Understanding grief: A component of neonatal palliative care

Journal of Hospice and Palliative Nursing

Volumn 6, Issue 3, 2004, Pages 161-170

  Romesberg, Tricia L ^a  

^a University of New Mexico School of Medicine   (United States)

Author keywords

Bereavement; Grief; Loss; Mourning; Neonatal; Palliative care

Indexed keywords

EID: 31744438462     PISSN: 15222179     EISSN: 15390705     Source Type: Journal    
DOI: 10.1097/00129191-200407000-00012     Document Type: Article

References (51)

1. Blackwell G, Stern H. Providing spiritual support to family care-givers. In: Doka KJ, Davidson JD, eds. Caregiving and Loss. Washington, DC: Hospice Foundation of America; 2001:233-246.
2. Silverman WA. Restraining the unsustainable. Pediatrics. 2002; 111(3):672-674.
3. Christ GH, Bonanno G, Malkinson R, Rubin S. Appendix D: Bereavement experiences after the death of a child. In: Institute of Medicine of the National Academies. When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families. Washington, DC: The National Academies Press; 2003:553-579.
4. Sheldon F. ABC of palliative care: Bereavement. BMJ. 1998; 316(7129):456-458.
5. Keyser JL. Death at birth: Inner experiences and personal meanings. In: Cox GR, Bendiksen RA, Stevenson RG, eds. Complicated Grieving and Bereavement. New York: Baywood Publishing; 2002:227-240.
6. Hodgson C, Weaver L, Hall P. Can we predict complicated grief before the bereavement? A report on bereavement risk assessment in a palliative care setting. In: Cox GR, Bendiksen RA, Stevenson RG, eds. Complicated Grieving and Bereavement. New York: Baywood Publishing; 2002:193-208.
7. Stanley KJ, Zoloth-Dorfman L. Ethical consideration. In: Ferrell BR, Coyle N, eds. Palliative Nursing. New York: Oxford University Press; 2001:663-681.
8. Wolf-Gabor S. Perinatal loss: Bridging tragedy with hope. Nurs Forum. 1997; 32(3):33-35.
9. Obershaw RJ. Cry Until You Laugh. Minneapolis, MN: Fairview Press; 1992.
10. DeSpelder LA, Strickland RL. The Last Dance: Encountering Death and Dying. 6th ed. Madison, WI: McGraw-Hill; 2002.
11. Hutton N. Pediatric palliative care. Arch Pediatr Adolesc Med. 2002;156:9-10.
12. McBay MY. Nursing, grief, and dying: cultural contexts for a political happening. Tennessee Nurse. 1997;60(4):11, 13.
13. Paul RJ. Viewing the body and grief complications: The role of visual confirmation in grief reconciliation. In: Cox GR, Bendiksen RA, Stevenson R G, eds. Complicated Grieving and Bereavement. New York: Baywood Publishing; 2002:255-274.
14. Lewis E. The management of stillbirth: Coping with an unreality. Lancet. 1976; 2(7986):619-620.
15. Institute of Medicine of the National Academies. When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families. Washington, DC: Author; 2003.
16. Carter BS, Bhatia J. Comfort/palliative care guidelines for neonatal practice: Development and implementation in an academic medical center. J Perinatol. 2001; 21(5):279-283.
17. Leuthner SR, Pierucci R. Experience with neonatal palliative care consultation at the medical college of Wisconsin-Children’s Hospital of Wisconsin. J Palliat Med. 2001; 4(1):39-47.
18. Mothers in Support and Sympathy (MISS) Foundation Web site. Available at: http://www.missfoundation.org/pro/articles.html. Accessed July 2, 2003.
19. Corless IB. Bereavement. In: Ferrell BR, Coyle, N, eds. Palliative Nursing. New York: Oxford University Press; 2001.
20. Zeitlin SV. Grief and bereavement. Primary Care. 2001; 28(2):415-425.
21. Clements PT, Bradley J. Gone too soon: Exploring strategies for nursing management to promote adaptive coping and maintenance of corporate function after pediatric deaths. RN. In press.
22. Doka DJ. Grief, loss, and caregiving. In: Doka KJ, Davidson JD, eds. Caregiving and Loss. Washington, DC: Hospice Foundation of America; 2001:215-230.
23. Papadatou D. A proposed model of health professionals’ grieving process. OMEGA. 2000; 41(1):59-77.
24. Pasacreta JV, Minarick PA, Neild-Anderson L. Anxiety and depression. In: Ferrell BR, Coyle N, eds. Textbook of Palliative Nursing. New York: Oxford University Press; 1997:269-289.
