Caregiver burden in dementia: Determinants and interventions;Le fardeau du soignant dans la démence: Déterminants et stratégies d'intervention

Schweizer Archiv fur Neurologie und Psychiatrie

Volumn 155, Issue 5, 2004, Pages 217-224

  Michon, Agnes ^a,c   Weber, K ^a   Gargiulo, M ^b   Canuto, A ^a   Giardini, U ^a   Giannakopoulos, P ^a  

^a GENEVA UNIVERSITY HOSPITALS   (Switzerland)

^b PITIÉ SALPÊTRIÈRE HOSPITAL   (France)

^c HUG Belle Idée   (Switzerland)

Author keywords

Burden; Carer; Dementia; Review

Indexed keywords

ALZHEIMER DISEASE; BEHAVIOR DISORDER; CAREGIVER; COPING BEHAVIOR; CORRELATION ANALYSIS; CRISIS INTERVENTION; DEFENSE MECHANISM; DEMENTIA; DEPRESSION; DISTRESS SYNDROME; EMOTION; EXPERIENCE; FAMILY THERAPY; GUILT; HEALTH STATUS; HUMAN; HUMAN RELATION; INTERPERSONAL COMMUNICATION; JOB SATISFACTION; MEDICAL INFORMATION; MORBIDITY; OUTCOMES RESEARCH; PATIENT CARE; PREDICTION; PSYCHOLOGICAL ASPECT; REHABILITATION; RESPONSIBILITY; REVIEW; REWARD; RISK FACTOR; SCORING SYSTEM; SEX DIFFERENCE; SOCIAL ASPECT; SOCIAL SUPPORT;

EID: 3142590445     PISSN: 02587661     EISSN: None     Source Type: Journal    
DOI: 10.4414/sanp.2004.01495     Document Type: Review

References (85)

