Relationship matters in dementia caregiving

American Journal of Alzheimer's Disease and other Dementias

Volumn 20, Issue 6, 2005, Pages 341-347

  Lewis, Marsha L ^a   Hepburn, Kenneth ^a   Narayan, Suzanne ^b   Kirk, Laura Nelson ^a  

^a UNIVERSITY OF MINNESOTA   (United States)

^b METROPOLITAN STATE UNIVERSITY   (United States)

Author keywords

Dementia; Intervention; Spouse caregiving; Stress

Indexed keywords

ADULT; AGED; ANALYSIS OF VARIANCE; ARTICLE; CAREGIVER; DEMENTIA; DISTRESS SYNDROME; FEMALE; HUMAN; HUMAN RELATION; INTERVIEW; MAJOR CLINICAL STUDY; MALE; SCORING SYSTEM; SPOUSE; STANDARDIZATION; STRESS; WELLBEING;

ADAPTATION, PSYCHOLOGICAL; AGED; ANALYSIS OF VARIANCE; CAREGIVERS; COHORT STUDIES; DEMENTIA; FAMILY RELATIONS; FEMALE; HUMANS; INTERVIEWS; MALE; MODELS, PSYCHOLOGICAL; ROLE; SPOUSES; STRESS, PSYCHOLOGICAL;

EID: 29744456784     PISSN: 15333175     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (53)

