Explaining a complex disease process: Talking to patients about Hansen's disease (Leprosy) in Brazil

Medical Anthropology Quarterly

Volumn 19, Issue 3, 2005, Pages 310-330

  White, Cassandra ^a  

^a GEORGIA STATE UNIVERSITY   (United States)

Author keywords

Brazil; Explanatory models; Leprosy Hansen's disease; Medical anthropology; Medical discourse

Indexed keywords

LEPROSTATIC AGENT;

ARTICLE; BRAZIL; HEALTH PERSONNEL ATTITUDE; HUMAN; HUMAN RELATION; LEPROSY; PATIENT; PSYCHOLOGICAL ASPECT; SOCIOECONOMICS;

ATTITUDE OF HEALTH PERSONNEL; BRAZIL; HUMANS; LEPROSTATIC AGENTS; LEPROSY; PATIENTS; PROFESSIONAL-PATIENT RELATIONS; SOCIOECONOMIC FACTORS;

EID: 26444603906     PISSN: 07455194     EISSN: None     Source Type: Journal    
DOI: 10.1525/maq.2005.19.3.310     Document Type: Article

References (39)

1. Ablon, Joan 1995 The Elephant Man as "Self" and "Other": The Psycho-Social Costs of a Misdiagnosis. Social Science and Medicine 40(11):1481-1489.
2. Andrade, Marilda 1997 A cura como conceito vivido: O ex-sistir das pessoas que se submeteram a poliquimioterapia para tratamento da hanseníase. Ph.D. dissertation, presented to the Universidade Federal do Rio de Janeiro, Centro de Ciências da Saúde, Escola de Enfermagem Ana Nery.
3. Andrade, Vera, and Marcos Virmond 2004 Partnership and Decentralization - A New Approach to Eliminating Leprosy in Brazil. Electronic document: http://www.novartisfoundation.com/en/projects/access_health/leprosy/diagnosis/ brazil_partnership_decentralization.htm#encouraging.results, accessed June 1, 2004.
4. Bernard, H. Russell 1988 Research Methods in Cultural Anthropology. Newbury Park, CA: Sage.
5. Boonmongkon, Pimpawun 1994 Khi thut, "The Disease of Social Loathing": An Anthropological Study of the Stigma of Leprosy in Rural North-East Thailand. Social and Economic Research Project Reports, No. 16. UNDP/World Bank/WHO Special Programme for Research and Training in Tropical Diseases (TDR).
6. Brody, Saul 1974 The Disease of the Soul: Leprosy in Medieval Literature. Ithaca, NY: Cornell University Press.
7. Claro, Letina 1995 Hanseníase: Representações sobre a doença. Rio de Janeiro: Fundação Oswaldo Cruz.
8. Correio Brasiliense 1995 "Lepra" é censurada em documento oficial. Correio Brasiliense, March 31, 1995 (taken from "Recortes" of the Ministério da Sáude, Assessória de Comunicação Social, Brasilia, page not given).
9. Douglas, Mary 1991 Witchcraft and Leprosy: Two Strategies of Exclusion. Man 26(4):723-736.
10. Edmonds, Alexander 2003 New Markets, New Bodies: An Ethnography of Brazil's Beauty Industry. Ph.D. dissertation, Princeton University.
11. El Hassan, L. A., E. A. G. Khalil, and A. M. El-Hassan 2002 Socio-Cultural Aspects of Leprosy among the Masalit and Hawsa Tribes in the Sudan. Leprosy Review 73(1):20-28.
12. Foucault, Michel 1994 The Birth of the Clinic: An Archaeology of Medical Perception. Richard Howard, trans. New York: Vintage.
13. Goffman, Erving 1963 Stigma: Notes on the Management of Spoiled Identity. Englewood Cliffs, NJ: Prentice Hall.
14. Gomes, Maria Kátia, and Maria Leide W. de Oliveira. 2002 (Des) mancha Brasil: A parceria interinstitutional como estratégia da eliminação da hanseníase à nível municipal. Universidade Federal do Rio de Janeiro. Electronic document: http://www.saudebrasilnet.com.br/trabalhos/trabalho5.asp, accessed January 26, 2002.
15. Gregg, Jessica 2003 Virtually Virgins: Sexual Strategies and Cervical Cancer in Recife, Brazil. Stanford, CA: Stanford University Press.
16. Guillermoprieto, Alma 1990 Samba. New York: Vintage.
17. Gussow, Zachary, and George Tracy 1968 Status, Ideology, and Adaptation to Stigmatized Illness: A Study of Leprosy. Human Organization 27(4):316-325.
