From two-step flow to the Internet: The changing array of sources for genetics information seeking

Journal of the American Society for Information Science and Technology

Volumn 55, Issue 8, 2004, Pages 660-669

  Case, Donald O ^a   Johnson, J David ^a   Andrews, James E ^a   Allard, Suzanne L ^b   Kelly, Kimberly M ^c  

^a UNIVERSITY OF KENTUCKY   (United States)

^b UNIVERSITY OF TENNESSEE   (United States)

^c UNIVERSITY OF KENTUCKY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

CANCER GENETICS; GENETICS INFORMATION; HEALTH INFORMATION; PROBLEM ORIENTED APPROACH;

DATA REDUCTION; DISEASES; HEALTH CARE; INFORMATION TECHNOLOGY; SOCIETIES AND INSTITUTIONS; TUMORS;

INTERNET;

EID: 2542438599     PISSN: 15322882     EISSN: None     Source Type: Journal    
DOI: 10.1002/asi.20000     Document Type: Review

References (84)

1. Andrykowski, M.A., Lightner, R., Studts, J.L., & Munn, R.K. (1997). Hereditary cancer risk notification and testing: How interested is the general population? Journal of Clinical Oncology, 15, 139-148.
2. Andrykowski, M.A., Munn, R.K., & Studts, J.L. (1996). Interest in learning of personal genetic risk for cancer: A general population survey. Preventive Medicine, 25, 527-536.
3. Atkin, C. (1981). Mass media information campaign effectiveness. In R. Rice & C. Atikin (Eds.), Public information campaigns (pp. 265-279). Beverly Hills. CA: Sage Publications.
4. Baker, L., Wagner, T., Singer, S., & Bundorf, M. (2003). Use of the Internet and e-mail for health care information: Results from a national survey. Journal of the American Medical Association, 289(18), 2400-2406.
5. Bandura, A. (1986). Social foundations of thought and action. Englewood Cliffs, NJ: Prentice-Hall.
6. Berelson, B. (1949). The library's public. New York: Columbia University.
7. Biermann, J., Golladay, G., & Baker, L. (1999). Evaluation of cancer information on the Internet. Cancer, 86, 381-390.
8. Bosompra, K., Ashikaga, T., Flynn, B., Worden, J., & Solomon, L. (2001). Psychosocial factors associated with the public's willingness to pay for genetic testing for cancer risk: A structural equations model. Health Education Research: Theory & Practice, 16(2), 157-172.
9. Buller, D.B., Callister, M.A., and Reichert, T. (1995). Skin cancer prevention by parents of young children: Health information sources, skin cancer knowledge, and sun protection practices. Oncology Nursing Forum, 22, 1559-1566.
10. Bunn, J., Bosompra, K., Ashikaga, T., Flynn, B., & Worden, J. (2002). Factors influencing intention to obtain a genetic test for colon cancer risk: A population-based study. Preventitive Medicine, 34, 567-577.
11. Burke, W., & Emery, J. (2002). Genetics education for primary-care providers. Nature Reviews: Genetics, 3, 561-566.
12. Cangelosi, J.D., & Markham, F.S. (1994). A descriptive study of personal, institutional, and media sources of preventive health care information. Health Marketing Quarterly, 12, 23-36.
13. Case, D.O. (2002). Looking for information: A survey of research on information seeking, needs, and behavior. New York: Academic Press.
14. Case, D., Johnson, J.D., Andrews, J.E., & Allard, S.L. (2002a, July). How information seeking models and theories portray the avoidance of information. Paper presented to the Health Communication division at the 52nd Annual Meeting of the International Communication Association, Seoul, Korea.
15. Case, D.O., Johnson, J.D., Andrews, J.E., & Allard, S.L. (2002b, September). Avoiding, blunting, coping and distracting: How not seeking information is addressed in information seeking models and theories. Paper presented to the Fourth International Conference on Information Seeking in Context (ISIC) 2002, Universidade Luisiad, Lisbon, Portugal.
16. Chaffee, S.H. (1982). Mass media and interpersonal channels: Competitive, convergent and complimentary? In G. Gumpert & R. Cathcart (Eds.), Inter/media (2nd ed., pp. 57-77). New York: Oxford University Press.
