Tube feeding, antibiotics, and hospitalization of nursing home residents with end-stage dementia: Perceptions of key medical decision-makers

American Journal of Alzheimer's Disease and other Dementias

Volumn 20, Issue 4, 2005, Pages 211-219

  Lacey, Debra ^a  

^a FLORIDA ATLANTIC UNIVERSITY   (United States)

Author keywords

Decision making; End stage dementia; Interventions; Nursing home care

Indexed keywords

ANTIBIOTIC AGENT;

ANTIBIOTIC THERAPY; ARTICLE; DEMENTIA; DISEASE SEVERITY; HEALTH CARE MANAGEMENT; HEALTH CARE PERSONNEL; HEALTH CARE QUALITY; HEALTH EDUCATION; HOSPITALIZATION; HUMAN; MEDICAL DECISION MAKING; NURSING HOME; PALLIATIVE THERAPY; PATIENT TRANSPORT; SOCIAL WORK; TUBE FEEDING;

EID: 23944461509     PISSN: 15333175     EISSN: None     Source Type: Journal    
DOI: 10.1177/153331750502000407     Document Type: Article

References (50)

1. Teno JM: Now is the time to embrace nursing homes as a place of care for dying persons. Innovations in End-of-Life Care. 2002; 4(2). Available online at: http://www.edc.org/lastacts.
2. Magaziner J, German P, Zimmerman SI, et al.: The prevalence of dementia in a statewide sample of new nursing home admissions aged 65 and older: Diagnosis by expert panel. Gerontologist. 2000; 40(6): 663-672.
3. Gaugler JE, Kane RL, Kane RA, et al.: Caregiving and institution- alization of cognitively impaired older people: Utilizing dynamic predictors of change. Gerontologist. 2003; 43(2): 219-229.
4. Volicer L: Management of severe Alzheimer's disease and end-of-life issues. Clin Geriatr Med. 2001; 17(2): 377-391.
5. Callahan D: Terminating life-sustaining treatment of the demented. Hastings Center Report. 1995b; 25(6): 25-31.
6. Post SG, Whitehouse PJ: The moral basis for limiting treatment: Hospice care and advanced progressive dementia. In Volicer L, Hurley A (eds.): Hospice Care for Patients with Advanced Progressive Dementia. New York: Springer Publishing Company, 1998: 117-131.
7. Shuster J: Palliative care for advanced dementia. Clin Geriatr Med. 2000; 16(2): 373-386.
8. Gillick MR: Rethinking the role of tube feeding in patients with advanced dementia. N Engl J Med. 2000; 342(3): 206-209.
9. Mitchell SL, Kiely DK, Lipsitz LA: The risk factors and impact on survival of feeding tube placement in nursing home residents with severe cognitive impairment. Arch Intern Med. 1997; 157: 327-332.
10. Hurley AC, Volicer L: Alzheimer's disease: "It's okay, Mama, if you want to go, it's okay." JAMA. 2002; 288(18): 2324-2331.
11. Amelia EJ: Decision making for tube feeding in dementia: When evidence becomes paramount. J Clin Nurs. 2003; 12: 793-795.
12. Miller SC, Gozalo P, Mor V: Outcomes and utilization for hospice and non-hospice nursing facility decedents. March 2000. Available at http://aspe.hhs.gov/daltcp/reports/oututil.htm.
13. Forbes S, Bern-Klug M, Gessert C: End-of-life decision-making for nursing home residents with dementia. J Nurs Scholar. 2000; 32(3): 251-258.
14. Lacey D: End-of-life decision-making for nursing home residents with dementia: A survey of nursing home social service staff (in press).
15. Mitchell SL: Financial incentives for placing feeding tubes in nursing home residents with advanced dementia. J Am Geriatr Soc. 2003; 51(1): 129-130.
16. Chichin ER, Zuckerman C, Olson E: A survey of treatment decision-making policies and procedures for decisionally-impaired residents in New York State nursing homes: Final report. In: 1992 Dementia Grants Program, Albany, NY: The New York State Department of Health, Bureau of Long-Term Care Services, 1994: 1-73.
17. Bern-Klug M, Ellis K: End-of-life care in nursing homes. In Berzoff J, Silverman PR (eds.): Living with Dying: A Handbook for End-of-Life Healthcare Practitioners. New York: Columbia University Press, 2004.
18. Kruzich J: Empowering organizational contexts: Patterns and predictors of perceived decision-making influence among staff in nursing homes. Gerontologist. 1995; 35(2): 207-216.
19. Lacey DB: End-of-life decision-making for people with dementia: A survey of nursing home social workers. Unpublished dissertation. Available at http://wwwlib.umi.com/dissertations/fullcit. 3076553.
20. Field MJ, Cassel CK: Approaching Death: Improving Care at the End of Life. Washington, DC: National Academy Press, 1997.
21. Kaufman SR: Intensive care, old age, and the problem of death in America. Gerontologist. 1998; 38(6): 715-725.
22. Lynn J, Arkes HR, Stevens M, et al.: Rethinking fundamental assumptions: SUPPORT's implications for future reform. J Am Geriatr Soc. 2000; 48(5): S214-S221.
