Medication practice and feminist thought: A theoretical and ethical response to adherence in HIV/AIDS

Bioethics

Volumn 19, Issue 4, 2005, Pages 362-378

  Broyles, Lauren Matukaitis ^a   Colbert, Alison M ^a   Erlen, Judith A ^a  

^a 440 Victoria Building ^*  (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ANTIVIRUS AGENT;

ACQUIRED IMMUNE DEFICIENCY SYNDROME; COCHRANE LIBRARY; DOCTOR PATIENT RELATION; DRUG SELF ADMINISTRATION; FINANCIAL MANAGEMENT; HEALTH CARE COST; HEALTH CARE DELIVERY; HEALTH CARE POLICY; HEALTH INSURANCE; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; MEDICAL ETHICS; MEDICAL PRACTICE; MORBIDITY; MORTALITY; PATIENT COMPLIANCE; REVIEW; SOCIOECONOMICS;

ANALYTICAL APPROACH; HEALTH CARE AND PUBLIC HEALTH;

ANTI-HIV AGENTS; DIRECTLY OBSERVED THERAPY; DRUG THERAPY; FEMINISM; HIV INFECTIONS; HUMANS; MODELS, THEORETICAL; PATERNALISM; PATIENT COMPLIANCE; PERSONAL AUTONOMY; PROFESSIONAL-PATIENT RELATIONS; SOCIAL RESPONSIBILITY;

EID: 23944521162     PISSN: 02699702     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1467-8519.2005.00449.x     Document Type: Review

References (110)

