131st ENMC International workshop: Selection of Outcome Measures for Peripheral Neuropathy Clinical Trials: 10-12 December 2004, Naarden, The Netherlands

Neuromuscular Disorders

Volumn 16, Issue 2, 2006, Pages 149-156

  Merkies, I S J ^a   Lauria, G ^a  

^a Infection and Immunology   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

CLINICAL TRIAL; CONFERENCE PAPER; DIABETIC NEUROPATHY; DISABILITY; DISABLED PERSON; ELECTRONEUROLOGY; HUMAN; NETHERLANDS; OUTCOME ASSESSMENT; PERIPHERAL NEUROPATHY; POOR GENERAL CONDITION; PRIORITY JOURNAL; QUALITY OF LIFE; SKIN BIOPSY; WORLD HEALTH ORGANIZATION;

CLINICAL TRIALS; DISABILITY EVALUATION; HUMANS; NETHERLANDS; OUTCOME ASSESSMENT (HEALTH CARE); PERIPHERAL NERVOUS SYSTEM DISEASES; QUALITY OF LIFE; SEVERITY OF ILLNESS INDEX; SOCIETIES, MEDICAL; TERMINOLOGY;

EID: 31944451382     PISSN: 09608966     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.nmd.2005.12.003     Document Type: Conference Paper

References (55)

