Caregiver knowledge and adherence in children with sickle cell disease: Knowing is not doing

Journal of Clinical Psychology in Medical Settings

Volumn 12, Issue 4, 2005, Pages 333-337

  Jensen, Scott A ^a   Elkin, David T ^a   Hilker, Kellie ^b   Jordan, Sara ^c   Iyer, Rathi ^a   Smith, Mary Gail ^a  

^a UNIVERSITY OF MISSISSIPPI SCHOOL OF MEDICINE   (United States)

^b KENNEDY KRIEGER INSTITUTE   (United States)

^c UNIVERSITY OF SOUTHERN MISSISSIPPI   (United States)

Author keywords

Adherence; Caregiver; Knowledge; Sickle cell

Indexed keywords

AGE; ARTICLE; AWARENESS; CAREGIVER; CHILD BEHAVIOR; CHILD CARE; CONTROLLED STUDY; FEMALE; HEALTH BEHAVIOR; HUMAN; MAJOR CLINICAL STUDY; MALE; MEDICAL INFORMATION; MEDICAL RESEARCH; PATIENT COMPLIANCE; PREDICTION; PRESCRIPTION; PRIORITY JOURNAL; QUESTIONNAIRE; SCHOOL CHILD; SCORING SYSTEM; SICKLE CELL ANEMIA;

EID: 27944468756     PISSN: 10689583     EISSN: None     Source Type: Journal    
DOI: 10.1007/s10880-005-7819-8     Document Type: Article

References (21)

1. I. Ajzen & M. Fishbein 1980 Understanding attitudes and predicting social behavior Prentice-Hall Engelwood Cliffs, NJ
2. A. Bandura 1986 Social learning theory Prentice-Hall Engelwood Cliffs, NJ
3. Barakat, L. P., Smith-Whitley, K., & Ohene-Frempong, K. (2002). Treatment adherence in children with sickle cell disease: Disease-related risk and psychosocial resistance factors. Journal of Clinical Psychology in Medical Settings 9 201-209. 10.1023/ A:1016047210623
4. Blessing-Moore, J. (1996). Does asthma education change behavior? To know is not to do. Chest 109 9-11. 8549226
5. Burroughs, T. E., Pontious, S. L., & Santiago, J. V. (1993). The relationship among six psychosocial domains, age, health care adherence and metabolic control in adolescent with IDDM. Diabetes Education 19 396-402.
6. Eraker, S. A., Kirscht, J. P., & Becker, M. H. (1984). Understanding and improving patient compliance. Annals of Internal Medicine 100 258-268. 6362512
7. Gil, K. M., Thompson, R. J., Keith, B. R., Tota-Faucette, M., Noll, S., & Kinney, T. R. (1993). Sickle cell disease pain in children and adolescents: Change in pain frequency and coping strategies over time. Journal of Pediatric Psychology 18 621-637. 8295083
8. Gil, K. M., Williams, D. A., Thompson, R. J., & Kinney, T. R. (1991). Sickle cell disease in children and adolescents: The relation of child and parent pain coping strategies to adjustment. Journal of Pediatric Psychology 16 643-663. 1744811
9. Hilker, K. A., Elkin, T. D., & Iyer, R. (2004). Development of a screening instrument of adherence in pediatric sickle cell disease Unpublished manuscript.
10. Hollingshead, A. B. (1975). A four-factor index of social status New Haven, CT: Yale University Sociology Department.
11. Hurtig, A., & Park, K. B. (1989). Adjustment and coping in adolescents with sickle cell disease. Annals of the New York Academy of Sciences 565 172-182. 2774423
12. Ievers-Landis, C. E., Brown, R. T., Drotar, D., Bunke, V., Lambert, R. G., & Walker, A. A. (2001). Situational analysis of parenting problems for caregivers of children with sickle cell syndromes. Developmental and Behavioral Pediatrics 22 (3), 169-178.
13. Johnson, S. B. (1994). Health behavior and health status: Concepts, methods, and applications. Journal of Pediatric Psychology 19 129-141. 8051598
14. Kyngäs, H. A., Kroll, T., & Duffy, M. E. (2000). Compliance in adolescents with chronic diseases: A review. Journal of Adolescent Health 26 379-388. 10.1016/S1054-139X(99)00042-7
15. La Greca, A. M., Follansbee, D., & Skyler, J. S. (1990). Developmental and behavioral aspects of diabetes management in youngsters. Children's Health Care 19 132-137.
16. Lemanek, K. L., Buckloh, L. M., Woods, G., & Butler, R. (1995). Diseases of the circulatory system: Sickle cell and hemophilia. In M. Roberts (Ed.), Handbook of pediatric psychology (2nd ed., pp. 286-309). New York: Guilford Press.
17. Rapoff, M. A. (1998). Adherence issues among adolescents with chronic disease. In S. A. Shumaker, E. B. Schron, J. K. Ockene, & W. L. McBee (Eds.), The handbook of health behavior change (2nd ed.). New York: Springer Publishing Company.
18. Rosenstock, I. M. (1974). Historical origins of the health belief model. Health Education Monographs 2 328-335.
19. M. D. Ris & R. Grueneich 2000 Sickle cell disease. In: K. Yeates M. Ris & H. Taylor (eds.) Pediatric neuropsychology: Research, theory, and practice Guilford Press New York pp. 320-335
20. Shumaker, S. A., Schron, E. B., Ockene, J. K., & McBee, W. L. (1998). The handbook of health behavior change (2nd ed.). New York: Springer Publishing Company.
21. Thompson, R. J., Gil, K. M., Burbach, D. J., Keith, B. R., & Kinney, T. R. (1993). Psychological adjustment of mothers of children and adolescents with sickle cell disease: The role of stress, coping methods, and family functioning. Journal of Pediatric Psychology 18 549-559. 8295079