1. Author to whom correspondence should be addressed. 2 D.L. Sackett. 1976. Introduction. In Compliance with Therapeutic Regimens. D.L. Sackett & R.B. Haynes, eds. Baltimore, MD. Johns Hopkins University Press: 1.
2. R. Hogg et al. Decline in Deaths from AIDS Due to New Antiretrovirals. Lancet 1997; 349: 1294;
3. F. Palella et al. Declining Morbidity and Mortality Among Patients with Advanced Human Immunodeficiency Virus Infection. NEJM 1998; 338: 853-860.
4. Hogg et al. op. cit. note 3;
5. Palella, op. cit. note 3;
6. D. Paterson et al. Adherence to Protease Inhibitor Therapy and Outcomes in Patients with HIV Infection. Ann Intern Med 2000; 133: 21-30;
7. A.A. Howard et al. A prospective study of adherence and viral load in a large multi-center cohort of HIV-infected women. AIDS 2002; 16: 2175-2182;
8. G. Lucas, R.E. Chaisson & R.D. Moore. Highly Active Antiretroviral Therapy in a Large Urban Clinic: Risk Factors for Virologic Failure and Adverse Drug Reactions. Ann Intern Med 1999; 131: 81-87.
9. B. Lerner, R.M. Gulick & N.B. Dubler. Rethinking Nonadherence: Historical Perspectives on Triple-Drug Therapy for HIV Disease. Ann Intern Med 1998; 129: 573-578;
10. P. Nieuwkerk, M.A. Sprangers, D.A. Burger, R.M. Hoetelmans, P.W. Hugen, S.A. Danner, M.E. van der Ende et al. Limited Patient Adherence to Highly Active Antiretroviral Therapy for HIV-1 Infection in an Observational Cohort Study. Arch Intern Med 2001; 161: 1962-1968;
11. M. Wainberg & G. Friedland. Public Health Implications of Antiretroviral Therapy and HIV Drug Resistance. JAMA 1998; 279: 1977-1983.
12. G. Lucas et al., op. cit. note 4;
13. M. Chesney. Factors Affecting Adherence to Antiretroviral Therapy. Clin Infect Dis 2000; 30: S171-S176;
14. J.S. Tucker et al. Psychosocial Mediators of Antiretroviral Nonadherence in HIV-positive Adults with Substance Use and Mental Health Problems. Health Psychol 2004; 23: 363-370.
15. S. Friedman, M.A. Wainberg & E. Drucker. Therapeutic Ethics and Communities at Risk in the Presence of Potential Mutation to Resistant Strains to HIV Antiviral Medications. AIDS 1998;12: 2089-2093;
16. M. Senak. Predicting Antiviral Compliance: Physicians' Responsibilities vs. Patients' Rights. J Int Assoc Physicians AIDS Care 1997; 3: 45-48;
17. S. Sollitto, M. Mehlman, S. Youngner & M.M. Lederman. Should Physicians Withhold Highly Active Antiretroviral Therapies from HIV-AIDS Patients Who are Thought to be Poorly Adherent to Treatment? AIDS 2001; 15: 153-159;
18. S. Noring, N.N. Dubler, G. Birkhead & B. Agains. A new paradigm for HIV care: Ethical and clinical considerations. Am J Public Health 2001; 91: 690-694;
19. R. Bayer & J. Stryker. Ethical Challenges Posed by Clinical Progress in AIDS. Am J Public Health 1997; 87: 1599-1602.
20. J. Dunbar-Jacob & M.K. Mortimer-Stephens. Treatment Adherence in Chronic Disease. J Clin Epidemiol 2001; 54: S57-S60;
21. L. Fogarty, D. Roter, S. Larson, J. Burke, J. Gillespie & R. Levy. Patient Adherence to HIV Medication Regimens: A Review of Published and Abstract Reports. Patient Educ Couns 2002; 46: 93-108.
22. J. Trostle. Medical Compliance as an Ideology. Soc Sci Med 1988; 27: 1299-1308;
23. J. Playle & P. Keeley. Non-compliance and Professional Power. J Adv Nurs 1998; 27: 304-311;
24. C. Burckhardt. Ethical Issues in Compliance. Topics in Clinical Nursing 1986; 7: 9-16;
25. S. Russell, J. Daly, E. Hughes & C.O. Hoog. Nurses and 'Difficult' Patients: Negotiating Non-compliance. J Adv Nurs 2003; 43: 281-287.
26. P. Farmer et al. Community-Based Approaches to HIV Treatment in Resource-Poor Settings. Lancet 2001; 358: 404-409.
27. M.S. Stenzel, M. McKenzie, J.A. Mitty & T.P. Flanigan. Enhancing Adherence to HAART: A Pilot Program of Modified Directly Observed Therapy, AIDS Reader 2001; 11: 317-328;
