From "New genetics" to everyday knowledge: Ideas about how genetic diseases are transmitted in two large brazilian families

Science Education

Volumn 89, Issue 4, 2005, Pages 564-576

  Santos, Silvana ^a   Bizzo, Nelio ^a  

^a UNIVERSITY OF SÃO PAULO   (Brazil)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 25444518212     PISSN: 00368326     EISSN: None     Source Type: Journal    
DOI: 10.1002/sce.20062     Document Type: Review

References (58)

1. Aikenhead G. S. (1996). Science education: Border crossing into the subculture of science. Studies in Science Education, 27, 1-52.
2. Ayuso, E., & Banet, E. (2002). Alternativas a la enseñanza de la genética en educatión secundaria. Enseñanza de Las Ciencias, 20(1), 133-157.
3. Ayuso, E., Banet, E., & Abellán, T. (1996). Introducción a la genética en la enseñanza secundaria y bachillerato, II: Resoluión de problemas o realizaión de ejercicios? Enseñanza de Las Ciencias, 14(2), 127-142.
4. Banet, E., & Ayuso, E. (1995). Introducción a la genética en la enseñanza secundaria y bachillerato, I: Contenidos de Enseñanza y Conocimientos de los Alumnos. Enseñanza de Las Ciencias, 13(2), 137-153.
5. Banet, E., & Ayuso, E. (2000). Teaching genetics at secondary school: A strategy for teaching about the location of inheritance information. Science Education, 84, 313-351.
6. Basalla, G. (1967). The spread of western science. Science, 156(611-622), 617.
7. Bizzo, N. M. V. (1994a). Meninos do Brasil: Idéias sobre reprodução, eugenia e cidadania na escola. Tese de livre-docência apresentada à Faculdade de Educação da Universidade de São Paulo, São Paulo.
8. Bizzo, N. M. V. (1994b). From down house landlord to Brazilian high school students: What has happened to evolutionary knowledge on this way? Journal of Research in Science Teaching, 31(5), 517-556.
9. Bizzo, N. M. V. (1995). Eugenia: Quando a biologia faz falta ao cidadão. Cadernos de Pesquisa, 92, 38-52.
10. Bizzo, N. M. V., & El-Hani, C. N. (1999). Paradoxo social-eugênico e genética. Médicos, 6(11), 66-73.
11. Bruner, J. (1990). Acts of meaning. Cambridge, MA: Harvard University Press.
12. Cobern, W. W. (1994a). World view, culture, and science education. Science Education International, 5(4): 5-8.
13. Cobern, W. W. (1994b). Alternative constructions of science and science education. Paper presented for the second annual Southern Africa Association for Mathematics and Science Education Research, University of Durban-Westville, Durban, South Africa, pp. 27-30. http://www.wmich.edu/slcsp/slcsp.htm
14. Coher, B. J. (1982). Personal narrative and the life course. In P. B Baltes & O. G. Brim, Jr. (Eds.), Life-span development and behaviour. New York. Academic.
15. Cole, M., & Scribner, S. (1974). Culture & thought: A psychological introduction. New York: Wiley.
16. Darwin, C. (1875). The variation of animals and plants under domestication (2nd ed.). London: John Murray.
17. Durant, J., Hansen, A., & Bauer, M. (1999). Public understanding of the new genetics. InT. Marteau & M. Richards (Eds.), The troubled helix: Social and psychological implications of the new human genetics. Cambridge, UK: Cambridge University Press.
18. Hodson, A. (1992). Essential genetics. London: Bloomsbury.
19. Holtzman, N. A. (1988). Recombinant DNA technology, genetic tests, and public policy. American Journal of Human Genetics, 42, 624-632.
20. Holtzman, N. A. (1999). Are genetic tests adequately regulated? Science, 286, 409.
21. Human Genetic Commission (2002). Inside information. Balancing interests in the use of personal genetic data.
22. Human Genetic Commission, London, UK. Available at URL: www.hgc.gov.uk/inside information/.
23. Jones, S. (1999). Deus, genes e o destino: na massa do sangue. Mem Martins, Portugal: Publicações Europa-América.
24. Kesser, S. (1989). Psychological aspects of genetic counselling: A critical review of the literature dealing with education and reproduction. American Journal of Medical Genetics, 34, 440-353.
25. Kerby, A. P. (1991). Narrative and self. Bloomington, IN: Indiana University Press.
26. Lave, J. (1988). Cognition in practice. Cambridge, UK: Cambridge University Press.
27. Lapham, E. V., Kozma, C., & Weiss, J. O. (1996). Genetic discrimination: Perspectives of consumers. Science, 274, 621-623.
28. Layton, D. (1993). Inarticulate science? Perspectives on the public understanding of science and some implications for science education. University of Leeds, UK.
29. Lewis, J., Leach, J., & Wood-Robinson, C. (2000a). All in the genes? - Young people's understanding of the nature of genes. Journal of Biological Education, 34(2), 74-79.