25. American Academy of Pediatrics, Committee on Bioethics and Committee on Hospital Care. Palliative care for children. Pediatrics. 2000; 106(2):351-357.
26. Catlin A, Carter BS. Creation of a neonatal end-of-life palliative-care protocol. J Clin Ethics. 2002; 12(3):316-318.
27. Koenig BA, Davies E. Appendix E: Cultural dimensions of care at life’s end for children and their families. In: Institute of Medicine of the National Academies. When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families. Washington, DC: The National Academies Press; 2003:509-552.
28. Frager G. Pediatric palliative care: Building the model, bridging the gaps. J Palliat Care. 1996; 12(3):9-15.
29. Gilmer MJ. Pediatric palliative care: A family-centered model for critical care. Crit Care Nurs Clin North Am. 2002; 14(2):207-214.
30. Sepulveda C, Marlin A, Yoshida T, Ullrich A. Palliative care: The World Health Organization’s global perspective. J Pain Symptom Manage. 2002; 24(2):91-96.
31. Levetown M, Pollack MM, Cuerdon TT, Ruttiman UE, Glover JJ. Limitation and withdrawals of medical intervention in pediatric critical care. JAMA. 1994; 272(16):1271-1275.
32. Swigart V, Lidz C, Butterworth V, Arnold R. Letting go: Family willingness to forgo life support. Heart Lung. 1996;25:483-494.
33. Aquino JY, Perszyk S. Hospice northeast and Nemours children’s clinic, Jacksonville, Florida. Am J Hospice Palliat Care. 1997; 14(5):248-250.
34. Price DM. Hard decisions in hard times: Helping families make ethical choices during prolonged illness. In: Doka K.J, Davidson JD, eds. Caregiving and Loss. Washington, DC: Hospice Foundation of America; 2001:271-286.
35. Ramer-Chrastek J, Brunnquell D, Hasse S. Letting nature take its course: One family’s choice of hospice home care for their terminally ill infant. Am J Nurs. 2002;102(10):24CC-24JJ.
36. Chapman KJ, Pepler CN. Coping, hope, and anticipatory grief in family members in palliative home care. Cancer Nurs. 1998; 21(4):226-234.
37. Workman E. Guiding parents through the death of their infant. J Obstet Gynecol Neonatal Nurs. 2001; 30(6):569-573.
38. Avery GB. Futility considerations in the neonatal intensive care unit. Sem Perinatol. 1998; 22(3):216-222.
39. American Association of Colleges of Nursing. Peaceful death: Recommended competencies and curricular guidelines for end-of-life nursing care. Available at: http://www.aacn.nche.edu/Publications/deathfin.htm. Accessed June 20, 2003.
40. Clements PT, Vigil GJ, Manno MS, et al. Cultural considerations of loss, grief and bereavement. J Psychosoc Nurs Ment Health Serv. 2003; 41(7):18-26.
41. Harper BC, Lartigue M, Doka KJ. In: Doka KJ, Davidson JD, eds. Caregiving and Loss. Washington, DC: Hospice Foundation of America; 2001:139-151.
42. Pimple C, Schmidt L, Tidwell S. Achieving excellence in end-of-life care. Nurse Educ. 2003; 28(1):40-43.
43. McClelland ML. Our unit has a bereavement program. Am J Nurs. 1993;93(1):62, 64, 66.
44. Zwerdling T, Davies S, Lazar L, et al. Unique aspects of caring for dying children and their families. Am J Hospice Palliat Care. 2000; 17(5):305-311.
45. Lake MF, Johnson TM, Murphy J, Knuppel RA. Evaluation of a perinatal grief support team. Am J Obstet Gynecol. 1987;157:1203-1206.
46. Ruden BM. Bereavement follow-up: An opportunity to extend nursing care. J Pediatr Oncol Nurs. 1996; 13(4):219-225.
47. Anderson AH, Bateman LH, Ingallinera KL, Woolf PJ. Our caring continues: A bereavement follow-up program. Focus on Critical Care AACN; 1991; 18(6):523-526.
48. Johnson LD, Rincon B, Gober C, Rexin D. The development of a comprehensive bereavement program to assist families experiencing pediatric loss. J Pediatr Nurs. 1993; 8(3):142-146.
49. Abe N, Catlin, A, Mihara, D. End of life in the NICU: A study of ventilator withdrawal. MCN Am J Matern Child Nurs. 2001; 26(3):141-146.
50. de Montigny F, Beaudet L, Dumas L. A baby has died: The impact of perinatal loss on family social networks. J Obstet Gynecol Neonatal Nurs. 1999; 28(2):151-156.
51. Davidson JD. Conclusion. In: Doka KJ, Davidson JD, eds. Care-giving and Loss. Washington, DC: Hospice Foundation of America; 2001:299-302.