Methodologic and logistic issues in conducting longitudinal birth cohort studies: Lessons learned from the Centers for Children's Environmental Health and Disease Prevention Research

Environmental Health Perspectives

Volumn 113, Issue 10, 2005, Pages 1419-1429

  Eskenazi, Brenda ^a   Gladstone, Eleanor A ^a   Berkowitz, Gertrud S ^b   Faustman, Elaine M ^c   Holland, Nina T ^a   Lanphear, Bruce ^d   Meisel, Stefanie J ^b   Perera, Frederica P ^e   Rauh, Virginia A ^e   Sweeney, Anne ^f   Whyatt, Robin M ^e   Yolton, Kimberly ^d  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b MOUNT SINAI SCHOOL OF MEDICINE   (United States)

^c UNIVERSITY OF WASHINGTON   (United States)

^d UNIVERSITY OF CINCINNATI COLLEGE OF MEDICINE   (United States)

^e Mailman School of Public Health   (United States)

^f UNIVERSITY OF ILLINOIS AT URBANA CHAMPAIGN   (United States)

Author keywords

Biologic samples; Biorepository; Birth cohort; Children; Environmental health; Ethics; Growth; National Children's Study; Neurodevelopment; Pregnancy

Indexed keywords

ARTICLE; CHILD HEALTH; COHORT ANALYSIS; CULTURAL FACTOR; ENVIRONMENTAL EXPOSURE; ENVIRONMENTAL HEALTH; ETHNOLOGY; FINANCIAL MANAGEMENT; HEALTH CARE FACILITY; HEALTH CARE SYSTEM; HUMAN; INFORMATION PROCESSING; INTERPERSONAL COMMUNICATION; LANGUAGE; LEGAL ASPECT; LONGITUDINAL STUDY; LOWEST INCOME GROUP; MEDICAL ETHICS; MEDICAL RESEARCH; METHODOLOGY; MINORITY GROUP; PRIORITY JOURNAL; PROPHYLAXIS; QUALITY CONTROL; RISK ASSESSMENT; RURAL AREA; SOCIAL STATUS; STATISTICAL ANALYSIS; URBAN AREA;

ADOLESCENT; ADULT; CHILD; CHILD DEVELOPMENT; CHILD WELFARE; COHORT STUDIES; ENVIRONMENT; ENVIRONMENTAL HEALTH; ETHICS; FEMALE; GROWTH; HUMANS; LONGITUDINAL STUDIES; MIDDLE AGED; PREGNANCY; SOCIAL ENVIRONMENT; SPECIMEN HANDLING; UNITED STATES;

EID: 27244432697     PISSN: 00916765     EISSN: None     Source Type: Journal    
DOI: 10.1289/ehp.7670     Document Type: Article

References (24)

