Proposed core set of outcome measures in patients with primary Sjögren's syndrome: 5 Year followup

Journal of Rheumatology

Volumn 32, Issue 8, 2005, Pages 1495-1502

  Theander, Elke ^a,b   Andersson, Sven Ingmar ^a   Manthorpe, Rolf ^a   Jacobsson, Lennart T H ^a  

^a LUND UNIVERSITY   (Sweden)

^b LUND UNIVERSITY HOSPITAL   (Sweden)

Author keywords

Longitudinal followup; Outcome measures; Quality of life; Sj gren's syndrome

Indexed keywords

COMPLEMENT; IMMUNOGLOBULIN G; RO ANTIBODY;

ADULT; AGED; ARTICLE; COHORT ANALYSIS; DRY EYE; FATIGUE; FOLLOW UP; HUMAN; MAJOR CLINICAL STUDY; OUTCOMES RESEARCH; PREDICTION; PRIORITY JOURNAL; QUALITY OF LIFE; SJOEGREN SYNDROME; STATISTICAL SIGNIFICANCE; XEROSTOMIA;

ADOLESCENT; ADRENERGIC BETA-ANTAGONISTS; ADULT; AGED; ANTIDEPRESSIVE AGENTS; AUTOANTIBODIES; COMORBIDITY; DIURETICS; DRY EYE SYNDROMES; FATIGUE; FOLLOW-UP STUDIES; HEALTH STATUS; HUMANS; IMMUNOGLOBULIN G; LONGITUDINAL STUDIES; MIDDLE AGED; PREDICTIVE VALUE OF TESTS; QUALITY OF LIFE; SEVERITY OF ILLNESS INDEX; SJOGREN'S SYNDROME; TREATMENT OUTCOME; XEROSTOMIA;

EID: 23444452578     PISSN: 0315162X     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (46)