1. American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders (DSM III R). 3rd ed., revised. Washington, DC: American Psychiatric Association; 1987.
2. Morris RG, Morris LW, Britton PG. Factors affecting the emotional wellbeing of the carers of dementia sufferers. Br J Psychiatry 1988;153:147-56.
3. Baumgarten M, Battista RN, Infante-Rivard C, Hanley JA, Becker R, Gauthier S. The psychological and physical health of family members caring for an elderly person with dementia. J Clin Epidemiol 1992;45:61-70.
4. Donaldson C, Tarrier N, Burns A. The impact of the symptoms of dementia on caregivers. Br J Psychiatry 1997;170:62-8.
5. Haley W. The family caregivers role in Alzheimer's disease. Neurology 1997;48:S25-9.
6. Schulz R, O'Brien AT, Bookwala J, Fleissner K. Psychiatric and physical morbidity effects of dementia caregiving: prevalence, correlates, and causes. Gerontologist 1995;35:771-91.
7. Donaldson C, Burns A. Burden of Alzheimer's disease: helping the patient and caregiver. J Geriatr Psychiatry Neurol 1999;12:21-8.
8. Vitaliano PP, Young HM, Russo J, Romano J, Magana-Amato A. Does expressed emotion in spouses predict subsequent problems among care recipients with Alzheimer's disease? J Gerontol 1993;48:P202-9.
9. Whitehouse PJ. Pharmacoeconomics of dementia. Alzheimer Dis Assoc Disord 1997;11(Suppl 5):S22-32.
10. Michel JP, Zekry D, Mulligan R, Giacobini E, Gold G. Economic considerations of Alzheimer's disease and related disorders. Aging 2001;13:255-60.
11. Gray A, Fenn P. Alzheimer's disease: the burden of the illness in England. Health Trends 1993;25:31-7.
12. Beeri MS, Werner P, Adar Z, Davidson M, Noy S. Economic cost of Alzheimer disease in Israel. Alzheimer Dis Assoc Disord 2002;16:73-80.
13. Colerick EJ, George LK. Predictors of institutionalization among caregivers of patients with Alzheimer's disease. J Am Geriatr Soc 1986;34:493-8.
14. Brown J, Potter J, Foster B. Caregiver burden should be evaluated during geriatric assessment. J Am Geriatr Soc 1990;38:455-60.
15. Gilleard CJ, Belford H, Gilleard E, Whittick JE, Gledhill K. Emotional distress amongst the supporters of the elderly mentally infirm. Br J Psychiatry 1984;145:172-7.
16. George LK, Gwyther LP. Caregiver welibeing: a multidimensional examination of family caregivers of demented adults. Gerontologist 1999;26:233-59.
17. Schultz R, Visitainer P, Williamson G. Psychiatric and physical morbidity effects of caregiving. J Gerontol 1990;45:181-91.
18. Cohen D, Eisdorfer C. Depression in family members caring for a relative with Alzheimer's disease. J Am Geriatr Soc 1988;36:885-9.
19. Williamson GM, Schulz R. Coping with specific stressors in Alzheimer's disease caregiving. Gerontologist 1993;33:747-55.
20. Brodaty H, Luscombe G. Psychological morbidity in caregivers is associated with depression in patients with dementia. Alzheimer Dis Assoc Disord 1998;12:62-70.
21. Teri L. Behavioural treatment of depression in patients with dementia. Alzheimer Dis Assoc Disord 1994;8:66-74.
22. Katon W, Kleinman A, Rosen G. Depression and somatization: a review. Am J Med 1982;72:127-35.
23. Dello Buono M, Busato R, Mazzetto M, Paccagnella B, Aleotti F, Zanetti O, et al. Community care for patients with Alzheimer's disease and non-demented elderly people: use and satisfaction with services and unmet needs in family caregivers. Int J Geriatr Psychiatry 1999;14:915-24.
24. Ory MG, Hoffman RR, Yee JL, Tennstedt S, Schulz R. Prevalence and impact of caregiving: a detailed comparison between dementia and nondementia caregivers. Gerontologist 1999;39:77-185.
25. Dunkin JJ, Anderson-Hanley C. Dementia caregiver burden: a review of the literature and guidelines for assessment and intervention. Neurology 1998;51:S53-60.
26. Leff J, Vaugh C. The role of maintenance therapy and relatives' expressed emotion in relapse of schizophrenia: a two-year follow-up. Br J Psychiatry 1981;139:102-4.
27. Gilhooly ML, Whittick JE. Expressed emotion in caregivers of the dementing elderly. Br J Med Psychol 1989;62:265-72.
28. Bledin K, MacCarthy B, Kuipers L, Woods R. Daughters of people with dementia: expressed emotion, strain and coping. Br J Psychiatry 1990;157:221-7.
29. Donaldson C, Tarrier N, Burns A. Determinants of carer stress in Alzheimer's disease. Int J Geriatr Psychiatry 1998;13:248-56.
