Disability statistics in the developing world: A reflection on the meanings in our numbers

Journal of Applied Research in Intellectual Disabilities

Volumn 18, Issue 4, 2005, Pages 295-304

  Fujiura, Glenn T ^a   Park, Hye J ^a   Rutkowski Kmitta, Violet ^a  

^a UNIVERSITY OF ILLINOIS AT CHICAGO   (United States)

Author keywords

Demography; Developing nations; Disability; Disability statistics; Epidemiology; International; Poverty

Indexed keywords

EID: 28044452441     PISSN: 13602322     EISSN: 14683148     Source Type: Journal    
DOI: 10.1111/j.1468-3148.2005.00268.x     Document Type: Conference Paper

References (72)

1. Abramowicz H. K. & Richardson S. A. (1975) Epidemiology of severe mental retardation in children: community studies. American Journal of Mental Deficiency 80, 18-39.
2. Albert B., McBride R. & Seddon D. (2002) Perspectives on Disability, Poverty, and Technology: A Report to Healthlink Worldwide and QIC Ltd. Overseas Development Group, University of East Anglia, Norwich.
3. Altman B. M. (2001) Disability definitions, models, classifications schemes, and applications. In: Handbook of Disability Studies (eds G. Albrecht, K. Seelman & M. Bury), pp. 97-122. Sage, Thousand Oaks, CA.
4. American Association on Mental Retardation (2002) Mental Retardation Definition, Classification, and Systems of Supports, 10th edn. AAMR, Washington, DC.
5. Australian Bureau of Statistics (2004) Disability, Ageing and Carers, Australia: Summary of Findings. Commonwealth of Australia, Canberra.
6. Australian Institute of Health and Welfare (2003) ICF Australian User Guide. Version 1.0. Disability Series. AIHW Cat. No. DIS 33. AIHW, Canberra.
7. Barnes C. & Mercer G. (1995) Disabled people and community participation. In: Community Participation and Empowerment (eds G. Craig & M. Mayo), pp. 46-59. Zed Books, London.
8. Beresford P. (1996) Poverty and disabled people: challenging dominant debates and policies. Disability and Society 11, 553-567.
9. Bickenbach J. E., Chatterji S., Badley E. M. & Ustun T. B. (1999) Models of disablement, universalism and the international classification of impairments, disabilities and handicaps. Social Science and Medicine 48, 1173-1187.
10. Bury M. (2000) Disability studies in developing countries: reaction. In: Presentation at the Disability Studies: A Global Perspective Conference, October, NIDRR, Washington, DC.
11. Campbell-Brown S. (2000) Programme Monitoring and Evaluation: the Disability Perspective in the Context of Development. United Nations, New York, NY. 11 November 2004 (http://www.un.org/esa/socdev/enable/monitor/).
12. Chamie M. (1989) Survey design strategies for the study of disability. World Health Statistics Quarterly 42, 122-140.
13. Chamie M. (1990) The status and use of the international classification of impairments, disabilities and handicaps (ICIDH). World Health Statistics Quarterly 43, 273-280.
14. Christianson A. L., Zwane M. E., Manga P., Rosen E., Venter A., Downs D. & Kromberg J. G. R. (2002) Children with intellectual disability in rural South Africa: prevalence and associated disability. Journal of Intellectual Disability Research 46, 179-186.
15. Dudzik P. A., Elwan A. & Metts R. L. (2002) Disability Policies, Statistics, and Strategies in Latin America and the Caribbean: A Review. Inter-American Development Bank, Washington, DC.
16. Durkin M. S., Hasan Z. M. & Hasan K. Z. (1998) Prevalence and correlates of mental retardation among children in Karachi, Pakistan. American Journal of Epidemiology 147, 281-288.
17. Durkin M. S., Khan N. Z., Davidson L. L., Huq S., Munir S., Rasul E. & Zarman S. S. (2000) Prenatal and postnatal risk factors for mental retardation among children in Bangladesh. American Journal of Epidemiology 152, 1024-1033.
18. Elwan A. (1999) Poverty and Disability: A Survey of the Literature. Social Protection Unit, World Bank, Washington, DC.
19. Emerson E. (2004) Poverty and children with intellectual disabilities in the world's richer countries. Journal of Intellectual and Developmental Disability 29, 319-338.
20. Escobar A. (1995) Encountering Development: the Making and Unmaking of the Third World. Princeton University Press, Princeton, NJ.
21. Fujiura G. T. (2003) The continuum of intellectual disability: demographic evidence for the 'forgotten generation'. Mental Retardation 41, 420-429.
