Quality of life and psychological distress in parents of children with a cochlear implant

Cochlear Implants International

Volumn 5, Issue 1, 2004, Pages 13-27

  Spahn, Claudia ^a   Burger, Thorsten ^a   Löschmann, Christoph ^b   Richter, Bernhard ^a  

^a UNIVERSITY OF FREIBURG   (Germany)

^b UNIVERSITY OF FREIBURG   (Germany)

Author keywords

Children; Cochlear implant; Distress; Parents; Quality of life; Speech

Indexed keywords

ADULT; ARTICLE; CHILD; COCHLEA PROSTHESIS; CONTROLLED STUDY; CORRELATION ANALYSIS; DAILY LIFE ACTIVITY; DEMOGRAPHY; DISEASE SEVERITY; DISTRESS SYNDROME; FEMALE; HEARING IMPAIRMENT; HUMAN; LANGUAGE; MAJOR CLINICAL STUDY; MALE; PARENT; PSYCHOMETRY; QUALITY OF LIFE; QUESTIONNAIRE; RATING SCALE; SOCIAL ASPECT; SPEECH ANALYSIS; SPEECH DEVELOPMENT; STATISTICAL ANALYSIS; STATISTICAL SIGNIFICANCE; WELLBEING;

EID: 3042675301     PISSN: 14670100     EISSN: None     Source Type: Journal    
DOI: 10.1002/cii.120     Document Type: Article

References (32)

