Improvement of coping abilities in patients with systemic lupus erythematosus: A prospective study

Annals of the Rheumatic Diseases

Volumn 64, Issue 11, 2005, Pages 1618-1623

  Haupt, M ^a   Millen, S ^a   Janner M ^a   Falagan, D ^a   Fischer Betz, R ^a   Schneider, Mathias ^a  

^a HEINRICH HEINE UNIVERSITY   (Germany)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ANXIETY; ARTICLE; CLINICAL ARTICLE; CONTROLLED STUDY; COPING BEHAVIOR; DEPRESSION; DISEASE ACTIVITY; FEMALE; FOLLOW UP; GROUP THERAPY; HUMAN; MALE; MEDICAL ASSESSMENT; PATIENT EDUCATION; PRIORITY JOURNAL; PROSPECTIVE STUDY; PSYCHOLOGIC ASSESSMENT; QUALITY OF LIFE; SYSTEMIC LUPUS ERYTHEMATOSUS;

ADAPTATION, PSYCHOLOGICAL; ADULT; EDUCATIONAL STATUS; FEMALE; HUMANS; LUPUS ERYTHEMATOSUS, SYSTEMIC; MALE; MIDDLE AGED; PATIENT EDUCATION; PROSPECTIVE STUDIES; PSYCHIATRIC STATUS RATING SCALES; PSYCHOTHERAPY; QUALITY OF LIFE; TREATMENT OUTCOME;

EID: 27444443572     PISSN: 00034967     EISSN: None     Source Type: Journal    
DOI: 10.1136/ard.2004.029926     Document Type: Article

References (58)

