A framework for ethical decision making in neonatal intensive care

Acta Paediatrica, International Journal of Paediatrics

Volumn 94, Issue 12, 2005, Pages 1777-1783

  Baumann Hölzle, Ruth ^a   Maffezzoni, Marco ^b   Bucher, Hans Ulrich ^c  

^a Dialogue Ethics   (Switzerland)

^b UNIVERSITY OF ZURICH   (Switzerland)

^c UNIVERSITY HOSPITAL ZURICH   (Switzerland)

Author keywords

End of life decisions; Ethics; Neonatal intensive care; Palliative care

Indexed keywords

BRAIN HEMORRHAGE; CHILD DEATH; CRITICAL ILLNESS; GESTATIONAL AGE; HEALTH CARE PERSONNEL; HEALTH CARE QUALITY; HEALTH SERVICE; HUMAN; INFANT MORTALITY; INTENSIVE CARE UNIT; MEDICAL DECISION MAKING; MEDICAL ETHICS; NEWBORN INTENSIVE CARE; NURSE ATTITUDE; PARENT; PHYSICIAN ATTITUDE; PRIORITY JOURNAL; REVIEW; SURVIVAL TIME;

ADULT; ALGORITHMS; DECISION MAKING; ETHICS, CLINICAL; FEMALE; HUMANS; INFANT, NEWBORN; INTENSIVE CARE; INTENSIVE CARE UNITS, NEONATAL; MALE; PALLIATIVE CARE; PATIENT CARE TEAM;

EID: 31544441957     PISSN: 08035253     EISSN: 15023869     Source Type: Journal    
DOI: 10.1080/08035250510011928     Document Type: Review

References (24)

1. Silverman W. Overtreatment of neonates? Personal retrospective. Pediatrics 1992;90:971-6.
2. De Leeuw R, Cuttini M, Nadai M, Berbik I, Hansen G, Kucinskas A, et al. EURONIC study group. Treatment choices for extremely preterm infants: an international perspective. J Pediatr 2000;137:608-16.
3. Singh J, Lantos J, Meadow W. End-of-life after birth: death and dying in a neonatal intensive care unit. Pediatrics 2004; 114:1620-6.
4. Levene M. Is intensive care for very immature babies justified? Acta Paediatr 2004;93:149-52.
5. Foley Pierce S. Neonatal intensive care. Decision making in the face of prognostic uncertainty. Nurs Clin North Am 1998;33:287-97.
6. Bell Reckling J. Who plays what role in decisions about withholding and withdrawing life-sustaining treatment? J Clin Ethics 1997;8:39-5.
7. Grundstein-Amado R. Differences in ethical decision-making processes among nurses and doctors. J Adv Nurs 1992;17: 129-37.
8. Erlen JA, Sereika SMS. Critical care nurses, ethical decision-making and stress. J Adv Nurs 1997;26:953-61.
9. Corley MC. Ethical dimensions of nurse-physician relations in critical care. Nurs Clin North Am 1998;33:325-37.
10. Sauer PJJ. Ethical decisions in neonatal intensive care units. The Dutch experience. Pediatrics 1992;90:729-32.
11. Baggs JG. Collaborative Interdisciplinary Bioethical Decision Making in Intensive Care Units. Nurs Outlook 1993;41: 108-12.
12. Grundstein-Amado R. Ethical decision-making processes used by health care providers. J Adv Nurs 1993;18:1701-9.
13. Wocial LD. Achieving collaboration in ethical decision-making strategies in clinical practice. Dimens Crit Care Nurs 1996;15:150-9.
14. Rebagliato M, Cuttini M, Broggin L, Berbik I, de Vonderweid U, Hansen G, et al. EURONIC Study Group (European Project on Parents' Information and Ethical Decision Making in Neonatal Intensive Care Units). Neonatal end-of-life decision making: Physicians' attitudes and relationship with self-reported practices in 10 European countries. JAMA 2000; 284:2451-9.
15. Medizin-ethischer Arbeitskreis Neonatologie des Universitätsspitals Zürich. An der Schwelle zum eigenen Leben, Lebensentscheide am Lebensanfang bei zu früh geborenen, kranken und behinderten Kindern in der Neonatologie. Bern, Berlin: Peter Lang Verlag; 2003.
16. Doyal L, Wilsher D. Withholding and withdrawing life sustaining treatment from elderly people: towards formal guidelines. Br Med J 1994;308:1689-92.
17. Chiswick M. Parents and end of life decisions in neonatal practice. Arch Dis Child Fetal Neonatal Ed 2001;85:F1-3.
18. Cuttini M. Parental visiting, communication, and participation in ethical decisions: a comparison of neonatal unit policies in Europe. Arch Dis Child Fetal Neonatal Ed 1999;81:F84-91.
19. Viney C. A phenomenological study of ethical decision-making experiences among senior intensive care nurses and doctors concerning withdrawal of treatment. Nurs Crit Care 1996;1:182-7.
20. Sundind-Huard D. Subject positions theory - its application to understanding collaboration (and confrontation) in critical care. J Adv Nurs 2001;34:376-82.
21. McHaffie HE, Cuttini M, Brolz-Voit G, Randag L, Mousty R, Duguet AM, et al. Withholding/withdrawing treatment from neonates: legislation and official guidelines across Europe. J Med Ethics 1999;125:440-6.
22. Berger TM, Bernet-Büttker V, Fauchère JC, Holzgreve W, Kind C, Largo RH, et al. Recommendations for the care of infants born at the limit of viability (22 to 26 weeks of gestation).URL: www.neonet.ch
23. Maffezzoni M, Wunder K, Baumann-Hölzle R, Stoll F. Group processes by deciding about viability of neonates - A formative evaluation. Zeitschrift für Arbeite- und Organisationspsychologie 2003;47;8:122-9.
24. Arlettaz R, Mieth D, Bucher HU, Duc G, Fauchère JC. End-of-life decisions in delivery room and neonatal intensive care unit. Acta Paediatr 2005;11:1626-31.