1. A.R. Feinstein Clinimetrics 1987 Yale University Press New Haven and London
2. J.C. Hobart, D.L. Lamping, and A.J. Thompson Evaluating neurological outcome measures: the bare essentials J Neurol Neurosurg Psychiatry 60 1996 127 130
3. International classification of functioning, disability, and health. World Health Organization, Geneva; 2001.
4. International classification of impairments, disabilities, and handicaps. World Health Organization, Geneva; 1980.
5. th ENMC international workshop: childhood chronic inflammatory demyelinating polyneuropathy Neuromuscul Disord 12 2002 195 200
6. Anonymous. Consensus statement: report and recommendations of the San Antonio conference on diabetic neuropathy. American diabetes association american academy of neurology. Diab Care; 1988;11:592-7.
7. N.K. Aaronson Quality of life: what is it? How should it be measured? Oncology 2 1988 69 76
8. B.J. Fried, M. Boers, and P.R. Baker A method for achieving consensus on rheumatoid arthritis outcome measures: The OMERACT conference process J Rheumatol 20 1993 548 551
9. M. Boers, P. Brooks, V. Strand, and P. Tugwell The OMERACT Filter for outcome measures in rheumatology J Rheumatol 25 1998 198 199
10. J.C. Nunnally Psychometric theory 1978 McGraw-Hill New York
11. M.H. Liang Evaluating measurement responsiveness J Rheumatol 22 1995 1191 1192
12. N.R. Holland, A. Stocks, P. Hauer, D.R. Cornblath, J.W. Griffin, and J.C. McArthur Intraepidermal nerve fiber density in patients with painful sensory neuropathy Neurology 48 1997 708 711
13. D.N. Herrmann, J.W. Griffin, P. Hauer, D.R. Cornblath, and J.C. McArthur Epidermal nerve fiber density and sural nerve morphometry in peripheral neuropathies Neurology 53 1999 1634 1640
14. G. Lauria, N. Holland, P. Hauer, D.R. Cornblath, D.R. Griffin, and J.C. McArthur Epidermal innervation: changes with aging, topographic location, and in sensory neuropathy J Neurol Sci 164 1999 172 178
15. G.A. Smith, P. Ramachandran, S. Tripp, and J.R. Singleton Epidermal nerve innervation in impaired glucose tolerance and diabetes-associated neuropathy Neurology 57 2001 1701 1704
16. R. Lombardi, B. Erne, and G. Lauria IgM deposits on skin nerves in anti-myelin-associated glycoprotein neuropathy Ann Neurol 57 2005 180 187
17. M.I. Periquet, V. Novak, and M.P. Collins Painful sensory neuropathies. Prospective evaluation using skin biopsies Neurology 53 1999 1641 1647
18. G. Lauria, M. Morbin, and R. Lombardi Axonal swellings predict the degeneration of epidermal nerve fibers in painful neuropathies Neurology 61 2003 631 636
19. C. Maxwell Sensitivity and accuracy of the visual analogue scale: a psycho-physical classroom experiment Br J Clin Pharmacol 6 1978 15 24
20. J.T. Farrar, J.P. Young Jr., L. LaMoreaux, J.L. Werth, and R.M. Poole Clinical importance of changes in chronic pain intensity measured on an 11-point numerical pain rating scale Pain 94 2001 149 158
21. M.E. Shy, E.M. Frohman, and Y.T. So Quantitative sensory testing. Report of the therapeutics and technology assessment subcommittee of the American academy of neurology Neurology 60 2003 898 904
22. P.J. Dyck, J.L. Davies, W.J. Litchy, and P.C. O'Brien Longitudinal assessment of diabetic polyneuropathy using a composite score in the Rochester Diabetic Neuropathy Study cohort Neurology 49 1997 229 239
23. P.J. Dyck, K.M. Kratz, and K.A. Lehman The diabetic neuropathy study: Design, criteria for types of neuropathy, selection bias, and reproducibility of neuropathic tests Neurology 41 1991 799 807
24. P.J. Dyck, J.L. Karnes, P.C. O'Brien, W.J. Litchy, P.A. Low, and L.J. Melton The Rochester diabetic neuropathy study: reassessment of tests and criteria for diagnosis and staged severity Neurology 42 1992 1164 1170
25. E.L. Feldman, M.J. Stevens, P.K. Thomas, M.B. Brown, N. Canal, and D.A. Greene A practical two-step quantitative clinical and electrophysiological assessment for the diagnosis and staging of diabetic neuropathy Diab Care 17 1994 1281 1289
26. D.R. Cornblath, V. Chaudhry, and K. Carter Total neuropathy score. Validation and reliability study Neurology 53 1999 1660 1664
27. Medical Research Council. Aids to the investigation of the peripheral nervous system. London: Her Majesty's Stationary Office; 1943:1-2.
28. R.P. Kleyweg, F.G.A. van der Meché, and P.I.M. Schmitz Interobserver agreement in the asses-sment of muscle strength and functional abilities in Guillain-Barré Syndrome Muscle Nerve 14 1991 1103 1109
29. E.W. Fünfgeld Vigorimeter: Zur kraftmessung der hand und zur simulationsprüfung Dtsch Med Wschr 49 1966 2214 2216
30. I.S.J. Merkies, P.I.M. Schmitz, J.P.A. Samijn, F.G.A. van der Meché, K.V. Toyka, and P.A. van Doorn Assessing grip strength in healthy individuals and patients with immune-mediated polyneuropathies Muscle Nerve 23 2000 1393 1401