17. Chatman, E.A. (1990). Alienation theory: Application of a conceptual framework to a study of information among janitors. Reference Quarterly, 29, 355-368.
18. Chatman, E.A. (1991). Life in a small world: Applicability of gratification theory to information-seeking behavior. Journal of the American Society for Information Science, 42, 438-449.
19. Chen, C., & Hernon, P. (1982). Information-seeking: Assessing and anticipating user needs. New York: Neal-Schuman.
20. Collins, F.S., & McKusick, V.A. (2001). Implications of the Human Genome Project for medical science. Journal of the American Medical Association, 285(5), 540-544.
21. Cooley, C.H. (1909). Social organization: A study of the larger mind. New York: Scribner's.
22. Culver, J.D., Gerr, F., & Frumkin, H. (1997). Medical information on the Internet: A study of an electronic bulletin board. Journal of General Internal Medicine, 12, 466-470.
23. Dervin, B. (1973, January). Report on information needs survey - Seattle and Syracuse. Unpublished report. Seattle, WA: School of Communications, University of Washington.
24. Dervin, B. (1976). The everyday information needs of the average citizen: A taxonomy for analysis. In M. Kochen & J. Donahue (Eds.), Information for the community (pp. 23-35). Chicago: American Library Association.
25. Dervin, B., Ellyson, S., Hawkes, G., Guagnano, G., & White, N. (1984). Information needs of California - 1984. Davis, CA: Institute of Governmental Affairs, University of California, Davis.
26. Dervin, B., & Greenberg, B.S. (1972). The communication environment of the urban poor. In F. Kline & P. Titchenor (Eds.), Current perspectives in mass communication research (pp. 195-235). Beverly Hills, CA: Sage Publications.
27. Dervin, B., Nilan, M., & Jacobson, T. (1982). Improving predictions of information use: A comparison of predictor types in a health communication setting. In M. Burgoon (Ed.), Communication Yearbook (Vol. 5, pp. 807-830). Beverly Hills, CA: Sage Publications.
28. DMOZ Open Directory Project. (2003). Health. Retrieved March 28, 2003, from www.dmoz.org/health/
29. Duncan, D. (2002). DNA as destiny: The genome is out of the bottle. Wired, 10(11), 180-187.
30. Durrance, J.C. (1984). Armed for action - library response to citizen information needs. New York: Neal-Schuman.
31. Elwood, J.M. (2000). Public health aspects of breast cancer gene testing in Canada. Part 3: A model of potential need and demand. Chronic Diseases in Canada, 20(3). Retrieved March 28, 2003, from http:// www.hc-sc.gc.ca/pphb- dgspsp/publicat/cdic-mcc/20-l/d_e.html
32. Folkman, S. (1984). Personal control and stress and coping processes: A theoretical analysis. Journal of Personality and Social Psychology, 46, 839-852.
33. Freimuth, V.S. (1990). The chronically uninformed: Closing the knowledge gap in health. In E.B. Ray & L. Donohew (Eds.), Communication and health: Systems and applications (pp. 212-237). Hillsdale, NJ: Lawrence Erlbaum.
34. Freimuth, V.S., Stein, J.A., & Kean, T.J. (1989). Searching for health information: The Cancer Information Service model. Philadelphia, PA: University of Pennsylvania Press.
35. Geller, G., Bernhardt, B.A., Helzlsouer, K., Holtzman, N.A., Stefanek, M., & Wilcox, P.M. (1995). Informed consent and BRCA1 testing. Nature Genetics, 11, 364.
36. Goffman, E. (1959). The presentation of self in everyday life. New York; Doubleday Anchor Books.
37. Gollop, C.J. (1997). Health information seeking in older African American women. Bulletin of the Medical Library Association, 85, 141-146.
38. Greendale, K., & Pyeritz, R.E. (2001). Empowering primary care health professionals in medical genetics: How soon? How fast? How far? American Journal of Medical Genetics, 106, 223-232.
39. Haug, J.D. (1997). Physicians' preferences for information sources: A meta analytic study. Bulletin of the Medical Library Association, 85(3), 223-232.