28. R.M. Jasmer et al. Tuberculosis Treatment Outcomes: Directly Observed Therapy Compared with Self-Administered Therapy. Am J Respir Crit Care Med 2004; 170: 561-566.
29. G. Verma, R.E. Upshur, E. Rea & S.R. Benatar. Critical Reflections on Evidence, Ethics, and Effectiveness in the Management of Tuberculosis. BMC Med Ethics 2004; 5: E2.
30. G.M. Lucas, C.W. Flexner & R.D. Moore. Directly Administered Antiretroviral Therapy in the Treatment of HIV Infection: Benefit or Burden? AIDS Patient Care STDs 2002; 16: 527-535;
31. R. Bayer, N.N. Dubler & S. Landesman. The Dual Epidemics of Tuberculosis and AIDS: Ethical and Policy Issues in Screening and Treatment. Am J Public Health 1993; 83: 649-654.
32. J. Volmink & P. Garner. Directly Observed Therapy for Treating Tuberculosis. Cochrane Database Syst Rev 2005; 2;
33. J. Volmink & P. Garner. Interventions for Promoting Adherence to Tuberculosis Management. Cochrane Database Syst Rev 2005; 2.
34. Farmer et al., op. cit. note 10, p. 404.
35. Lucas et al., op. cit. note 12.
36. A. Amoroso, D.E. Spencer & R.R. Redfield. Improving on Success: What Treating the Urban Poor in America Can Teach Us About Improving Antiretroviral Programmes in Africa. AIDS 2004; 18: S41.
37. J. Steiner & M.A. Earnest. The Language of Medication-Taking. Ann Intern Med 2000; 132: 926-930;
38. C. Cameron. Patient Compliance: Recognition of Factors Involved and Suggestions for Promoting Compliance with Therapeutic Regimens. J Adv Nurs 1996; 24: 248;
39. D. Lowry. Issues of Noncompliance in Mental Health. J Adv Nurs 1998; 28: 280-287.
40. Trostle, op. cit. note 9.
41. Steiner & Earnest, op. cit. note 17.
42. M. Bresalier, L. Gillis, L. McClure, E. McCoy, E. Mykhalovskiy, D. Taylor & M. Webber. 2002. Making Care Visible: Antiretroviral Therapy and the Health Work of People Living with HIV/AIDS. http://hiv-cbr.net/files/1052421030/ makingcarevisible.pdf;
43. H. Wilson, S.A. Hutchinson & WL. Holzemer. Reconciling Incompatibilities: A Grounded Theory of HIV Medication Adherence and Symptom Management. Qual Health Res 2002; 12: 1309-1322;
44. R. Remien, A.E. Hirky, M.O. Johnson, L.S. Weinhardt, D. Whittier & G.M. Le. Adherence to Medication Treatment: A Qualitative Study of Facilitators and Barriers Among a Diverse sample of HIV+ Men and Women in Four US cities. AIDS Behav 2003; 7: 61-72.
45. Bresalier et al., op. cit. note 20;
46. A. Pach, F.G. Cerbone & D.R. Gerstein. A Qualitative Investigation of Antiretroviral Therapy Among Injection Drug Users. AIDS Behav 2003; 7: 87-100;
47. K. Roberts & T. Mann. Barriers to Antiretroviral Medication Adherence in HIV-infected Women. AIDS Care 2000; 12: 377-286;
48. V. Stone, J. Clarke, J. Lovell, K.A. Steger, L.R. Hirschhorn, S. Boswell et al. HIV/AIDS Patients' Perspectives on Adhering to Regimens Containing Protease Inhibitors. J Gen Intern Med 1998; 13: 586-593;
49. K. Roberts. Physician-Patient Relationships, Patient Satisfaction, and Antiretroviral Medication Adherence Among HIV-infected Adults Attending a Public Health Clinic. AIDS Patient Care STDs 2002; 16: 43-50;
50. J. Erlen & M.P. Mellors. Adherence to Combination Therapy in Persons Living with HIV: Balancing the Hardships and the Blessings. JANAC 1999;10: 75-84;
51. B. Adam, E. Maticka-Tyndale & J.J. Cohen. Adherence Practices Among People Living with HIV. AIDS Care 2003; 15: 263-274;
52. D. Murphy, K.J. Roberts, D. Hoffman, A. Molina & M.C. Lu. Barriers and Successful Strategies to Antiretroviral Adherence Among HIV-infected Monolingual Spanish-Speaking Patients. AIDS Care 2003; 15: 217-230.
53. Roberts & Mann, op. cit. note 21.
54. Adam et al., op. cit. note 21.
55. Remien et al., op. cit. note 20;
56. Pach, op. cit. note 21;
57. K. Roberts & T. Mann. Adherence to Antiretroviral Medications in HIV/AIDS Care: A Narrative Exploration of One Woman's Foray Into Intentional Nonadherence. Health Care Women Int 2003; 24: 552-564.
