Expressions of hope in cystic fibrosis patients: A comparison with the general population

Heart and Lung: Journal of Acute and Critical Care

Volumn 33, Issue 2, 2004, Pages 111-118

  Rustøen, Tone ^a   Wahl, Astrid Klopstad ^a   Hanestad, Berit Rokne ^b   Gjengedal, Eva ^b   Moum, Torbjorn ^c  

^a OSLO METROPOLITAN UNIVERSITY   (Norway)

^b UNIVERSITY OF BERGEN   (Norway)

^c UNIVERSITY OF OSLO   (Norway)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AFFECT; ARTICLE; ASTHMA; CONTROLLED STUDY; COPING BEHAVIOR; CYSTIC FIBROSIS; DEMOGRAPHY; FEMALE; FORCED EXPIRATORY VOLUME; HUMAN; LUNG FUNCTION; LUNG INFECTION; MAJOR CLINICAL STUDY; MALE; OUTCOMES RESEARCH; PATIENT ATTITUDE; POPULATION; PREDICTION; PRIORITY JOURNAL; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; RATING SCALE; SCORING SYSTEM; SOCIOECONOMICS;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; ANALYSIS OF VARIANCE; ATTITUDE TO HEALTH; CASE-CONTROL STUDIES; CROSS-SECTIONAL STUDIES; CYSTIC FIBROSIS; FEMALE; HUMANS; MALE; MARITAL STATUS; MIDDLE AGED; NORWAY; QUESTIONNAIRES; SELF ASSESSMENT (PSYCHOLOGY); SICKNESS IMPACT PROFILE;

EID: 3042819519     PISSN: 01479563     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.hrtlng.2003.12.003     Document Type: Article

References (25)

1. Andersen D.H. Cystic fibrosis of the pancreas and its relation to celiac disease. A clinical and pathological study. Am J Dis Child. 56:1938;344-399
2. Fogarty T.J. Who we are, what we do, and where we are going. J Vasc Surg. 23:1996;887-893
3. Dodge J.A., Morison S., Lewis P.A., Coles E.C., Geddes D., Russell G., et al. Incidence, population, and survival of cystic fibrosis in the UK, 1968-95. UK Cystic Fibrosis Survey Management Committee. Arch Dis Child. 77:1997;493-496
4. Hodson M.E. Treatment of cystic fibrosis in the adult. Respiration. 67:2000;595-607
5. Elborn J.S., Shale D.J., Britton J.R. Cystic fibrosis current survival and population estimates to the year 2000. Thorax. 46:1991;881-885
6. Dufault K., Martocchio B.C. Symposium on compassionate care and the dying experience. Hope its spheres and dimensions. Nurs Clin North Am. 20:1985;379-391
7. Buetow S., Goodyear-Smith F., Coster G. Coping strategies in the self-management of chronic heart failure. Fam Pract. 18:2001;117-122
8. McCormick D.P., Holder B., Wetsel M.A., Cawthon T.W. Spirituality and HIV disease an integrated perspective. J Assoc Nurses AIDS Care. 12:2001;58-65
9. Tracy J.P. Growing up with chronic illness the experience of growing up with cystic fibrosis. Holist Nurs Pract. 12:1997;27-35
10. Rustoen T, Wahl AK, Hanestad BR, Lerdal A, Moum T. Hope in the general Norwegian population- measured on the Herth Hope Index. Palliat Supportive Care. In press
11. Herth K. Abbreviated instrument to measure hope development and psychometric evaluation. J Adv Nurs. 17:1992;1251-1259
12. Herth K. Enhancing hope in people with a first recurrence of cancer. J Adv Nurs. 32:2000;1431-1441
13. Ebright P.R., Lyon B. Understanding hope and factors that enhance hope in women with breast cancer. Oncol Nurs Forum. 29:2002;561-568
14. Beckie T.M., Beckstead J.W., Webb M.S. Modeling women's quality of life after cardiac events. West J Nurs Res. 23:2001;179-194
15. Fraser C., Hadjimichael O., Vollmer T. Predictors of adherence to Copaxone therapy in individuals with relapsing-remitting multiple sclerosis. J Neurosci Nurs. 33:2001;231-239
16. Russell C.L., Brown K. The effects of information and support on individuals awaiting cadaveric kidney transplantation. Prog Transplant. 12:2002;201-207
17. Guillemin F., Bombardier C., Beaton D. Cross-cultural adaptation of health-related quality of life measures literature review and proposed guidelines. J Clin Epidemiol. 46:1993;1417-1432
18. Wahl AK, Rustoen T, Lerdal A, Hanestad BR, Moum T. The Norwegian version of the Herth Hope Index (HHI-N). A psychometric study (submitted)
19. Calculate your Body Mass Index. National Heart, Lung and Health Institute. National Institute of Health. Available at: http://nhlbisupport.com/ bmi/. Accessed February 2004
20. Definition and Classification of Severity. Global Initiative for Chronic Obstructive Lung Disease. Available at: http://www.goldcopd.com/exec_summary/ summary_2001/clarity.html. Accessed February 2004
21. Rustoen T., Wiklund I. Hope in newly diagnosed patients with cancer. Cancer Nurs. 23:2000;214-219
22. Robinson C.A. Managing life with a chronic condition the story of normalization. Qual Health Res. 3:1993;6-28
23. Sprangers M.A. Quality-of-life assessment in oncology. Achievements and challenges. Acta Oncol. 41:2002;229-237
24. Britto M.T., Kotagal U.R., Hornung R.W., Atherton H.D., Tsevat J., Wilmott R.W. Impact of recent pulmonary exacerbations on quality of life in patients with cystic fibrosis. Chest. 121:2002;64-72
25. de Jong W., Kaptein A.A., van der Schans C.P., Mannes G.P., van Aalderen W.M., Grevink R.G., et al. Quality of life in patients with cystic fibrosis. Pediatr Pulmonol. 23:1997;95-100