Quality-of-life assessment in pediatric brain tumor patients and survivors: Lessons learned and challenges to face

Journal of Clinical Oncology

Volumn 23, Issue 24, 2005, Pages 5424-5426

  Tao, May Lin ^a   Parsons, Susan K ^a  

^a UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ACUTE LYMPHOCYTIC LEUKEMIA; BRAIN CANCER; CANCER CLASSIFICATION; CANCER GROWTH; CANCER LOCALIZATION; CANCER RESEARCH; CANCER SCREENING; CANCER SURVIVAL; CANCER SUSCEPTIBILITY; CELL HETEROGENEITY; CLINICAL FEATURE; COGNITIVE DEFECT; EDITORIAL; HEALTH CARE PERSONNEL; HUMAN; INFORMATION PROCESSING; LEARNING; MEDICAL EDUCATION; MEDICAL LITERATURE; OUTCOME ASSESSMENT; PREVALENCE; PRIORITY JOURNAL; PSYCHOMETRY; QUALITY OF LIFE; QUESTIONNAIRE; SELF REPORT; BRAIN TUMOR; CHILD; NOTE; PATHOPHYSIOLOGY; PSYCHOLOGICAL ASPECT; SICKNESS IMPACT PROFILE;

BRAIN NEOPLASMS; CHILD; HUMANS; QUALITY OF LIFE; QUESTIONNAIRES; SICKNESS IMPACT PROFILE;

EID: 24944473564     PISSN: 0732183X     EISSN: None     Source Type: Journal    
DOI: 10.1200/JCO.2005.05.906     Document Type: Editorial

References (11)

1. Bhat SR, Goodwin TL, Burwinkle TM, et al: Profile of daily life in children with brain tumors: An assessment of health-related quality of life. J Clin Oncol 23:5493-5500, 2005
2. Varni JW, Katz ER, Seid M, et al: The pediatric cancer quality of life inventory-32 (PCQL-32): I. Reliability and validity. Cancer 82:1184-1196, 1998
3. Varni JW, Burwinkle TM, Katz ER, et al: The PedsQL in pediatric cancer: Reliability and validity of the Pediatric Quality of Life Inventory generic core scales, multidimensional fatigue scale, and cancer module. Cancer 94:2090-2106, 2002
4. Eiser C, Vance YH, Horne B, et al: The value of the PEdsQLTM in assessing quality of life in survivors of childhood cancer. Child Care Health Dev 29:95-102, 2003
5. Grootendorst PV, Feeny DH, Furlong W: Does it matter whom and how you ask? Inter- and intra-rater agreement in the Ontario Health Survey. J Clin Epidemiol 50:127-135, 1997
6. Parsons SJ, Mayer DK: Health-related quality of life in hematologic disease. Hematol Oncol Clin North Am 18:1235-1248, 2004
7. Litwin MS, Hays RD, Fink A, et al: Quality-of-life outcomes in men treated for localized prostate cancer. JAMA 273:129-135, 1995
8. Ganz PA, Rowland JH, Desmond K, et al: Life after breast cancer: Understanding women's health-related quality of life and sexual functioning. J Clin Oncol 16:501-514, 1998
9. Tao ML, Masterman-Smith M, Garvie PA, et al: Quality of life assessment (QUOLA) in pediatric brain tumor population: Feasibility and measurement properties of a new brain-specific instrument. Presentation at the 11th International Symposium on Pediatric Neuro-oncology, Boston. Neurooncology 6:448, 2004
10. Garvie PA, O'Leary TE, Tao ML, et al. The role of cognitive interviewing in pediatric questionnaire development: Are we asking what we think we are asking? Presented at the 23rd Annual Meeting for the Society of Behavioral Medicine, April 2002, Washington, DC
11. Landgraf JM. Measuring health-related quality of life in pediatric oncology patients: A brief commentary on the state of the art of measurement and application. Int J Cancer Suppl 12:147-150, 1999