Accessing Social Work Case Files for Research Purposes: Some Issues and Problems

Qualitative Social Work

Volumn 3, Issue 3, 2004, Pages 313-333

  Hayes, David ^a   Devaney, John ^a  

^a QUEEN'S UNIVERSITY BELFAST   (United Kingdom)

Author keywords

consent; data protection; documentary analysis

Indexed keywords

EID: 27544462626     PISSN: 14733250     EISSN: None     Source Type: Journal    
DOI: 10.1177/1473325004045667     Document Type: Article

References (58)

1. Adler, Patricia A. and Adler, Peter ( 2002 ) ‘ Do University Lawyers and the Police Define Research Values? ’, in Will C. Van den Hoonaard (ed.) Walking the Tightrope: Ethical Issues for Qualitative Researchers, pp. 34 - 42. Toronto: University of Toronto Press.
2. Altheide, David. L. ( 1996 ) Qualitative Media Analysis. Thousand Oaks, CA: Sage.
3. Altheide, David. L. and Johnson, John M. ( 1997 ) ‘ Qualitative Research as a Moral Discourse ’, in Gale Miller and Robert Dingwall (eds) Context and Method in Qualitative Research, pp. 172 - 184. London: Sage.
4. Beauchamp, Tom L. and Childress, James F. ( 2001 ) Principles of Biomedical Ethics: Fifth Edition. Oxford: Oxford University Press.
5. Breuer, Franz and Reichertz, Jo ( 2002 ) ‘ Standards of Social Research ’, Forum Qualitative Sozialforschum/Forum: Qualitative Social Research 2 ( 3 ), http://www.qualitative%20research.net/fqs-texte/3-01/3-01breuerreichertz-e.htm (consulted Dec. 2003).
6. Brewer, John ( 2000 ) Ethnography. Buckingham: Open University Press.
7. Bryman, Alan ( 2001 ) Social Research Methods. Oxford: Oxford University Press.
8. Butler, Ian ( 2002 ) ‘ A Code of Ethics for Social Work and Social Care Research ’, British Journal of Social Work 32 ( 2 ): 239 - 248.
9. Cockburn, Tom ( 2000 ) ‘ Case Studying Organisations: The Use of Quantitative Approaches ’, in Beth Humphries (ed.) Research in Social Care and Social Work, pp. 59 - 68. London: Jessica Kingsley.
10. Denscombe, Martyn ( 1998 ) The Good Research Guide: For Small-Scale Social Research Projects. Buckingham: Open University Press.
11. Denzin, Norman K. and Lincoln, Yvonna S. ( 2002 ) The Qualitative Inquiry Reader. Thousand Oaks, CA: Sage.
12. Department of Health ( 1995 ) Child Protection: Messages from Research. London: HMSO.
13. Department of Health ( 2001 ) Research Governance Framework for Health and Social Care. London: Department of Health.
14. Department of Health ( 2003 a) Isaacs Report: The Investigation of Events that Followed the Death of Cyril Mark Isaacs. London: The Stationery Office.
15. Department of Health ( 2003 b) Proposal to Revise Regulations Made Under Section 60 of the Health and Social Care Act 2001. London: Department of Health.
16. Department of Health Social Services and Public Safety for Northern Ireland ( 2002 ) Health and Personal Social Services: Protecting Personal Information: A Consultation Paper. Belfast: Department of Health Social Services and Public Safety.
17. Department of Health Social Services and Public Safety for Northern Ireland ( 2003 ) Health and Personal Social Services: Protecting Personal Information: Responses to a Consultation Paper. Belfast: Department of Health Social Services and Public Safety.
18. Derrida, Jacques ( 1976 ). Of Grammatology, trans. Gayatri Spivak. London: John Hopkins University Press.
19. Doyal, Len ( 1997 ) ‘ Informed Consent in Medical Research: Journals Should not Publish Research to Which Patients Have not Given Fully Informed Consent - With Three Exceptions ’, British Medical Journal 314 ( 7087 ): 1107 - 1111.
20. Fortune, Anne E. and Reid, William J. ( 1999 ) Research in Social Work: Third Edition. New York: Columbia University Press.
21. Fuller, Roger and Petch, Alison ( 1995 ) Practitioner Research: The Reflexive Social Worker. Buckingham: Open University Press.
22. Garfinkel, Howard ( 1967 ) Studies in Ethnomethodology, Englewood Cliffs, NJ: Prentice- Hall.
23. Gordon, Linda ( 1988 ) Heroes of Their Own Lives:The Politics and History of Family Violence: Boston 1880-1960. Champaign, IL: University of Illinois Press.
24. Guardian ( 2003 a) ‘ Q&A: Data Protection and the Police ’, (18 December), http://society.guardian.co.uk/children/story/0,1074,1109842,00.html (consulted Dec. 2003).
25. Guardian ( 2003 b) ‘ MPs Call for Legal Review after Couple’s Death ’, (23 December), http://society.guardian.co.uk/news/story/0,7838,1112256,00.html (consulted Dec. 2003).
26. Information Commissioner ( 2001 ) Data Protection Act 1998: Legal Guidance. Wilmslow: Office of the Information Commissioner.
27. Information Commissioner ( 2002 ) Use and Disclosure of Health Data: Guidance on the Application of the Data Protection Act 1998. Wilmslow: Office of the Information Commissioner.
28. International Statistical Institute ( 2002 ) Newsletter No. 76 26 ( 1 ), http://www.%20cbs.nl/isi/NLet021-01.htm (consulted Dec. 2003).