22. Fujiura G. T. & Rutkowski-Kmitta V. (2001) Counting disability. In: Handbook of Disability Studies (eds G. Albrecht, K. Seelman & M. Bury), pp. 69-96. Sage, Thousand Oaks, CA.
23. Fujiura G. T. & Yamaki K. (2000) Trends in demography of childhood poverty and disability. Exceptional Children 66, 1-13.
24. Fujiura G. T., Yamaki K. & Czechowicz S. (1998) Disability among ethnic and racial minorities in the United States. Journal of Disability Policy Studies 9, 111-130.
25. Ganguli H. C. (2000) Epidemiological findings on prevalence of mental disorders in India. Indian Journal of Psychiatry 42, 14-20.
26. Grosh M. E. & Munoz J. (1996) A Manual for Planning and Implementing the LSMS Survey. World Bank, Washington, DC.
27. Harriss-White B. (2003) Staying Poor: Chronic Poverty and Development Policy. Oxford University Press, Oxford.
28. Helander E. (1993) Prejudice and Dignity, an Introduction to Community-based Rehabilitation. United Nations Development Program, New York, NY.
29. Hetzel B. S. (1993) The control of iodine deficiency. American Journal of Public Health 83, 494-495.
30. Hofrichter R. (2003) The politics of health inequities: contested terrain. In: Health and Social Justice : Politics, Ideology, and Inequity in the Distribution of Disease (ed R. Hofrichter), pp. 1-56. John Wiley and Sons, Inc., San Francisco, CA.
31. Hurley R. (1969) Poverty and Mental Retardation. Vintage Books, New York, NY.
32. Institute of Medicine (2001) Neurological, Psychiatric, and Developmental Disorders. National Academy Press, Washington, DC.
33. International Programs Center (2004) Global Population at a Glance: 2002 and Beyond (WP/02-1, 2004). US Bureau of the Census, Washington, DC.
34. Jenkins R. (1999) Cultural, classification, and (in)competence. In: Questions of Competence: Culture, Classification and Intellectual Disability (ed. R. Jenkins), pp. 1-24. Cambridge University Press, Cambridge.
35. Kelles-Viitanen A. (1999) Disability, Poverty Reduction and Social Development. Disability International, Asia-Pacific Region, 11. 9 November 2004 (http://www.independentliving.org/does1/dpidi2992.html)
36. Kendall M. G. & Stuart A. (1967) The Advanced Theory of Statistics, Vol. 2. Hafner Publication Company, New York, NY.
37. Landes D. S. (1998) The Wealth and Poverty of Nations: Why Some are so Rich Some so Poor. Norton, New York, NY.
38. Li A. L., Li L. M. & Qian Y. P. (1994) Preliminary analysis of factors causing mental retardation in China. Chinese Journal of Preventive Medicine 28, 284-286.
39. Livingston J. (2003) Pregnant children and half-dead adults: modern living and the quickening life-cycle in Botswana. Bulletin of the History of Medicine 77, 133-162.
40. Luckasson R., Coulter D. L., Polloway E. A., Reiss S., Schalock R. L., Snell M. E., Spitalnik D. M. & Stark J. (1992) Mental Retardation: Definition, Classification, and Systems of Supports. AAMR, Washington, DC.
41. Madans J. H., Altman B. M., Rasch E. K., Mbogoni M., Synneborn M., Banda J. & DePalma E. (2004) Washington Group Position Paper: Proposed Purpose of an Internationally Comparable General Disability Measure. United Nations Statistics Division, Washington Group on Disability Statistics, Washington, DC.
42. Marks D. (1999) Disability: Controversial Debates and Psychosocial Perspectives. Routledge, London.
43. Mbogoni M. (2002) Disability Census Questions, the Perspective of Developing Countries. United Nations Statistics Division, Washington Group on Disability Statistics, Washington, DC.
44. Mbogoni M. & Me A. (2002) Revising the United Nations Census Recommendations on Disability. United Nations Statistics Division, Washington Group on Disability Statistics, Washington, DC.
45. McConkey R. & O'Toole B. (1995) Innovations in Developing Countries for People with Disabilities. Brookes Publishing, Baltimore, MD.
46. McDougall J. & Miller L. T. (2003) Measuring chronic health condition and disability as distinct concepts in national surveys of school-aged children in Canada: a comprehensive review with recommendations based on the ICD-10 and ICF. Disability and Rehabilitation 25, 922-939.
47. McLaren J. & Bryson S. E. (1987) Review of recent epidemiological studies of mental retardation: prevalence, associated disorders, and etiology. American Journal on Mental Retardation 92, 245-254.
48. Metts R. L. (2000) Disability Issues, Trends and Recommendations for the World Bank. World Bank, Washington, DC.