1. Beskow LM, Burke W, Merz JF, Barr PA, Terry S, Penchaszadeh VB, et al. 2001. Informed consent for population-based research involving genetics. JAMA 286(18):2315-2321.
2. Caldwell BM, Bradley RR. 1984. Home Observation for the Measured Environment. Little Rock, AR:University of Arkansas at Little Rock.
3. CDC. 2001. Informed Consent Template for Population-Based Research Involving Genetics. Atlanta, GA:Centers for Disease Control and Prevention. Available: http://www.cdc.gov/genomics/info/reports/policy/consent.htm [accessed 11 March 2005].
4. Dietrich KN, Eskenazi B, Schantz S, Yolton K, Rauh VA, Johnson CB, et al. 2005. Principles and practices of neurodevelopmental assessment in children: lessons learned from the Centers for Children's Environmental Health and Disease Prevention Research. Environ Health Perspect 113:1437-1446.
5. Eggleston PA, Diette G, Lipsett M, Lewis T, Tager I, McConnell R, et al. 2005. Lessons learned for the study of childhood asthma from the Centers for Children's Environmental Health and Disease Prevention Research. Environ Health Perspect 113:1430-1436.
6. Eskenazi B, Bradman A, Gladstone EA, Jaramillo S, Birch K, Holland NT. 2003. CHAMACOS, a longitudinal birth cohort study: lessons from the fields. J Child Health 1(1):3-27.
7. Faustman EM, Silbernagel SM, Fenske RA, Burbacher TM, Ponce RA. 2000. Mechanisms underlying children's susceptibility to environmental toxicants. Environ Health Perspect 108(suppl 1):13-21.
8. Gilliland F, Avol E, Kinney P, Jarrett M, Dvonch T, Lurmann F, et al. 2005. Air pollution exposure assessment for epidemiologic studies of pregnant women and children: lessons learned from the Centers for Children's Environmental Health and Disease Prevention Research. Environ Health Perspect 113:1447-1454.
9. HIPAA. 1996. Health Insurance Portability and Accountability Act of 1996. Public Law 104-191.
10. Holland NT, Smith MT, Eskenazi B, Bastaki M. 2003. Biological sample collection and processing for molecular epidemiological studies. Mutat Res 543(3):217-234.
11. Israel BA, Parker EA, Rowe Z, Salvatore A, Minkler M, López J, et al. 2005. Community-based participatory research: lessons learned from the Centers for Children's Environmental Health and Disease Prevention Research. Environ Health Porspect 113:1463-1471.
12. Jacobs DE, Clickner RP, Zhou JY, Viet SM, Marker DA, Rogers JW, et al. 2002. The prevalence of lead-based paint hazards in U.S. housing. Environ Health Perspect 110:A599-A606.
13. Kimmel CA, Collman GW, Fields N, Eskenazi B. 2005. Lessons learned for the National Children's Study from the National Institute of Environmental Health Sciences/U.S. Environmental Protection Agency Centers for Children's Environmental Health and Disease Prevention Research. Environ Health Perspect 113:1414-1418.
14. Lester BM, Tronick E. 2001. Behavioral assessment scales: the NICU Network Neurobehavioral Scale, the Neonatal Behavioral Assessment Scale, and the assessment of the preterm infant's behavior. In: Biobehavioral Assessment of the Infant (Singer LT, Zeskind PS, eds). New York:Guilford Press, 363-380.
15. Mastroianni AC, Kahn JP. 2002. Risk and responsibility: ethics, Grimes v. Kennedy Krieger, and public health research involving children. Am J Public Health 92(7):1073-1076.
16. Metzger R, Delgado JL, Harrell R. 1995. Environmental health and Hispanic children. Environ Health Porspect 103(suppl 6):25-32.
17. National Children's Study. 2005. Homepage. Available: http://www.nationalchildrensstudy.gov/ [accessed 8 August 2005].
18. Niswander KR, Gordon M. 1972. The women and their pregnancies; the Collaborative Perinatal Study of the National Institute of Neurological Diseases and Stroke. Washington, DC:National Institute of Health.
19. Pirkle JL, Flegal KM, Bernert JT, Brody DJ, Etzel RA, Maurer KR. 1996. Exposure of the US population to environmental tobacco smoke: the Third National Health and Nutrition Examination Survey, 1988 to 1991. JAMA 275(16):1233-1240.
20. Sarpong SB, Hamilton RG, Eggleston PA, Adkinson NF Jr. 1996. Socioeconomic status and race as risk factors for cockroach allergen exposure and sensitization in children with asthma. J Allergy Clin Immunol 97(6):1393-1401.
21. Schulte PA, Perera FP, eds. 1993. Molecular Epidemiology: Principles and Practices. San Diego:Academic Press.
22. van den Berg BJ, Christianson RE, Oechsli FW. 1988. The California Child Health and Development Studies of the School of Public Health, University of California at Berkeley. Paediatr Perinat Epidemiol 2(3):265-282.
23. Whyatt RM, Camann DE, Kinney PL, Reyes A, Ramirez J, Dietrich J, et al. 2002. Residential pesticide use during pregnancy among a cohort of urban minority women. Environ Health Perspect 110:507-514.
24. Yiin LM, Rhoads GG, Lioy PJ. 2000. Seasonal influences on childhood lead exposure. Environ Health Perspect 108:177-182.