30. Nagaratnam N, Lewis-Jones M, Scott D, Palazzi L. Behavioral and psychiatric manifestations in dementia patients in a community: caregiver burden and outcome. Alzheimer Dis Assoc Disord 1998;12:330-4.
31. Croog SH, Sudilovsky A, Burleson JA, Baume RM. Vulnerability of husband and wife caregivers of Alzheimer disease patients to caregiving stressors. Alzheimer Dis Assoc Disord 2001;15:201-10.
32. Coen RF, Swanwick GR, O'Boyle CA, Coakley D. Behaviour disturbance and other predictors of carer burden in Alzheimer's disease. Int J Geriatr Psychiatry 1997;12:331-6.
33. Greene JG, Smith R, Gardiner M, Timbury GC. Measuring behavioural disturbance of elderly demented patients in the community and its effects on relatives: a factor analytic study. Age Ageing 1982;11:121-6.
34. Mangone CA, Sanguinetti RM, Baumann PD, Gonzalez RC, Pereyra Bozzola FG, Gorelick PB, et al. Influence of feelings of burden on the caregiver's perception of the patient's functional status. Dementia 1993;4:287-93.
35. Townsend A, Noelker L, Deimling G, Bass D. Longitudinal impact of interhousehold caregiving on adult children's mental health. Psychol Aging 1989;4:393-401.
36. Grafstrom M, Winblad B. Family burden in the care of the demented and nondemented elderly - a longitudinal study. Alzheimer Dis Assoc Disord 1995;9:78-86.
37. Karlin NJ, Bell PA, Noah JL. Long-term consequences of the Alzheimer's caregiver role: a qualitative analysis. Am J Alzheimers Dis Other Demen 2001;16:177-82.
38. Stone R, Cafferata G, Sangl J. Caregivers of the frail elderly: a national profile. Gerontologist 1987;27:616-26.
39. Zarit SH, Zarit JM. Dementia and the family: a stress management approach. Clin Psychol 1986;39:103-5.
40. Zarit SH, Todd PA, Zarit JM. Subjective burden of husbands and wives as caregiver: a longitudinal study. Gerontologist 1986;26:260-6.
41. Vitaliano PP, Russo J, Young HM, Teri L, Maiuro RD. Predictors of burden in spouse caregivers of individuals with Alzheimer's disease. Psychol Aging 1991;6:392-402.
42. George LK, Gwyther LP. Caregiver wellbeing: a multidimensional examination of family caregivers of demented adults. Gerontologist 1986;26:253-9.
43. Pruchno RA, Potashnik SL. Caregiving spouses: physical and mental health in perspective. J Am Geriatr Soc 1989;37:697-705.
44. Schulz R, Williamson GM. A 2-year longitudinal study of depression among Alzheimer's caregivers. Psychol Aging 1991;6:569-78.
45. Lutzky SM, Knight BG. Explaining gender differences in caregiver distress: the roles of emotional attentiveness and coping styles. Psychol Aging 1994;9:513-9.
46. Fitting M, Rabins P, Lucas MJ, Eastham J. Caregivers for dementia patients: a comparison of husbands and wives. Gerontologist 1986;26:248-52.
47. Miller B, Cafasso L. Gender differences in caregiving: Fact or artefact? Gerontologist 1992;32:498-507.
48. Murray J, Schneider J, Banerjee S, Mann A. Eurocare: a cross-national study of co-resident spouse carers for people with Alzheimer's disease II. A qualitative analysis of the experience of caregiving. Int J Geriatr Psychiatry 1999;14:662-7.
49. Globerman J. The unencumbered child: family reputations and responsibilities in the care of relatives with Alzheimer's disease. Fam Process 1995;34:87-99.
50. Russo J, Vitaliano PP. Life events as correlates of burden in spouse caregivers of persons with Alzheimer's disease. Exp Aging Res 1995;21:273-94.
51. Clyburn LD, Stones MJ, Hadjistavropoulos T, Tuokko H. Predicting caregiver burden and depression in Alzheimer's disease. J Gerontol B Psychol Sci Soc Sci 2000;55:S2-13.
52. Zarit SH, Zarit JM. Families under stress: interventions for caregivers of senile dementia patients. Psychotherapy: Theory, Research and Practice 1982;19:461-71.
53. Pushkar Gold D, Reis MF, Markiewicz D, Andres D. When home caregiving ends: a longitudinal study of outcomes for caregivers of relatives with dementia. J Am Geriatr Soc 1995;43:10-6.
54. Arguelles S, Loewenstein DA, Eisdorfer C, Arguelles T. Caregiver's judgments of the functional abilities of the Alzheimer's patient: impact of caregiver's depression and perceived burden. J Geriatr Psychiatry Neurol 2001;14:91-8.
55. Intrieri RC, Rapp SR. Self-control skillfulness and caregiver burden among help-seeking elders. J Gerontol 1994;49:19-23.
56. Kramer BJ. Differential predictors of strain and gain among husband caring for wives with dementia. Gerontologist 1997;37:239-49.
