Employment and advice regarding careers for adults with congenital heart disease

Cardiology in the Young

Volumn 15, Issue 4, 2005, Pages 391-395

  Crossland, David S ^a   Jackson, Susan P ^a   Lyall, Rosalind ^a   Burn, John ^b   O'Sullivan, John J ^a  

^a FREEMAN HOSPITAL   (United Kingdom)

^b INSTITUTE OF HUMAN GENETICS   (United Kingdom)

Author keywords

Congenitally malformed hearts; Grown up congenital heart disease; Unemployment

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; CAREER; CHI SQUARE TEST; CONGENITAL HEART MALFORMATION; CONTROLLED STUDY; DISEASE SEVERITY; EDUCATION; EMPLOYMENT; FEMALE; HUMAN; INTERVIEW; MAJOR CLINICAL STUDY; MALE; MCNEMAR TEST; QUESTIONNAIRE; UNEMPLOYMENT; VOCATIONAL EDUCATION;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; EMPLOYMENT; FEMALE; FOLLOW-UP STUDIES; HEALTH BENEFIT PLANS, EMPLOYEE; HEALTH POLICY; HEALTH SERVICES ACCESSIBILITY; HEART DEFECTS, CONGENITAL; HUMANS; MALE; MIDDLE AGED; PATIENT ADVOCACY; PATIENT CARE PLANNING; QUESTIONNAIRES;

EID: 25844528094     PISSN: 10479511     EISSN: None     Source Type: Journal    
DOI: 10.1017/S104795110500082X     Document Type: Article

References (19)

1. Wren C, O'Sullivan JJ. Survival with congenital heart disease and need for follow up in adult life. Heart 2001; 85: 438-443.
2. Celermajer DS, Deanfield JE. Adults with congenital heart disease. BMJ 1991; 303: 1413-1414.
3. van Rijen EH, Utens EM, Roos-Hesselink JW, et al. Psychosocial functioning of the adult with congenital heart disease: a 20-33 years follow-up. Eur Heart J 2003; 24: 673-683.
4. Lane DA, Lip GYH, Millane TA. Quality of life in adults with congenital heart disease. Heart 2002; 88: 71-75.
5. Kamphuis M, Ottenkamp J, Vliegen HW, et al. Health related quality of life and health status in adult survivors with previously operated complex congenital heart disease. Heart 2002; 87: 356-362.
6. Saliba Z, Butera G, Bonner D, et al. Quality of life and perceived health status in surviving adults with univentricular heart. Heart 2001; 86: 69-73.
7. Van Doorn C, Yates R, Tunstill A, Elliot M. Quality of life in children following mitral valve replacement. Heart 2000; 84: 643-647.
8. Ternestedt BM, Wall K, Oddsson H, Riesenfeld T, Groth I, Schollin J. Quality of life 20 and 30 years after surgery in patients operated on for tetralogy of fallot and for atrial septal defect. Pediatr Cardiol 2001; 22: 128-132.
9. Popelova J, Slavik Z, Skovranek J. Are cyanosed adults with congenital cardiac malformations depressed? Cardiol Young 2001; 11: 379-384.
10. Gersony WM, Hayes CJ, Driscoll DJ, et al. Second natural history study of congenital heart defects: quality of life in patients with aortic stenosis, pulmonary stenosis, or ventricular septal defect. Circulation 1993; 87 (1 Suppl): 52-65.
11. Kokkonen J, Paavilainen T. Social adaptation of young adults with congenital heart disease. Int J Cardiol 1992; 36: 23-29.
12. Celermajer DS, Deanfield JE. Employment and insurance for young adults with congenital heart disease. Br Heart J 1993; 69: 539-543.
13. Kamphuis M, Vogels T, Ottenkamp J, Van der Wall EE, Verloove-Vanhorick SP, Vliegen HW. Employment in adults with congenital heart disease. Arch Pediatr Adolesc Med 2002; 156: 1143-1148.
14. Office for National Statistics. Region in figures, North East. Winter 2000, No. 2. Table 4.1.
15. Celermajer DS, Greaves K. Survivors of coarctation repair: fixed but not cured. Heart 2002; 88: 113-114.
16. van Doorn C. The unnatural history of tetralogy of Fallot: surgical repair is not as definitive as previously thought. Heart 2002; 88: 447-448.
17. Deanfield J, Thaulow E, Warnes C, et al. Management of grown up congenital heart disease. Eur Heart J 2003; 24: 1035-1084.
18. Bridging the Gaps: Health Care for Adolescents. The intercollegiate working party on adolescent health. Royal College of Paediatrics and Child Health, June 2003.
19. Kantoch MJ, Collins-Nakai RL, Medwid S, Ungstad E, Taylor DA. Adult patients' knowledge about their congenital heart disease. Can J Cardiol 1997; 13: 641-645.