Disclosure of research results to research participants: A pilot study of the needs and attitudes of adolescents and parents

Paediatrics and Child Health

Volumn 10, Issue 6, 2005, Pages 332-334

  Fernandez, Conrad Vincent ^a,b   Taweel, Shaureen ^b   Kodish, Eric D ^c   Weijer, Charles ^a  

^a DALHOUSIE UNIVERSITY   (Canada)

^b IWK HEALTH CENTRE   (Canada)

^c CASE WESTERN RESERVE UNIVERSITY   (United States)

Author keywords

Ethics; Focus group; Participants; Questionnaire; Research results

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; ATTITUDE; CHILD BEHAVIOR; CLINICAL ARTICLE; FEMALE; HUMAN; INTERVIEW; MALE; MEDICAL RESEARCH; PARENTAL BEHAVIOR; PILOT STUDY; QUESTIONNAIRE; SCHOOL CHILD;

EID: 23444438927     PISSN: 12057088     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (10)

1. Fernandez CV, Kodish E, Weijer C. Informing study participants of research results: An ethical imperative. IRB 2003;25:12-9.
2. Partridge AH, Winer EP. Informing clinical trial participants about study results. JAMA 2002;288:363-5.
3. Schulte PA. Ethical issues in the communication of results. J Clin Epidemiol 1991;44(Suppl 1):57S-61S.
4. Bunin GR, Kazak AE, Mitelman O. Informing subjects of epidemiologic study results. Children's Cancer Group. Pediatrics 1996;97:486-91.
5. Fernandez CV, Kodish E, Taweel S, Shurin S, Weijer C; Children's Oncology Group. Disclosure of the right of research participants to receive research results: An analysis of consent forms in the Children's Oncology Group. Cancer 2003;97:2904-9.
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7. Snowdon C, Garcia J, Elbourne D. Reactions of participants to the results of a randomised controlled trial: Exploratory study. BMJ 1998;317:21-6.
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10. Baker L, Wagner TH, Singer S, Bundorf MK. Use of the Internet and e-mail for health care information: Results from a national survey. JAMA 2003;289:2400-6. (Erratum in 2003;290:334)