23. Mezey M, Kluger M, Maislin G, et al.: Life-sustaining treatment decisions by spouses of patients with Alzheimer's disease. J Am Geriatr Soc. 1996; 44(2): 144-150.
24. Freeborne N, Lynn J, Desbiens N: Insights about dying from the SUPPORT project. J Am Geriatr Soc. 2000; 48: S199-S205.
25. Gessert CE, Mosier MC, Brown EF, et al.: Tube feeding in nursing home residents with severe and irreversible cognitive impairment. J Am Geriatr Soc. 2000; 48(12): 1593-1600.
26. Mitchell SL, Teno JM, Roy J, et al.: Clinical and organizational factors associated with feeding tube use among nursing home residents with advanced cognitive impairment. JAMA. 2004; 290(15): 73-80.
27. Saliba D, Kington R, Buchanan J, et al.: Appropriateness of the decision to transfer nursing facility residents to the hospital. J Am Geriatr Soc. 2000; 48(2): 154-163.
28. Bealieu EM: A Guide for Nursing Home Social Workers. New York: Springer Publishing Company, 2002.
29. Simard J, Volicer L: (1998). Barriers to providing hospice care for people with dementia. In Volicer L, Hurley AC (eds.): Hospice Care for Patients with Advanced Progressive Dementia. New York: Springer Publishing Company, 1998.
30. Sachs GA, Shega JW, Cox-Hayley D: Barriers to excellent end-of-life care for patients with dementia. J Gen Int Med. 2004; 19: 1057-1063.
31. Hanrahan P, Luchins DJ: Access to hospice programs in end-stage dementia: A national survey of hospice programs. J Am Geriatr Soc. 1995; 43(1): 56-59.
32. Cohen-Mansfield J, Reisberg B, Bonnema J, et al.: Staging methods for the assessment of dementia: Perspectives. J Clin Psychiatr. 1996; 57(5), 190-198.
33. McCann R: Lack of evidence about tube feeding-Food for thought. JAMA. 1999; 282(14): 1380-1381.
34. Murphy LM, Lipman TO: Percutaneous endoscopic gastrostomy does not prolong survival in patients with dementia. Arch Intern Med. 2003; 163(11): 1351-1353.
35. Finucane TE, Bynum JPW: Use of tube feeding to prevent aspiration pneumonia. Lancet. 1996; 348: 1421-1423.
36. Sanders DS, Carter MJ, D'Silva J, et al.: Survival analysis in percutaneous endoscopic gastrostomy feeding: A worse outcome in patients with dementia. Am J Gastroenterol. 2000; 95(6): 1472-1475.
37. Finucane TE, Christmas C, Travis K: Tube feeding in patients with advanced dementia. JAMA. 1999; 282(14): 1365-1370.
38. Alzheimer's Association: End-of-Life Care. Available at: http://www.alz.org/resources/factsheets/endoflifeEI.pdf.
39. Mitchell SL, Kiely DK, Hamel MB: Dying with advanced dementia in the nursing home. Arch Intern Med. 2004; 164(3): 321-326.
40. Kapp M: Quality of care and quality of life in nursing facilities: What's regulation got to do with it? Ethics Law Aging Rev. 2001; 7: 133-159.
41. Sieger CE, Arnold JF, Ahronheim JC: Refusing artificial nutrition and hydration: Does statutory law send the wrong message? J Am Geriatr Soc. 2002; 50(3): 544-550.
42. Volicer L, Brandeis GH, Hurley AC: Infections in advanced dementia. In: Volicer L, Hurley AC (eds.): Hospice Care for Patients with Advanced Progressive Dementia. New York: Springer Publishing Company, 1998.
43. van der Steen JT, Ooms ME, van der Wal G, et al.: Pneumonia: The demented patient's best friend: Discomfort after starting or withholding antibiotic treatment. J Am Geriatr Soc. 2002; 50(10): 1681-1688.
44. Morrison RS, Siu AL: Survival in end-stage dementia following acute illness. JAMA. 2000; 284(1): 47-52.
45. Travis SS, Bernard M, Dixon S, et al.: Obstacles to palliation and end-of-life care in a long-term care facility. Gerontologist. 2002; 42(3): 342-349.
46. Hegeman CR: End-of-Life Care in Nursing Homes, Final Report, April 1999-April, 2001. New York: New York State Partnership to Improve End-of-Life Care (Contract #CO 15866), 2001.
47. Cohen-Mansfield J, Lipson S: Pain in cognitively impaired nursing home residents: How well are physicians diagnosing it? J Am Geriatr Soc. 2002; 50(6): 1039-1044.
48. Cramer GW, Galer BS, Mendelson MA, et al.: A drug use evaluation of selected opioid and nonopiod analgesics in the nursing facility setting. J Am Geriatr Soc. 2000; 48: 398-404.
49. Walker L, Bradley E, Blechner B, et al.: Problems in implementing the Patient Self-Determination Act in nursing homes. J Mental Health Aging. 1998; 4(1): 83-96.
50. Happ MB, Capezuti E, Strumpf NE, et al.: Advance care planning and end-of-life care for hospitalized nursing home residents. J Am Geriatr Soc. 2002; 50(5): 829-835.