18. Hahn, Robert 1998 The Nocebo Phenomenon: Concept, Evidence, and Implications for Public Health. In Understanding and Applying Medical Anthropology. Peter J. Brown, ed. Pp. 138-143. Mountain View, CA: Mayfield.
19. Hahn, Robert, and Arthur Kleinman 1983 Biomedical Practice and Anthropological Theory: Frameworks and Directions. Annual Review of Anthropology 12:305-333.
20. Justice, Judith 1984 Can Socio-cultural Information Improve Health Planning?: A Case-Study of Nepal's Nurse-Midwife. Social Science and Medicine 19(3):193-198.
21. Kleinman, Arthur 1988 The Illness Narratives: Suffering, Healing, and the Human Condition. New York: Basic Books.
22. Lazarus, Ellen 1988 Theoretical Considerations for the Study of the Doctor-Patient Relationship: Implications of a Perinatal Study. Medical Anthropology Quarterly 2(1):34-58.
23. Lewis, Gilbert 1993 Double Standards of Treatment Evaluation. In Knowledge, Power, and Practice: The Anthropology of Medicine in Everyday Life. Shirley Lindenbaum and Margaret Lock, eds. Pp. 189-218. Berkeley: University of California Press.
24. Menegoni, Lorenza 1996 Conceptions of Tuberculosis and Therapeutic Choices in Highland Chiapas. Medical Anthropology Quarterly 10(3):381-401.
25. Oliveira, Maria Auxiliadora, Jorge Antônio Zepeda Bermudez, and Artur Custódio Moreira de Souza 1999 Talidomida no Brasil: Vigilância com responsabilidade compartilhada? Caderno de Saúde Pública 15(1):99-112.
26. Oliveira, Maria Leide Wand-del-Rey, Carla Maria Mendes, Rachel Tebaldi Tardin, Mônica Duarte Cunha, and Ângela Arruda 2003 A representação social da hanseníase, trinta anos após a substituição daterminologia "lepra" no Brasil. História, Ciências, Saúde - Manguinhos 10 (sup. 1):41-48.
27. Page, Joseph 1995 The Brazilians. New York: Addison-Wesley.
28. Parker, Richard, and Peter Aggleton 2003 HIV and AIDS-Related Stigma and Discrimination: A Conceptual Framework and Implication for Action. Social Science and Medicine 57(1):13-24.
29. Queiroz, Marcos de Souza, and Maria Angélica Puntel 1997 A endemia hansênica: Uma perspectiva multidisciplinar. Rio de Janeiro: Editora Fiocruz.
30. Scheper-Hughes, Nancy 1992 Death without Weeping: The Violence of Everyday Life in Brazil. Berkeley: University of California Press.
31. Silverman, William 2002 The Schizophrenic Career of a "Monster Drug." Pediatrics 110(2):404-406.
32. Sontag, Susan 1989 Illness as Metaphor and AIDS and Its Metaphors. New York: Doubleday.
33. Trautman, John R. 1965 Clinical Aspects of Leprosy. Southern Medical Journal 58(4):421-424.
34. Warren, Randolph 1999 The Many Faces of Thalidomide. Thalidomide Victims Association of Canada. Electronic document: http://www.thalidomide.ca/en/ information/faces.html, accessed February 20, 2005.
35. Waxler, Nancy 1981 Learning to be a Leper: A Case Study in the Social Construction of Illness. In Social Contexts of Health, Illness, and Patient Care. Elliot Mishler, ed. Pp. 169-194. Cambridge: Cambridge University Press.
36. Weiss, M. G., D. R. Doongaji, S. Sidddhartha, D. Wypij, S. Pathare, M. Bhatawdekar, A. Bhave, A. Sheth, and R. Fernandes 1992 The Explanatory Model Interview Catalog (EMIC). Contribution to Cross-Cultural Research Methods from a Study of Leprosy and Mental Health. British Journal of Psyciatry 160(6):819-830.
37. WHO (World Health Organization) 2000 Guide to Eliminate Leprosy as a Public Health Problem. Geneva, Switzerland: World Health Organization Leprosy Elimination Group.
38. 2004 Global Leprosy Situation in 2004. Electronic document: http://www.who.int/lep/, accessed February 20, 2005.
39. Yoder, Leo 1987 Management of Reactions in Hansen's Disease. The Star (Jan./Feb.: page numbers not visible on article reproduction).