29. Khoo, Evelyn G., Hyvonen, Ulf and Nygren, Lennart ( 2002 ) ‘ Child Welfare or Child Protection: Uncovering Swedish and Canadian Orientations to Social Intervention in Child Maltreatment ’, Qualitative Social Work 1 ( 4 ): 451 - 471.
30. Knoppers, Bartha Maria ( 2000 ) ‘ Confidentiality of Health Information: International Comparative Approaches ’, in The National Academy of Sciences (ed.) Protecting Data Privacy in Health Services Research, pp. 173 - 186. Washington, DC: Division of Health Care Services, Institute of Medicine.
31. Luebke, David M. and Milton, Sybil ( 1994 ) ‘ Locating the Victim: An Overview of Census-Taking, Tabulation Technology and Persecution in Nazi Germany ’, IEEE Annals of the History of Computing 16 ( 3 ): 25 - 39.
32. Medical Research Council ( 2000 ) Personal Information in Medical Research. London: Medical Research Council.
33. Medical Research Council, Natural Sciences and Engineering Research Council and Social Sciences and Humanities Research Council ( 2002 ) Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans, http://www.pre.ethics.gc.ca/english/policystatement/policystatement.cfm (consulted Dec. 2003).
34. Miles, M. and Huberman, A. ( 1994 ) Qualitative Data Analysis: An Expanded Source Book: Second Edition. Thousand Oaks, CA: Sage.
35. Mill, John Stuart ( 1991 [1863] ) On Liberty and Other Essays. Oxford: Oxford University Press.
36. Mullan, Kenneth ( 2003 ) ‘ Supplementary Prescribing and Access to Medical Records: (2) Access Rights of Patients and Others ’, The Pharmaceutical Journal 271 ( July ): 24 - 26.
37. National Health Service Executive ( 2000 ) Report of a Review of the Research Framework in North Staffordshire Hospital National Health Service Trust. Birmingham: National Health Service Executive West Midlands Regional Office.
38. Niskanen, William A. ( 1973 ) Bureaucracy: Servant or Master? London: The Institute of Economic Affairs.
39. Padgett, D. ( 1998 ) Qualitative Methods in Social Work Research. Thousand Oaks, CA: Sage.
40. Preston-Shoot, Michael ( 2003 ) ‘ A Matter of Record ’, Practice 15 ( 3 ): 31 - 50.
41. Prior, Lindsay ( 2003 ) Using Documents in Social Research. London: Sage.
42. Reamer, Frederic G. ( 1998 ) Social Work Research and Evaluation Skills. New York: Columbia University Press.
43. Royal Liverpool Children’s Inquiry, The (2001) Report of an Inquiry. London: The Stationery Office.
44. Scott, John ( 1990 ) A Matter of Record: Documentary Sources in Social Research. Cambridge: Polity Press.
45. Seltzer, William and Anderson, Margo (2000) ‘ After Pearl Harbor. The Proper Role of Population Data Systems in Time of War ’, paper presented at Human Rights, Population Statistics and Demography: Threats and Opportunities, Los Angeles, 23-5 March., http://www.uwm.edu/%7Emargo/govstat/newpaa.pdf (consulted Dec. 2003).
46. Seltzer, William and Anderson, Margo (2002) ‘ NCES and the Patriot Act: An Early Appraisal of Facts and Issues ’, paper presented at the Joint Statistical Meetings, New York City, 10-15 August, http://www.uwm.edu/%7Emargo/govstat/jsm.pdf (consulted Dec. 2003).
47. Shaw, Ian F. ( 1996 ) Evaluating in Practice. Aldershot: Arena.
48. Shaw, Ian F. and Gould, Nick ( 2001 ) Qualitative Research in Social Work. London: Sage.
49. Sheldon, Brian and Chilvers, Rupatharshini ( 2000 ) Evidence-Based Social Care: A Study of Prospects and Problems. Lyme Regis: Russell House Publishing.
50. Shuster, Evelyn ( 1997 ) ‘ Fifty Years Later: The Significance of the Nuremberg Code ’, The New England Journal of Medicine 337 ( 20 ): 1436 - 1440.
51. Silverman, W.A. ( 1989 ) ‘ The Myth of Informed Consent: In Daily Practice and in Clinical Trials ’, Journal of Medical Ethics, 15 ( 1 ): 6 - 11.
52. Spratt, Trevor ( 1999 ) Constructing Child Abuse: Patterns and Possibilities. Jordanstown: University of Ulster.
53. Spratt, Trevor ( 2001 ) ‘ The Influence of Child Protection Orientation on Child Welfare Practice ’, British Journal of Social Work 31 ( 6 ): 933 - 954.
54. Strobl, Judith, Cave, Emma and Walley, Tom ( 2000 ) ‘ Education and Debate: Data Protection Legislation: Interpretation and Barriers to Research ’, British Medical Journal 321 ( 7265 ): 890 - 892.
55. Tice, Karen W. ( 1998 ) Tales of Wayward Girls and Immoral Women: Case Records and the Professionalization of Social Work. Urbana, IL: University of Illinois Press.
56. United States Department of Health and Human Services ( 2003 ) Protecting Personal Health Information in Research: Understanding the HIPAA Privacy Rule. Washington, DC: Department of Health and Human Services.
57. Van den Hoonaard, Will C. (ed.) ( 2002 ) Walking the Tightrope: Ethical Issues for Qualitative Researchers. Toronto: University of Toronto Press.
58. Weber, Max ( 1968 ) Economy and Society: An Outline of Interpretive Sociology, ed. Guenther Roth and Claus Wittich. New York: Bedminster Press.