1. Moutsopoulos HM. Sjögren's syndrome: autoimmune epithelitis. Clin Immunol Immunopathol 1994;72:162-5.
2. Ioannidis JP, Vassiliou VA, Moutsopoulos HM. Long-term risk of mortality and lymphoproliferative disease and predictive classification of primary Sjögren's syndrome. Arthritis Rheum 2002;46:741-7.
3. Theander E, Manthorpe R, Jacobsson LTH. Mortality and causes of death in primary Sjögren's syndrome. Arthritis Rheum 2004;50:1262-9.
4. Kassan SS, Thomas TL, Moutsopoulos HM, et al. Increased risk of lymphoma in sicca syndrome. Ann Intern Med 1978;89:888-92.
5. Skopouli FN, Dafni U, Ioannidis JPA, Moutsopoulos HM. Clinical evolution, and morbidity and mortality of primary Sjögren's syndrome. Semin Arthritis Rheum 2000;29:296-304.
6. Kruize AA, Hene RJ, van der Heide A, et al. Long-term followup of patients with Sjogren's syndrome. Arthritis Rheum 1996;39:297-303.
7. Kruize AA, van Bijsterveld OP, Hené RJ, et al. Long term course of tear gland function in patients with keratoconjunctivitis sicca and Sjögren's syndrome. Br J Ophthalmol 1997;81:435-8.
8. Cui G, Sugai S, Ogawa Y, Takeshita S, Masaki Y, Fukutoku M. Long-term follow-up of 43 patients with Sjögren's syndrome [Japanese]. Ryumachi 1997;37:770-80.
9. Gannot G, Lancaster HE, Fox PC. Clinical course of primary Sjogren's syndrome: salivary, oral, and serologic aspects. J Rheumatol 2000;27:1905-9.
10. Davidson BKS, Kelly CA, Griffiths ID. Primary Sjögren's syndrome in the North East of England: a long-term follow-up study. Rheumatology Oxford 1999;38:245-53.
11. Davidson BKS, Kelly CA, Griffiths ID. Ten year follow-up of pulmonary function in patients with primary Sjögren's syndrome. Ann Rheum Dis 2000;59:709-12.
12. Pertovaara M, Pukkala E, Laippala P, Miettinen A, Pasternack A. A longitudinal cohort study of Finnish patients with primary Sjögren's syndrome: clinical, immunological, and epidemiological aspects. Ann Rheum Dis 2001;60:467-72.
13. Botsios C, Ostuni P, Sfriso P, Grava C, Andretta M, Todesco S. Primary Sjogren's syndrome. A longitudinal study of 68 patients [Italian]. Recenti Prog Med 2001;92:741-6.
14. Fox RI, Robinson C, Curd J, Kozin F, Daniels T, Howell FV. Sjögren's syndrome: Suggested criteria for classification. Scand J Rheumatol 1986; Suppl 61:28-30.
15. Vitali C, Bombardieri S, Jonsson R, et al. Classification criteria for Sjögren's syndrome: a revised version of the European criteria proposed by the American-European Consensus Group. Ann Rheum Dis 2002;61:554-8.
16. Vitali C, Bombardieri S, Moutsopoulos HM, et al. Preliminary criteria for the classification of Sjögren's syndrome. Arthritis Rheum 1993;36:340-7.
17. Pillemer SR, Smith J, Fox PC, Bowman SJ. Outcome measures for Sjögren's syndrome, April 10-11, 2003, Bethesda, Maryland, USA [workshop report]. J Rheumatol 2005;32:143-9.
18. Theander E, Horrobin D, Jacobsson LTH, Manthorpe R. Gammalinolenic acid treatment of fatigue associated with primary Sjögren's syndrome. Scand J Rheumatol 2002;31:72-9.
19. Andersson SI, Manthorpe R, Theander E. Situational patterns in coping with primary Sjögren's syndrome. Psychol Health Med 2001;6:29-40.
20. Manthorpe R, Oxholm P, Prause JU, Schiödt M. The Copenhagen criteria for Sjögren's syndrome. Scand J Rheumatol 1986; Suppl 61:19-21.
21. Van Bijsterveld OP. Diagnostic tests in the sicca syndrome. Arch Ophthalmol 1969;82:10-4.
22. Navazesh M. Methods for collecting saliva. Ann NY Acad Sci 1993;694:72-7.
23. Ware JE, Sherbourne CD. The MOS 36-item short form health survey (SF-36). Med Care 1992;30:473-83.
24. Sullivan M, Karlsson J, Ware J. SF-36. Swedish manual and interpretation guide. Gothenburg: Sahlgrenska University Hospital; 1994.
25. Strombeck B, Ekdahl C, Manthorpe R, Wikström I, Jacobsson LT. Health-related quality of life in primary Sjögren's syndrome, rheumatoid arthritis and fibromyalgia compared to normal population data using SF-36. Scand J Rheumatol 2000;29:20-8.
26. Kalk WWI, Mansour K, Vissink A, et al. Oral and ocular manifestations in Sjögren's syndrome. J Rheumatol 2002;29:924-30.
27. Haga HJ. Clinical and immunological features associated with low lacrimal and salivary flow rate in patients with primary Sjögren's syndrome. J Rheumatol 2002;29:305-8.
28. Mariette X, Ravaud P, Steinfeld S, et al. Inefficacy of infliximab in primary Sjögren's syndrome. Arthritis Rheum 2004;50:1270-6.
29. Jonsson R, Kroneld U, Tarkovski A. Histologic and functional features of salivary glands in rheumatic patients with oral sicca symptoms. Scand J Rheumatol 1988;17:387-91.
30. Jonsson R, Kroneld U, Bäckman K, Magnusson B, Tarkovski A. Progression of sialadenitis in Sjögren's syndrome. Br J Rheumatol 1993;32:578-81.
31. Bron AJ. The Doyne lecture. Reflections on the tears. Eye 1997;11:583-602.
32. Kalk WWI, Vissink A, Stegenga B, Bootsma H, Nieuw Amerongen AV, Kallenberg CGM. Sialometry and sialochemistry: A noninvasive approach for diagnosing Sjögren's syndrome. Ann Rheum Dis 2002;61:137-44.
33. Pertovaara M, Hulkkonen J, Antonen J, et al. Polymorphism of the tumour necrosis factor-alpha gene at position -308 and renal manifestations of primary Sjögren's syndrome. Rheumatology Oxford 2004;43:106-7.
34. Sawalha AH, Potts R, Schmid WR, Scofield RH, Harley JB. The genetics of Sjögren's syndrome. Curr Rheumatol Rep 2003;5:324-32.
35. Cassolato SF, Turnbull RS. Xerostomia: Clinical aspects and treatment. Gerodontology 2003;20:64-77.
36. Tumilasci OR, Houssay AB, Sosto NE, Paz CV, Varela V. Thyroid hormone modulation of VIP induced salivary secretion in the submaxillary glands of rats. J Endocrinol Invest 1986;9:51-5.
37. Gilbard JP. Dry eye disorders. In: Albert DM, Jacobiec FA, editors. Principles and practice of ophthalmology. Philadelphia: W.B. Saunders; 1994:257-76.
38. James JA, Harley JB, Scofield RH. Role of viruses in systemic lupus and Sjögren's syndrome. Curr Opin Rheumatol 2001;13:370-6.
39. Figura N, Giordano N, Burroni D, et al. Sjögren's syndrome and Helicobacter pylon infection. Eur J Gastroenterol Hepatol 1994;6:321-2.
40. Bacman S, Perez Leiros C, Sterin-Borda L, Hubscher O, Arana R, Borda E. Autoantibodies against lacrimal gland M3 muscarinic acetylcholine receptor in patients with Sjögren's syndrome. Invest Ophthalmol Vis Sci 1998;39:151-6.
41. Barendregt PJ, van den Meiracker AH, Markusse HM, et al. Parasympathetic failure does not contribute to ocular dryness in primary Sjögren's syndrome. Ann Rheum Dis 1999;58:746-50.
42. Giles I, Isenberg DA. Fatigue in primary Sjögren's syndrome: Is there a link with the fibromyalgia syndrome? Ann Rheum Dis 2000;59:875-8.
43. Sirois D, Natelson B. Clinicopathological findings consistent with primary Sjögren's syndrome in a subset of patients diagnosed with chronic fatigue syndrome: Preliminary observations. J Rheumatol 2001;28:126-31.
44. Pijpe J, Kalk WWI, Vissink A. Clinical and immunological factors associated with low lacrimal and salivary flow rate in patients with primary Sjögren's syndrome [letter; reply]. J Rheumatol 2003;30:206-7.
45. Price EJ, Venables PJ. Dry eyes and mouth syndrome - a subgroup of patients presenting with sicca symptoms. Rheumatology Oxford 2002;41:416-22.
46. Cummins MJ, Papas A, Kammer GM, Fox PC. Treatment of primary Sjögren's syndrome with low-dose human interferon alfa administered by the oromucosal route: combined phase III results. Arthritis Care Res 2003;49:585-93.