1. Abidin RR (1983) Parenting Stress Index (PSI). Manual and administration booklet. Charlottesville: Pediatric Psychology Press.
2. Bullinger M, Kirchberger I, Steinbüchel v N (1993) The Everyday Life Questionnaire - EDLQ - an instrument for the assessment of health related quality of life. Zeitschrift für Medizinische Psychologie 3: 121-131.
3. Cheng AK, Grant GD, Niparko JK (1999) Meta-analysis of pediatric cochlear implant literature. Annals of Otology, Rhinology and Laryngology 108: 124-128.
4. Edwards S, Fletcher P, Garman M, Hughes A, Letts C, Sinka I (1997) The Reynell Developmental Language Scales III. Windsor: NFER-Nelson.
5. Franke G (1995) SCL-90-R. The Symptom Checklist of Derogatis. German Version. Weinheim: Beltz-Test.
6. Gantz BJ, Tyler RS, Woodworth GG, Tye-Murray N, Fryauf-Bertschy H (1994) Results of multichannel cochlear implants in congenital and acquired prelingual deafness in children: five-year follow-up. American Journal of Otolology 15 (Supplement 2): 1-7.
7. Geers AE, Moog JS (1990) Scales of early communication skills for hearing impaired children. St. Louis: Central institute for the deaf.
8. German Statistical Office, Informations of the year 2002, www.destatis.de/themen/d/thm_bevoelk.htm
9. Grünheid E, Schulz R (1996) Bericht 1996 über die demographische Lage in Deutschland. Zeitschrift für Bevölkerungswissenschaften 21(4): 345-439.
10. Hadadian A, Rose S (1991) An investigation of parents' attitudes and the communication skills of their deaf children. American Annals of the Deaf 136(3): 273-277.
11. Hartmann H, Hartmann K (1998) 'Früh'erkennung? Memorandum zur Früherkennung und Frühförderung hörgeschä digter Kinder. Hamburg: Selbstverlag.
12. Hessel A, Schumacher J, Geyer M, Brähler E (2001) Symptom-Checklist SCL-90-R: Testtheoretische Überprüfung und Normierung an einer bevölkerungsrepräsentativen Stichprobe. Diagnostica 47: 27-39.
13. Hintermair M, Horsch U (1998) Hörschädigung als kritisches Lebensereignis. Heidelberg: Julius Groos Verlag.
14. Horsch U, Weber C, Bertram B, Detrois D (1997) Stress experienced by parents of children with cochlear implants compared with parents of deaf children and hearing children. American Journal of Otology 18: 161-163.
15. Koch U, Jakob U, Siegrist B, Tausch B, Holschneider B (1992) Geschlechtsspezifische Belastungen und ihre Bewältigung: Eine vergleichende Untersuchung von Müttern krebskranker Kinder in den alten und neuen Bundesländern. Abschlußbericht einer vom Bundesgesundheitsministerium geförderten Studie. Freiburg: Selbstverlag.
16. Laszig R (2000) Cochlear implants in children (soft surgery). Advances in Otorhinolaryngology 57: 87-89.
17. Lawoko S, Soares JJ (2002) Distress and hopelessness among parents of children with congenital heart disease, parents of children with other disease, and parents of healthy children. Journal of Psychosomatic Research 52: 193-208
18. NIH consensus conference (1995) Cochlear implants in adults and children. Journal of the American Medical Association 274(24): 1955-1961.
19. O'Donoghue GM, Nikolopoulos TP, Archbold SM (2000) Determinants of speech perception in children after cochlear implantation. Lancet 356: 466-468.
20. Quittner AL, Steck JT, Rouiller RL (1991) Cochlear implants in children: A study of parental stress and adjustment. American Journal of Otology 12 (Supplement): 95-104.
21. Quittner AL, DiGirolamo AM, Michel M, Eigen H (1992) Parental response to cystic fibrosis (CF): A contextual analysis of the diagnosis phase. Journal of Pediatric Psychology 17: 683-704.
22. Ramsden R, Graham J (1995) Cochlear implantation. British Medical Journal 311 (7020): 1588.
23. Richter B, Spahn C, Zschocke I, Leuchter M, Laszig R, Löhle E (2000) Psychological stress, information, and treatment expectations of parents with children who have cochlear implants. HNO 48: 675-683.
24. Richter B, Eißele S, Laszig R, Löhle E (2002) Receptive and expressive language skills of 106 children with a minimum of 2 years' experience in hearing with a cochlear implant. International Journal of Pediatric Otorhinolaryngology 64 (2): 111-125.
25. Richter B, Spahn C, Laszig R, Löhle E (2003) Cochlear implantation in children - state of the art. Paediatrische Praxis 62: 445-455.
26. Shonkoff JP, Hauser-Cram P, Krauss MW, Upshur CC (1992) Development of infants with disabilities and their families: Implications for theory and service delivery. Monographs of the Society for Research in Child Development 57 (6, Serial No. 230): 6-17.
27. Spahn C, Richter B, Zschocke I, Löhle E, Wirsching M (2001) The need for psychosocial support in parents with cochlear implanted children. International Journal of Pediatric Otorhinolaryngology 57 (1): 45-53.
28. Spahn C, Richter B, Rohr B, Löschmann C, Löhle E (2002a) The situation of parents of children with a hearing aid: I. Psychosocial stress, treatment expectations, and satisfaction with treatment. Sprache Stimme Gehör 26: 98-105.
29. Spahn C, Richter B, Rohr B, Löschmann C, Löhle E (2002b) The situation of parents of children with a hearing aid: II. The need for psychosocial support. Sprache Stimme Gehör 26: 106-110.
30. Waltzman SB, Cohen NL, Green J, Roland JT Jr (2002) Long-term effects of cochlear implants in children. Otolaryngology Head and Neck Surgery 126(5): 505-511.
31. Watson SM, Henggeler WH, Whelan JP (1990) Family functioning and the social adaptation of hearing-impaired youths. Journal of Abnormal Child Psychology 18(2): 143-163.
32. Wunsch A, Bengel J (1998) Psychologische Aspekte von Körper- und Sinnesbehinderung. In: Rosenstiel v L, Hockel CM, Molt W (eds) Handbuch der angewandten Psychologie: Grundlagen-Methoden-Praxis. Landsberg/Lech: Ecomed, pp. 1-14.