Participatory research: A way to reduce vulnerability

American Journal of Bioethics

Volumn 4, Issue 3, 2004, Pages 67-68

  Justo, Luis ^a  

^a UNIVERSIDAD NACIONAL DEL COMAHUE   (Argentina)

Author keywords

[No Author keywords available]

Indexed keywords

BIOMEDICAL AND BEHAVIORAL RESEARCH; DEVELOPING COUNTRY; ETHICS; HUMAN; HUMAN EXPERIMENT; NOTE; PATIENT PARTICIPATION; RESEARCH ETHICS; RESEARCH SUBJECT; SOUTH AND CENTRAL AMERICA; VULNERABLE POPULATION;

BIOMEDICAL AND BEHAVIORAL RESEARCH;

DEVELOPING COUNTRIES; ETHICS, RESEARCH; HUMAN EXPERIMENTATION; HUMANS; LATIN AMERICA; PATIENT PARTICIPATION; RESEARCH SUBJECTS; VULNERABLE POPULATIONS;

EID: 28244439096     PISSN: 15265161     EISSN: 15360075     Source Type: Journal    
DOI: 10.1080/15265160490497119     Document Type: Note

References (11)

1. Baxter, L., L. Thorne, and A. Mitchell. 2001. Small voices, big noises. Lay involvement in health research: Lessons from other fields. Consumers in NHS Research, Exeter UK: Washington Singer Press.
2. Cornwall, A., H. Lucas, and K. Pasteur. 2000. Accountability through participation: Developing workable partnership models in the health sector. IDS Bulletin 31:1-13.
3. Freire, P. 1970. Pedagogía do oprimido (Pedagogy of the oppressed). Buenos Aires, Siglo XXI. New York: Herder & Herder.
4. Freire, P. 1996. Política e educaçao. México, Siglo XXI.
5. Hanley, B., A. Truesdale, A. King, et al. 2001. Involving consumers in designing, conducting, and interpreting randomised controlled trials: Questionnaire survey. British Medical Journal 322:519-523.
6. Joffe, S., E. Cook, P. Cleary, et al. 2001. Quality of informed consent in cancer clinical trials: A cross-sectional survey. Lancet 358:251.
7. Justo, L., F. Erazun, and J. Villarreal. 2002. Participatory research as a right: Possibility or utopia (La investigación participativa como derecho: Posibilidad o utopía)? Revista del Centro de Investigaciones Éticas, Argentina. Presented at the Latin American Forum of Research Ethics Committees, Brasilia.
8. Levine, C., R. Faden, C. Grady, D. Hammerschmidt, L. Eckenwiler, and J. Sugarman. 2004. The limitations of "vulnerability" as a protection for human research participants. The American Journal of Bioethics 4(3): 44-49.
9. O'Neill, O. 2000. Justice, gender and international boundaries. In Bounds of justice. Cambridge, UK: Cambridge University Press.
10. Robinson, E., C. Kerr, A. Stevens, et al. 2004. Lay conceptions of the ethical and scientific justifications for random allocation in clinical trials. Social Science & Medicine 58:811-824.
11. Waitzkin, H., C. Iriart, A. Estrada, et al. 2001. Social medicine then and now: Lessons from Latin America. American Journal of Public Health 91:1592-1601.