31. I.S.J. Merkies, P.I.M. Schmitz, F.G.A. van der Meché, and P.A. van Doorn Psychometric evaluation of a new sensory scale in immune-mediated polyneuropathies Neurology 54 2000 943 947
32. I.S.J. Martina, R. van Koningsveld, P.I.M. Schmitz, F.G.A. van der Meché, and P.A. van Doorn Measuring vibration threshold with a graduated tuning fork in normal ageing and in patients with polyneuropathy J Neurol Neurosurg Psychiatry 65 1998 743 747
33. I.S.J. Merkies, P.I.M. Schmitz, F.G.A. van der Meché, and P.A. van Doorn Reliability and responsiveness of a graduated tuning fork in immune-mediated polyneuropathies J Neurol Neurosurg Psychiatry 68 2000 669 671
34. M.E. Shy, J. Blake, and K. Krajewski Reliability and validity of the CMT neuropathy score as a measure of disability Neurology 64 2005 1209 1214
35. A.J. Dittner, S.C. Wessely, and R.G. Brown The assessment of fatigue. A practical guide for clinicians and researchers J Psychosom Res 56 2004 157 170
36. I.S.J. Merkies, P.I.M. Schmitz, J.P.A. Samijn, F.G.A. van der Meché, and P.A. van Doorn Fatigue in immune-mediated polyneuropathies Neurology 53 1999 1648 1654
37. J.D. Fisk, P.G. Ritvo, L. Ross, D.A. Haase, T.J. Marrie, and W.F. Schlech Measuring the functional impact of fatigue: initial validation of the fatigue impact scale Clin Infect Dis 18 Suppl. 1 1994 S79 S83
38. I. Aprile, E. Stalberg, P. Tonali, and L. Padua Double peak sensory responses at submaximal stimulation Clin Neurophysiol 114 2003 256 262
39. P.J. Dyck, J. Karnes, P.C. O'Brien, and I.R. Zimmerman Detection thresholds of cutaneous sensation in humans P.J. Dyck P.K. Thomas J.W. Griffin Peripheral neuropathy 3rd ed 1993 Saunders Philadelphia 706 728
40. R.A.C. Hughes, J.M. Newsom-Davis, G.D. Perkin, and J.M. Pierce Controlled trial prednisolone in acute polyneuropathy Lancet 2 1978 750 753
41. J.C. van Swieten, P.J. Koudstaal, M.C. Visser, H.J. Schouten, and J. van Gijn Interobserver agreement for the assessment of handicap in stroke patients Stroke 19 1988 604 607
42. I.S.J. Merkies, P.I.M. Schmitz, F.G.A. van der Meché, J.P.A. Samijn, and P.A. van Doorn Psychometric evaluation of an overall disability scale in immune-mediated polyneuropathies J Neurol Neurosurg Psychiatry 72 2002 596 601
43. I.S.J. Merkies, P.I.M. Schmitz, F.G.A. van der Meché, and P.A. van Doorn Comparative responsiveness between impairment and disability scales in immune-mediated polyneuropathies Muscle Nerve 28 2003 93 100
44. I.S.J. Merkies, P.I.M. Schmitz, F.G.A. van der Meché, J.P.A. Samijn, and P.A. van Doorn Connecting impairment, disability, and handicap in immune-mediated polyneuropathies J Neurol Neurosurg Psychiatry 74 2003 99 104
45. R. Holman, R. Lindeboom, M. Vermeulen, and R.J. de Haan The AMC Linear Disability Score project in a population requiring residential care: psychometric properties Health Qual Life Outcomes 02 2004 42
46. D.S. Molenaar, M. Vermeulen, M. de Visser, and R. de Haan Impact of neurologic signs and symptoms on functional status in peripheral neuropathies Neurology 52 1999 151 156
47. W.D. Spector, S. Katz, J.B. Murphy, and J.P. Fulton The hierarchical relationship between activities of daily living and instrumental activities of daily living J Chron Dis 40 1987 481 489
48. L. Vileikyte, M. Peyrot, and C. Bundy The development and validation of a neuropathy-and Foot Ulcer-specific Quality of Life instrument Diab Care 26 2003 2549 2555
49. B.G. Vickrey, R.D. Hays, and M. Beckstrand Development of a health-related quality of life measure for peripheral neuropathy Neurorehabil Neural Repair 14 2000 93 104
50. EuroQol group EuroQol: a new facility for the measurement of health-related quality of life Health Policy 16 1990 199 208
51. J.E. Ware Jr., K.K. Snow, M. Kosinski, and B. Gandek SF-36 health survey Manual and interpretation guide 1997 The Health Institute, New England Medical Center Boston
52. P.J. Dyck, J. Karnes, P.C. O'Brien, and C.J. Swanson Neuropathy symptom profile in health, motor neuron disease, diabetic neuropathy, and amyloidosis Neurology 36 1986 1300 1308
53. P.J. Dyck, W.R. Sherman, and L.M. Hallcher Human diabetic endoneurial sorbitol, fructose, and myo-inositol related to sural nerve morphometry Ann Neurol 8 1980 590 596
54. D. Ziegler, M. Hanefeld, and K.J. Ruhnau Treatment of symptomatic diabetic peripheral neuropathy with the anti-oxidant alpha-lipoic acid. A 3-week multicenter randomized controlled trial (ALADIN Study) Diabetologica 38 1995 1425 1433
55. I.S.J. Merkies, P.I.M. Schmitz, F.G.A. van der Meché, J.P.A. Samijn, and P.A. van Doorn Quality of life complements traditional outcome measures in immune-mediated polyneuropathies Neurology 59 2002 84 91