40. Health Forum Journal. (1995). Consumer health informatics. Health Forum Journal, 38(1), 28-32.
41. Hietala, M., Hakonen, A., Aro, A.R., Niemela, P., Peltonen, L., & Aula, P. (1995). Attitudes toward genetic testing among the general population and relatives of patients with a severe genetic disease: A survey from Finland. American Journal of Human Genetics, 56, 1493-1500.
42. Jadad, A.R., & Gagliardi, A. (1998). Rating health information on the Internet: Navigating to knowledge or to Babel? Journal of the American Medical Association, 279, 611-614.
43. Johnson, J.D. (1996). Information seeking: An organizational dilemma. Westport, CT: Quorum Books.
44. Johnson, J.D. (1997). Cancer-related information seeking. Cresskill, NJ: Hampton Press.
45. Johnson, J.D., Andrews, J.E., & Allard, S.L. (2001). A model for understanding and affecting genetics information seeking. Library & Information Science Research, 23, 335-349.
46. Johnson, J.D., Andrews, J.E., Case, D.O., & Allard, S.L. (2003, May). Genomics: The perfect information seeking problem. Paper presented to the 53rd Annual Meeting of the International Communication Association (ICA), San Diego, CA.
47. Johnson, J.D., & Meischke, H. (1992). Mass media channels: Women's evaluations for cancer-related information. Newspaper Research Journal, 13, 146-159.
48. Katz, E. (1987). Communications research since Lazarsfeld. Public Opinion Quarterly, 51, 525-545.
49. Katz, E., & Lazersfeld, P. (1955). Personal influence: The part played by people in the flow of mass communications. Glencoe, IL: The Free Press.
50. Katz, E., & Lazersfeld, P. (1957). The two-step flow of communication: An up-to-date report on an hypothesis. Public Opinion Quarterly, 21, 61-78.
51. Kaye, B.K., & Johnson, T.J. (2003). From here to obscurity?: Media substitution theory and traditional media in an on-line world. Journal of the American Society for Information Science and Technology, 54(3), 260-273.
52. Kreps, G. (1991). The pervasive role of information in health and health care: Implications for health communication policy. In J.A. Anderson (Ed.), Communication Yearbook (Vol. 11, pp. 238-276). Newbury Park: Sage Publications.
53. Kristof, N.D. (2003, February 19). Staying alive, staying human. The New York Times, Section A, p. 29.
54. Lazarus, R.S., & Folkman, S. (1984). Coping and adaptation. In W.D. Gentry (Ed.), The handbook of behavioral medicine. New York: Guilford.
55. Lazersfeld, P.F., Berelson, B., & Gaudet, H. (1948). The people's choice (2nd ed.). New York: Columbia University Press.
56. Lenz, E.R. (1984). Information seeking: A component of client decisions and health behavior. Advances in Nursing Science, 6, 59-72.
57. Lerman, C., Hughes, C., Trock, B.J., Myers, R.E., Main, D., Bonney, A., Abbaszadegan, M.R., Harty, A.E., Franklin, B.A., Lynch, J.F., & Lynch, H.T. (1999). Genetic testing in families with hereditary nonpolyposis colon cancer. Journal of American Medical Association, 281 (17), 1618-1622.
58. Lerman, C., Rimer, B., & Engstrom, P.F. (1989). Reducing avoidable cancer mortality through prevention and early detection regimens. Cancer Research, 19, 279-290.
59. Manfredi, C., Czaja, R., Buis, M., & Derk, D. (1993). Patient use of treatment-related information received from the Cancer Information Service. Cancer, 71, 1326-1337.
60. McClung, H.J., Murray, R.D., & Heitlinger, L.A. (1998). The Internet as a source for current patient information. Pediatrics, 101(6), E2.
61. McGuire, W.J. (1986). The myth of massive media impact: Savagings and salvagings. In G. Comstock (Ed.), Public communication and behavior (Vol. 1, pp. 173-257). New York: Academic Press.
62. Miller, S.M. (1979). Controllability and human stress: Method, evidence and theory. Behavior Research and Therapy, 17, 287-304.