1. Wysenbeek AJ, Leibovici L, Weinberger A, Guedj D. Fatigue in systemic lupus erythematosus. Prevalence and relation to disease expression. Br J Rheumatol 1993;32:633-5.
2. McKinley PS, Ouellette SC, Winkel GH. The contributions of disease activity, sleep patterns, and depression to fatigue in systemic lupus erythematosus. A proposed model. Arthritis Rheum 1995;38:826-34.
3. Wang B, Gladman DD, Urowitz MB. Fatigue in lupus is not correlated with disease activity. J Rheumatol 1998;25:892-5.
4. Bruce IN, Mak VC, Hallett DC, Gladman DD, Urowitz MB. Factors associated with fatigue in patients with systemic lupus erythematosus. Ann Rheum Dis 1999;58:379-81.
5. Zonana-Nacach A, Roseman JM, McGwin G, Friedman AW, Baethge BA, Reveille JD, et al. Systemic lupus erythematosus in three ethnic groups. VI. Factors associated with fatigue within 5 years of criteria diagnosis. LUMINA Study Group. Lupus in minority populations: nature vs nurture, Lupus 2000;9:101-9.
6. Tayer WG, Nicassio PM, Weisman MH, Schuman C, Daly J. Disease status predicts fatigue in systemic lupus erythematosus. J Rheumatol 2001;28:1999-2007.
7. Omdal R, Waterloo K, Koldingsnes W, Husby G, Mellgren SI. Fatigue in patients with systemic lupus erythematosus: the psychosocial aspects. J Rheumatol 2003;30:283-7.
8. Valencia-Flores M, Resendiz M, Castano VA, Santiago V, Campos RM, Sandino S, et al. Objective and subjective sleep disturbances in patients with systemic lupus erythematosus. Arthritis Rheum 1999;42:2189-93.
9. Tench CM, McCurdie I, White PD, D'Cruz DP. The prevalence and associations of fatigue in systemic lupus erythematosus. Rheumatology (Oxford) 2000;39:1249-54.
10. Tench C, Bentley D, Vleck V, McCurdie I, White P, D'Cruz D. Aerobic fitness, fatigue, and physical disability in systemic lupus erythematosus. J Rheumatol 2002;29:474-81.
11. Denburg SD, Carbotte RM, Denburg JA. Psychological aspects of systemic lupus erythematosus: cognitive function, mood, and self-report. J Rheumatol 1997;24:998-1003.
12. Brey RL, Holliday SL, Saklad AR, Navarrete MG, Hermosillo-Romo D, Stallworth CL, et al. Neuropsychiatric syndromes in lupus: prevalence using standardized definitions. Neurology 2002;58:1214-20.
13. Karlson EW, Daltroy LH, Lew RA, Wright EA, Partridge AJ, Fossel AH, et al. The relationship of socioeconomic status, race, and modifiable risk factors to outcomes in patients with systemic lupus erythematosus. Arthritis Rheum 1997;40:47-56.
14. Burckhardt CS, Archenholtz B, Bjelle A. Quality of life of women with systemic lupus erythematosus: comparison with women with rheumatoid arthritis. J Rheumatol 1993;20:977-81.
15. Wekking EM, Vingerhoets AJ, van Dam AP, Nossent JC, Swaak AJ. Daily stressors and systemic lupus erythematosus: a longitudinal analysis - first findings. Psychother Psychosom 1991;55:108-13.
16. Omdal R, Husby G, Mellgren SI. Mental health status in systemic lupus erythematosus. Scand J Rheumatol 1995;24:142-5.
17. Tayer WG, Nicassio PM, Radojevic V, Krall T. Pain and helplessness as correlates of depression in systemic lupus erythematosus. Br J Health Psychol 1996;1:253-62.
18. Waterloo K, Omdal R, Husby G, Mellgren SI. Emotional status in systemic lupus erythematosus. Scand J Rheumatol 1998;27:410-14.
19. Dobkin PL, Fortin PR, Joseph L, Esdaile JM, Danoff DS, Clarke AE. Psychosocial contributors to mental and physical health in patients with systemic lupus erythematosus. Arthritis Care Res 1998;11:23-31.
20. Shortall E, Isenberg D, Newman SP. Factors associated with mood and mood disorders in SLE. Lupus 1995;4:272-9.
21. Adams SG, Dammers PM, Saia TL, Brantley PJ, Gaydos GR. Stress, depression, and anxiety predict average symptom severity and daily symptom fluctuation in systemic lupus erythematosus. J Behav Med 1994;17:459-77.
22. Abu-Shakra M, Mader R, Langevitz P, Friger M, Codish S, Neumann L, et al. Quality of life in systemic lupus erythematosus: a controlled study. J Rheumatol 1999;26:306-9.
23. Karassa FB, Magliano M, Isenberg DA. Suicide attempts in patients with systemic lupus erythematosus. Ann Rheum Dis 2003;62:58-60.
24. McCracken LM, Semenchuk EM, Goetsch VL. Cross-sectional and longitudinal analyses of coping responses and health status in persons with systemic lupus erythematosus. Behav Med 1995;20:179-87.
25. Dobkin PL, Da Costa D, Dritsa M, Fortin PR, Senecal JL, Goulet JR, et al. Quality of life in systemic lupus erythematosus patients during more and less active disease states: differential contributors to mental and physical health. Arthritis Care Res 1999;12:401-10.
26. Da Costa D, Dobkin PL, Fitzcharles MA, Fortin PR, Beaulieu A, Zummer M, et al. Determinants of health status in fibromyalgia: a comparative study with systemic lupus erythematosus. J Rheumatol 2000;27:365-72.
27. Sutcliffe N, Clarke AE, Levinton C, Frost C, Gordon C, Isenberg DA. Associates of health status in patients with systemic lupus erythematosus. J Rheumatol 1999;26:2352-6.
28. Bae SC, Hashimoto H, Karlson EW, Liang MH, Daltroy LH. Variable effects of social support by race, economic status, and disease activity in systemic lupus erythematosus. J Rheumatol 2001;28:1245-51.
29. Thumboo J, Fong KY, Chan SP, Leong KH, Feng PH, Thio ST, et al. A prospective study of factors affecting quality of fife in systemic lupus erythematosus. J Rheumatol 2000;27:1414-20.
