Do support groups help people with chronic fatigue syndrome and fibromyalgia? A comparison of active and inactive members

Journal of Rheumatology

Volumn 32, Issue 12, 2005, Pages 2416-2420

  Friedberg, Fred ^a   Leung, Debbie W ^a   Quick, Joyce ^a  

^a STONY BROOK UNIVERSITY   (United States)

Author keywords

Chronic fatigue syndrome; Fibromyalgia; Stigmatization; Support groups

Indexed keywords

ADULT; ARTICLE; CHRONIC FATIGUE SYNDROME; CONTROLLED STUDY; DISEASE SEVERITY; FEMALE; FIBROMYALGIA; HEALTH CARE ORGANIZATION; HUMAN; INTERVIEW; MAJOR CLINICAL STUDY; MALE; PHYSICIAN; PRIORITY JOURNAL; QUESTIONNAIRE; SCORING SYSTEM; SUPPORT GROUP;

ADULT; CROSS-SECTIONAL STUDIES; FATIGUE SYNDROME, CHRONIC; FEMALE; FIBROMYALGIA; HUMANS; MALE; MIDDLE AGED; SELF EFFICACY; SELF-HELP GROUPS; SEVERITY OF ILLNESS INDEX;

EID: 28844449133     PISSN: 0315162X     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (33)

1. Jacobs MK, Goodman F. Psychology and self-help groups. Am Psychol 1989;44:536-45.
2. Subramaniam V, Stewart MW, Smith JF. The development and impact of a chronic pain support group: A qualitative and quantitative study. J Pain Symptom Management 1999;17:376-83.
3. Friedberg F, Jason LA. Understanding chronic fatigue syndrome: An empirical guide to assessment and treatment. Washington, DC: American Psychological Association; 1998.
4. Asbring P, Narvanen AL. Women's experiences of stigma in relation to chronic fatigue syndrome and fibromyalgia. Qual Health Res 2002;12:148-60.
5. Prins JB, Bos E, Huibers MJH, et al. Social support and the persistence of complaints in chronic fatigue syndrome. Psychother Psychosom 2004;73:174-82.
6. Davison KP, Pennebaker JW, Dickerson SS. Who talks? The social psychology of illness support groups. Am Psychol 2000;55:205-17.
7. Cole SW, Kemeny ME, Taylor, SE, Visscher BR. Elevated health risk among gay men who conceal their homosexual identity. Health Psychol 1999;15:243-51.
8. Pennebaker JW. Opening up: The healing power of expressing emotion. New York: Guilford Press; 1997.
9. Fordyce WE. Behavioral methods for chronic pain and illness. St. Louis: CV Mosby: 1976.
10. Ellis A. Using rational emotive behavior therapy techniques to cope with disability. Prof Psychol Res Pract 1997;28:17-22.
11. Prins JB, Bleijenberg G, Bazelmans E, et al. Cognitive behaviour therapy for chronic fatigue syndrome: a multicentre randomised controlled trial. Lancet 2001;357:841-7.
12. Bernard AL, Prince A, Edsall P Quality of life issues for fibromyalgia patients. Arthritis Care Res 2000;13:42-50.
13. Sharpe M, Hawton K, Simkin S, et al. Cognitive behavior therapy for the chronic fatigue syndrome: A randomized controlled trial. BMJ 1996;312:22-6.
14. Wilson A, Hickie I, Lloyd A, et al. Longitudinal study of outcome of chronic fatigue syndrome. BMJ 1994;308:756-9.
15. Vercoulen JH, Swanink CM, Fennis JF, Galama JM, van der Meer JW, Bleijenberg G. Dimensional assessment of chronic fatigue syndrome. J Psychosom Res 1994;38:383-92.
16. Prins, JB, Bleijenberg G, Bazelmans E, et al. Cognitive behavior therapy for chronic fatigue syndrome: a multicentre randomized controlled trial. Lancet 2001;357:841-7.
17. Moss-Morris R, Chalder T. Illness perceptions and levels of disability in patients with chronic fatigue syndrome and rheumatoid arthritis. J Psychosom Res 2003;55:305-8.
18. Culos-Reed SN, Brawley LR. Fibromyalgia, physical activity, and daily functioning: the importance of efficacy and health-related quality of life. Arthritis Care Res 2000;13:343-51.
19. Schmaling KB, Fiedelak JI, Katon WJ, Bader JO, Buchwald DS. Prospective study of the prognosis of unexplained chronic fatigue in a clinic-based cohort. Psychosom Med 2003;65:1047-54.
20. Forseth, KO, Husby, G, Gran, JT, Forre, O. Prognostic factors for the development of fibromyalgia in women with self-reported musculoskeletal pain. A prospective study. J Rheumatol 1999;26:2458-67.
21. Ray C, Jefferies S, Weir WR. Coping and other predictors of outcome in chronic fatigue syndrome: a 1-year follow-up. J Psychosom Res 1997;43:405-15.
22. Fitzcharles MA, Costa DD, Poyhia R. A study of standard care in fibromyalgia syndrome: a favorable outcome. J Rheumatol 2003;30:154-9.
23. Deale A, Chalder T, Wessely S. Illness beliefs and treatment outcome in chronic fatigue syndrome. J Psychosom Res 1998;45:77-83.
24. Taylor RA, Friedberg F, Jason LA. A clinician's guide to controversial illnesses. Chronic fatigue syndrome, fibromyalgia, and multiple chemical sensitivities. Clearwater, FL: Professional Resource Press; 2001.
25. Saltzstein BJ, Wyshak G, Hubbuch JT, Perry JC. A naturalistic study of the chronic fatigue syndrome among women in primary care. Gen Hosp Psychiatry 1998;20:307-16.
26. Petrie K, Moss-Morris R, Weinman J. The impact of catastrophic beliefs on functioning in chronic fatigue syndrome. J Psychosom Res 1995;39:31-7.
27. Wessely S, Sharpe M. Chronic fatigue syndrome and fibromyalgia. In: Mayou R, Bass C, Sharpe M, editors. Treatment of functional somatic syndromes. Oxford: Oxford University Press; 1995:285-312.
28. Ware NC, Kleinman A. Culture and somatic experience: the social course of illness in neurasthenia and chronic fatigue syndrome. Psychosom Med 1992;54:546-60.
29. Whiting P, Bagnall AM, Sowden AJ, Cornell JE, Mulrow CD, Ramirez R. Interventions for the management of chronic fatigue syndrome. A systematic review. JAMA 2001;286:1359-401.
30. Goldenberg DL, Burckhardt C, Crofford L. Management of fibromyalgia syndrome. JAMA 2004;292:2388-95.
31. Brady TJ, Kruger J, Helmick CG, Callahan LF, Boutaugh ML. Intervention programs for arthritis and other rheumatic diseases. Health Ed Behav 2003;30:44-63.
32. Kowarsky A, Glazier S. Development of skills for coping with arthritis: an innovative group approach. Arthritis Care Res 1997;10:121-7.
33. Lorig K, Mazonson PD, Holman HR. Evidence suggesting that health education for self-management in patients with chronic arthritis has sustained health benefits while reducing health care costs. Arthritis Rheum 1993;36:439-46.