63. Miller, S.M. (1995). Monitoring versus blunting styles of coping with cancer influence the information patients want and need about their disease. Cancer, 76, 167-177.
64. Muha, C., Smith, K.S., Baum, S., Ter Maat, J., & Ward, J.A. (1998). The use and selection of sources in information seeking: The Cancer Information Service experience. Part 8. Journal of Health Communication, 3, 109-120.
65. Okada, N. (1986). The process of mass communication: A review of studies of the two-step flow of communication hypothesis. Studies of Broadcasting, 22, 57-78.
66. Palmour, V., Rathbun, P., Brown, W., Dervin, B., & Dowd, P. (1979). Information needs of Californians. Rockville, MD: King Research.
67. Pescosolido, B. (1992). Beyond rational choice: The social dynamics of how people seek help. American Journal of Sociology, 97(4), 1096-1138.
68. Pew. (2000. November). The online health care revolution: How the Web helps Americans take better care of themselves. Pew Foundation, Internet and American Life Project. Retrieved March 28, 2003, from www. pewinternet.org/ reports
69. Pew. (2002, May). Vital decisions: How Internet users decide what information to trust when they or their loved ones are sick. Pew Foundation, Internet and American Life Project. Retrieved March 28, 2003, from www.pewinternet.org/reports
70. Reagan, J. (1996). The "repertoire" of information sources. Journal of Broadcasting & Electronic Media, 40, 112-121.
71. Reagan, J., & Collins, J. (1987). Sources for health care information in two small communities. Journalism Quarterly, 64, 560-563, 676.
72. Rice, R.E., & Katz, J.E. (Eds.) (2001). The Interent and health communication: Experiences and expectations. Thousand Oaks, CA: Sage Publications.
73. Rothstein, M.A. (Ed.) (1997). Genetic secrets: Protecting privacy and confidentiality in the genetic era. New Haven, CT: Yale University Press.
74. Shapiro, A.L., & Shapiro, R.C. (1999). The control revolution: How the Internet is putting individuals in charge and changing the world we know. New York: Public Affairs.
75. Silberg, W.M., Lundberg, G.D., & Musacchio, R.A. (1997). Assessing, controlling, and assuring the quality of medical information on the Internet. Caveat lector et viewor - Let the reader and viewer beware. Journal of the American Medical Association, 227, 1244-145.
76. Sligo, F.X., & Jameson, A.M. (2000). The knowledge-behavior gap in use of health information. Journal of the American Society for Information Science, 51, 858-869.
77. Stopfer, J.E. (2000). Genetic counseling and clinical cancer genetics services. Seminars in Surgical Oncology, 18, 347-357.
78. UCLA. (2003). UCLA Internet Report: Surveying the digital future. Los Angeles: Anderson Graduate School of Management, University of California. Retrieved January 31, 2003, from http://www.ccp.ucla.edu
79. Warner, E., Murray, A.D., & Palmour, V.E. (1973). Information needs of urban citizens, final report. Washington, DC: U.S. Department of Health, Education and Welfare, Office of Education, Bureau of Libraries and Learning Resources.
80. Wathen, C.N., & Burkell, J. (2002). Believe it or not: Factors influencing credibility on the Web. Journal of the American Society for Information Science and Technology, 53(2), 134-144.
81. White, M.D. (2000). Questioning behavior on a consumer health electronic list. Library Quarterly, 70, 302-334.
82. Widman, L.E., & Tong, D.A. (1997). Requests for medical advice from patients and families to health care providers who publish on the World Wide Web. Archives of Internal Medicine, 157, 209-212.
83. Williams, F., Dordick, H., & Horstmann, F. (1977). Where citizens go for information. Journal of Communication, 27, 95-100.
84. Winkler, M.A., Flanagin, A., Chi-Lum, B., White, J., Andrews, K., Kennett, R.L., DeAngelis, C.D., & Musacchio, R.A. (2000). Guidelines for medical and health information sites on the Internet: Principles governing AMA Web sites. Journal of the American Medical Association, 283, 1600-1606.