How to 'count the cost' and measure burden? A review of health-related quality of life in people with eating disorders

Journal of Mental Health

Volumn 14, Issue 6, 2005, Pages 539-552

  Hay, Phillipa J ^a   Mond, Jonathan ^b  

^a JAMES COOK UNIVERSITY   (Australia)

^b NEUROPSYCHIATRIC RESEARCH INSTITUTE   (United States)

Author keywords

Anorexia; Binge eating disorder; Bulimia; Socio economic costs

Indexed keywords

COMMUNITY; COMORBIDITY; COST; EATING DISORDER; HUMAN; MEDLINE; MENTAL DISEASE; MENTAL HEALTH; MOOD DISORDER; PREVALENCE; QUALITY OF LIFE; REVIEW;

EID: 30344445659     PISSN: 09638237     EISSN: None     Source Type: Journal    
DOI: 10.1080/09638230500400274     Document Type: Review

References (60)

1. American Psychiatric Association (APA). (1994). Diagnostic and statistical manual of mental disorders, 4th edn. Washington, DC: APA.
2. Australian Bureau of Statistics (1998). Mental health and well-being: Profile of adults, Australia 1997. Canberra: Australian Bureau of Statistics.
3. Bijl, R. V., & Ravelli, A. (2000). Current and residual functional disability associated with psychopathology: Findings from the Netherlands Mental Health Survey and Incidence Study. Psychological Medicine, 30, 657-668.
4. Crow, S. J., & Peterson, C. B. (2003). The economic and social burden of eating disorders: A review. In M. Maj, K. Halmi, J. J. Lopez-Ibor, & N. Sartorius (Eds.), Eating Disorders (pp. 383-396). Chichester: John Wiley and Sons.
5. Crow, S. J., & Nyman, J. A. (2004). The cost-effectiveness of anorexia nervosa treatment. International Journal of Eating Disorders, 35, 155-160.
6. de Zwaan, M., Lancaster, K. L., Mitchell, J. E., Howell, L. M., Monson, N., Roerig, J. L., & Crosby, R. D. (2002). Health-related quality of life in morbidly obese patients: effect of gastric bypass surgery. Obesity Surgery, 12, 73-780.
7. Doll, H. A., Petersen, S. E., & Stewart-Brown, S. L. (2005). Eating disorders and emotional and physical well-being: Associations between student self-reports of eating disorders and quality of life as measured by the SF-36. Quality of Life Research, 14, 705-717.
8. th edn. In C. G. Fairburn & G. T. Wilson (Eds), Binge eating: Nature, assessment and treatment (pp. 317 -360). New York: Guilford Press.
9. Fairburn, C. G., Cooper, Z., Doll, H., Norman, P., & O'Connor, M. (2000). The natural course of bulimia nervosa and binge eating disorder in young women. Archives of General Psychiatry, 57, 659-665.
10. Franko, D. L., Keel, P. K., Dorer, D. J., Biais, M. A., Delinsky, S. S., Eddy, K. T., et al. (2004). What predicts suicide attempts in women with eating disorders? Psychological Medicine, 34, 843-853.
11. Gonzalez-Pinto, A., Immaculada, F., Cristina, R., de Corres Blanca , F., Sonsoles, E., Fernando, R., et al. (2004). Purging behaviors and comorbidity as predictive factors of quality of life in anorexia nervosa. International Journal of Eating Disorders, 36, 445-450.
12. Guyatt, G. H., Feeny, D. H., & Patrick, D. L. (1993). Measuring Health-related Quality of Life. Annals of Internal Medicine, 118, 622-629.
13. Haby, M. H., Carter, R., Mihalopoulos, C., Magnus, A., Sanderson, K., Andrews, G., et al. (2004). Assessing cost-effectiveness - Mental Health: Introduction to the study and methods. Australian and New Zealand Journal of Psychiatry, 38, 569-578.
14. Hawthorne, G., Richardson, J., & Osborne, R. (1999). The Assessment of Quality of Life (AQoL) instrument: A psychometric measure of health-related quality of life. Quality of Life Research, 8, 209-224.
15. Hay, P. J. (2003). Quality of life and bulimic eating disorder behaviours. International Journal of Eating Disorders, 33, 434-442.
16. Hay, P. J., & Fairburn, C. G. (1998). The validity of the DSM-IV scheme for classifying bulimic eating disorders. International Journal of Eating Disorders, 23, 7-15.
17. Hay, P. J., Marley, J., & Lemar, S. (1998). Covert eating disorders. Primary Care Psychiatry, 4, 95-99.
18. Harris, E. C., & Barraclough, B. (1998). Excess mortality of mental disorder. British Journal of Psychiatry, 173, 11-53.
