Being in an alien world: Danish parents' lived experiences when a newborn or small child is critically ill

Scandinavian Journal of Caring Sciences

Volumn 19, Issue 3, 2005, Pages 179-185

  Hall, Elisabeth O C ^a  

^a AARHUS UNIVERSITY   (Denmark)

Author keywords

Experiences; Neonatal care; Paediatric care; Parents; Phenomenology; Van Manen

Indexed keywords

ARTICLE; CHILD PARENT RELATION; COPING BEHAVIOR; CRITICAL ILLNESS; EXPERIENCE; HUMAN; INTERVIEW; NEWBORN CARE; PARENTAL BEHAVIOR; ADAPTIVE BEHAVIOR; ADULT; ATTITUDE TO HEALTH; CHILD HOSPITALIZATION; COOPERATION; DENMARK; EMPATHY; FEMALE; HEALTH SERVICE; HUMAN RELATION; INFANT; MALE; MENTAL STRESS; MORALITY; NEWBORN; NURSING; NURSING METHODOLOGY RESEARCH; PARENT; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL MODEL; QUESTIONNAIRE; UNIVERSITY HOSPITAL;

ADAPTATION, PSYCHOLOGICAL; ADULT; ATTITUDE TO HEALTH; CHILD, HOSPITALIZED; CHILD, PRESCHOOL; CRITICAL ILLNESS; DENMARK; EMPATHY; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HELPING BEHAVIOR; HOSPITALS, UNIVERSITY; HUMANS; INFANT; INFANT, NEWBORN; MALE; MODELS, PSYCHOLOGICAL; MORALE; NURSING METHODOLOGY RESEARCH; PARENTS; PROFESSIONAL-PATIENT RELATIONS; QUESTIONNAIRES; STRESS, PSYCHOLOGICAL;

EID: 27244457369     PISSN: 02839318     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1471-6712.2005.00352.x     Document Type: Article

References (43)