49. Murray C. J. L. & Lopez A. D. (1996) The Global Burden of Disease: A Comprehensive Assessment of Mortality and Disability from Diseases, Injuries, and Risk Factors in 1990 and Projected to 2020. Harvard University Press, Cambridge, MA.
50. Murray C. J. L. & Lopez A. D. (1996a) Global and regional descriptive epidemiology of disability: incidence, prevalence, health expectancies and years lived with a disability. In: The Global Burden of Disease, Vol. 1 (eds C. J. L. Murray & A. D. Lopez), pp. 201-246. Harvard University Press, Cambridge, MA.
51. Paul T. J., Desai P. & Thornburn M. J. (1992) The prevalence of childhood disability and related medical diagnoses in Clarendon, Jamaica. West Indian Medical Journal 41, 8-11.
52. Priestly M. (2001) The global context of disability. In: Disability and the Life Course: Global Perspectives (ed. M. Priestly), pp. 3-14. Cambridge University Press, Cambridge.
53. Rantakallio P. & von Wendt L. (1986) Mental retardation and subnormality in a birth cohort of 12 000 children in Northern Finland. American Journal of Mental Deficiency 90, 380-387.
54. Savitz D. A., Poole C. & Miller W. C. (1999) Reassessing the role of epidemiology in public health. American Journal of Public Health 89, 1158-1161.
55. Schwartz S. & Carpenter K. M. (1999) The right answer for the wrong question: consequences of type III error for public health research. American Journal of Public Health 89, 1175-1180.
56. Statistics Canada (2001) Participation and Activity Limitation Survey - 2001. (http://www.statcan.ca/english/sdds/3251.htm#InfoSurvey).
57. United Nations (1975) General Assembly Resolution 3447 (XXX) of 9 December 1975. United Nations, New York, NY.
58. United Nations (1982) World Programme of Action Concerning Disabled Persons - United Nations Decade of Disabled Persons, 1982-1992. United Nations, New York, NY.
59. United Nations (1999) World Population Prospects: the 1998 Revision, Vol. 1. Population Division, Department for Economic and Social Affairs, New York, NY.
60. United Nations (2002) Implementation of the United Nations Millennium Declaration: Report of the General Secretary A/57/270. United Nations, New York, NY.
61. United Nations Statistics Division (2003) The Collection and Dissemination of Statistics on Disability at the United Nations Statistics Division: Proposals for the Future. United Nations, New York, NY.
62. United Nations Statistics Division (2004) World and Regional Trends: Data for Years Around 1990 and 2000. Millennium Indicators Database. 6 December 2004 (http://millenniumindicators.un.org/unsd/mi/mi_worldregn.asp).
63. Watson J. (1996) Genes and Politics. 1996 Annual Report. Cold Spring Harbor Laboratory, Cold Spring Harbor, NY.
64. Whyte S. R. & Ingstad B. (1995) Disability and culture: an overview. In: Disability and Culture (eds B. Ingstad & S. Whyte), pp. 3-32, University of California Press, Berkeley, CA.
65. Wilkins R. (2003) Labour Market Outcomes and Welfare Dependence of Persons with Disabilities in Australia. Melbourne Institute Working Paper No. 2/03. Institute of Applied Economic and Social Research, University of Melbourne, Melbourne, Vic.
66. Wolbring G. (2002) Science and technology and the triple D (disease, disability, defect). In: Converging Technologies for Improving Human Performance: Nanotechnology, Biotechnology, Information Technology and Cognitive Science (eds M. C. Roco & W. S. Bainbridge), pp. 232-243. National Science Foundation and US Department of Commerce, Arlington, VA.
67. World Health Organization (1981) Disability, Prevention and Rehabilitation. Technical Report Series No. 668. WHO, Geneva.
68. World Health Organization (1993) Micronutrient Deficiency Information System Project. Global Prevalence of Iodine Deficiency Disorders (MDIS Working Paper, No. 1). WHO, Geneva.
69. World Health Organization (2001) International Classification of Functioning, Disability and Health. WHO, Geneva.
70. World Health Organization (2003) International Consultation to Review Community-based Rehabilitation (CBR). WHO, Geneva.
71. World Health Organization (2004) WHO Global Database on Iodine Deficiency. WHO, Geneva.
72. Zola I. K. (1993) Disability statistics, what we count and what it tells us: a personal and political analysis. Journal of Disability Policy Studies 4, 9-39.