30. Lewis, J., Leach, J., & Wood-Robinson, C. (2000b). Chromosomes: The Missing Link - Young people's understanding of mitosis, meiosis, and fertilization. Journal of Biological Education, 34(4), 189-199.
31. Macedo-Souza, L. I., Kok, F., Santos, S., Amorin, S. C., Starling, A., Nishimura, A., Lezirovitz, K., Lino, A. M. M., & Zatz, M. (in press). Spastic paraplegia, optic atrophy and neuropathy (SPOAN syndrome) is linked to chromosome 11q13. Annals of Neurology.
32. Marshall, E. (1996). The genome program's conscience. Science, 274, 488-490.
33. Moore, J. A. (1993). Science as a way of knowing: The foundations of modern biology. London: Harvard University Press.
34. Müller-Hill, B. (1993). The shadow of genetic injustice. Nature, 362, 491-492.
35. Porkinghorne, D. E. (1988). Narrative knowing and the human sciences. Albany, NY: State University of New York Press.
36. Posner, G. J., Strike, K. A., Hewson, P. W., & Gertzog, W. A. (1982). Accommodation of a scientific conception: Toward a theory of conceptual change. Science Education, 66, 211-227.
37. Praxedes, L. A. (2001 ). Estudo genético-chínico e molecular da neurofibromatose. Tese de Doutoramento, Instituto de Biociências, Universidade de São Paulo.
38. Quetel, C. (1990). The history of syphilis. Cambridge, UK: Basil Blackwell.
39. Reiss, M. J., Millar, R., & Osborne, J. (1999). Beyond 2000: Science/biology education for the future. Journal of Biological Education, 33(2): 68-70.
40. Richards, M. (1996a). Lay knowledge of inheritance and genetic risk: A review and a hypothesis. Health Care Analysis, 4, 1861-1864.
41. Richards, M. (1996b). Lay and professional knowledge of genetics and inheritance. Public Understanding of Science, 5, 217-230.
42. Richards, M. (1999).Families, kinship and genetics. In T. Marteau & M. Richards (Eds.), The troubled helix: Social and psychological implications of the new human genetics. Cambridge, UK: Cambridge University Press.
43. Richards, M. (2000). Jack Tizard memorial lecture: Children's understanding of inheritance and family. Child Psychology & Psychiatry Review, 5, 2-8.
44. Richards, M. (2001). How distinctive is genetic information? Studies in history, Philosophy, Biology & Biomedicine Science, 32(4), 663-687.
45. Rogoff, B., & Lave, J. (eds) (1984). Everyday cognition: Its development in the social context. Cambridge, MA: Harvard University Press.
46. Rossiter, M. (1999). A narrative approach to development: Implications for adult education. Adult Education Quarterly, 55(1): 56-71.
47. Rothstein, M. A. L. (eds) (1997). Genetic secrets: Protecting, privacy and confidentiality in the genetic era. New Haven, CT: Yale University Press.
48. Santos, S. (2003a). Conversando sobre a herança de doenças genéticas. Transcrições de Entrevistas. Anexo da Tese de Doutoramento. Instituto de Biociências, Universidade de São Paulo (unpublished).
49. Santos, S. (2003b). Para geneticistas e educadores: o conhecimento cotidiano sobre herança biológica. Tese de Doutoramento. Instituto de Biociências, Universidade de São Paulo.
50. Santos, S., & Bizzo, N. (2002). "Inheriting" ideas about inheritance: A study of the explanations to the genetic disorders affecting a large brazilian family over generations. Paper presented at Proceedings of 10th IOSTE symposium, July 28-August 2, Foz do Iguaçu, Paraná, Brasil.
51. Scribner, S., & Cole, M. (1973). Cognitive consequences of formal and informal education. Science, 182, 553-559.
52. Scribner, S., & Cole, M. (1981). The psychology of literacy. Cambridge, MA: Harvard University Press.
53. Sloan, P. R. (Ed.) (2000). Controlling our destinies. Historical, philosophical, ethical and theological perspectives on the human genetic project. Notre Dame, IN: University of Notre Dame Press.
54. Strike, K. A., & Posner, G. J. (1992). A revisionist theory of conceptual change. In R. Duschl & R. Hamilton (Eds.), Philosophy of science, cognitive, psychology and educational theory and practice. Albany, NY: SUNY Press.
55. Turney, J. (1995). The public understanding of genetics. Where next? European Journal of Genetic Society, 1, 5-20.
56. Weil, J. (2000). Psychosocial genetic counselling. New York: Oxford University Press.
57. Wexler, A. (1995). Mapping fate: A memoir of family, risk, and genetic research. Berkeley, CA: University of California Press.
58. Wood-Robinson, C., Lewis, J., Leach, J., & Driver, R. (1998). Genética y formación científica: Resultados de un proyecto de investigación y sus implicaciones sobre los programas escolares y la enseñanza. Ensen̄anza de Las Ciencias, 16(1), 43-61.