19. Herzog, D. B., Norman, D. K., Rigotti, N. A., & Pepose, M. (1986). Frequency of bulimic behaviours and associated social maladjustment in female graduate students. Journal of Psychiatric Research, 20, 335-361.
20. Hsu, L. K. G., Mulliken, B., McDonagh, B., Das, S. K., Rand, W., Fairburn, C. G., et al. (2002). Binge eating disorder in extreme obesity. International Journal of Obesity, 26, 1398-1403.
21. Hunt, S. M., McKenna, S. P., & McEwen, J. (1981). The Nottingham Health Profile: Subjective health status and medical consultations. Social Science and Medicine A, 15, 221-229.
22. Johnson, J. G., Spitzer, R. L., & Williams, J. W. B. (2001). Health problems, impairment and illnesses associated with bulimia nervosa and binge eating disorder among primary care and obstetric gynaecology patients. Psychological Medicine, 31, 1455-1466.
23. Keel, P. K., & Mitchell, J. E. (1997). Outcome in bulimia nervosa. American Journal of Psychiatry, 154, 313-321.
24. Keel, P. K., Dorer, D. J., Eddy, K. Y., Franko, D, Charatan, D. L., & Herzog, D. B. (2003). Predictors of mortality in eating disorders. Archives of General Psychiatry, 60, 179-183.
25. Keilen, M., Treasure, T., Schmidt, U., & Treasure, J. (1994). Quality of life measurements in eating disorders, angina, and transplant candidates: Are they comparable? Journal of the Royal Society of Medicine, 87, 441-444.
26. Kolotkin, R. L., Crosby, R. D., Kosloski, K. D., & Williams, G. R. (2001). Development of a brief measure to assess quality of life in obesity. Obesity Research, 9, 102-111.
27. Kolotkin, R. L., Crosby, R. D., & Williams, G. R. (2002). Health-related quality of life varies among obese subgroups. Obesity Research, 10, 748-756.
28. Kolotkin, R. L., Westman, E. C., Østbye, T., Crosby, R. D., Eisenson, H. J., & Binks, M. (2004). Does binge eating disorder impact on weight-related quality of life? Obesity Research, 12, 999-1005.
29. Krauth, C., Buser, K., & Vogel, H. (2002). How high are the costs of eating disorders - anorexia nervosa and bulimia nervosa - for German society? European Journal of Health Economics, 3, 244-250.
30. Marchesini, G., Natale, S., Chierici, S., Manini, R., Besteghi, L., Domizio, S. D., et al. (2002). Effects of cognitive-behavioural therapy on health-related quality of life in obese subjects with and without binge eating disorder. International Journal of Obesity, 26, 1261-1267.
31. Marquis, P., Chassany, O., & Abetz, L. (2004). A comprehensive strategy or the interpretation of quality-of-life data based on existing methods. Value in Health, 7, 93-104.
32. Masheb, R. M., & Grilo, C. M. (2004). Quality of life in patients with binge eating disorder. Eating and Weight Disorders, 9, 194-199.
33. Mathers, C., Vos, T., & Stevenson, C. (1999). The burden of disease and injury in Australia. Canberra: Australian Institute of Health and Welfare.
34. Meads, C, Gold, L., Burls, A., & Jobanputra, P. (1999). In-patient versus out-patient care for eating disorders. Department of Public Health and Epidemiology, West Midlands Development and Evaluation Service Report number 17.
35. Mitchell, J. E., Hatsukami, D., Eckert, E. D., & Pyle, R. L. (1985). Characteristics of 275 patients with bulimia. American Journal of Psychiatry, 142, 482-485.
36. Mond, J. M., Rodgers, B., Hay, P. J., Korten, A., Owen, C., & Beumont, P. J. V. (2004a). Disability associated with community cases of commonly occurring eating disorders. Australian and New Zealand Journal of Public Health, 28, 246-251.
37. Mond, J. M., Hay, P. J., Rodgers, B., Owen, C., & Beumont, P. J. V. (2004b). Beliefs of women concerning the severity and prevalence of bulimia nervosa. Social Psychology and Psychiatric Epidemiology, 39, 299-304.
38. Mond, J. M., Hay, P. J., Rodgers, B., Owen, C., & Beumont, P. J. V. (2005). Assessing quality of life in eating disorder patients. Quality of Life Research, 14, 171-178.
39. NICE (2004). Eating disorders. London: NICE Clinical Guideline no 9. Available at: www.nice.org.uk.