57. Farran C. Theoretical perspectives concerning positive aspects of caring for elderly persons with dementia: stress/adaptation and existentialism. Gerontologist 1997;37:250-6.
58. Pearlin LI, Mullan JT, Semple SJ, Skaff MM. Caregiving and the stress process: an overview of concepts and their measures. Gerontologist 1990;30:583-91.
59. Noonan AE, Tennstedt SL. Meaning in caregiving and its contribution to caregiver wellbeing. Gerontologist 1997;37:785-94.
60. Kramer BJ. Gain in the caregiving experience: Where are we? What next? Gerontologist 1997;37:218-32.
61. Nolan M, Grant G, Keady J. Understanding Family Care. A Multidimensional Model of Caring and Coping. Buckingham & Philadelphia: Open University Press; 1996.
62. Cohen CA, Colantonio A, Vernich L. Positive aspects of caregiving: rounding out the caregiver experience. Int J Geriatr Psychiatry 2002;17:184-8.
63. Teri L. Training families to provide care: effects on people with dementia. Int J Geriatr Psychiatry 1999;14:110-9.
64. Knight B, Lutzky S, Macofsky-Urban F. A meta-analytic review of interventions for carer distress. Gerontologist 1993;33:240-8.
65. Haley WE, Brown SL, Levine EG. Experimental evaluation of the effectiveness of group intervention for dementia caregivers. Gerontologist 1987;27:376-82.
66. Zarit SH, Boutselis M, Anthony CR. Interventions with caregivers of dementia patients: comparison of two approaches. Psychol Aging 1987;2:225-32.
67. Schmidt GL, Bonjean MJ, Widen AC, Schefft BK, Steele DJ. Brief psychotherapy for caregivers of demented relatives: comparison of two therapeutic strategies. Clin Gerontol 1988;7:109-25.
68. Marriott A, Donaldson C, Tarrier N, Burns A. Effectiveness of cognitive-behavioural family intervention in reducing the burden of care in carers of patients with Alzheimer's disease. Br J Psychiatry 2000;176:557-62.
69. Teri L, Logsdon RG, Uomoto J, McCurry S. Behavioral treatment of depression in dementia patients: a controlled clinical trial. J Gerontol B Psychol Sci Soc Sci 1997;52:P159-66.
70. Robinson K, Yates K. Effects of two caregiver-training programs on burden and attitude toward help. Arch Psychiatr Nurs 1994;8:312-9.
71. Mittelman MS, Ferris SH, Steinberg G, Shulman E, Mackell JA, Ambinder A, et al. An intervention that delays institutionalization of Alzheimer's disease patients: treatment of spouse-caregivers. Gerontologist 1993;33:730-40.
72. Mittelman MS, Ferris SH, Shulman E, Steinberg G, Levin B. A family intervention to delay nursing home placement of patients with Alzheimer's disease. JAMA 1996;276:1725-31.
73. Mohide EA, Pringle DM, Streiner DL, Gilbert JR, Muir G, Tew M. A randomized trial of family caregiver support in the home management of dementia. J Am Geriatr Soc 1990;38:446-54.
74. Brodaty J, McGilchrist C, Harris L, Peters KE. Time until institutionalisation and death in patients with dementia. Role of caregiver training and risk factors. Arch Neurol 1993;50:643-50.
75. Brodaty H, Gresham M. The effect of a training program to reduce stress in carers of patients with dementia. Br Med J 1989;299:1375-9.
76. Mittelman MS, Ferris SH, Shulman E, Steinberg G, Ambinder A, Mackell JA, et al. A comprehensive support program: effect on depression in spouse-caregivers of AD patients. Gerontologist 1995;35:792-802.
77. Flint AJ. Effects of respite care on patients with dementia and their caregivers. Int Psychogeriatr 1995;7:505-17.
78. Le Goues G. Psychopathologie de la démence et ses conséquences sur l'entourage. Confrontations psychiatriques 1991;33:87-97.
79. Caplan G. An Approach to Community Mental Health. New York: Grune & Stratton, Inc.; 1961. p. 18.
80. Jacobson G. Crisis theory and treatment strategy: some sociocultural and psychodynamic considerations. J Nerv Ment Dis 1965;141:209-18.
81. Jacobson G, Strickler M, Morley WE. Generic and individual approaches to crisis intervention. Am J Public Health 1968;58:339-42.
82. Aguilera DC. Intervention en situation de crise. Théorie et méthodologie. Paris: InterEditions; 1995. p. 71-86.
83. De Coulon N. La crise, stratégies d'intervention thérapeutique en psychiatrie. Paris: Gaëtan Morin ed; 1999.
84. Haag G. Psychososcial rehabilitation in advanced age. Rehabilitation 1985;24:6-8.
85. Wertheimer J. Psychogeriatric organization in the medicosocial network: the experience of the canton of Vaud, Switzerland. Dement Geriatr Cogn Disord 1997;8:143-5.