30. Dobkin PL, Da Costa D, Fortin PR, Edworthy S, Barr S, Esdaile JM, et al. Living with lupus: a prospective pan-Canadian study. J Rheumatol 2001;28:2442-8.
31. Ward MM, Marx AS, Barry NN. Psychological distress and changes in the activity of systemic lupus erythematosus. Rheumatology (Oxford) 2002;41:184-8.
32. Herrmann M, Scholmerich J, Straub RH. Stress an rheumatic diseases. Rheum Dis Clin North Am. 2000;26:737-63, viii.
33. Pawlak CR, Witte T, Heiken H, Hundt M, Schubert J, Wiese B, et al. Flares in patients with systemic lupus erythematosus are associated with daily psychological stress. Psychother Psychosom 2003;72:159-65.
34. Meusling U. Psychosoziale Belastungen und psychologische Interventionsmöglichkeiten beim systemischen Lupus erythematodes, 1st ed. Berlin: Koester, 1995.
35. Da Costa D, Dobkin PL, Pinard L, Fortin PR, Danoff DS, Esdaile JM, et al. The role of stress in functional disability among women with systemic lupus erythematosus: a prospective study. Arthritis Care Res 1999;12:112-19.
36. Ishikura R, Morimoto N, Tanaka K, Kinukawa N, Yoshizawa S, Horiuchi T, et al. Factors associated with anxiety, depression and suicide ideation in female outpatients with SLE in Japan. Clin Rheumatol 2001;20:394-400.
37. Langer HE. Patientenschulung - Ein Beitrag zur Verbesserung der Langzeitbetreuung von Rheumapatienten. Z Rheumatol 1995;54:207-12.
38. Thieme K und Arbeitsgruppe SLE-Patientenschulung. Das SLE-Patientenschulungsprogramm - Programminhalt und erste Evaluationsergebnisse. Akt Rheumatol 1997;22:98-104.
39. Crofts P, D'Cruz D. Systemic lupus erythematosus. Part 2. The role of the nurse. Nurs Stand 1997;11:40-4.
40. Matussek S, Sattel B, Schuster P. Alltagsbewaeltigung und Lebensperspektiven. Seminar fuer Betroffene mit einer chronischen rheumatischen Erkrankung. Bonn: Deutsche Rheuma-Liga Bundesverband e.V., 1992.
41. Braden CJ, McGlone K, Pennington F. Specific psychosocial and behavioral outcomes from the systemic lupus erythematosus self-help-course. Health Educ Q 1993;20:29-41.
42. Sohng KY. Effects of a self-management course for patients with systemic lupus erythematosus. J Adv Nurs 2003;42:479-86.
43. Maisiak R, Austin JS, West SG, Heck L. The effect of person-centered counseling on the psychological status of persons with systemic lupus erythematosus or rheumatoid arthritis. Arthritis Care Res 1996;9:60-6.
44. Austin JS, Maisiak R, Macrina DM, Heck L. Health outcome improvements in patients with systemic lupus erythematosus using two telephone counseling interventions. Arthritis Care Res 1996;9:391-9.
45. Maisiak RS, Overman LB. Reduced risk of hospitalization for lupus patients during a patient counseling intervention. Arthritis Rheum 2000;43:S178.
46. Overman LB, Maisiak RS. The effects of patient counseling on coping behavior and health status in lupus patients. Arthritis Rheum 2000;43:S179.
47. Dobkin PL, Da Costa D, Joseph L, Fortin PR, Edworthy S, Barr S, et al. Counterbalancing patient demands with evidence: results from a pan-Canadian randomized clinical trial of brief supportive-expressive group psychotherapy for women with systemic lupus erythematosus. Ann Behav Med 2002;24:88-99.
48. Edworthy SM, Dobkin PL, Clarke AE, Costa DD, Dritsa M, Fortin PR, et al. Group psychotherapy reduces illness intrusiveness in systemic lupus erythematosus. J Rheumatol 2003;30:1011-16.
49. Franke G. Die Symptom-Checkliste von Derogatis - deutsche Version, 2nd ed. Goettingen: Beltz Test, 2002.
50. Bullinger M, Kirchberger I. SF-36 - Fragebogen zum Gesundheitszustand. Handanweisung, 1st ed. Goettingen: Hogrefe, 1998.
51. Herrmann C, Buss U, Snaith RP. HADS-D: hospital anxiety and depression scale - Deutsche version. Ein Fragebogen zur Erfassung von Angst und Depressivität in der somatischen Medizin. Testdokumentation und Handanweisung, 1st ed. Bern: Huber, 1995.
52. Lohaus A, Schmitt GM. Fragebogen zur Erhebung von Kontrollueberzeugungen zu Krankheit und Gesundheit (KKG). Handanweisung, 1st ed. Goettingen: Hogrefe, 1989.
53. Muthny FA. Freiburger Fragebogen zur Krankheitsverarbeitung, FKV. Manual, 1st ed. Weinheim: Beltz, 1989.
54. Sorembe V, Westhoff K. Skala zur Erfassung der Selbstakzeptierung (SESA), 1st ed. Goettingen: Hogrefe, 1985.
55. Bullinger M, Kirchberger I, v Steinbuechel N. The everyday-life questionnaire (EDLQ) - an instrument for the assessment of health related quality of life. Z Med Psychol 1993;3:121-31.
56. Vitali C, Bencivelli W, Isenberg DA, Smolen JS, Snaith ML, Sciuto M, et al. Disease activity in systemic lupus erythematosus: report of the Consensus Study Group of the European Workshop for Rheumatology Research. II. Identification of the variables indicative of disease activity and their use in the development of an activity score. The European Consensus Study Group for Disease Activity in SLE. Clin Exp Rheumatol 1992;10:541-7.
57. Gladman D, Ginzler E, Goldsmith C, Fortin P, Liang M, Urowitz M, et al. The development and initial validation of the Systemic Lupus International Collaborating Clinics/American College of Rheumatology damage index for systemic lupus erythematosus. Arthritis Rheum 1996;39:363-9.
58. Karlson EW, Liang MH, Eaton H, Huang J, Fitzgerald L, Rogers MP, et al. A randomized clinical trial of a psychoeducational intervention to improve outcomes in systemic lupus erythematosus. Arthritis Rheum 2004;50:1832-41.