning of life 2001 Radcliffe Medical Press Abingdon
16. NMC - Nursing Midwifery Council Code of professional conduct 2002 NMC London
17. NSF National service framework for children, young people and maternity services 2004 Department of Health, DfES London
18. Nuremberg. (1947). Code. www.wma.org.
19. RCPCH - Royal College of Paediatrics and Child Health Withholding or withdrawing life saving treatment in children: A framework for practice 1997 RCPCH London
20. RCPCH - Royal College of Paediatrics and Child Health Safeguarding informed parental involvement in clinical research involving newborn babies and infants 2000 RCPCH London
21. C. Seale Constructing death 1998 Cambridge University Press Cambridge
22. S. Shenoy, C. Archdeacon, S. Kotecha, and A. Elias-Jones Current practice for obtaining consent in UK neonatal units Bulletin of Medical Ethics 188 2003 17 19
23. A. Strauss, and J. Corbin Basics of qualitative research 1990 Sage London
24. A. Symington, and J. Pinelli Developmental care for promoting development and preventing morbidity in preterm infants (Cochrane Review) Cochrane Database Systematic Review 4 2000 CD001814
25. A. Symington, and J. Pinelli Developmental care for promoting development and preventing morbidity in preterm Infants Cochrane Database Systematic Review 3 2004