1. Mercer RT. First-time Motherhood: Experiences from Teens to Forties. 1986, Springer, New York.
2. Van Manen M. Researching Lived Experience: Human Science for an Action Sensitive Pedagogy. 1990, New York State University Press, New York.
3. Bowlby J. En sikker base. Tilknytningsteoriens kliniske anvendelser. (A secure base.) 1994, Det lille forlag, Denmark.
4. Ervér M-A, Fahlström G. Det är en pärs ... det är jobbigt at ha barn, ändä är det det bästa som finns. (It is hard to have children and still be the best in the world.) Vard Nord 2001; 21: 43-46.
5. Rubin R. Attainment of the maternal role. Part 1: processes. Nurs Res 1967; 16: 237-45.
6. Bondas T. Att vara med barn. En värdvetenskaplig studie av kvinnors upplevelser under perinatal tid (Dissertation). (Being with child.) 2000, Åbo Akademis Forlag, Turku.
7. Alsop-Shields L, Mohay H. John Bowlby and James Robertson: theorists, scientists and crusaders for improvement in the care of children in hospital. J Adv Nurs 2001; 35: 50-58.
8. Mu P-F, Tomlinson P. Parental experience and meaning construction during a pediatric health crisis. West J Nurs Res 1997; 19: 608-36.
9. Bialoskurski MM, Cox CI, Wiggins RD. The relationship between maternal needs and priorities in a neonatal intensive care environment. J Adv Nurs 2002; 37: 62-69.
10. Affonso DD, Hurst I, Mayberry LJ, Haller L, Yost K, Lunch MB. Stressors reported by mothers of hospitalized premature infants. Neonat Network 1992; 11: 63-70.
11. Shellabarger SG, Thompson TL. The critical times: meeting parental communication needs throughout the NICU experience. Neonat Network 1993; 12: 39-44.
12. Miles MS. Parents of critically ill premature infants: sources of stress. Crit Care Nurs Quart 1989; 12: 69-74.
13. Miles MS, Holditch-Davis D, Burchinal P, Nelson D. Distress and growth outcomes in mothers of medically fragile infants. Nurs Res 1999; 48: 129-40.
14. Snowdon AW, Gottlieb LN. The maternal role in the pediatric intensive care unit and hospital ward. Mat-Child Nurs J 1989; 18: 97-115.
15. Jackson K, Ternestedt B-M, Scollin J. From alienation to familiarity: experiences of mothers and fathers of preterm infants. J Adv Nurs 2003; 43: 120-9.
16. Moehn DG, Rossetti L. The effects of neonatal intensive care on parental emotions and attachment: infant-toddler intervention. Transdisciplinary J 1996; 6: 229-46.
17. Benner P, Wrubel J. The Primacy of Caring: Stress and Coping in Health and Illness. 1989, Addison-Wesley, Menlo Park, CA.
18. Benner P, Tanner CA, Chesla CA. Expertise in Nursing Practice: Caring, Clinical Judgment, and Ethics. 1996, Springer Publishing Company, New York.
19. Hall BOC. Preparatory, instant and integrative overviews: a phenomenological analysis of themes arising from a study of the transfer of young children to or from intensive care. Sygeplejersken 1998; 24: 52-63.
20. Hall BOC. From unit to unit: Danish nurses' experiences of transfer of a small child to and from an intensive care unit. Intern Crit Care Nurs 2000; 17: 1-10.
21. Hall BOC. A double concern: Grandmothers' experiences when a small grandchild is critically ill. J Fed Nurs 2004; 19: 61-69.
22. Hall BOC. A double concern: Danish grandfathers' experiences when a small or newborn grandchild is critically ill. Intern Crit Care Nurs 2004; 20: 14-21.
23. Hall BOC. Danish parents' experiences when their new born or critically ill small child is transferred to the PICU - a qualitative study. Nurs Crit Care 2005; 10: 90-97.
24. Fog J. Med samtakn som udgangspunkt. Det kvalitative forskningsinterview. (Dialogue in the research interview.) 1994, Akademisk Forlag, Copenhagen.
25. NNF. Ethical Guidelines for Nursing Research in The Nordic Countries. 2003, Nordic Nursing Federation, Oslo.
26. Frank, AW. After methods, the story: from incongruity to truth in qualitative research. Qual Health Res 2004; 14: 430-40.
27. Van Manen M. From meaning to method. Qual Health Res 1997; 7: 345-69.
28. Mayeroff M. On Caring. 1971, Harper & Row, New York.
29. Derbyshire P. Hoping for the best: Live-in parents' experiences. In Caring as Healing, Renewal through Hope (Gaut DA, Boykin A, eds) 1994, National League for Nursing, New York, 183-195.
30. Hallström I, Runeson I, Blander G. Observed parental need during their child's hospitalisation., J Fed Nurs 2002; 17: 140-8.
31. Meiers SJ, Tomlinson PS. Family-nurse co-construction of meaning: a central phenomenon of family caring. Scand J Caring Sci 2003; 17: 193-201.
32. Holditch-Davis D, Miles MS. Mothers' stories about their experiences in the neonatal intensive care unit. Neonat Network 2000; 19: 13-21.
33. Cescutti-Butler L, Galvin K. Parents' perceptions of staff competency in a neonatal intensive care unit. J Clin Nurs 2003; 12: 752-61.
34. Fenwick J, Barclay L, Schmied V. 'Chatting': an important clinical tool in facilitating mothering in neonatal nurseries. J Adv Nurs 2001; 33: 583-93.
35. Shields L, Kristensen-Hallström I, O'Callaghan M. An examination of the needs of parents of hospitalized children: comparing parents' and staff's perceptions. Scand J Caring Sci 2003; 17: 176-84.
36. Selekman J, Malloy B. Difficulties in symptom recognition in infants. J Ped Nurs 1995; 19: 89-92.
37. Martinsen K. Fra Marx til Løgstrup. Om etikk og sanselighet i sykepleien (From Marx to Løgstrup. Ethics and sensitivity in nursing). 1993, Tano, Oslo.
38. Watson J. Nursing: The Philosophy and Science of Caring. 1979, Little, Brown and Company, Boston, MA.
39. Eriksson K. Vårdandets idé (The idea of caring). 1987, Almqvist & Wiksell, Stockholm.
40. Valliot MC Jr. Hope. The restoration of being. Am J Nurs 1970; 70: 268-73.
41. Kylmä J, Vehvilaïnen-Julkonen K. Hope in nursing research: a meta-analysis of the ontological and epistemological foundation of research on hope. J Adv Nurs 1997; 25: 364-71.
42. Monsen NK. Under godhetens synsvinkel. Livsfilosofiska essays. (In the perspective of goodness. Philosophical essays.) 1992, JW Cappelens Forlag, Oslo.
43. Kvale S. InterViews. 1994, Studentlitteratur, Lund.