The CDH study group and advances in the clinical care of the patient with congenital diaphragmatic hernia

Seminars in Perinatology

Volumn 28, Issue 3, 2004, Pages 174-184

  Doyle, Nora M ^a,b   Lally, Kevin P ^a  

^a UNIVERSITY OF TEXAS   (United States)

^b UNIVERSITY OF TEXAS MEDICAL SCHOOL   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

BETAMETHASONE; CORTICOSTEROID; GLUCOCORTICOID; HYDROCORTISONE; SURFACTANT;

ARTIFICIAL VENTILATION; BIRTH; CONGENITAL DIAPHRAGM HERNIA; DATA BASE; DIAGNOSTIC PROCEDURE; DOSE RESPONSE; DRUG MECHANISM; EVALUATION; FETUS; FETUS DEVELOPMENT; FETUS SURGERY; FOLLOW UP; GENERAL PRACTITIONER; GENETIC ASSOCIATION; HEALTH CENTER; HUMAN; HYDRAMNIOS; INFANCY; INFANT; LUNG HYPOPLASIA; MORTALITY; NEWBORN; NEWBORN PERIOD; NONHUMAN; PATIENT CARE; PEDIATRICS; PREGNANCY; PRENATAL DIAGNOSIS; PRIORITY JOURNAL; PROGNOSIS; PUERPERIUM; QUALITY CONTROL; RECURRENT DISEASE; REGISTER; RETROSPECTIVE STUDY; REVIEW; RISK FACTOR; SCALE UP; SURGICAL TECHNIQUE; SURVIVAL RATE; VENTILATOR;

EID: 3042785169     PISSN: 01460005     EISSN: None     Source Type: Journal    
DOI: 10.1053/j.semperi.2004.03.009     Document Type: Article

References (78)

