Children's perspectives of a pediatric hospice program

Journal of Palliative Care

Volumn 21, Issue 4, 2005, Pages 252-261

  Davies, Betty ^a   Collins, John B ^b   Steele, Rose ^c   Cook, Karen ^d   Brenner, Amy ^a   Smith, Stephany ^a  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^c YORK UNIVERSITY   (Canada)

^d University of California at San Francisco ^*  (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 30944441431     PISSN: 08258597     EISSN: None     Source Type: Journal    
DOI: 10.1177/082585970502100404     Document Type: Article

References (32)

1. Hart R. Children participation: from tokenism to citizenship, Innocenti Essays, No. 4. UNICEF International Child Development Centre, Florence, Italy, 1992.
2. Murray JS. Conducting psychosocial research with children and adolescents: a developmental perspective. Appl Nurs Res 2000; 13(3): 151-156.
3. United Nations Children's Fund (UNICEF). Child Rights: United Nations Convention on the rights of the child. Part I: Substantive provisions [online] 1999. Available at http://www.unicef.org/crc/part1.htm
4. James A. Ethnography in the study of children and childhood. In: Atkinson P, Coffey A, Delamont S, Lofland J, Lofland L (eds). Handbook of Ethnography. Thousand Oaks, California: Sage Publications Inc., 2001; pp. 246-257.
5. Maguire MH. What if you talked to me? I could be interesting! Ethical research considerations in engaging with bilingual/multilingual child participants in human inquiry. Forum Qualitative Sozialforschung/Forum: Qualitative Social Research 2005; 6(1): Art. 4.
6. Davies B, Collins J, Steele R, Pipke I, Cook K. Final report. Family Voices: an evaluation of the impact on families of the Canuck Place children's hospice program. Submitted to the British Columbia Health Research Foundation Community Grants Program, 1999.
7. Davies B, Collins J, Steele R, Pipke I, Cook K. Impact on families of a children's hospice program: a report of findings and recommendation for other programs. J Palliat Care 2003; 19(1): 15-26.
8. Davies B, Steele R, Collins J, Cook K, Pipke I, Smith S. The impact on families of respite care in a children's hospice program. J Palliat Care 2004; 20(4): 277-286.
9. Field MJ, Behrman RE (eds). When Children Die: improving palliative and end-of-life care for children and their families. Washington, D.C.: National Academy Press, 2002.
10. Davies B, Steele R, Stajduhar KI, Bruce A. Research in pediatric palliative care. In: Portenoy RK, Bruera E (eds). Issues in Palliative Care Research. New York: Oxford University Press, 2003; pp. 355-370.
11. American Academy of Pediatrics, Committee on Bioethics and Committee on Hospital Care. Palliative care for children. Pediatrics 2000; 106(2): 351-357.
12. Children's International Project on Palliative/Hospice Services (ChiPPS). Compendium of Pediatric Palliative Care. Arlington, Virginia: National Hospice and Palliative Care Organization, 2001.
13. Gerteis M, Edgman-Levitan S, Daley J, Delbanco TL (eds). Through the Patient's Eyes: understanding and promoting patient-centered care. San Francisco: Jossey Boss, 1993.
14. Sumner LH. Pediatric care: the hospice perspective. In: Ferrell BR, Coyle N (eds). Textbook of Palliative Nursing. New York: Oxford University Press, 2001; pp. 556-569.
15. Spinetta J. The sibling of the child with cancer. In: Spinetta J, Deasy-Spinetta P (eds). Living With Childhood Cancer. St Louis, Missouri: Mosby, 1981; pp. 133-142.
16. Stein A, Forrest G, Wooley H, Baum JD. Life threatening illness and hospice care. Arch Dis Child 1989; 64: 687-702.
17. Havermans T, Eiser C. Siblings of a child with cancer. Child Care Health Dev 1994; 5: 309-322.
18. Murray JS. Social support for school-age siblings of children with cancer: a comparison between parent and sibling perceptions. J Pediatr Oncol Nurs 2001; 18: 90-104.
19. Murray JS. A qualitative exploration of psychosocial support for siblings of children with cancer J Pediatr Oncol Nurs 2002; 17(5): 327-337.
20. Davies B. Shadows in the Sun: experiences of sibling bereavement in childhood. Philadelphia: Taylor & Francis, 1999.
21. Green LW, George MA, Daniel M, Frankish CJ, Herbert CP, Bowie WR, et al. Study of participatory research in health promotion: Review and recommendations for the development of participatory research in health promotion in Canada. Ottawa, Canada: Royal Society of Canada, 1995.
22. Schweitzer M, Gilpin L, Frampton S. Healing spaces: elements of environmental design that make an impact on health. J Altern Complement Med 2004; 10(S1): S71-S83.
23. Hilden JM, Emanuel EJ, Fairclough DL, Link MP, Foley KM, Claridge BC, et al. Attitudes and practices among pediatric oncologists regarding end-of-life care: results of the 1998 American Society of Clinical Oncology Survey. J Clin Oncol 2001; 19(1): 205-212.
24. Ferrell BR, Virani R, Grant M, Borneman T. Analysis of pain content in nursing textbooks: improving end-of-life care in nursing education. J Pain Symptom Manage 2000; 19: 216-228.
25. Sine D, Sumner L, Gracy D, von Gunten CF. Pediatric extubations: "pulling the tube." J Palliat Med 2001; 4(4): 519-524.
26. O'Connor P. Clinical paradigm for exploring spiritual concerns. In: Doka K, Morgan J (eds). Death and Spirituality. New York: Baywood Publishing Company, 1993.
27. D'Auria JP, Christian BJ, Henderson ZG, Haynes B. The company they keep: the influence of peer relationships on adjustment to cystic fibrosis during adolescence. J Pediatr Nurs 2000; 15(3): 175-182.
28. Murray JS. Social support for school-aged siblings of children with cancer: a comparison between parent and sibling perceptions. J Pediatr Oncol Nurs 2001; 18(3): 90-104.
29. Egan KA, Labyak MJ. Hospice care: a model for quality end-of-life care. In: Ferrell BR, Coyle N (eds). Textbook of Palliative Nursing. New York: Oxford University Press, 2001.
30. Byock I. Dying well: the prospects for growth at the end of life. New York: Riverhead Books, 1997.
31. Rando T. Anticipatory mourning: What it is and why we need to study it. In: Rando T (ed). Clinical Dimensions of Anticipatory Mourning. Champaign, Illinois: Research Press, 2000; pp. 1-13.
32. Conrad P, Kern R. The Sociology of Health and Illness. New York: St. Martin's Press Inc., 1990.