The ethics of end-of-life research

Journal of Pain and Palliative Care Pharmacotherapy

Volumn 18, Issue 1, 2004, Pages 71-78

  Fine, Perry G ^a,b,c  

^a UNIVERSITY OF UTAH HEALTH SCIENCES CENTER   (United States)

^b VistaCare   (United States)

^c UNIVERSITY OF UTAH   (United States)

Author keywords

End of life; Ethics; Palliative care; Research

Indexed keywords

CLINICAL RESEARCH; COMPETENCE; CONFERENCE PAPER; DECISION MAKING; HUMAN; INFORMED CONSENT; MEDICAL ETHICS; PALLIATIVE THERAPY; PATIENT RIGHT; PRACTICE GUIDELINE; STANDARD; TERMINAL CARE;

EID: 2942623746     PISSN: 15360288     EISSN: None     Source Type: Journal    
DOI: 10.1080/J354v18n01_06     Document Type: Conference Paper

References (9)

1. Committee on Care at the End of Life. Approaching Death: Improving Care at the End of Life. Field MJ, Cassel CK, eds. National Academy Press, Washington, DC, 1997.
2. National Cancer Policy Board. Improving Palliative Care for Cancer. Foley KM, Gelbrand H, eds. National Academy Press, Washington, DC, 2001.
3. Casarett DJ, Knebel A, Helmers K. Ethical challenges of palliative care research. J Pain Symptom Manage 2003; 25(4):S3-S5.
4. Casarett DJ. Assessing decision-making capacity in the setting of palliative care research. J Pain Symptom Manage 2003; 25(4):S6-S13.
5. Karlawish JHT. Conducting research that involves subjects at the end of life who are unable to give consent. J Pain Symptom Manage 2003; 25(4):S14-S24.
6. Agrawal M. Voluntariness in clinical research at end of life. J Pain Symptom Manage 2003; 25(4):S25-S32.
7. Daly BJ, Rosenfeld K. Maximizing benefits and minimizing risks in health services research near the end of life. J Pain Symptom Manage 2003; 25(4):S33-S42.
8. Koenig BA, Back AL, Crawley LM. Qualitative methods in end-of-life research: Recommendations to enhance the protection of human subjects. J Pain Symptom Manage 2003; 25(4):S43-S52.
9. Fine PG. Maximizing benefits and minimizing risks in palliative care research that involves patients near the end of life. J Pain Symptom Manage 2003; 25(4):S53-S62.