1. Hekmatnia A., McHugh K. Congenital Diaphragmatic Hernia. eMedicine.com. 2003;. http://www.emedicine.com/radio/topic187.htm. updated November 19, 2003. Accessed 11/21/03
2. Narayan H., De Chazal R., Barrow M., et al. Familial congenital diaphragmatic hernia Prenatal diagnosis, management, and outcome. Prenat Diagn. 13:1993;893-901
3. Miller JA: Diaphragmatic hernia repair-congenital. VeriMed Healthcare Network. http://www.nlm.nih.gov/medlineplus/ency/article/002936.htm. Accessed 11/20/03
4. Moore K. The Developing Human Clinically Orientated Embryology. (ed 4). 1988;Saunders, Philadelphia, PA
5. Lally K.P. Congenital diaphragmatic hernia. Curr Opin Pediatr. 14:2002;486-490
6. Babiuk R.P., Greer J.J. Diaphragm defects occur in a CDH hernia model independently of myogenesis and lung formation. Am J Physiol Lung Cell Mol Physiol. 283:2002;L1310-L1314
7. Greer J.J., Baibuk R.P., Thebaud B. Etiology of congenital diaphragmatic hernia The retinoid hypothesis. Pediatr Res. 53:2003;726-730
8. Smith N.P., Jesudason E.C., Losty P.D. Congenital diaphragmatic hernia. Paediatr Respir Rev. 3:2002;339-348
9. The Congenital Diaphragmatic Hernia Study Group. Fryns syndrome in children with diaphragmatic hernia. J Pediatr Surg. 37:2002;1685-1687
10. Harrison M.R., Adzick S.N., Estes J.M., et al. A Prospective Study of the Outcome for Fetuses With Diaphragmatic Hernia. JAMA. 271:1994;382-384
11. Wenstrom K.D., Weiner C.P., Hanson J.W. A five year statewide experience with congenital diapjragmatic hernia. Am J Obstet Gynecol. 165:1991;838-842
12. Huddy C.l., Boyd P.A., Wilkinson A.R., et al. Congenital diaphragmatic hernia prenatal diagnosis, outcome and continuing morbidity in survivors. Br J Obstet Gynaecol. 106:1999;1192-1196
13. Braby J. Current and emerging treatment for congenital diaphragmatic hernia. Neonatl Netw. 20:2001;5-15
14. Stege G., Fenton A., Jaffray B. Nihilism in the 1990s The True Mortality of Congenital Diaphramatic Hernia. Pediatrics. 112:2003;532-535
15. Bohn D. Congenital diaphragmatic hernia. Am J Respir Crit Care Med. 166:2002;911-915
16. The Congenital Diaphragmatic Hernia Study Group. Bilateral congenital diaphragmatic hernia. J Pediatr Surg. 38:2003;522-524
17. Langham M.R., Kays D.W., Beierle E.A., et al. Twenty years of progress in congenital diaphragmatic hernia at the University of Florida. Am Surg. 69:2003;45-52
18. Wenstrom K.D. Fetal Surgery for Congenital Diaphragmatic Hernia. N Engl J Med. 349:2003;1887-1888
19. Lipshutz G.S., Albanese C.T., Feldstein V.A., et al. Prospective analysis of lung-to-head ratio predicts survival for patients with prenatally diagnosed congenital diaphragmatic hernia. J Pediatr Surg. 32:1997;1634-1636
20. Albanese C.T., Lopoo J., Goldstein R.B., et al. Fetal liver position and perinatal outcome for congenital diaphragmatic hernia. Prenat Diagn. 18:1998;1138-1142
21. Harrison M.R., Mychaliska G.B., Albanese C.T., et al. Correction of congenital diaphragmatic hernia in utero IX fetuses with poor prognosis (liver herniation and low lung-to-head ratio) can be saved by fetoscopic temporary tracheal occlusion. J Pediatr Surg. 33:1998;1017-1023
22. Walsh D.S., Hubbard A.M., Olutoye O.O., et al. Assessment of fetal lung volumes and liver herniation with magnetic resonance imaging in congenital diaphragmatic hernia. Am J Obstet Gynecol. 183:2000;1067-1069
23. Vanamo K. A 45-year perspective of congenital diaphragmatic hernia. Br J Surg. 83:1996;1758-1762
24. Clark R.H., Hardin W.D. Jr, Hirschl R.B., et al. Current surgical management of congenital diaphragmatic hernia a report from the Congenital Diaphragmatic Hernia Study Group. J Pediatr Surg. 33:1998;1004-1009
25. The Congenital Diaphragmatic Hernia Study Group. Estimating disease severity of congenital diaphragmatic hernia in the first 5 minutes of life. J Pediatr Surg. 36:2001;141-145
26. The ECLS Net. http://www.elso.med.umich.edu/Registry/DataManagementTools. htm. Accessed 11/20/03
27. Hardin W.D., Stylianos S., Lally K.P. Evidence-based practice in pediatric surgery. J Pediatr Surg. 34:1999;908-912
28. Rangel S.J., Kelsey J., Colby C.E., et al. Development of a quality assessment scale for retrospective clinical studies in pediatric surgery. J Pediatr Surg. 38:2003;390-396
29. Moss R.L., Henry M.C., Dimmitt R.A., et al. The role of prospective randomized clinical trials in pediatric surgery State of the art? J Pediatr Surg. 36:2001;1182-1186