1. Burton LC, Zdaniuk B, Schulz R, et al.: Transitions in spousal caregiving. Gerontologist. 2003; 43(2): 230-241.
2. George LK, Gwyther LP: Caregiver well-being: A multidimensional examination of family caregivers of demented adults. Gerontologist. 1986; 26(3): 253-259.
3. Haley WE, Levine EG, Brown SL, et al.: Psychological, social, and health consequences of caring for a relative with senile dementia. J Am Geriatr Soc. 1987; 35(5): 405-411.
4. Pruchno RA, Potashnik SL: Caregiving spouses. Physical and mental health in perspective. J Am Geriatr Soc. 1989; 37(8): 697-705.
5. Schulz R, Beach SR: Caregiving as a risk factor for mortality: The Caregiver Health Effects Study. JAMA. 1999; 282(23): 2215-2219.
6. Schulz R, Martire LM: Family caregiving of persons with dementia: Prevalence, health effects, and support strategies. Am J Geriatr Psychiatry. 2004; 12(3): 240-249.
7. Schulz R, O'Brien AT, Bookwala J, et al.: Psychiatric and physical morbidity effects of dementia caregiving: Prevalence, correlates, and causes. Gerontologist. 1995; 35(5): 691-695.
8. Wright LK, Clipp EC, George LK: Health consequences of caregiver stress. Med Exerc Nutr Health. 1993; 2: 181-195.
9. Archbold PG, Stewart BJ, Greenlick MR, et al.: Mutuality and preparedness as predictors of caregiver role strain. Res Nurs Health. 1990; 13(6): 375-384.
10. Bedard M, Molloy DW, Pedlar D, et al.: 1997 IPA/Bayer Research Awards in Psychogeriatrics. Associations between dysfunctional behaviors, gender, and burden in spousal caregivers of cognitively impaired older adults. Int Psychogeriatr. 1997; 9(3): 277-290.
11. Connell CM, Janevic MR, Gallant MP: The costs of caring: Impact of dementia on family caregivers. J Geriatr Psychiatry Neurol. 2001; 14(4): 179-187.
12. Ford GR, Goode KT, Barrett JJ, et al.: Gender roles and caregiving stress: An examination of subjective appraisals of specific primary stressors in Alzheimer's caregivers. Aging Mental Health. 1997; 1: 158-165.
13. Gaugler JE, Davey A, Pearlin LI, et al.: Modeling caregiver adaptation over time: The longitudinal impact of behavior problems. Psychol Aging. 2000; 15(3): 437-450.
14. Graftstrom M, Fratiglioni L, Winblad B: Caring for an elderly person: Predictors of burden in dementia care. Int J Geriatr Psychiatry. 1994; 9: 373-379.
15. Kinney JM, Stephens MA: Hassles and uplifts of giving care to a family member with dementia. Psychol Aging. 1989; 4(4): 402-408.
16. Marin DB, Dugue M, Schmeidler J, et al.: The Caregiver Activity Survey (CAS): Longitudinal validation of an instrument that measures time spent caregiving for individuals with Alzheimer's disease. Int J Geriatr Psychiatry. 2000; 15(8): 680-686.
17. Martinson IM, Chesla C, Muwaswes M: Caregiving demands of patients with Alzheimer's disease. J Community Health Nurs. 1993; 10(4): 225-232.
18. Schneider J, Murray J, Banerjee S, et al.: EUROCARE: A cross-national study of co-resident spouse carers for people with Alzheimer's disease: 1-Factors associated with carer burden. Int J Geriatr Psychiatry. 1999; 14(8): 651-661.
19. Teri L: Behavior and caregiver burden: Behavioral problems in patients with Alzheimer disease and its association with caregiver distress. Alzheimer Dis Assoc Disord. 1997; 11 Suppl 4: S35-S38.
20. Whitlatch CJ, Feinberg LF, Stevens EJ: Predictors of institutionalization for persons with Alzheimer's disease and the impact on family caregivers. J Mental Health Aging. 1999; 5: 275-288.
21. Lazarus RS, Folkman S: Stress, Appraisal, and Coping. New York: Springer Publishing Company, 1984.
22. Pearlin LI, Mullan JT, Semple SJ, et al.: Caregiving and the stress process: An overview of concepts and their measures. Gerontologist. 1990; 30(5): 583-594.
23. Barusch AS: Problems and coping strategies of elderly spouse caregivers. Gerontologist. 1988; 28(5): 677-685.
24. Barusch AS, Spaid WM: Gender differences in caregiving: Why do wives report greater burden? Gerontologist. 1989; 29(5): 667-676.
25. Askam J: Making sense of dementia: Carers' perceptions. Aging Soc. 1995; 15: 103-114.
26. Morgan DG, Laing GP: The diagnosis of Alzheimer's disease: Spouse's perspectives. Qual Health Res. 1991; 1(3): 370-387.
27. Motenko AK: The frustrations, gratifications, and well-being of dementia caregivers. Gerontologist. 1989; 29(2): 166-172.
28. Farran CJ, Keane-Hagerty E, Salloway S, et al.: Finding meaning: An alternative paradigm for Alzheimer's disease family caregivers. Gerontologist. 1991; 31(4): 483-489.
29. Paun O: Female Alzheimer's patient caregivers share their strength. Holist Nurs Pract. 2004; 18(1): 11-17.
30. Quayhagen MP, Quayhagen M: Discovering life quality in coping with dementia. West J Nurs Res. 1996; 18(2): 120-135.
31. Mahoney DF: Vigilance: Evolution and definition for caregivers of family members with Alzheimer's disease. J Gerontol Nurs. 2003; 29(8): 24-30.
32. Tebb S, Jivanjee P: Caregiver isolation: An exological model. J Gerontol Soc Work. 2000; 34(2): 51-72.
33. Sanders S, Morano C, Corley CS: The expressions of loss and grief among male caregivers of individuals with Alzheimer's disease. J Gerontol Soc Work. 2002; 39(4): 3-18.
34. Farran CJ: Theoretical perspectives concerning positive aspects of caring for elderly persons with dementia: stress/adaptation and existentialism. Gerontologist. 1997; 37(2): 250-256.
35. Narayan S, Lewis M, Tornatore J, et al.: Subjective responses to caregiving for a spouse with dementia. J Gerontol Nurs. 2001; 27(3): 19-28.
36. LaRossa R, Reitzes DC: Symbolic interactionism and family studies. In: Boss PG, Doherty WJ, LaRossa R, et al. (Eds.): Sourcebook of Family Theories and Methods: A Contextual Approach. New York: Plenum Press, 1993: 135-166.
37. Lincoln YS, Guba EG: Naturalistic Inquiry. Newbury Park, CA: Sage Publications, 1985.
38. Hepburn K, Lewis ML, Narayan S, et al.: Discourse-derived perspectives: Differentiating among spouses' experiences of caregiving. Am J Alzheimers Dis Other Demen. 2002; 17(4): 213-226.
39. Folstein MF, Folstein SE, McHugh PR: "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res. 1975; 12(3): 189-198.
40. Zarit SH, Orr NK, Zarit JM: The Hidden Victims of Alzheimer's Disease. New York: New York University Press, 1985.
41. Resources for Enhancing Alzheimer's Caregiver Health (REACH): Description and Rationale of REACH Core Measures. Pittsburgh, PA: University Center for Social and Urban Research, University of Pittsburgh, 1998.
42. Ware JE Jr., Kosinski M, Bayliss MS, et al.: Comparison of methods for the scoring and statistical analysis of SF-36 health profile and summary measures: Summary of results from the Medical Outcomes Study. Med Care. 1995; 33(4 Suppl): AS264-AS279.
43. Jenkinson C, Coulter A, Wright L: Short form 36 (SF36) health survey questionnaire: Normative data for adults of working age. BMJ. 1993; 306(6890): 1437-1440.
44. Radloff LS. The CES-D scale: A self-report depression scale for research in the general population. Appl Psychol Meas. 1977; 1: 385-401.
45. Spielberger CD, Gorsuch RL, Lushene PR, et al.: State-Trait Anxiety Inventory for Adults (STAIS-AD) Manual. Palo Alto, CA: Consulting Psychologists Press, 1983.
46. Bradburn NM: The Structure of Psychological Well-Being. Chicago: Aldine Publishing, 1969.
47. Himmelfarb S, Murrell SA: Reliability and validity of five mental health scales in older persons. J Gerontol. 1983; 38(3): 333-339.
48. Hepburn KW, Lewis M, Narayan S, et al.: Partners in caregiving: A psychoeducational program affecting dementia family caregivers' distress and caregiving outlook. Clin Gerontol. In press.
49. Lawrence RH, Tennstedt SL, Assmann SF: Quality of the caregiver-care recipient relationship: Does it offset negative consequences of caregiving for family caregivers? Psychol Aging. 1998; 13(1): 150-158.
50. Jang Y, Clay OJ, Roth DL, et al.: Neuroticism and longitudinal change in caregiver depression: Impact of a spouse-caregiver intervention program. Gerontologist. 2004; 44(3): 311-317.
51. Williamson GM, Shaffer DR: Relationship quality and potentially harmful behaviors by spousal caregivers: How we were then, how we are now. The Family Relationships in Late Life Project. Psychol Aging. 2001; 16(2): 217-226.
52. Mittelman MS, Ferris SH, Shulman E, et al.: A family intervention to delay nursing home placement of patients with Alzheimer disease: A randomized controlled trial. JAMA. 1996; 276(21): 1725-1731.
53. McCurry SM, Gibbons LE, Logsdon RG, et al.: Training caregivers to change the sleep hygiene practices of patients with dementia: The NITE-AD project. J Am Geriatr Soc 2003; 51(10): 1455-1460.