Being in the light or in the shade: Persons with Parkinson's disease and their partners' experience of support

International Journal of Nursing Studies

Volumn 41, Issue 6, 2004, Pages 621-630

  Birgersson, A M B ^a   Edberg, A K ^a,b  

^a KRISTIANSTAD UNIVERSITY   (Sweden)

^b LUND UNIVERSITY   (Sweden)

Author keywords

Content analysis; Next of kin; Parkinson's disease; Support

Indexed keywords

ADULT; AGED; FEMALE; HUMAN; HUMAN RELATION; INTERVIEW; MALE; PARKINSON DISEASE; REVIEW; SPOUSE; SUPPORT GROUP; TAPE RECORDER;

EID: 3142649125     PISSN: 00207489     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ijnurstu.2004.01.007     Document Type: Article

References (27)

1. Berg B.L. Qualitative Research Methods for the Social Sciences. 2001;Allyn & Bacon, USA. (Chapter 4)
2. Berry R.A., Murphy J.F. Well-being of caregivers of spouses with Parkinson's disease. Clinical Nursing Research. 4:1995;373-387
3. Cohen S., Syme S.L. Social Support and Health. 1985;Academic Press, Orlando. (Chapter 6)
4. Christianson S-Å., Loftus E.F. Remembering emotional events. the fate of detailed information Cognition and Emotion. 5:1991;81-108
5. Downe-Wanboldt B. Content analysis. method, applications, and issues Health Care for Women International. 13:1992;313-321
6. Engström, B., 1986. Information to patient. An attempt to satisfy the patient's need for information. Doctoral Dissertation from Department of Nursing, Umeå University, Sweden.
7. Fitzsimmons B., Bunting L.K. Parkinson's disease. Quality of life issues. Neuroscience Nursing. 28(4):1993;807-817
8. Gullacksen, A., 1998. When pain becomes a part of life - coping with chronic illness and disability. (In Swedish: När smärtan blir en del av livet. Livsomställning vid kronisk sjukdom och funktionshinder.) Doctoral Dissertation from Faculty of Social Sciences, Lund University, Sweden.
9. Habermann B. Day-to-day demands of Parkinson's disease. Western Journal of Nursing Research. 18(4):1996;397-413
10. Hainsworth M.A. Helping spouses with chronic sorrow related to Multiple Sclerosis. Journal of Gerontological Nursing. 21(7):1995;29-33
11. Jackson G., Kelsey A. The needs of neurology patients after discharge. Professional Nurse. 70(7):1999;467-470
12. Kvale, S., 1997. Inter Views. Introduction to Qualitative Research Interviewing. (In Swedish: Den kvalitativa forskningsintervjun.) Studentlitteratur, Lund.
13. Langford C.P.H. Social support. a conceptual analysis Journal of Advanced Nursing. 25:1997;95-100
14. Lindgren C.L. Chronic sorrow in persons with Parkinson's and their spouses. Scholarly Inquiry for Nursing Practice. 10(4):1996;351-366
15. Longstreth W.T., Nelson L., Linde M., Munoz D. Utility of the sickness impact profile in Parkinson's disease. Journal of Geriatric Psychiatry and Neurology. 5:1992;142-148
16. Lorensen, M., 1998. The Question Decides the Method. Research Methods in Nursing. (In Norwegian: Spørsmålet bestemmer metoden. Forskningsmetoder i sykepleie og andre helsefag.) Universitetsforlaget, Oslo.
17. MacMahon D.G. Parkinson's disease nurse specialists. An important role in disease management. Neurology. 52:1999;21-25
18. Maguire R. Parkinson's disease. Professional Nurse. 13(1):1997;33-37
19. Marsden C.D. Parkinson's disease. Journal of Neurology, Neurosurgery, and Psychiatry. 57:1994;672-681
20. McRae C., Sherry P., Roper K. Stress and family functioning among caregivers of persons with Parkinson's disease. Parkinsonism & Related Disorders. 1-2(5):1999;69-75
21. Monahan D.J., Hooker K. Caregiving and social support in two illness groups. Social Work. 3(42):1997;278-287
22. Nordeson, A., 1998. Quality of life for patients with progressive neurological disorders. Licentiate Dissertation from Department of Nursing, Umeå University, Sweden.
23. O'Reilly F., Finnan F., Allwright S., Smith G.D., Ben-Shlomo Y. The effects of caring for a spouse with Parkinson's disease on social, psychological and physical well-being. British Journal of General Practice. 46:1996;507-512
24. Stamnes J.H. Social support, social network, and health presentation of findings, and integration of accumulated knowledge in the clinical field. Vård i Norden. 4:2000;23-27
25. Strudwick A., Mutch W.J., Dingwall-Fordyce I. Parkinson's disease - functional impairment and who helps. Clinical Rehabilitation. 4:1990;213-216
26. Widerfors G., Birgersson A.M.B. Persons with Parkinson's disease and their relatives' experience of handling their situation. (In Swedish: Parkinsonsjuka och deras närståendes upplevelser och hantering av sin situation.). Vård i Norden. 2:2000;4-8
27. Whetten-Goldstein K., Sloan F., Kulas E., Cutson T., Schenkman M. The burden of Parkinson's disease on society, family, and the individual. Journal of the American Geriatrics Society. 45:1997;844-849