Mothers of children with acquired disabilities: Using the subjective voice to inform parent/professional partnership

Omega: Journal of Death and Dying

Volumn 51, Issue 1, 2005, Pages 17-31

  Konrad, Shelley Cohen ^a  

^a UNIVERSITY OF NEW ENGLAND   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 29144438074     PISSN: 00302228     EISSN: 15413764     Source Type: Journal    
DOI: 10.2190/6DGR-JRM1-1E84-1HE9     Document Type: Article

References (30)

1. Adams, N. (1996). Positive outcomes in families following traumatic brain injury (TBI). Australian and New Zealand Journal of Family Therapy, 12(2), 75-84.
2. Anderson, H., & Goolishian, H. (1992). The client is the expert: A not-knowing approach to therapy. In S. McNamee & K. J. Gergen (Eds.), Therapy as social construction (pp. 25-39). Thousand Oaks, CA: Sage Publications.
3. Banja, J. D. (1992). Tragedy and traumatic brain injury. Journal of Head Trauma Rehabilitation, 7(4), 112-114.
4. Burack-Weiss, A. (1995). The caregiver's memoir: A new look at family support. Social Work, 40(3), 391-396.
5. Collins, B., & Collins, T. (1990). Parent-professional relationships in the treatment of seriously emotionally disturbed children and adolescents. Social Work, 35(6), 522-527.
6. DeChillo, N., Koren, P. E., & Schultze, K. H. (1994). From paternalism to partnership: Family and professional collaboration in children's mental health. American Journal of Orthopsychiatry, 64(4), 564-576.
7. Epston, D. (1999). Co-research: The making of alternative knowledge. In Dulwich Centre Publications, Narrative therapy and community work (pp. 137-149). Adelaide, Australia: Cuther.
8. Fine, M. (1998). Working the hyphens: Reinventing self and other in qualitative research. In N. K. Denzin & Y. S. Lincoln (Eds.), The landscape of qualitative research (pp. 130-155). Thousand Oaks, CA: Sage Publications.
9. Florian, V., & Findler, L. (2000). Mental health and marital adaptation among mothers of children with cerebral palsy. American Journal of Orthopsychiatry, 71(3), 358-367.
10. Garwick, A. W., Kohrman, C. H., Titus, J. C., Wolman, C., & Blum, R. W. (1999). Variations in families' explanations of childhood chronic conditions: A cross-cultural perspective. In H. I. McCubbin, B. A. Thompson, A. I. Thompson, & J. A. Futrell, (Eds.), The dynamics of resilient families (pp. 166-202). Thousand Oaks, CA: Sage Publications.
11. Green, S. A. (2003). They are beautiful and they are ours: Swapping tales of mothering children with disabilities through interactive interviews. Journal of Loss and Trauma, 8(1), 1-14.
12. Jessop, D. J., Reissman, C. K., & Stein, R. E. K. (1988). Chronic childhood illness and maternal mental health. Journal of Developmental and Behavioral Pediatrics, 9(3), 147-156.
13. Johnson, H. C., Renaud, E. F., Schmidt, D. T., & Stanek, E. J. (1998). Social workers' views of parents of children with mental and emotional disabilities. Families in Sociely: The Journal of Contemporary Human Services, 79(2), 173-185.
14. Kazak, A. (1989). Families of chronically ill children: A systems and social-ecological model of adaptation and challenge. Journal of Consulting and Clinical Psychology, 57(1), 25-30.
15. Kruger, S. (1992). Parents in crisis: Helping them cope with a seriously ill child. Journal of Pediatric Nursing, 7(2), 133-140.
16. Krumer-Nevo, M. (2002). The arena of othering: A life-story study with women living in poverty and social marginality. Qualitative Social Work, 1(3), 303-318.
17. Lawoko, S., & Soares, J. J. F. (2002). Distress and hopelessness among parents of children with congenital heart disease, parents of children with other diseases, and parents of healthy children. Journal of Psychosomatic Research, 52, 193-208.
18. Manuel, J. (2001). Risk and resilience in the adaptation in mothers of children with juvenile rheumatoid arthritis. Journal of Pediatric Psychology, 26(4), 237-246.
19. McCubbin, M. A., & McCubbin, H. I. (1993). Families coping with illness: The resiliency model of family stress, adjustment & adaptation. In C. B. Danielson, B. Hamel-Bissell, & P. Winstead-Fry (Eds.), Families, health & illness (pp. 21-63). St. Louis: Mosby.
20. Moos, R. H., & Schaefer, J. (1986). Life transitions and crisis. In R. H. Moos (Ed.), Coping with life crisis (pp. 3-33). New York: Plenum Medical Book Co.
21. Perrin, B. C., Lewkowiez, C., & Young, M. H. (2000). Shared visions: Concordance among fathers, mothers, and pediatricians about unmet needs of children with chronic health conditions. Pediatrics, 105(1), 277-285.
22. Rolland, J. S. (1994). Families, illness and disability: An integrative treatment model. New York: Basic Books.
23. Saleeby, D. (2002). The strengths perspective in social work practice. Boston: Allyn and Bacon.
24. Secrest, J. (2000). Transformation of the relationship: The experience of primary support persons of stroke survivors. Rehabilitation Nursing 25(3), 93-99.
25. Thernstrom, M. (2004, April 18). The writing cure: Can understanding narrative make you a better doctor? The New York Times Magazine, 42-47.
26. Thompson, S. C., & Janigian, A. S. (1988). Life schemes: A framework for understanding the search for meaning. Journal of Social and Clinical Psychology, 7(2/3), 260-280.
27. Thorne, S. E., & Robinson, C. A. (1988). Health care relationships: The chronic illness perspective. Research in Nursing and Health, 11, 293-300.
28. Tunali, B., & Power, T. G. (2002). Coping by redefinition: Cognitive appraisals in mothers of children with autism and children without autism. Journal of Autism and Developmental Disorders, 32(1), 25-34.
29. West, P. (1990). The status and validity of accounts obtained at interview: A contrast between two studies of families with a disabled child. Social Science and Medicine, 30(11), 1229-1239.
30. Wikler, L., Wasow, M., & Hatfield, E. (1983, July/August). Seeking strengths in families of developmentally disabled children. Social Work, 313-315.