30. Schnitzer J.J., Hedrick H.L., Pacheco B.A., et al. Prenatal glucocorticoid therapy reverses pulmonary immaturity in congenital diaphragmatic hernia in fetal sheep. Ann Surg. 224:1996;430-437
31. Hedrick H.L., Kaban J.M., Pacheco B.A., et al. Prenatal glucocorticoids improve pulmonary morphometrics in fetal sheep with congenital diaphragmatic hernia. J Pediatr Surg. 32:1997;217-221
32. Kapur P., Holm B.A., Irish M.S., et al. Lung physiological and metabolic changes in lambs with congenital diaphragmatic hernia after administration of prenatal maternal corticosteroids. J Pediatr Surg. 34:1999;354-356
33. Ford W.D.A., Kirby C.P., Wilkinson C.S., et al. Antenatal betamethasone and favourable outcomes in fetuses with "poor prognosis" diaphragmatic hernia. Pedatr Surg Int. 18:2002;244-246
34. Ballard R.A., Ballard P.L. Effect of corticosteroids for fetal maturation on perinatal outcomes. Report of the NIH Consensus Conference. JAMA. 273:1995;413-418
35. Antenatal corticosteroids revisited Repeat courses. NIH Consensus Statement 2000 August 17-18. 17:2000;1-10
36. Wilcox D.T., Glick P.L., Karamanoukian H.L., et al. Contributions by individual lungs to the surfactant status in congenital diaphragmatic hernia. Pediatr Res. 41:1997;686-691
37. Mysore M.R, Margraf L.R., Jaramillo M.A., et al. Surfactant protein A is decreased in a rat model of congenital diaphragmatic hernia. Am J Respir Crit Care Med. 157:1998;654-657
38. Lotze A., Knight G.R., Anderson K.D., et al. Surfactant (beractant) therapy for infants with congenital diaphragmatic hernia on ECMO Evidence of persistent surfactant deficiency. J Pediatr Surg. 29:1994;407-412
39. Moya F.R., Thomas V.L., Romaguera J., et al. Fetal lung maturation in congenital diaphragmatic hernia. Am J Obstet Gynecol. 173:1995;1401-1405
40. Glick P.L., Leach C.L., Besner G.E., et al. Pathophysiology of congenital diaphragmatic hernia III Exogenous surfactant therapy for the high-risk neonate with CDH. J Pediatr Surg. 27:1992;866-869
41. Bae C.W., Jang C.K., Chung S.J., et al. Exogenous pulmonary surfactant replacement therapy in a neonate with pulmonary hypoplasia accompanying congenital diaphragmatic hernia-a case report. J Korean Med Sci. 11:1996;265-270
42. Somaschini M., Locatelli G., Salvoni L., et al. Impact of new treatments for respiratory failure on outcome of infants with congenital diaphragmatic hernia. Eur J Pediatr. 158:1999;780-784
43. Finer N.N., Tierney A., Etches P.C., et al. Congenital diaphragmatic hernia Developing a protocolized approach. J Pediatr Surg. 33:1998;1331-1337
44. Colby CE for the Congenital Diaphragmatic Hernia Study Group. Surfactant Replacement Therapy on ECMO Does Not Improve Outcome in Neonates with Congenital Diaphragmatic Hernia. J Pediatr Surg (in press)
45. The Congenital Diaphragmatic Hernia Study Group. Surfactant Does Not Improve Survival in Preterm Infants with Congenital Diaphragmatic Hernia. J Pediatr Surg (in press)
46. Van Meurs K.P. Congenital Diaphragmatic Hernia Study Group. Is surfactant therapy beneficial in the management of the term neonate with CDH? 2003;Neonatal Clinical Studies, Society for Pediatric Research, Seattle, Washington. (presented at Late Breaker Session) May 4
47. Boix-Ochoa J., Peguero G., Seijo G., et al. Acid-base balance and blood gases in prognosis and therapy of congenital diaphragmatic hernia. J Pediatr Surg. 9:1974;49-57
48. Drummond W.H., Gregory G.A., Heymann M.A., et al. The independent effects of hyperventilation, tolazoline, and dopamine on infants with persistent pulmonary hypertension. J Pediatr. 98:1981;603-611
49. Wung J.T., Sahni R., Moffitt S.T., et al. Congenital diaphragmatic hernia Survival treated with very delayed surgery, spontaneous respiration and no chest tube. J Pediatr Surg. 30:1995;406-409
50. Boloker J., Bateman D.A., Wung J.T., et al. Congenital diaphragmatic hernia in 120 infants treated consecutively with permissive hypercapnea/ spontaneous respiration/elective repair. J Pediatr Surg. 37:2002;357-366
51. Kays D.W., Langham M.R., Ledbetter D.J., et al. Detrimental effects of standard medical therapy in congenital diaphragmatic hernia. Ann Surg. 230:1999;340-351
52. Wilson J.M., Lund D.P., Lillehei C.W. Congenital diaphragmatic hernia-A tale of two cities The Boston experience. J Pediatr Surg. 32:1997;401-405
53. Paranka M.S., Clark R.H., Yoder B.A., et al. Predictors of failure of high-frequency oscillatory ventilation in term infants with severe respiratory failure. Pediatrics. 95:1995;400-404