58. Wilson et al., op. cit. note 20;
59. Remien et al., op. cit. note 20;
60. Stone et al., op. cit. note 21.
61. Trostle, op. cit. note 9;
62. Playle & Keeley, op. cit. note 9.
63. I b i d.
64. Cameron, op. cit. note 17.
65. S. Holm. What is Wrong with Compliance? J Med Ethics 1993; 19: 108-110.
66. Playle & Keeley, op. cit. note 9;
67. J. Coy. Philosophic Aspects of Patient Noncompliance: A Critical Analysis. Topics in Geriatric Rehabilitation 1989; 4: 52-60.
68. P. Farmer. 1999. Infections and Inequalities: The Modern Plagues. Berkeley, CA. University of California Press: 59-93.
69. Pach et al., op. cit. note 21;
70. Stone et al., op. cit. note 21;
71. Murphy et al., op. cit. note 21;
72. Roberts, op. cit. note 21.
73. Roberts & Mann, op. cit. note 21;
74. G. Powell-Cope,J. White, E.J. Henkelman & B.J. Turner. Qualitative and Quantitative Assessments of HAART Adherence of Substance-Abusing Women. AIDS Care 2003; 15: 239-249;
75. M. Laws, I.B. Wilson, D.M. Bowser & S.E. Kerr. Taking Antiretroviral Therapy for HIV Infection: Learning from Patients' Stones. J Gen Intern Med 2000; 15: 848-858;
76. K. Gebo, J. Keruly & R.D. Moore. Association of Social Stress, Illicit Drug Use, and Health Beliefs with Nonadherence to Antiretroviral Therapy. J Gen Intern Med 2003; 18: 104-111.
77. Pach et al., op. cit. note 21.
78. Murphy, op. cit. note 21.
79. Pach et al., op. cit. note 21;
80. Stone et al., op. cit. note 21;
81. Roberts & Mann, op. cit. note 21.
82. P. Conrad. The Meaning of Medications: Another Look at Compliance. Soc Sci Med 1985; 20: 29-37;
83. E. Mykhalovskiy, L. McCoy & M. Bresalier. 2003. From Compliance to Medication Practice: Exploring the Health Work of People Living with HIV/AIDS. Vital Politics Conference ; London School of Economics. London, England;
84. Bresalier, op. cit. note 20.
85. Conrad, op. cit. note 37.
86. I b i d.
87. Bresalier, op cit. note 20.
88. Bresalier, op cit. note 20;
89. Mykhalovskiy, op. cit. note 37.
90. I b i d.
91. Mykhalovskiy, op. cit. note 37.
92. Bresalier, op cit. note 20;
93. Mykhalovskiy, op. cit. note 37.
94. M.B. Mahowald. 1996. On Treatment of Myopia: Feminist Standpoint Theory and Bioethics. In Feminism and Bioethics: Beyond Reproduction. S.M. Wolf, ed. New York, NY. Oxford University Press: 103.
95. P. Reed. A Treatise on Nursing Knowledge Development for the 21st Century: Beyond Postmoderism. Adv Nurs Sci 1995; 17: 70-84.
96. S.M. Wolf. 1996. Introduction: Gender and Feminism in Bioethics. In Feminism & Bioethics: Beyond Reproduction. S.M. Wolf, ed. New York, NY. Oxford University Press: 3-43.
97. N. Hartsock. 1981. Fundamental Feminism: Process and Perspective. In Building Feminist Theory: Essays from Quest. C. Bunch, ed. New York, NY. Longman: 36.
98. Reed, op. cit. note 46.
99. J. Wuest. Removing the Shackles: A Feminist Critique of Noncompliance. Nurs Outlook 1993; 41: 217-224.
100. L. Leape. Preventing Medical Accidents: Is 'Systems Analysis' the Answer? Am J Law Med 2001; 27: 145-148.
101. Am J Law Med Ibid. p. 147.
102. L. Ray. Evidence and outcomes: Agendas, Presuppositions and Power. J Adv Nurs 1999; 30: 1017-1026.
103. J Adv Nurs Ibid. p. 1022.
104. Holm, op. cit. note 29.
105. Wilson et al., op. cit. note 20.
106. H. Hamilton. 2003. Patients' Voices in the Medical World: An Exploration of Accounts of Noncompliance. In Georgetown University Round Table on Languages and Linguistics 2002 - Linguistics, Language, and the Real World: Discourse and Beyond. D. Tannen & J.E. Alatis, eds. Washington, DC. Georgetown University Press: 147-165.
107. L. Wright & A.M. Levac. The Non-Existence of Non-Compliant Families: The Influence of Humberto Maturana. J Adv Nurs 1992; 17: 913-917.
108. Pach et al., op. cit. note 21;
109. N. Murphy & M. Canales. A Critical Analysis of Compliance. Nurs Inq 2001; 8: 173-181.
110. Noring, op. cit. note 7.