40. Nielsen, S., Moller-Madsen, S., Isager, T. Jorgensen, J., Pagsberg, K., & Theander, T. (1998). Standardized mortality in eating disorders - a quantitative summary of previously published and new evidence. Journal of Psychosomatic Research, 44, 413-434.
41. Norman, D. K., & Herzog, D. B. (1986). A 3-year outcome study of normal-weight bulimia: assessment of psychosocial function and eating disorders. Psychiatry Research, 19, 199-205.
42. Padierna, A., Quintana, J. M., Arostegui, I., Gonzalez, N., & Horcajo, J. (2000). The health-related quality of life in eating disorders. Quality of Life Research, 9, 667-674.
43. Padierna, A., Quintana, J. M., Arostegui, I., Gonzalez, N., & Horcajo, J. (2002). Changes in health-related quality of life among patients treated for eating disorders. Quality of Life Research, 11, 545-552.
44. Pais-Ribeiro, J. L. (2004). Quality of life is a primary end-point in clinical settings. Clinical Nutrition, 23, 121-130.
45. Pike, K. E., Loeb, K., & Walsh, B. T. (1995). Binge eating and purging. In D. B. Allison (Ed.), Handbook of assessment methods for eating behaviours and weight-related problems. Measures, theory, and research (pp. 303-329). Thousand Oaks, CA: Sage Publications.
46. Revicki, D. A., Osoba, D., Faiclough, D., Barofsky, I., Berzon, R., Leidy, N. K., et al. (2000). Recommendations on health-related quality of life research to support labelling and promotional claims in United States. Quality of Life Research, 9, 887-900.
47. Santonastaso, P., Saccon, D., & Favaro, A. (1997). Burden and psychiatric symptoms on key relatives of patients with eating disorders: A preliminary study. Eating and Weight Disorders, 2, 44-48.
48. Spitzer, R. L., Kroenke, K., & Williams, J. B. W. (1994). Utility of a new procedure for diagnosing mental disorders in primary care: the PRIME-MD 1000 Study. Journal of the American Medical Association, 274, 1511-1517.
49. Spitzer, R. L., Kroenke, K., Linzer, M., Hahn, S. R., Williams, J. B. W., deGruy, F. V., et al. (1995). Health-related quality of life in primary care patients with mental disorders. Results from the Prime-MD 1000 study. Journal of the American Medical Association, 274, 1511-1517.
50. Stewart, A. L., Hays, R. D., & Ware, J. E. (1988). The MOS Short-Form general health survey: Reliability and validity in a patient population. Medical Care, 26, 724-732.
51. Steinhausen, H-C. (2002). The outcome of anorexia nervosa in the 20th Century. American Journal of Psychiatry, 159, 1284-1293.
52. Stolk, E. A., & Buschbach, J. J. V. (2003). Validity and feasibility of the use of condition-specific outcome measures in economic evaluation. Quality of Life Research, 12, 363-371.
53. Striegel-Moore, R. H., Dohm, F.-A., Kraemer, H. C., Schreiber, G. B., Crawford, P. B., & Daniels, S. R. (2005). Health services use in women with a history of bulimia nervosa or binge eating disorder. International Journal of Eating Disorders, 37, 11-18.
54. Treasure, J., Murphy, T., Szmulker, G., Todd, G., Gavan, K., & Joyce, J. (2001). The experience of caregiving for severe mental illness: a comparison between anorexia nervosa and psychosis. Social Psychiatry and Psychiatric Epidemiology, 36, 343-347.
55. Vos, T., & Begg, S. (2000). The Victorian Burden of Disease Study: Morbidity. Melbourne: Public Health and Development Division, Department of Human Services.
56. Ware, J. E., Snow, K. K., Kosinski, M., & Gandek, B. (1993). SF-36 Health survey, manual and interpretation guide. Boston: Health Institute, New England Medical Center.
57. Ware, J. E., Kosinski, M., & Keller, S. D. (1996). A 12-item short-form health survey: Construction of scales and preliminary tests of reliability and validity. Medical Care, 34, 220-233.
58. WHOQOL Group (1998). Development of the World Health Organisation WHOQOL-BREF Quality of Life Assessment. Psychological Medicine, 28, 551-558.
59. Wilson, I. B., & Cleary, D. C. (1995). Linking clinical variables with health related quality of life. Journal of the American Medical Association, 273, 59-65.
60. World Health Organization (WHO). (1992). The ICD-10 classification of mental and behavioural disorders. Clinical descriptions and diagnostic guidelines. Geneva: WHO.