54. Somaschini M., Locatelli G., Salvoni L., et al. Impact of new treatments for respiratory failure on outcome of infants with congenital diaphragmatic hernia. Eur J Pediatr. 158:1999;780-784
55. Cacciari A., Ruggeri G., Mordenti M., et al. High-frequency oscillatory ventilation versus conventional mechanical ventilation in congenital diaphragmatic hernia. Eur J Pediatr Surg. 11:2001;3-7
56. Lally K.P. Extracorporeal membrane oxygenation in patients with congenital diaphragmatic hernia. Semin Pediatr Surg. 5:1996;249-255
57. Reickert C.A., Hirschl R.B., Atkinson J.B., et al. Congenital diaphragmatic hernia survival and use of extracorporeal life support at selected level III nurseries with multimodality support. Surgery. 123:1998;305-310
58. Lally K.P., Paranka M.S., Roden J., et al. Congenital diaphragmatic hernia. Stabilization and repair on ECMO. Ann Surg. 216:1992;1048-1052
59. Wilson J.M., Fauza D.O., Dennis P., et al. Antenatal diagnosis of isolated congenital diaphragmatic hernia is not an indicator of outcome. J Pediatr Surg. 29:1994;815-819
60. Harrison M.R., Adzick N.S., Longaker M.T., et al. Successful repair in utero of a fetal diaphragmatic hernia after removal of herniated viscera from the left thorax. N Engl J Med. 322:1990;1582-1584
61. Harrison M.R., Adzick N.S., Flake A.W., et al. Correction of congenital diaphragmatic hernia in utero: VI. Hard-earned lesions. J Pediatr Surg. 28:1993;1411-1418
62. Wilson J.M., DiFiore J.W., Peters C.A. Experimental fetal tracheal ligation prevents the pulmonary hypoplasia associated with fetal nephrectomy Possible application for congenital diaphragmatic hernia. J Pediatr Surg. 28:1993;1433-1439
63. DiFiore J.W., Fauza D.O., Slavin R., et al. Experimental fetal tracheal ligation reverses the structural and physiological effects of pulmonary hypoplasia in congenital diaphragmatic hernia. J Pediatr Surg. 29:1994;248-256
64. Hedrick M.H., Estes J.M., Sullivan K.M., et al. Plug the lung until it grows (PLUG) a new method to treat congenital diaphragmatic hernia in utero. J Pediatr Surg. 29:1994;612-617
65. Chiba T., Albanese C.T., Farmer D.L., et al. Balloon tracheal occlusion for congenital diaphragmatic hernia Experimental studies. J Pediatr Surg. 35:2000;1566-1570
66. Harrison M.R., Keller R.L., Hawgood S.B., et al. A randomized trial of fetal endoscopic tracheal occlusion for severe fetal congenital diaphragmatic hernia. N Engl J Med. 349:2003;1916-1924
67. McGahren E.D., Mallik K., Rodgers B. Neurological outcome is diminished in survivors of congenital diaphragmatic hernia requiring extracorporeal membrane oxygenation. J Pediatr Surg. 32:1997;1216-1220
68. Stolar C.J.H., Crisafi M.A., Driscoll Y.T. Neurocognitive outcome for neonates treated with extracorporeal membrane oxygenation Are infants with congenital diaphragmatic hernia different? J Pediatr Surg. 30:1995;366-372
69. Bennett C.C., Johnson A., Field D.J., et al. UK collaborative randomized trial of neonatal extracorporeal membrane oxygenation Follow-up to age 4 years. Lancet. 357:2001;1094-1096
70. Rasheed A., Tindall S., Cueny D.L., et al. Neurodevelopmental outcome after congenital diaphragmatic hernia Extracorporeal membrane oxygenation before and after surgery. J Pediatr Surg. 36:2001;539-544
71. Fasching G., Huber, Uray E., et al. Gastroesophageal reflux and diaphragmatic motility after repair of congenital diaphragmatic hernia. Eur J Pediatr Surg. 10:2000;360-364
72. Nagaya M., Akatsuka H., Kato J. Gastroesophageal reflux occurring after repair of congenital diaphragmatic hernia. J Pediatr Surg. 29:1994;1447-1451
73. Kieffer J., Sapin E., Berg A., et al. Gastroesophageal reflux after repair of congenital diaphragmatic hernia. J Pediatr Surg. 30:1995;1330-1333
74. Muratore C.S., Utter S., Jaksic T. Nutritional morbidity in survivors of congenital diaphragmatic hernia. J Pediatr Surg. 36:2001;1171-1176
75. Moss R.L., Chen C.M., Harrison M.R. Prosthetic patch durability in congenital diaphragmatic hernia A long-term follow-up study. J Pediatr Surg. 36:2001;152-154
76. Lally K.P., Cheu H.W., Vazquez W.D. Prosthetic diaphragm reconstruction in the growing animal. J Pediatr Surg. 28:1993;45-47
77. Muratore C.S., Kharasch V., Lund D.P., et al. Pulmonary morbidity in 100 survivors of congenital diaphragmatic hernia monitored in a multidisciplinary clinic. J Pediatr Surg. 30:2001;133-140
78. Blakely M.L., Lally K.P. Using evidence-based medicine principles to improve quality of patient care in pediatric surgery. Semin Pediatr Surg. 11:2002;42-45